1,149
Views
3
CrossRef citations to date
0
Altmetric
Review

The Importance of Self-Management in the Context of Personalized Care in COPD

, , , , & ORCID Icon
Pages 231-243 | Published online: 22 Jan 2022

References

  • World Health Organization. Noncommunicable diseases; 2021. Available from: https://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases. Accessed May 12, 2021.
  • World Health Organization. WHO reveals leading causes of death and disability worldwide: 2000–2019; 2020. Available from: https://www.who.int/news/item/09-12-2020-who-reveals-leading-causes-of-death-and-disability-worldwide-2000-2019. Accessed April 29, 2021.
  • Wang H, Naghavi M, Allen C, et al. Global, regional, and national life expectancy, all-cause mortality, and cause-specific mortality for 249 causes of death, 1980–2015: a systematic analysis for the global burden of disease study 2015. Lancet. 2016;388(10053):1459–1544.
  • Guthrie B, Payne K, Alderson P, McMurdo ME, Mercer SW. Adapting clinical guidelines to take account of multimorbidity. BMJ. 2012;345:e6341. doi:10.1136/bmj.e6341
  • Global Initiative for Chronic Obstructive Lung Disease. Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease (2021 report); 2020 [ Updated November 25, 2020]. Available from: https://goldcopd.org/wp-content/uploads/2020/11/GOLD-REPORT-2021-v1.1-25Nov20_WMV.pdf. Accessed February 2, 2021.
  • World Health Organization. Chronic obstructive pulmonary disease (COPD); 2021. Available from: http://www.who.int/mediacentre/factsheets/fs315/en/. Accessed August 19, 2021.
  • Grigsby M, Siddharthan T, Chowdhury MA, et al. Socioeconomic status and COPD among low-and middle-income countries. Int J Chron Obstruct Pulmon Dis. 2016;11:2497–2507. doi:10.2147/COPD.S111145
  • Cramm JM, Nieboer AP. Self-management abilities, physical health and depressive symptoms among patients with cardiovascular diseases, chronic obstructive pulmonary disease, and diabetes. Patient Educ Couns. 2012;87(3):411–415. doi:10.1016/j.pec.2011.12.006
  • Naylor C, Parsonage M, McDaid D, Knapp M, Fossey M, Galea A. Long-term conditions and mental health. The cost of co-morbidities. The King’s Fund and Centre for Mental Health; 2012. Available from: https://www.kingsfund.org.uk/sites/default/files/field/field_publication_file/long-term-conditions-mental-health-cost-comorbidities-naylor-feb12.pdf. Accessed August 9 2021.
  • Pumar MI, Gray CR, Walsh JR, Yang IA, Rolls TA, Ward DL. Anxiety and depression-Important psychological comorbidities of COPD. J Thorac Dis. 2014;6(11):1615–1631. doi:10.3978/j.issn.2072-1439.2014.09.28
  • Effing TW, Vercoulen JH, Bourbeau J, et al. Definition of a COPD self-management intervention: International Expert Group consensus. Eur Respir J. 2016;48(1):46–54. doi:10.1183/13993003.00025-2016
  • Khan A, Dickens AP, Adab P, Jordan RE. Self-management behaviour and support among primary care COPD patients: cross-sectional analysis of data from the Birmingham Chronic Obstructive Pulmonary Disease Cohort. NPJ Prim Care Respir Med. 2017;27(1):46. doi:10.1038/s41533-017-0046-6
  • Balint M. The Doctor, His Patient and the Illness. London: Churchill Livingstone; 1957.
  • Stott N, Davis R. The exceptional potential in each primary care consultation. J R Coll Gen Pract. 1979;29(201):201–205.
  • Neighbour R. The Inner Consultation. 1st ed. Oxford: Radcliffe Medical Press; 1987.
  • Bourbeau J, Julien M, Maltais F, et al. Reduction of hospital utilization in patients with chronic obstructive pulmonary disease: a disease-specific self-management intervention. Arch Intern Med. 2003;163(5):585–591. doi:10.1001/archinte.163.5.585
  • Tate P. Ideas, concerns and expectations. Medicine. 2005;33(2):26–27. doi:10.1383/medc.33.2.26.58376
