Advanced search
Publication Cover
Clinical Epidemiology Volume 9, 2017 - Issue
Submit an article Journal homepage
97
Views
44
CrossRef citations to date
0
Altmetric
Original Research

Validity and completeness of rheumatoid arthritis diagnoses in the nationwide DANBIO clinical register and the Danish National Patient Registry

Else Helene Ibfelt1 Research Centre for Prevention and Health, Capital Region of Denmark, Rigshospitalet – Glostrup, DenmarkCorrespondence[email protected]
,
Jan Sørensen2 Centre of Health Economics Research, Institute of Public health, University of Southern Denmark, Odense, Denmark;3 Healthcare Outcome Research Centre, Royal College of Surgeons in Ireland, Dublin, Ireland
,
Dorte V Jensen4 DANBiO and Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet – Glostrup, Glostrup;5 Center for Rheumatology and Spine Diseases, Gentofte University Hospital, Hellerup
,
Lene Dreyer5 Center for Rheumatology and Spine Diseases, Gentofte University Hospital, Hellerup;6 The Parker Institute, Frederiksberg and Bispebjerg Hospital, Frederiksberg
,
Berit Schiøttz-Christensen7 Spine Centre of Southern Denmark, Hospital Lillebaelt, Middelfart
,
Pia H Thygesen8 Department of Rheumatology, Odense University Hospital, Odense
,
Ada Colic9 Department of Rheumatology, Sydvestjysk Sygehus, Esbjerg/Grintsted
,
Johnny L Raun10 Department of Internal Medicine and Rheumatology, SLB – Fredericia Hospital, Fredericia
,
Natalia Manilo11 Department of Rheumatology, Frederiksberg Hospital, Copenhagen
,
Anne Rødgaard4 DANBiO and Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet – Glostrup, Glostrup
,
Uta E Poulsen12 Department of Rheumatology, Gigthospital Gråsten, Gråsten
,
Claus Rasmussen13 Clinic of Internal Medicine, Rheumatology, Regionshospital Nordjylland, Hjørring
,
Torben Hansen14 Department of Rheumatology, Holbæk sygehus, Holbæk
,
Babara Unger15 Department of Internal Medicine/Rheumatology, Hospitalsenheden Horsens, Horsens
,
Randi Pelck16 Department of Rheumatology, Zealand University Hospital, Køge
,
Anita Kincses17 Department of Rheumatology, Nordsjællands Hospitaler, Hillerød
,
Henrik Nordin18 Center for Rheumatology and Spine Diseases, Centre of Head and Orthopedics, Rigshospitalet, Copenhagen
,
Tove Lorenzen19 Department of Rheumatology, Silkeborg Regional Hospital and University Clinic, Silkeborg
,
Ali Theibich20 Department of Rheumatology, Slagelse Hospital, Slagelse
,
Inger Marie Jensen Hansen21 Department of Rheumatology and University of Southern Denmark, Svendborg Hospital, Odense
,
Jakob Espesen22 Department of Internal Medicine, Vejle Hospital, Vejle
,
Jolanta Grydehøj23 Department of Rheumatology, Regional Hospital, West Jutland, Herning
,
Mette Holland-Fischer24 Department of Rheumatology, Aalborg University Hospital, Ålborg
,
Anne Gitte Loft25 Department of Rheumatology, Aarhus University Hospital, Aarhus
&
Merete Lund Hetland4 DANBiO and Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Rigshospitalet – Glostrup, Glostrup;26 Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark
 show all
Pages 627-632 | Published online: 29 Nov 2017

