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Review

Palliative Care Initiation in Chronic Obstructive Pulmonary Disease: Prognosis-Based, Symptoms-Based or Needs-Based?

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Pages 1591-1600 | Published online: 03 Jul 2020

References

  • Chronic respiratory diseases [homepage on the Internet]. Geneva: World Health Organization; 2020 Available from: https://www.who.int/health-topics/chronic-respiratory-diseases#tab=tab_1. Accessed 315, 2020.
  • ChuchalinAG, KhaltaevN, AntonovNS, et al. Chronic respiratory diseases and risk factors in 12 regions of the Russian Federation. Int J Chron Obstruct Pulmon Dis. 2014;9:963. doi:10.2147/COPD.S6728325246783
  • MaddocksM, LovellN, BoothS, ManWD, HigginsonIJ. Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease. Lancet. 2017;390(10098):988–1002. doi:10.1016/S0140-6736(17)32127-X28872031
  • ClariM, IvzikuD, CasciaroR, MatareseM. The unmet needs of people with chronic obstructive pulmonary disease: a systematic review of qualitative findings. COPD. 2018;15(1):79–88. doi:10.1080/15412555.2017.141737329308932
  • SmithLJ, MooreE, AliI, SmeethL, StoneP, QuintJK. Prognostic variables and scores identifying the end of life in COPD: a systematic review. Int J Chron Obstruct Pulmon Dis. 2017;12:2239. doi:10.2147/COPD.S13786828814852
  • Public Health England. Palliative and end of life care: hospital deaths 2006 to 2017 [homepage on the Internet]; 2019 Available from: https://www.gov.uk/government/publications/palliative-and-end-of-life-care-hospital-deaths-2006-to-2017/palliative-and-end-of-life-care-hospital-deaths-2006-to-2017. Accessed 315, 2020.
  • World Health Organization. Action plan of the Global alliance against chronic respiratory diseases, 2008–2013; 2008 Available from: https://apps.who.int/iris/bitstream/handle/10665/43984/9789241597203_eng.pdf?sequence=1&isAllowed=y. Accessed 315, 2020.
  • HalpinDMG. Palliative care for chronic obstructive pulmonary disease. Signs of progress, but still a long way to go. Am J Respir Crit Care Med. 2018;198(11):1356‐1358. doi:10.1164/rccm.201805-0955ED
  • World Health Organization. WHO definition of palliative care. Available from: http://www.who.int/cancer/palliative/definition/en/. Accessed 519, 2020.
  • Al-MahreziA, Al-MandhariZ. Palliative care: time for action. Oman Med J. 2016;31(3):161–163. doi:10.5001/omj.2016.3227162584
  • McVeighC, ReidJ, CarvalhoP. Healthcare professionals’ views of palliative care for American war veterans with non-malignant respiratory disease living in a rural area: a qualitative study. BMC Palliat Care. 2019;18(1):22. doi:10.1186/s12904-019-0408-730813937
  • LankenPN, TerryPB, DeLisserHM, et al. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med. 2008;177(8):912–927. doi:10.1164/rccm.200605-587ST18390964
  • ConnorSR, BermedoMC, editors. Global Atlas of Palliative Care at the End of Life. Worldwide Palliative Care Alliance; 2014.
  • ShamseerL, MoherD, ClarkeM, et al. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015: elaboration and explanation. BMJ. 2015;349:g7647. doi:10.1136/bmj.g7647
  • VermylenJH, SzmuilowiczE, KalhanR. Palliative care in COPD: an unmet area for quality improvement. Int J Chron Obstruct Pulmon Dis. 2015;10:1543. doi:10.2147/COPD.S7464126345486
  • HarringtonSE, RogersE, DavisM. Palliative care and chronic obstructive pulmonary disease: where the lines meet. Curr Opin Pulm Med. 2017;23(2):154–160. doi:10.1097/MCP.000000000000035828009643
  • AlmagroP, YunS, SangilA, et al. Palliative care and prognosis in COPD: a systematic review with a validation cohort. Int J Chron Obstruct Pulmon Dis. 2017;12:1721. doi:10.2147/COPD.S13565728652724
  • SioutaN, van BeekK, PrestonN, et al. Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways. BMC Palliat Care. 2016;15(1):18. doi:10.1186/s12904-016-0089-426872741
  • ParryA, HigginsonR, GleesonA. End-of-life prognostic indicators in patients with COPD: part 2. Int J Palliat Nurs. 2016;22(11):560–567. doi:10.12968/ijpn.2016.22.11.56027885911
  • CurtisJR. Palliative and end-of-life care for patients with severe COPD. Eur Respir J. 2008;32(3):796‐803. doi:10.1183/09031936.00126107
  • BoeckL, SorianoJB, Brusse-KeizerM, et al. Prognostic assessment in COPD without lung function: the B-AE-D indices. Eur Respir J. 2016;47(6):1635‐1644. doi:10.1183/13993003.01485-2015
  • BloomCI, RicciardiF, SmeethL, StoneP, QuintJK. Predicting COPD 1-year mortality using prognostic predictors routinely measured in primary care. BMC Med. 2019;17(1):73. doi:10.1186/s12916-019-1310-030947728
