228
Views
4
CrossRef citations to date
0
Altmetric
Original Research

Information Needs of Breast Cancer Patients Attending Care at Tikur Anbessa Specialized Hospital: A Descriptive Study

, , ORCID Icon, & ORCID Icon
Pages 277-286 | Published online: 12 Jan 2021

References

  • Bray F, Ferlay J, Soerjomataram I, Siegel RL, Torre LA, Jemal A. Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA Cancer J Clin. 2018;68(6):394–424. doi:10.3322/caac.2149230207593
  • Organization. WH. Global Status Report on Noncommunicable Diseases 2014. Geneva, Switzerland; 2014.
  • Timotewos G, Solomon A, Mathewos A, et al. First data from a population based cancer registry in Ethiopia. Cancer Epidemiol. 2018;53:93–98. doi:10.1016/j.canep.2018.01.00829414637
  • Sm A. Trends of breast cancer in Ethiopia. Int J Cancer Res Mol Mech. 2016;2(1):1.
  • Dagne S, Abate SM, Tigeneh W, Engidawork E. Assessment of breast cancer treatment outcome at tikur anbessa specialized hospital adult oncology unit, Addis Ababa, Ethiopia. Eur J Oncol Pharm. 2019;2(2):e13. doi:10.1097/OP9.0000000000000013
  • Iddrisu M, Aziato L, Dedey F. Psychological and physical effects of breast cancer diagnosis and treatment on young Ghanaian women: a qualitative study. BMC Psychiatry. 2020;20(1):353. doi:10.1186/s12888-020-02760-432631279
  • Ghaemi SZKZ, Tahmasebi S, Akrami M, Heydari ST. Conflicts women with breast cancer face with: a qualitative study. Family Med Prim Care. 2019;8(1):27–36. doi:10.4103/jfmpc.jfmpc_272_18
  • Chua GP, Tan HK, Gandhi M. What information do cancer patients want and how well are their needs being met? Ecancermedicalscience. 2018;12:873. doi:10.3332/ecancer.2018.87330483353
  • Bilodeau K, Dubois S, Pepin J. Interprofessional patient-centred practice in oncology teams: utopia or reality? J Interprof Care. 2015;29(2):106–112. doi:10.3109/13561820.2014.94283825070427
  • Tariman JD, Doorenbos A, Schepp KG, Singhal S, Berry DL. Information needs priorities in patients diagnosed with cancer: a systematic review. J Adv Pract Oncol. 2014;5(2):115–122.
  • Mistry A, Wilson S, Priestman T, Damery S, Haque M. How do the information needs of cancer patients differ at different stages of the cancer journey? A cross sectional survey. JRSM Short Rep. 2010;1(4):30.21103122
  • Rutten LJ, Arora NK, Bakos AD, Aziz N, Rowland J. Information needs and sources of information among cancer patients: a systematic review of research (1980–2003). Patient Educ Couns. 2005;57(3):250–261. doi:10.1016/j.pec.2004.06.00615893206
  • Sheehy EM, Lehane E, Quinn E, Livingstone V, Redmond HP, Corrigan MA. Information needs of patients with breast cancer at years one, three, and five after diagnosis. Clin Breast Cancer. 2018;18(6):e1269–e1275. doi:10.1016/j.clbc.2018.06.00730153977
  • Carita Sainio C, Eriksson E. Keeping cancer patients informed: a challenge for nursing. Eur J Oncol Nurs. 2003;7(1):39–49. doi:10.1054/ejon.2002.021812849574
  • Khoshnood Z, Dehghan M, Iranmanesh S, Rayyani M. Informational needs of patients with cancer: a qualitative content analysis. Asian Pac J Cancer Prev. 2019;20(2):557–562. doi:10.31557/APJCP.2019.20.2.55730803220
  • Kimiafar K, Sarbaz M, Shahid Sales S, Esmaeili M, Javame Ghazvini Z. Breast cancer patients’ information needs and information-seeking behavior in a developing country. Breast. 2016;28:156–160. doi:10.1016/j.breast.2016.05.01127318171
  • Li J, Luo X, Cao Q, Lin Y, Xu Y, Li Q. Communication needs of cancer patients and/or caregivers: a critical literature review. J Oncol. 2020;2020:7432849. doi:10.1155/2020/743284932454826
  • Holzapfel LCHJT. Identification of the information needs concerning the physical symptoms of patients with breast cancer. F W. 2016;11:1.
