Sociodemographic and Clinical Variables Related to the Overburden of the Informal Caregivers of Patients Hospitalized for Chronic Obstructive Pulmonary Disease Exacerbations

References

• Working group of the GesEPOC. Clinical Practice guideline for the diagnosis and treatment of patients with chronic obstructive pulmonary disease (COPD)-The Spanish COPD Guideline (GesEPOC). Arch Bronconeumol. 2017;53(Supl 1):1–64.
   Google Scholar
• 2020 GOLD Report. Global strategy for prevention, diagnosis and management of COPD. Available from: https://goldcopd.org. Accessed April 1, 2021.
   Google Scholar
• Soriano JB, Abajobir AA, Abate KH, GBD 2015 Chronic Respiratory Disease Collaborators. Global, regional, and national deaths, prevalence, disability-adjusted life years, and years lived with disability for chronic obstructive pulmonary disease and asthma, 1990–2015: a systematic analysis for the Global Burden of Disease Study 2015. Lancet Respir Med. 2017;5(9):691–706. doi:10.1016/S2213-2600(17)30293-X
   PubMed Web of Science ®Google Scholar
• Fernández-García S, Represas-Represas C, Ruano-Raviña A, Mosteiro-Añón M, Mouronte- Roibas C, Fernández-Villar A. Social profile of patients admitted for COPD Exacerbations. A gender analysis. Arch Bronconeumol. 2020;56(2):84–89. doi:10.1016/j.arbres.2019.03.009
   PubMed Web of Science ®Google Scholar
• Bouza E, Alvar A, Almagro P, et al. Chronic obstructive pulmonary disease (COPD) in Spain and the different aspects of its social impact: a multidisciplinary opinion document. Rev Esp Quimioter. 2020;33(1):49–67.
   PubMed Web of Science ®Google Scholar
• Fernández-Villar A, Fernández-García S, Represas-Represas C. Is the social component of chronic obstructive pulmonary disease a treatable trait? Arch Bronconeumol. 2020;56(4):199–200. doi:10.1016/j.arbres.2019.06.019
   PubMed Web of Science ®Google Scholar
• Nakken N, Janssen DJ, van den Bogaart EH, et al. Informal caregivers of patients with COPD: home Sweet Home? Eur Respir Rev. 2015;24(137):498–504. doi:10.1183/16000617.00010114
   PubMed Web of Science ®Google Scholar
• Cruz J, Marques A, Figueiredo D. Impacts of COPD on family carers and supportive interventions: a narrative review. Health Soc Care Commun. 2017;25(1):11–25. doi:10.1111/hsc.12292
   PubMed Web of Science ®Google Scholar
• Godoy-Ramírez AM, Pérez-Verdún MÁ, Doménech-del Rio A, Prunera-Pardell MJ. Caregiver burden and social support perceived by patients with chronic obstructive pulmonary disease. Rev Calid Asist. 2014;29(6):320–324. doi:10.1016/j.cali.2014.11.003
   PubMedGoogle Scholar
• Strang S, Osmanovic M, Hallberg C, Strang P. Family caregivers’ heavy and overloaded burden in advanced chronic obstructive pulmonary disease. J Palliat Med. 2018;21(12):1768–1772. doi:10.1089/jpm.2018.0010
   PubMed Web of Science ®Google Scholar
• Micklewright K, Farquhar M. Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review. Palliat Med. 2020;34(10):1305–1315. doi:10.1177/0269216320939243
   PubMed Web of Science ®Google Scholar
• Bryant J, Mansfield E, Boyes AW, Waller A, Sanson-Fisher R, Regan T. Involvement of informal caregivers in supporting patients with COPD: a review of intervention studies. Int J Chron Obstruct Pulmon Dis. 2016;11:1587–1596. doi:10.2147/COPD.S107571
   PubMed Web of Science ®Google Scholar
• Cruz J, Marques A, Machado A, O’Hoski S, Goldstein R, Brooks D. Informal caregiving in COPD: a systematic review of instruments and their measurement properties. Respir Med. 2017;128:13–27. doi:10.1016/j.rmed.2017.05.002
   PubMed Web of Science ®Google Scholar
• Ministerio de Sanidad, Servicios Sociales e Igualdad del Gobierno de España. Estrategia para el abordaje de la cronicidad en el Sistema Nacional de Salud [Strategy for addressing chronicity in the National Health System]. Madrid: ministerio de Sanidad, Servicios Sociales e Igualdad; 2012. Available from: https://www.mscbs.gob.es/organizacion/sns/planCalidadSNS/pdf/ESTRATEGIA_ABORDAJE_CRONICIDAD.pdf. Accessed December13, 2020. Spanish.
   Google Scholar
• Proceso asistencial integrado de la Enfermedad Pulmonar Obstructiva Crónica [Integrated care process for Chronic Obstructive Pulmonary Disease]. Servicio Galego de Saude; 2013. Available from: https://www.sergas.es/Asistencia-sanitaria/Proceso-Asistencial-Integrado-da-Enfermidade-Pulmonar-Obstrutiva-Cr%C3%B3nica--EPOC?idioma=es. Accessed December 13, 2020. Galician.
   Google Scholar
• Consejería Andaluza de Salud. Proceso asistencial integrado de la Atención a Pacientes Pluripatológicos. 8ª edición [Integrated care process of the Attention to Multipathological Patients. 8th edition]; 2018. Available from: https://www.juntadeandalucia.es/export/drupaljda/salud_5af1956d9925c_atencion_pacientes_pluripatologicos_2018.pdf. Accessed December 13, 2020. Spanish.
