Validation of the Chinese Version of the Shame and Stigma Scale in Patients with Head and Neck Cancer

References

• Bray F, Ferlay J, Soerjomataram I, Siegel RL, Torre LA, Jemal A. Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA Cancer J Clin. 2018;68:394–424. doi:10.3322/caac.v68.630207593
   PubMed Web of Science ®Google Scholar
• Health Promotion Administration MoHaW, Taiwan. Taiwan Cancer RegistryTaiwan Cancer Registry Annual Report 2016. 2018.
   Google Scholar
• Pezzuto F, Buonaguro L, Caponigro F, et al. Update on head and neck cancer: current knowledge on epidemiology, risk factors, molecular features and novel therapies. Oncology. 2015;89:125–136. doi:10.1159/00038171725967534
   PubMed Web of Science ®Google Scholar
• Guha N, Warnakulasuriya S, Vlaanderen J, Straif K. Betel quid chewing and the risk of oral and oropharyngeal cancers: a meta-analysis with implications for cancer control. Int J Cancer. 2014;135:1433–1443. doi:10.1002/ijc.v135.624302487
   PubMed Web of Science ®Google Scholar
• Sehlen S, Lenk M, Herschbach P, et al. Depressive symptoms during and after radiotherapy for head and neck cancer. Head Neck. 2003;25:1004–1018. doi:10.1002/hed.v25:1214648859
   PubMed Web of Science ®Google Scholar
• Krebber AM, Buffart LM, Kleijn G, et al. Prevalence of depression in cancer patients: a meta-analysis of diagnostic interviews and self-report instruments. Psychooncology. 2014;23:121–130. doi:10.1002/pon.340924105788
   PubMed Web of Science ®Google Scholar
• Kim SA, Roh JL, Lee SA, et al. Pretreatment depression as a prognostic indicator of survival and nutritional status in patients with head and neck cancer. Cancer. 2016;122:131–140. doi:10.1002/cncr.2969326371775
   PubMedGoogle Scholar
• Rusch N, Angermeyer MC, Corrigan PW. Mental illness stigma: concepts, consequences, and initiatives to reduce stigma. Eur Psychiatry. 2005;20:529–539. doi:10.1016/j.eurpsy.2005.04.00416171984
   PubMed Web of Science ®Google Scholar
• Daher M. Cultural beliefs and values in cancer patients. Ann Oncol. 2012;23(Suppl 3 ):66–69. doi:10.1093/annonc/mds09122628419
   PubMedGoogle Scholar
• Hsu W-L, Yu K, Chiang C-J, Chen T-C, Wang C-P. Head and neck cancer incidence trends in Taiwan, 1980 ~ 2014. Int J Head Neck Sci 2017.
   Google Scholar
• Costa EF, Nogueira TE, de Souza Lima NC, Mendonca EF, Leles CR. A qualitative study of the dimensions of patients’ perceptions of facial disfigurement after head and neck cancer surgery. Spec Care Dentist. 2014;34:114–121. doi:10.1111/scd.1203924712505
   PubMedGoogle Scholar
• Threader J, McCormack L. Cancer-related trauma, stigma and growth: the ‘lived’ experience of head and neck cancer. Eur J Cancer Care (Engl). 2016;25:157–169. doi:10.1111/ecc.1232025899673
   PubMed Web of Science ®Google Scholar
• Dropkin MJ. Body image and quality of life after head and neck cancer surgery. Cancer Pract. 1999;7:309–313. doi:10.1046/j.1523-5394.1999.76006.x10732529
   PubMedGoogle Scholar
• Fingeret MC, Teo I, Goettsch K. Body image: a critical psychosocial issue for patients with head and neck cancer. Curr Oncol Rep. 2015;17:422. doi:10.1007/s11912-014-0422-025416316
   PubMed Web of Science ®Google Scholar
• Vickery LE, Latchford G, Hewison J, Bellew M, Feber T. The impact of head and neck cancer and facial disfigurement on the quality of life of patients and their partners. Head Neck. 2003;25:289–296. doi:10.1002/(ISSN)1097-034712658733
   PubMed Web of Science ®Google Scholar
• Katz MR, Irish JC, Devins GM, Rodin GM, Gullane PJ. Psychosocial adjustment in head and neck cancer: the impact of disfigurement, gender and social support. Head Neck. 2003;25:103–112. doi:10.1002/(ISSN)1097-034712509792
   PubMed Web of Science ®Google Scholar
• Kissane DW, Patel SG, Baser RE, et al. Preliminary evaluation of the reliability and validity of the shame and stigma scale in head and neck cancer. Head Neck. 2013;35:172–183. doi:10.1002/hed.v35.222368160
   PubMed Web of Science ®Google Scholar
• Pirola WE, Paiva BSR, Barroso EM, Kissane DW, Serrano C, Paiva CE. Translation and cultural adaptation of the Shame and Stigma Scale (SSS) into Portuguese (Brazil) to evaluate patients with head and neck cancer. Braz J Otorhinolaryngol. 2017;83:697–704. doi:10.1016/j.bjorl.2016.10.00527889257
   PubMed Web of Science ®Google Scholar
• Lee Y, Yang MJ, Lai TJ, Chiu NM, Chau TT. Development of the Taiwanese depression questionnaire. Chang Gung Med J. 2000;23:688–694.11190378
