405
Views
2
CrossRef citations to date
0
Altmetric
ORIGINAL RESEARCH

Chronic Disease Self-Management of Post-Acute Sequelae of COVID-19 Among Older Adults: A Mixed-Methods Analysis

ORCID Icon, , , ORCID Icon & ORCID Icon
Pages 607-617 | Received 21 Nov 2022, Accepted 05 Apr 2023, Published online: 14 Apr 2023

References

  • Ceban F, Ling S, Lui LMW, et al. Fatigue and cognitive impairment in Post-COVID-19 Syndrome: a systematic review and meta-analysis. Brain Behav Immun. 2022;101:93–135. doi:10.1016/j.bbi.2021.12.020
  • Nalbandian A, Sehgal K, Gupta A, et al. Post-acute COVID-19 syndrome. Nat Med. 2021;27(4):601–615. doi:10.1038/s41591-021-01283-z
  • Groff D, Sun A, Ssentongo AE, et al. Short-term and long-term rates of postacute sequelae of SARS-CoV-2 infection: a systematic review. JAMA Network Open. 2021;4(10):e2128568–e2128568. doi:10.1001/jamanetworkopen.2021.28568
  • Department of Health and Human Services. Services and Supports for Longer-Term Impacts of COVID-19. US Department of Health and Human Services; 2022.
  • Centers for Disease Control. Post-COVID conditions: information for healthcare providers; 2022. Available from: https://www.cdc.gov/coronavirus/2019-ncov/hcp/clinical-care/post-covid-conditions.html. Accessed April 06, 2023.
  • Nurek M, Rayner C, Freyer A, et al. Recommendations for the recognition, diagnosis, and management of long COVID: a Delphi study. Br J Gen Pract. 2021;71(712):e815–e825. doi:10.3399/bjgp.2021.0265
  • Ownby RL, Acevedo A, Waldrop-Valverde D, et al. A mobile app for chronic disease self-management: protocol for a randomized controlled trial. JMIR Res Protoc. 2017;6(4):e53. doi:10.2196/resprot.7272
  • Ownby RL, Acevedo A, Waldrop-Valverde D. Enhancing the impact of mobile health literacy interventions to reduce health disparities. Q Rev Distance Educ. 2019;20(1):15–34.
  • Lorig K, Ritter PL, Ory MG, Whitelaw N. Effectiveness of a generic chronic disease self-management program for people with type 2 diabetes: a translation study. Diabetes Educ. 2013;1:453.
  • Lorig KR, Ritter P, Stewart AL, et al. Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care. 2001;39(11):1217–1223.
  • Lorig KR, Ritter PL, Laurent DD, Plant K. Internet-based chronic disease self-management: a randomized trial. Med Care. 2006;44(11):964–971. doi:10.1097/01.mlr.0000233678.80203.c1
  • Centers for Disease Control. Coronavirus Disease 2019 (COVID-19) 2020 Interim Case Definition, Approved August 5, 2020; 2020. Available from: https://ndc.services.cdc.gov/case-definitions/coronavirus-disease-2019-2020-08-05/. Accessed September 25, 2020.
  • Tinetti ME, Fried TR, Boyd CM. Designing health care for the most common chronic condition--multimorbidity. JAMA. 2012;203(23):2493–2494. doi:10.1001/jama.2012.5265
  • Harris PATR, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42(2):377–381. doi:10.1016/j.jbi.2008.08.010
  • Harris PATR, Minor BL, Elliott V, et al.; REDCap Consortium. The REDCap consortium: building an international community of software platform partners. J Biomed Inform. 2019;95(103208). doi:10.1016/j.jbi.2019.103208
  • Harris PA, Taylor R, Minor BL; The REDCap consortium, et al. Building an international community of software platform partners. J Biomed Inform. 2019;95:103208. doi:10.1016/j.jbi.2019.103208
  • Hays RD, Sherbourne CD, Mazel R. User’s Manual for the Medical Outcomes Study (MOS) Core Measures of Health-Related Quality of Life. RAND Corporation; 1995.
  • Broadbent DE, Cooper PF, FitzGerald P, Parkes KR. The Cognitive Failures Questionnaire (CFQ) and its correlates. Br J Clin Psychol. 1982;21(1):1–16. doi:10.1111/j.2044-8260.1982.tb01421.x
  • Radloff LS. The CES-D scale: a self-report depression scale for research in the general population. Appl Psychol Meas. 1977;1:385–481.
  • Chalder T, Berelowitz G, Pawlikowska T, et al. Development of a fatigue scale. J Psychosom Res. 1993;37(2):147–153. doi:10.1016/0022-3999(93)90134-2
  • Cohen S, Kamarck T, Mermelstein R. A global measure of perceived stress. J Health Social Behavior. 1983;24:385–396. doi:10.2307/2136404
  • Cella D, Riley W, Stone A, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. J Clin Epidemiol. 2010;63(11):1179–1194. doi:10.1016/j.jclinepi.2010.04.011
  • Buysse DJ, Reynolds CF 3rd, Monk TH, Berman SR, Kupfer DJ. The Pittsburgh Sleep Quality Index: a new instrument for psychiatric practice and research. Psychiatry Res. 1989;28(2):193–213. doi:10.1016/0165-1781(89)90013-9