  • Shea-Budgell MA, Kostaras X, Myhill KP, Hagen NA. Information needs and sources of information for patients during cancer follow-up. Current Oncol. 2014;21(4):165–173. doi:10.3747/co.21.1932
  • Halbach SM, Ernstmann N, Kowalski C, et al. Unmet information needs and limited health literacy in newly diagnosed breast cancer patients over the course of cancer treatment. Patient Educ Couns. 2016;99(9):1511–1518. doi:10.1016/j.pec.2016.06.02827378079
  • Wang T, Molassiotis A, Chung BPM, Tan JY. Unmet care needs of advanced cancer patients and their informal caregivers: a systematic review. BMC Palliat Care. 2018;17(1):96. doi:10.1186/s12904-018-0346-930037346
  • Kowalski C, Lee SY, Ansmann L 1, Wesselmann S, Pfaff H. Meeting patients’ health information needs in breast cancer center hospitals – a multilevel analysis. BMC Health Serv Res. 2014;14:601. doi:10.1186/s12913-014-0601-625422099
  • Kugbey N, Meyer-Weitz A, Oppong Asante K. Access to health information, health literacy and health-related quality of life among women living with breast cancer: depression and anxiety as mediators. Patient Educ Couns. 2019;102(7):1357–1363. doi:10.1016/j.pec.2019.02.01430772116
  • McWilliam CL, Brown JB, Stewart M. Breast cancer patients’ experiences of patient–doctor communication: a working relationship. Patient Educ Couns. 2000;39(2–3):191. doi:10.1016/S0738-3991(99)00040-311040719
  • Alananzeh IM, Kwok C, Ramjan L, Levesque JV, Everett B. Information needs of Arab cancer survivors and caregivers: a mixed methods study. Collegian. 2019;26(1):40–48. doi:10.1016/j.colegn.2018.03.001
  • So WW, Bei AY, Lai MT, Choi KC, Li PC. Factors in the prioritization of information needs among Hong Kong Chinese breast cancer patients. Asia Pac J Oncol Nurs. 2015;2(3):176. doi:10.4103/2347-5625.16362027981112
  • Ankem K. Factors influencing information needs among cancer patients: a meta analysis. Libr Inf Sci Res. 2006;28(1):7–23. doi:10.1016/j.lisr.2005.11.003
  • Husson O, Mols F, van de Poll-franse LV. The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review. Ann Oncol. 2011;22(4):761–772. doi:10.1093/annonc/mdq41320870912
  • Uysal N, Toprak FU, Kutlutsurkan S, Erenel AS. Symptoms experienced and information needs of women receiving chemotherapy. Asia Pac J Oncol Nurs. 2018;5(2):178–183. doi:10.4103/apjon.apjon_69_1729607378
  • Vall Casas A, Rodríguez Parada C. Concepción “Patients’ right to information: a review of the regulatory and ethical framework”. BiD. 2008;21.
  • Tigeneh W, Molla A, Abreha A, Assefa M. Pattern of cancer in tikur anbessa specialized hospital oncology center in Ethiopia from 1998 to 2010. Int J Cancer Res Mol Mech. 2015;1(1).
  • Gebremariam A, Addissie A, Worku A, Assefa M, Kantelhardt EJ, Jemal A. Perspectives of patients, family members, and health care providers on late diagnosis of breast cancer in Ethiopia: a qualitative study. PLoS One. 2019;14(8):e0220769. doi:10.1371/journal.pone.022076931369640
  • Federal Ministry of Health Ethiopia. Disease prevention and control directorate. National cancer control plan. 2016–2020. Available from: https://www.iccpportal.org/sites/default/files/plans/NCCP%20Ethiopia%20Final%20261015.pdf. Accessed 125, 2020.