   PubMedGoogle Scholar
• Lee Y, Lin PY, Hsu ST, Cing-Chi Y, Yang LC, Wen JK. Comparing the use of the Taiwanese depression questionnaire and beck depression inventory for screening depression in patients with chronic pain. Chang Gung Med J. 2008;31:369–377.18935795
   PubMedGoogle Scholar
• Lee Y, Wu YS, Chien CY, Fang FM, Hung CF. Use of the hospital anxiety and depression scale and the Taiwanese depression questionnaire for screening depression in head and neck cancer patients in Taiwan. Neuropsychiatr Dis Treat. 2016;12:2649–2657. doi:10.2147/NDT.S11206927789953
   PubMed Web of Science ®Google Scholar
• Hamilton M. A rating scale for depression. J Neurol Neurosurg Psychiatry. 1960;23:56–62. doi:10.1136/jnnp.23.1.5614399272
   PubMed Web of Science ®Google Scholar
• Zheng YP, Zhao JP, Phillips M, et al. Validity and reliability of the Chinese Hamilton depression rating scale. Br J Psychiatry. 1988;152:660–664. doi:10.1192/bjp.152.5.6603167442
   PubMed Web of Science ®Google Scholar
• Hamilton M. The assessment of anxiety states by rating. Br J Med Psychol. 1959;32:50–55. doi:10.1111/papt.1959.32.issue-113638508
   PubMed Web of Science ®Google Scholar
• Maier W, Buller R, Philipp M, Heuser I. The Hamilton anxiety scale: reliability, validity and sensitivity to change in anxiety and depressive disorders. J Affect Disord. 1988;14:61–68. doi:10.1016/0165-0327(88)90072-92963053
   PubMed Web of Science ®Google Scholar
• Weiss MG, Doongaji DR, Siddhartha S; The Explanatory Model Interview Catalogue (EMIC), et al. Contribution to cross-cultural research methods from a study of leprosy and mental health. Br J Psychiatry. 160;1992:819–830. doi:10.1192/bjp.160.6.8191617366
   PubMed Web of Science ®Google Scholar
• van Brakel WH, Cataldo J, Grover S, et al. Out of the silos: identifying cross-cutting features of health-related stigma to advance measurement and intervention. BMC Med. 2019;17:13. doi:10.1186/s12916-018-1245-x30764817
   PubMed Web of Science ®Google Scholar
• Ackumey MM, Gyapong M, Pappoe M, Weiss MG. Help-seeking for pre-ulcer and ulcer conditions of Mycobacterium ulcerans disease (Buruli ulcer) in Ghana. Am J Trop Med Hyg. 2011;85:1106–1113. doi:10.4269/ajtmh.2011.11-042922144453
   PubMed Web of Science ®Google Scholar
• Weiss MG. Cultural epidemiology: an introduction and overview. Anthropol Med. 2001;8:5–29. doi:10.1080/13648470120070980
   Google Scholar
• Bland JM, Altman DG. Cronbach’s alpha. BMJ. 1997;314:572. doi:10.1136/bmj.314.7080.5729055718
   PubMed Web of Science ®Google Scholar
• Koo TK, Li MY. A guideline of selecting and reporting intraclass correlation coefficients for reliability research. J Chiropr Med. 2016;15:155–163. doi:10.1016/j.jcm.2016.02.01227330520
   PubMed Web of Science ®Google Scholar
• Hair JF, Black B, Babin B, Anderson RE, Tatham RL. Multivariate Data Analysis. 6th ed. Pearson; 1992.
   Google Scholar
• Ko YC, Chiang TA, Chang SJ, Hsieh SF. Prevalence of betel quid chewing habit in Taiwan and related sociodemographic factors. J Oral Pathol Med. 1992;21:261–264. doi:10.1111/j.1600-0714.1992.tb01007.x1501158
   PubMed Web of Science ®Google Scholar
• Weiss MG. Karma and ayurveda. Anc Sci Life. 1987;6:129–134.22557561
   PubMedGoogle Scholar
• Chiang HH, Lu ZY. [Cultural perspectives of health and illness in the context of nursing]. Hu Li Za Zhi. 1996;43:42–48.9379225
   PubMedGoogle Scholar
• Tang PL, Mayer DK, Chou FH, Hsiao KY. The experience of cancer stigma in Taiwan: a qualitative study of female cancer patients. Arch Psychiatr Nurs. 2016;30:204–209. doi:10.1016/j.apnu.2015.08.01526992872
   PubMed Web of Science ®Google Scholar
• Cataldo JK, Brodsky JL. Lung cancer stigma, anxiety, depression and symptom severity. Oncology. 2013;85:33–40. doi:10.1159/00035083423816853
   PubMed Web of Science ®Google Scholar
• Gonzalez BD, Jacobsen PB. Depression in lung cancer patients: the role of perceived stigma. Psychooncology. 2012;21:239–246. doi:10.1002/pon.188222383265
   PubMed Web of Science ®Google Scholar
• Ostroff JS, Riley KE, Shen MJ, Atkinson TM, Williamson TJ, Hamann HA. Lung cancer stigma and depression: validation of the lung cancer stigma inventory. Psychooncology. 2019;28:1011–1017. doi:10.1002/pon.503330779396
   PubMed Web of Science ®Google Scholar
• Ye X, Liu HY, Lu SR, Zhai Q, Yu B. Translation and validation of the Chinese version of the cancer stigma scale. J Oncol Pharm Pract. 2018;25:1078155218802627.
   Web of Science ®Google Scholar