Methods for Measuring the Time of Transfer from Pediatric to Adult Care for Chronic Conditions Using Administrative Data: A Scoping Review

References

• Michaud P-A, Suris J-C, Viner R. The Adolescent with a Chronic Condition: Epidemiology, Developmental Issues and Health Care Provision. World Health Organization; 2007.
   Google Scholar
• Peters A, Laffel L; American Diabetes Association Transitions Working G. Diabetes care for emerging adults: recommendations for transition from pediatric to adult diabetes care systems: a position statement of the American Diabetes Association, with representation by the American College of Osteopathic Family Physicians, the American Academy of Pediatrics, the American Association of Clinical Endocrinologists, the American Osteopathic Association, the Centers for Disease Control and Prevention, Children with Diabetes, The Endocrine Society, the International Society for Pediatric and Adolescent Diabetes, Juvenile Diabetes Research Foundation International, the National Diabetes Education Program, and the Pediatric Endocrine Society (formerly Lawson Wilkins Pediatric Endocrine Society). Diabetes Care. 2011;34(11):2477–2485. doi:10.2337/dc11-172322025785
   PubMed Web of Science ®Google Scholar
• White PH, Cooley WC; Transitions Clinical Report Authoring G, American Academy Of P, American Academy Of Family P, American College Of P. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2018;142(5):e20182587. doi:10.1542/peds.2018-258730348754
   PubMed Web of Science ®Google Scholar
• Blum RW, Garell D, Hodgman CH, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health. 1993;14(7):570–576. doi:10.1016/1054-139X(93)90143-D8312295
   PubMed Web of Science ®Google Scholar
• White PH, Cooley WC; Transitions Clinical Report Authoring Group; American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians. Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home. Pediatrics. 2018;142(5):e20182587. Pediatrics. 2019;143(2)
   Web of Science ®Google Scholar
• Nakhla M, Bell LE, Wafa S, Dasgupta K. Improving the transition from pediatric to adult diabetes care: the pediatric care provider’s perspective in Quebec, Canada. BMJ Open Diabetes Res Care. 2017;5(1):e000390. doi:10.1136/bmjdrc-2017-000390
   Web of Science ®Google Scholar
• Michaud S, Dasgupta K, Bell L, et al. Adult care providers’ perspectives on the transition to adult care for emerging adults with Type 1 diabetes: a cross-sectional survey. Diabet Med. 2018;35(7):846–854. doi:10.1111/dme.1362729577410
   PubMed Web of Science ®Google Scholar
• Garvey KC, Telo GH, Needleman JS, Forbes P, Finkelstein JA, Laffel LM. Health care transition in young adults with type 1 diabetes: perspectives of adult endocrinologists in the U.S. Diabetes Care. 2016;39(2):190–197. doi:10.2337/dc15-177526681724
   PubMed Web of Science ®Google Scholar
• Garvey KC, Foster NC, Agarwal S, et al. Health care transition preparation and experiences in a U.S. national sample of young adults with type 1 diabetes. Diabetes Care. 2017;40(3):317–324. doi:10.2337/dc16-172928007779
   PubMed Web of Science ®Google Scholar
• A Guideline for Transition from Paediatric to Adult Health Care for Youth with Special Health Care Needs: A National Approach. Canadian Association of Paediatric Health Centres (CAPHC); 2016.
   Google Scholar
• Arnett JJ. Emerging adulthood. A theory of development from the late teens through the twenties. Am Psychol. 2000;55(5):469–480. doi:10.1037/0003-066X.55.5.46910842426
   PubMed Web of Science ®Google Scholar
• Garvey KC, Wolpert HA, Rhodes ET, et al. Health care transition in patients with type 1 diabetes: young adult experiences and relationship to glycemic control. Diabetes Care. 2012;35(8):1716–1722. doi:10.2337/dc11-243422699289
   PubMed Web of Science ®Google Scholar
• Nakhla M, Daneman D, To T, Paradis G, Guttmann A. Transition to adult care for youths with diabetes mellitus: findings from a Universal Health Care System. Pediatrics. 2009;124(6):e1134–e1141. doi:10.1542/peds.2009-004119933731
   PubMed Web of Science ®Google Scholar
• Lotstein DS, Seid M, Klingensmith G, et al. Transition from pediatric to adult care for youth diagnosed with type 1 diabetes in adolescence. Pediatrics. 2013;131(4):e1062–e1070. doi:10.1542/peds.2012-145023530167
   PubMed Web of Science ®Google Scholar
• Shulman R, Shah BR, Fu L, Chafe R, Guttmann A. Diabetes transition care and adverse events: a population-based cohort study in Ontario, Canada. Diabet Med. 2018;35(11):1515–1522. doi:10.1111/dme.1378230022524
   PubMed Web of Science ®Google Scholar
• Gabriel P, McManus M, Rogers K, White P. Outcome evidence for structured pediatric to adult health care transition interventions: a systematic review. J Pediatr. 2017;188:263–269 e215. doi:10.1016/j.jpeds.2017.05.06628668449