  • Aberaraw R, Boka A, Teshome R, Yeshambel A. Social networks and quality of life among female breast cancer patients at tikur anbessa specialized hospital, Addis Ababa, Ethiopia 2019. BMC Women’s Health. 2020;20(1):50. doi:10.1186/s12905-020-00908-832160874
  • Mekuria AB, Erku DA, Belachew SA. Preferred information sources and needs of cancer patients on disease symptoms and management: a cross-sectional study. Patient Prefer Adherence. 2016;10:1991–1997. doi:10.2147/PPA.S11646327729777
  • Wondimagegnehu A, Abebe W, Abraha A, Teferra S. Depression and social support among breast cancer patients in Addis Ababa, Ethiopia. BMC Cancer. 2019;19(1):836. doi:10.1186/s12885-019-6007-431455282
  • Harrison DE, Galloway S, Graydon JE, Palmer-Wickham S, Rich-van der Bij L. Information needs and preference for information of women with breast cancer over a first course of radiation therapy. Patient Educ Couns. 1999;38:217–225. doi:10.1016/S0738-3991(99)00009-910865687
  • Lee YM, Francis K, Walker J, Lee SM. What are the information needs of Chinese breast cancer patients receiving chemotherapy? Eur J Oncol. 2004;8(3):224–233.
  • Galloway S, Graydon J, Harrison D, et al. Informational needs of women with a recent diagnosis of breast cancer: development and initial testing of a tool. J Adv Nurs. 1997;25:1175–1183. doi:10.1046/j.1365-2648.1997.19970251175.x9181414
  • Namushi LB. Patricia katowa mukwato information needs of breast cancer patients at cancer diseases hospital, Lusaka, Zambia. Adv Breast Cancer Res. 2020;9:34–53. doi:10.4236/abcr.2020.92004
  • Mohamed LA, El-Sebaee HA. Comparison of informational needs among newly diagnosed breast cancer women undergoing different surgical treatment modalities. J Biol Agric Healthcare. 2013;3(13):73–84.
  • Sayed SS, Abo Zead SE, Ali GA. Informational needs among women with newly diagnosed breast cancer: suggested nursing guidelines. Assiut Sci Nurs J. 2017;5(12):117–125.
  • Yi M, Cho J, Noh DY, Song MR, Lee JL, Juon HS. Informational needs of Korean women with breast cancer: cross-cultural adaptation of the toronto informational needs questionnaire of breast cancer. Asian Nurs Res (Korean Soc Nurs Sci). 2007;1(3):176–186. doi:10.1016/S1976-1317(08)60020-125030885
  • Hazel RM, Templton VEC. Adaptation of an instrument to measure the informational needs of men with prostate cancer. J Adv Nurs. 2001;35(3):357–364. doi:10.1046/j.1365-2648.2001.01883.x11489016
  • Tsaras K, Papathanasiou IV, Mitsi D, et al. Assessment of depression and anxiety in breast cancer patients: prevalence and associated factors. Asian Pac J Cancer Prev. 2018;19(6):1661–1669.29938451
  • Al-Azri M, Al-Awisi H, Al-Rasbi S, et al. Psychosocial impact of breast cancer diagnosis among omani women. Oman Med J. 2014;29(6):437–444. doi:10.5001/omj.2014.11525584162
  • Seah DS, Lin NU, Curley C, Weiner EP, Partridge AH. Informational needs and the quality of life of patients in their first year after metastatic breast cancer diagnosis. J Community Support Oncol. 2014;12(10):347–354. doi:10.12788/jcso.007725853256
  • Kraemer LM, Stanton AL, Meyerowitz BE, Rowland JH, Ganz PA. A longitudinal examination of couples’ coping strategies as predictors of adjustment to breast cancer. J Fam Psychol. 2011;25(6):963–972.21928887
  • Lashbrook MP, Valery PC, Knott V, Kirshbaum MN, Bernardes CM. Coping strategies used by breast, prostate, and colorectal cancer survivors: a literature review. Cancer Nurs. 2018;41(5):E23–E39. doi:10.1097/NCC.000000000000052828723724
  • Leydon GM, Boulton M, Moynihan C, et al. Cancer patients’ information needs and information seeking behaviour: in depth interview study. BMJ. 2000;320(7239):909–913. doi:10.1136/bmj.320.7239.90910742000
  • Kershaw T, Northouse L, Kritpracha C, Schafenacker A, Mood D. Coping strategies and quality of life in women with advanced breast cancer and their family caregivers. Psychol Health. 2007;19(2):139–155. doi:10.1080/08870440310001652687
  • Birhan Legese AAea, 2017. Available at information needs of breast cancer patients attending care at tikur anbessa specialized hospital, Addis Ababa Ethiopia. 2017.