   Google Scholar
• Chu HH, Lee KS, Ho lee K, Chung JH, Shin KC, Hwang TY. Association of physical and psychological health status between chronic obstructive pulmonary disease patients and their family caregivers. Health Care Women Int. 2019;40(10):1019–1030.
   PubMed Web of Science ®Google Scholar
• Soto-Rubio A, Valero-Moreno S, Díaz JL, Andreu Y, Pérez-Marín M. COPD at the end of life: predictors of the emotional distress of patients and their family caregivers. PLoS One. 2020;15(10):e0240821. doi:10.1371/journal.pone.0240821
   PubMed Web of Science ®Google Scholar
• Ivziku D, Clari M, Piredda M, De Marinis MG, Matarese M. Anxiety, depression and quality of life in chronic obstructive pulmonary disease patients and caregivers: an actor-partner interdependence model analysis. Qual Life Res. 2019;28(2):461–472. doi:10.1007/s11136-018-2024-z
   PubMed Web of Science ®Google Scholar
• Mi E, Mi E, Ewing G, et al. Do patients and carers agree on symptom burden in advanced COPD? Int J Chron Obstruct Pulmon Dis. 2018;13:969–977. doi:10.2147/COPD.S147892
   PubMed Web of Science ®Google Scholar
• Fernández-García S, Represas-Represas C, Ruano-Raviña A, et al. Social and clinical predictors of short- and long-term readmission after a severe exacerbation of COPD. PLoS One. 2020;15(2):e0229257. doi:10.1371/journal.pone.0229257
   PubMed Web of Science ®Google Scholar
• Cid-Ruzafa J, Damián-Moreno J. Disability evaluation: Barthel’s index. Rev Esp Salud Publica. 1997;71(2):127–137. doi:10.1590/S1135-57271997000200004
   PubMedGoogle Scholar
• Vergara I, Bilbao A, Orive M, Garcia-Gutierrez S, Navarro G, Quintana JM. Validation of the Spanish version of the Lawton IADL Scale for its application in elderly people. Health Qual Life Outcomes. 2012;10:130. doi:10.1186/1477-7525-10-130
   PubMed Web of Science ®Google Scholar
• Martín-Lesende I, Rodríguez-Andrés C. Utilidad del cuestionario de Barber para seleccionar a personas de 75 años o más con riesgo de hospitalización, institucionalización o muerte. Rev Esp Geriatr Gerontol. 2005;40:335–344. doi:10.1016/S0211-139X(05)74881-2
   Google Scholar
• Jones PW, Harding G, Berry P, Wiklund I, Chen W-H, Kline Leidy N. Development and first validation of the COPD Assessment Test. Eur Respir J. 2009;34:648–654. doi:10.1183/09031936.00102509
   PubMed Web of Science ®Google Scholar
• Bestall J, Paul E, Garrod R, Garnham R, Jones P, Wedzicha J. Usefulness of the Medical research Council (MRC) dyspnea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax. 1999;54:581–586. doi:10.1136/thx.54.7.581
   PubMed Web of Science ®Google Scholar
• Charlson ME, Szatrowski TP, Peterson J, Gold J. Validation of a combined comorbidity index. J Clin Epidemiol. 1994;47:1245–1251. doi:10.1016/0895-4356(94)90129-5
   PubMed Web of Science ®Google Scholar
• Goldberg D, Bridges K, Duncan-Jones P, Grayson D. Detecting anxiety and depression in general medical settings. BMJ. 1988;297:897–899. doi:10.1136/bmj.297.6653.897
   PubMed Web of Science ®Google Scholar
• Alarcón MT, González JL. La escala sociofamiliar de Gijón, instrumento útil en el hospital general. Rev Esp Geriatr Gerontol. 1998;33:178–179.
   Google Scholar
• Martín M, Salvadó I, Nadal S, et al. Adaptación para nuestro medio de la Escala de Sobrecarga del Cuidador (Caregiver Burden Interview) de Zarit [Adaptation for our environment of the Zarit Caregiver Burden Interview Scale]. Revista de Gerontología. 1996;6:338–346. Spanish.
   Google Scholar
• Annegarn J, Meijer K, Passos VL, et al. Ciro+ Rehabilitation Network. Problematic activities of daily life are weakly associated with clinical characteristics in COPD. J Am Med Dir Assoc. 2012;13(3):284–290. doi:10.1016/j.jamda.2011.01.002
   PubMed Web of Science ®Google Scholar
• Jácome C, Figueiredo D, Gabriel R, Cruz J, Marques A. Predicting anxiety and depression among family carers of people with Chronic Obstructive Pulmonary Disease. Int Psychogeriatr. 2014;26(7):1191–1199. doi:10.1017/S1041610214000337
   PubMed Web of Science ®Google Scholar
• Miravitlles M, Peña-Longobardo LM, Oliva-Moreno J, Hidalgo-Vega Á. Caregivers’ burden in patients with COPD. Int J Chron Obstruct Pulmon Dis. 2015;10:347–356. doi:10.2147/COPD.S76091
   PubMed Web of Science ®Google Scholar
• Lopez-Campos JL, Asensio-Cruz MI, Castro-Acosta A, Calero C, Pozo-Rodriguez F. AUDIPOC and the European COPD Audit studies. Results from an audit feedback strategy for chronic obstructive pulmonary disease in-hospital care: a joint analysis from the AUDIPOC and European COPD audit studies. PLoS One. 2014;9:e110394. doi:10.1371/journal.pone.0110394
   PubMedGoogle Scholar