References

  • LeeDMWeinblattMERheumatoid arthritisLancet2001358928590391111567728
  • LøppenthinKEsbensenBAØstergaardMIbsenRKjellbergJJennumPWelfare costs in patients with rheumatoid arthritis and their partners compared with matched controls: a register-based studyClin Rheumatol201736351752527783235
  • HetlandMLJensenDVKroghNSMonitoring patients with rheumatoid arthritis in routine care: experiences from a treat-to-target strategy using the DANBIO registryClin Exp Rheumatol2014325 Suppl 85S14114624528956
  • IbfeltEHJensenDVHetlandMLThe Danish nationwide clinical register for patients with rheumatoid arthritis: DANBIOClin Epidemiol20168737742 eCollection 201627822121
  • SchmidtMSchmidtSASandegaardJLEhrensteinVPedersenLSørensenHTThe Danish National Patient Registry: a review of content, data quality, and research potentialClin Epidemiol2015744949026604824
  • PedersenMKlarlundMJacobsenSSvendsenAJFrischMValidity of rheumatoid arthritis diagnoses in the Danish National Patient RegistryEur J Epidemiol200419121097110315678789
  • DANBIO’s National Clinical Quality report 2014 report in Danish, Available from: www.danbio-online.dk2015CopenhagenAccessed September 29, 2017
  • DreyerLMellemkjærLAndersenARIncidences of overall and site specific cancers in TNFα inhibitor treated patients with rheumatoid arthritis and other arthritides – a follow-up study from the DANBIO RegistryAnn Rheum Dis2013721798222945500
  • GabayCRiekMHetlandMLEffectiveness of tocilizumab with and without synthetic disease-modifying antirheumatic drugs in rheumatoid arthritis: results from a European collaborative studyAnn Rheum Dis20167571336134226374404
  • GlintborgBSørensenIJLoftAGall departments of rheumatology in DenmarkA nationwide non-medical switch from originator inflix-imab to biosimilar CT-P13 in 802 patients with inflammatory arthritis: 1-year clinical outcomes from the DANBIO registryAnn Rheum Dis20177681426143128473425
  • HansenSMHetlandMLPedersenJØstergaardMRubakTSBjornerJBWork ability in rheumatoid arthritis patients: a register study on the prospective risk of exclusion and probability of returning to workRheumatology (Oxford)20175671135114328371921
  • HetlandMLChristensenIJTarpUAll Departments of Rheuma-tology in DenmarkDirect comparison of treatment responses, remission rates, and drug adherence in patients with rheumatoid arthritis treated with adalimumab, etanercept, or infliximab: results from eight years of surveillance of clinical practice in the nationwide Danish DANBIO registryArthritis Rheum2010621223220039405
  • World Health OrganizationInternational Statistical Classification of Diseases and Related Health Problems 10th Revision2016 Available from: http://www.who.int/classifications/icd/en/Accessed September 29, 2017
  • ArnettFCEdworthySMBlochDAThe American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritisArthritis Rheum19883133153243358796
  • HermansenMLLindhardsenJTorp-PedersenCFaurschouMJacobsenSIncidence of systemic lupus erythematosus and lupus nephritis in Denmark: a nationwide cohort studyJ Rheumatol20164371335133927134247
  • JoensenAMJensenMKOvervadKPredictive values of acute coronary syndrome discharge diagnoses differed in the Danish National Patient RegistryJ Clin Epidemiol200962218819418722087
  • ChristensenJVestergaardMOlsenJSideniusPValidation of epilepsy diagnoses in the Danish National Hospital RegisterEpilepsy Res2007752–316217017624737
  • ThomsenRWLangePHellquistBValidity and underrecording of diagnosis of COPD in the Danish National Patient RegistryRespir Med201110571063106821320769
  • WaldenlindKErikssonJKGrewinBAsklingJValidation of the rheumatoid arthritis diagnosis in the Swedish National Patient Register: a cohort study from Stockholm CountyBMC Musculoskelet Disord20141543225510838
  • WiddifieldJBombardierCBernatskySAn administrative data validation study of the accuracy of algorithms for identifying rheumatoid arthritis: the influence of the reference standard on algorithm performanceBMC Musculoskelet Disord20141521624956925
  • SundhedsstyrelsenLeddegigt - medicinsk teknologivurdering af diag-nostik og behandling (report in Danish)2002 Available from: https://www.sst.dk/da/udgivelser/2002/leddegigtAccessed September 29, 2017
  • PedersenJKKjaerNKSvendsenAJHørslev-PetersenKIncidence of rheumatoid arthritis from 1995 to 2001: impact of ascertainment from multiple sourcesRheumatol Int200929441141518853167

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.