   PubMed Web of Science ®Google Scholar
• Schultz AT, Smaldone A. Components of interventions that improve transitions to adult care for adolescents with type 1 diabetes. J Adolesc Health. 2017;60(2):133–146. doi:10.1016/j.jadohealth.2016.10.00227939878
   PubMed Web of Science ®Google Scholar
• Bhawra J, Toulany A, Cohen E, Moore Hepburn C, Guttmann A. Primary care interventions to improve transition of youth with chronic health conditions from paediatric to adult healthcare: a systematic review. BMJ Open. 2016;6(5):e011871. doi:10.1136/bmjopen-2016-011871
   PubMed Web of Science ®Google Scholar
• Crowley R, Wolfe I, Lock K, McKee M. Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child. 2011;96(6):548–553. doi:10.1136/adc.2010.20247321388969
   PubMed Web of Science ®Google Scholar
• Colquhoun HL, Levac D, O’Brien KK, et al. Scoping reviews: time for clarity in definition, methods, and reporting. J Clin Epidemiol. 2014;67(12):1291–1294. doi:10.1016/j.jclinepi.2014.03.01325034198
   PubMed Web of Science ®Google Scholar
• Bollegala N, Benchimol EI, Griffiths AM, et al. Characterizing the posttransfer period among patients with pediatric onset IBD: the impact of academic versus community adult care on emergent health resource utilization. Inflamm Bowel Dis. 2017;23(9):1483–1491. doi:10.1097/MIB.000000000000120028816756
   PubMed Web of Science ®Google Scholar
• Hale D, Hargreaves DS. Predictors and outcomes of successful transition in diabetes: a national study of system performance using routine hospital administrative data. Arch Dis Child. 2017;102(Supplement 1):A61–A62.
   Google Scholar
• Mannion ML, Xie F, Baddley J, et al. Analysis of health care claims during the peri-transfer stage of transition from pediatric to adult care among juvenile idiopathic arthritis patients. Pediatr Rheumatol Online J. 2016;14(1):49. doi:10.1186/s12969-016-0107-327596158
   PubMed Web of Science ®Google Scholar
• Wisk LE, Finkelstein JA, Sawicki GS, et al. Predictors of timing of transfer from pediatric- to adult-focused primary care. JAMA Pediatr. 2015;169(6):e150951. doi:10.1001/jamapediatrics.2015.095126030515
   PubMed Web of Science ®Google Scholar
• Zhao X, Bjerre LM, Nguyen GC, et al. Health services use during transition from pediatric to adult care for inflammatory bowel disease: a population-based study using health administrative data. J Pediatr. 2018;203:280–287.e284. doi:10.1016/j.jpeds.2018.08.02130266506
   PubMed Web of Science ®Google Scholar
• Blinder MA, Duh MS, Sasane M, Trahey A, Paley C, Vekeman F. Age-related emergency department reliance in patients with sickle cell disease. J Emerg Med. 2015;49(4):513–522.e511. doi:10.1016/j.jemermed.2014.12.08025910824
   PubMed Web of Science ®Google Scholar
• Cohen E, Gandhi S, Toulany A, et al. Health care use during transfer to adult care among youth with chronic conditions. Pediatrics. 2016;137(3):e20152734. doi:10.1542/peds.2015-273426933203
   PubMed Web of Science ®Google Scholar
• Dickerson AK, Klima J, Rhodes MM, O’Brien SH. Young adults with SCD in US children’s hospitals: are they different from adolescents? Pediatr Blood Cancer. 2012;58(5):741–745. doi:10.1002/pbc.2326221796763
   PubMed Web of Science ®Google Scholar
• Reilly NR, Green PHR, Ludvigsson JF. No difference in emergency department visits before and after transition for coeliac disease. Gut. 2017;66(11):2039–2040. doi:10.1136/gutjnl-2017-31388228232474
   PubMed Web of Science ®Google Scholar
• Singh A, Yan K, Brandow AM, Panepinto JA. Longitudinal trend in emergency department reliance for pain among sickle cell disease patients in wisconsin. Blood Conf. 2017;130(Supplement 1):128.
   Google Scholar
• Toulany A, Stukel TA, Kurdyak P, Fu L, Guttmann A. Association of primary care continuity with outcomes following transition to adult care for adolescents with severe mental illness. JAMA Network Open. 2019;2(8):e198415. doi:10.1001/jamanetworkopen.2019.841531373654
   PubMed Web of Science ®Google Scholar
• Wijlaars L, Hardelid P, Guttmann A, Gilbert R. Emergency admissions and long-term conditions during transition from paediatric to adult care: a cross-sectional study using hospital episode statistics data. BMJ Open. 2018;8(6):e021015. doi:10.1136/bmjopen-2017-021015
   PubMed Web of Science ®Google Scholar
• Lawrence JM, Sidell M, Li X, Desai J, O’Connor PJ, Schmittdiel JA. Timing and impact of transition from pediatric to adult care on glycemic control among adolescents and young adults with diabetes: results from the SUPREME-DM pilot study. Pediatr Diabetes. 2014;19:93–94.
   Google Scholar
• Got transition? Tools: six core elements of health care transition and health care transition index; 2014 Accessed 2015.
   Google Scholar