  • EkströmM, CurrowDC, JohnsonMJ. Outcome measurement of refractory breathlessness: endpoints and important differences. Curr Opin Support Palliat Care. 2015;9(3):238–243. doi:10.1097/SPC.000000000000014726203849
  • LeidyNK, SextonCC, JonesPW, et al. Measuring respiratory symptoms in clinical trials of COPD: reliability and validity of a daily diary. Thorax. 2014;69(5):443‐449. doi:10.1136/thoraxjnl-2013-204428
  • WilcoxTK, ChenWH, HowardKA, et al. Item selection, reliability and validity of the Shortness of Breath with Daily Activities (SOBDA) questionnaire: a new outcome measure for evaluating dyspnea in chronic obstructive pulmonary disease. Health Qual Life Outcomes. 2013;11(1):196. doi:10.1186/1477-7525-11-19624229361
  • YorkeJ, Lloyd-WilliamsM, SmithJ, et al. Management of the respiratory distress symptom cluster in lung cancer: a randomised controlled feasibility trial. Support Care Cancer. 2015;23(11):3373–3384. doi:10.1007/s00520-015-2810-x26111954
  • BanzettRB, O’DonnellCR, GuilfoyleTE, et al. Multidimensional Dyspnea profile: an instrument for clinical and laboratory research. Eur Respir J. 2015;45(6):1681‐1691. doi:10.1183/09031936.00038914
  • ClarkD. From margins to centre: a review of the history of palliative care in cancer. Lancet Oncol. 2007;8(5):430‐438. doi:10.1016/S1470-2045(07)70138-9
  • LillyEJ, SenderovichH. Palliative care in chronic obstructive pulmonary disease. J Crit Care. 2016;35:150–154. doi:10.1016/j.jcrc.2016.05.01927481751
  • BellouV, BelbasisL, KonstantinidisAK, TzoulakiI, EvangelouE. Prognostic models for outcome prediction in patients with chronic obstructive pulmonary disease: systematic review and critical appraisal. BMJ. 2019;367:l5358. doi:10.1136/bmj.l535831585960
  • PuhanMA, HanselNN, SobradilloP, et al. Large-scale international validation of the ADO index in subjects with COPD: an individual subject data analysis of 10 cohorts. BMJ Open. 2012;2(6):e002152. doi:10.1136/bmjopen-2012-002152
  • BertensLC, ReitsmaJB, MoonsKG, et al. Development and validation of a model to predict the risk of exacerbations in chronic obstructive pulmonary disease. Int J Chron Obstruct Pulmon Dis. 2013;8:493–499.24143086
  • MurraySA, BoydK, SheikhA. Palliative care in chronic illness. BMJ. 2005;330(7492):611‐612.
  • YorkeJ, SwigrisJ, RussellAM, et al. Dyspnea-12 is a valid and reliable measure of bre Ferreira DH, Silva JP, Quinn S, et al. Blinded patient preference for morphine compared to placebo in the setting of chronic refractory breathlessness–an exploratory study. J Pain Symptom Manage. 2016;51(2):247–254.26598037
  • FerreiraDH, SilvaJP, QuinnS, et al. Blinded patient preference for morphine compared to placebo in the setting of chronic refractory breathlessness–an exploratory study. J Pain Symptom Manage. 2016;51(2):247–254. doi:10.1016/j.jpainsymman.2015.10.00526598037
  • HigginsonIJ, BauseweinC, ReillyCC, et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. Lancet Respir Med. 2014;2(12):979–987. doi:10.1016/S2213-2600(14)70226-725465642
  • QuinnC, DunbarSB, HigginsM. Heart failure symptom assessment and management: can caregivers serve as proxy? J Cardiovasc Nurs. 2010;25(2):142. doi:10.1097/JCN.0b013e3181bf93a020168194
  • NiciL, DonnerC, WoutersE, et al. American thoracic society/European respiratory society statement on pulmonary rehabilitation. Am J Respir Crit Care Med. 2006;173(12):1390–1413. doi:10.1164/rccm.200508-1211ST16760357
  • Gruffydd-JonesK, Langley-JohnsonC, DyerC, BadlanK, WardS. What are the needs of patients following discharge from hospital after an acute exacerbation of chronic obstructive pulmonary disease (COPD)? Prim Care Respir J. 2007;16(6):363–368. doi:10.3132/pcrj.2007.0007518038104
  • WongSS, AbdullahN, AbdullahA, et al. Unmet needs of patients with chronic obstructive pulmonary disease (COPD): a qualitative study on patients and doctors. BMC Fam Pract. 2014;15(1):6. doi:10.1186/1471-2296-15-6724405525
  • National Institute for Health and Care Excellence. End of life care for adults; 2011 Available from: https://www.nice.org.uk/guidance/qs13. Accessed 520, 2020.
  • ThomasK, Armstrong WilsonJ; GSF Team. Proactive identification guidance (PIG) national gold standards framework centre in end of life care; 2016 Available from: https://www.nice.org.uk/guidance/qs13. Accessed 519, 2020.
  • Da Silva GaneM, BraunA, StottD, WellstedD, FarringtonK. How robust is the ‘surprise question’ in predicting short-term mortality risk in haemodialysis patients? Nephron Clin Pract. 2013;123(3–4):185‐193. doi:10.1159/000353735
  • DownarJ, WegierP, TanuseputroP. Early identification of people who would benefit from a palliative approach-moving from surprise to routine. JAMA Netw Open. 2019;2(9):e1911146. doi:10.1001/jamanetworkopen.2019.1114631517959