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Original Research

Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial

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Pages 363-378 | Published online: 25 Feb 2021

References

  • Sterin J. Essay on a word: a lived experience of Alzheimer’s disease. Dementia. 2002;1(1):7–10. doi:10.1177/147130120200100103
  • Department of Health. Prime minister’s challenge on dementia 2020: implementation plan; 2016. Available from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/507981/PM_Dementia-main_acc.pdf. Accessed 225, 2019.
  • Csipke E, Yates L, Moniz-Cook E, et al. Promoting independence in dementia (PRIDE): protocol for a feasibility trial of the PRIDE intervention for living well with mild dementia. Int J Clin Trials. 2018;5(4):177–185. doi:10.18203/2349-3259.ijct20184399
  • Yates L, Csipke E, Moniz-Cook E, et al. The development of the promoting independence in dementia (PRIDE) intervention to enhance independence in dementia. Clin Interv Aging. 2019;14:1615–1630.31571842
  • Toms GR, Quinn C, Anderson DE, Clare L. Help yourself: perspectives on self-management from people with dementia and their caregivers. Qual Health Res. 2015;25(1):87–98. doi:10.1177/104973231454960425192761
  • Mountain GA, Craig CL. What should be in a self-management programme for people with early dementia? Aging Ment Health. 2012;16(5):576–583. doi:10.1080/13607863.2011.65143022360274
  • Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA. 2002;288(19):2469–2475. doi:10.1001/jama.288.19.246912435261
  • Lorig KR, Holman R. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1–7. doi:10.1207/S15324796ABM2601_0112867348
  • McDermott O, Charlesworth G, Hogervorst E, et al. Psychosocial interventions for people with dementia: a synthesis of systematic reviews. Aging Ment Health. 2018;1–11.
  • Csipke E, Moniz-Cook E, Lueng P, et al. Feasibility and acceptability evaluation of the PRIDE (promoting independence in dementia) intervention for living well with dementia. Int Psychogeriatr. 2020.
  • Shafayat A, Csipke E, Bradshaw L, et al. Promoting independence in dementia (PRIDE): protocol for a feasibility randomized controlled trial. Trials. 2019;20(1):709. doi:10.1186/s13063-019-3838-x31829232
  • Morris JC. The clinical dementia rating (CDR): current version and scoring rules. Neurology. 1993;43(11):2412–2414. doi:10.1212/WNL.43.11.2412-a
  • Moniz-Cook E, Vernooij-Dassen M, Woods R. A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging Ment Health. 2008;12(1):14–29. doi:10.1080/1360786080191985018297476
  • Dementia outcome measures: Charting new territory. JPND research. Available from: https://www.neurodegenerationresearch.eu/wp-content/uploads/2015/10/JPND-Report-Fountain.pdf. Accessed 1020, 2020.
  • Lawton MP, Brody EM. Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969;9(3 Part 1):179–186. doi:10.1093/geront/9.3_Part_1.1795349366
  • Smith SC, Lamping DL, Banerjee S. Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technol Assess. 2005;9(10):1–112. doi:10.3310/hta9100
  • EuroQoL Group. EuroQoL: a new facility for the measurement of health related quality of life. Health Policy (New York). 1990;16(3):199–208. doi:10.1016/0168-8510(90)90421-9.
  • Yesavage JA. Geriatric depression scale. Psychopharmacol Bull. 1988;24:4.3290947
  • Vertesi A, Lever JA, Molloy DW, et al. Standardized mini-mental state examination. Use and interpretation. Can Fam Physician. 2001;47:2018–2023.11723596
  • Hyde M, Wiggins RD, Higgs P, et al. Measure of quality of life in early old age: the theory, development, and properties of a needs satisfaction model (CASP-19). Aging Ment Health. 2003;7186–194. doi:10.1080/1360786031000101157
  • Hammar IO, Ekelund C, Wilhelmson K, et al. Impact on participation and autonomy: test of validity and reliability for older persons. J Health Psychol. 2014;2(3):1825. doi:10.4081/hpr.2014.1825
  • Stoner CR, Orrell M, Long M, et al. The development and preliminary psychometric properties of two positive psychology outcome measures for people with dementia: the PPOM and the EID-Q. BMC Geriatr. 2017;17(1):72. doi:10.1186/s12877-017-0468-628327088
  • Cardol M, de Haan RJ, de Jong BA, et al. Psychometric properties of the impact on participation and autonomy questionnaire. Arch Phys Med Rehabil. 2001;82(2):210–216. doi:10.1053/apmr.2001.1821811239312
  • Bell ML, Fairclough DL, Fiero MH, et al. Handling missing items in the hospital anxiety and depression scale (HADS): a simulation study. BMC Res Notes. 2006;9(1):479. doi:10.1186/s13104-016-2284-z
  • Mokkink LC, Terwee D, Patrick J, et al. COSMIN checklist manual. Amsterdam VU university medical centre 2012. Qual Life Res. 2010;19(4):539–549. doi:10.1007/s11136-010-9606-820169472
  • Lee EC, Whitehead AL, Jacques RM, et al. The statistical interpretation of pilot trials: should significance thresholds be reconsidered? BMC Med Res Methodol. 2004;14(1):41. doi:10.1186/1471-2288-14-41
  • Watson JL, Ryan L, Silverberg N, Cahan V, Bernard MA. Obstacles and opportunities in Alzheimer’s clinical trials recruitment. Health Aff. 2014;33(4):574–579. doi:10.1377/hlthaff.2013.1314
  • Clarke C, Woods B, Moniz-Cook E, et al. Measuring the wellbeing of people with dementia: a conceptual scoping review. Health Qual Life Outcomes. 2020;18(1):249. doi:10.1186/s12955-020-01440-x32709238
  • Harding A, Morbey H, Ahmed F, Opdebeeck C. A core outcome set of core non-pharmacological community based interventions for people living with dementia at home: a systematic review of outcome measurement instruments. Geront. 2020. doi:10.1093/geront/gnaa071
  • Øksnebjerg L, Diaz-Ponce A, Gove D, et al. Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: a pan-European consultation. Health Expect. 2018;21(6):1056–1065. doi:10.1111/hex.1279929920881
  • Bartels SL, van Knippenberg RJM, Malinowsky C, Verhey FRJ, de Vugt ME. Smartphone-based experience sampling in people with mild cognitive impairment: feasibility and usability study. JMIR Aging. 2020;3(2):e19852. doi:10.2196/1985233064084
  • Copay A, Subach B, Glassman S, et al. Understanding the minimum clinically important difference: a review of concepts and methods. Spine J. 2007;7(5):541–546. doi:10.1016/j.spinee.2007.01.00817448732
  • Perkins N, Schistermann E. The inconsistency of “optimal” cutpoints obtained using two criteria based on the receiver operating characteristic curve. Am J Epidemiol. 2006;163(7):670–675. doi:10.1093/aje/kwj06316410346