  • Guest G, Namey E, Chen M. A simple method to assess and report thematic saturation in qualitative research. PLoS One. 2020;15(5):e0232076. doi:10.1371/journal.pone.0232076
  • Hennink M, Kaiser BN. Sample sizes for saturation in qualitative research: a systematic review of empirical tests. Soc Sci Med. 2022;292:114523. doi:10.1016/j.socscimed.2021.114523
  • Clarke V, Braun V. Using thematic analysis in counselling and psychotherapy research: a critical reflection. Counselling Psychotherapy Re. 2018;18(2):107–110. doi:10.1002/capr.12165
  • Guest G, MacQueen K, Namey E Applied thematic analysis. Sage; 2012. Available from: https://methods.sagepub.com/book/applied-thematic-analysis. Accessed April 06, 2023
  • Sedgwick P. Spearman’s rank correlation coefficient. BMJ. 2014;349:g7327. doi:10.1136/bmj.g7327
  • Hemphill JF. Interpreting the magnitudes of correlation coefficients. Am Psychol. 2003;58(1):78–79. doi:10.1037/0003-066x.58.1.78
  • Funder DC and Ozer DJ. Evaluating Effect Size in Psychological Research: Sense and Nonsense. Advances in Methods and Practices in Psychological Science. 2019;2(2):156–168. doi:10.1177/2515245919847202
  • Gignac GE and Szodorai ET. Effect size guidelines for individual differences researchers. Pers Individ Dif. 2016;102:74–78. doi:10.1016/j.paid.2016.06.069
  • Gluckman TJ, Bhave NM, Allen LA, et al. 2022 ACC expert consensus decision pathway on cardiovascular sequelae of COVID-19 in adults: myocarditis and other myocardial involvement, post-acute sequelae of SARS-CoV-2 infection, and return to play. J Am Coll Cardiol. 2022;79(17):1717–1756. doi:10.1016/j.jacc.2022.02.003
  • Brown DA, O’Brien KK. Conceptualising long COVID as an episodic health condition. BMJ Global Health. 2021;6(9):e007004. doi:10.1136/bmjgh-2021-007004
  • Eaton TL, Sevin CM, Hope AA, et al. Evolution in Care Delivery within Critical Illness Recovery Programs during the COVID-19 Pandemic: a Qualitative Study. Ann Am Thorac Soc. 2022;19(11):1900–1906. doi:10.1513/AnnalsATS.202203-255OC
  • Williamson JD, Fried LP. Characterization of older adults who attribute functional decrements to “Old Age”. J Am Geriatr Soc. 1996;44(12):1429–1434. doi:10.1111/j.1532-5415.1996.tb04066.x
  • Hurt CS, Burns A, Brown RG, Barrowclough C. Why don’t older adults with subjective memory complaints seek help? Int J Geriatr Psychiatry. 2012;27(4):394–400. doi:10.1002/gps.2731
  • Apple AC, Oddi A, Peluso MJ, et al. Risk factors and abnormal cerebrospinal fluid associate with cognitive symptoms after mild COVID-19. Ann Clin Translat Neurol. 2022;9(2):221–226. doi:10.1002/acn3.51498
  • Lamontagne SJ, Winters MF, Pizzagalli DA, Olmstead MC. Post-acute sequelae of COVID-19: evidence of mood & cognitive impairment. Brain Behav Immun Health. 2021;17:100347. doi:10.1016/j.bbih.2021.100347
  • Whiteside DM, Basso MR, Naini SM, et al. Outcomes in post-acute sequelae of COVID-19 (PASC) at 6 months post-infection Part 1: cognitive functioning. Clin Neuropsychol. 2022;36(4):806–828. doi:10.1080/13854046.2022.2030412
  • Case JB, Mackin S, Errico JM, et al. Resilience of S309 and AZD7442 monoclonal antibody treatments against infection by SARS-CoV-2 Omicron lineage strains. Nat Commun. 2022;13(1):3824. doi:10.1038/s41467-022-31615-7
  • Jacobs LG, Gourna Paleoudis E, Lesky-di bari D, et al. Persistence of symptoms and quality of life at 35 days after hospitalization for COVID-19 infection. PLoS One. 2020;15(12):e0243882. doi:10.1371/journal.pone.0243882
  • Suyanto S, Kandel S, Kemal RA, Arfianti A. The Quality of Life of Coronavirus Disease Survivors Living in Rural and Urban Area of Riau Province, Indonesia. Infect Dis Rep. 2022;14(1):33–42.
  • Brown K, Yahyouche A, Haroon S, Camaradou J, Turner G. Long COVID and self-management. Lancet. 2022;399(10322):355. doi:10.1016/s0140-6736(21)02188-7
  • Parker AM, Brigham E, Connolly B, et al. Addressing the post-acute sequelae of SARS-CoV-2 infection: a multidisciplinary model of care. Lancet Respir Med. 2021;9(11):1328–1341. doi:10.1016/s2213-2600(21)00166-1
  • Ros M, Neuwirth LS. Increasing global awareness of timely COVID-19 healthcare guidelines through FPV training tutorials: portable public health crises teaching method. Nurse Educ Today. 2020;91:104479. doi:10.1016/j.nedt.2020.104479
  • Schmeelk S, Davis A, Li Q, et al. Monitoring Symptoms of COVID-19: review of Mobile Apps. JMIR Mhealth Uhealth. 2022;10(6):e36065. doi:10.2196/36065
  • Agarwal P, Gordon D, Griffith J, et al. Assessing the quality of mobile applications in chronic disease management: a scoping review. Npj Digital Med. 2021;4(1):46. doi:10.1038/s41746-021-00410-x