  • McKinley RK, Middleton JF. What do patients want from doctors? Content analysis of written patient agendas for the consultation. Br J Gen Pract. 1999;49(447):796–800.
  • Vogelmeier CF, Criner GJ, Martinez FJ, et al. Global strategy for the diagnosis, management and prevention of chronic obstructive lung disease 2017 report: GOLD executive summary. Respirology. 2017;22(3):575–601. doi:10.1111/resp.13012
  • Global Initiative for Chronic Obstructive Lung Disease. Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease (2020 report); 2019. Available from: https://goldcopd.org/wp-content/uploads/2019/11/GOLD-2020-REPORT-ver1.0wms.pdf. Accessed June 15, 2020.
  • National Institute for Health and Care Excellence. Chronic obstructive pulmonary disease in over 16s: diagnosis and management; 2018. Available from: https://www.nice.org.uk/guidance/ng115/resources/chronic-obstructive-pulmonary-disease-in-over-16s-diagnosis-and-management-pdf-66141600098245. Accessed April 29, 2021.
  • Kuzma AM, Meli Y, Meldrum C, et al. Multidisciplinary care of the patient with chronic obstructive pulmonary disease. Proc Am Thorac Soc. 2008;5(4):567–571. doi:10.1513/pats.200708-125ET
  • Yang IA, George J, McDonald CF, et al. The COPD-X plan: Australian and New Zealand guidelines for the management of chronic obstructive pulmonary disease. Version 2.63, February, 2021; 2021. Available from: https://copdx.org.au/copd-x-plan/. Accessed August 10 2021.
  • Lenferink A, Brusse‐Keizer M, van der Valk PD, et al. Self‐management interventions including action plans for exacerbations versus usual care in patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2017;8(8):CD011682. doi:10.1002/14651858.CD011682.pub2
  • Bucknall CE, Miller G, Lloyd SM, et al. Glasgow supported self-management trial (GSuST) for patients with moderate to severe COPD: randomised controlled trial. BMJ. 2012;344:e1060. doi:10.1136/bmj.e1060
  • Department of Health. An outcomes strategy for chronic obstructive pulmonary disease (COPD) and asthma in England; 2011. Available from: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/216139/dh_128428.pdf. Accessed April 29, 2021.
  • Britton M. The burden of COPD in the U.K.: results from the confronting COPD survey. Respir Med. 2003;97 Suppl C(Suppl C):S71–79. doi:10.1016/S0954-6111(03)80027-6
  • Chapman KR, Mannino DM, Soriano JB, et al. Epidemiology and costs of chronic obstructive pulmonary disease. Eur Respir J. 2006;27(1):188–207. doi:10.1183/09031936.06.00024505
  • Patel JG, Nagar SP, Dalal AA. Indirect costs in chronic obstructive pulmonary disease: a review of the economic burden on employers and individuals in the United States. Int J Chron Obstruct Pulmon Dis. 2014;9:289–300. doi:10.2147/COPD.S57157
  • Newham JJ, Presseau J, Heslop-Marshall K, et al. Features of self-management interventions for people with COPD associated with improved health-related quality of life and reduced emergency department visits: a systematic review and meta-analysis. Int J Chron Obstruct Pulmon Dis. 2017;12:1705–1720. doi:10.2147/COPD.S133317
  • Dineen-Griffin S, Garcia-Cardenas V, Williams K, Benrimoj SI. Helping patients help themselves: a systematic review of self-management support strategies in primary health care practice. PLoS One. 2019;14(8):e0220116. doi:10.1371/journal.pone.0220116
  • Yadav UN, Lloyd J, Hosseinzadeh H, Baral KP, Harris MF. Do chronic obstructive pulmonary diseases (COPD) self-management interventions consider health literacy and patient activation? a systematic review. J Clin Med. 2020;9(3):646. doi:10.3390/jcm9030646
  • Turnock AC, Walters EH, Walters JA, Wood-Baker R, Action plans for chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2005;4:CD005074. doi:10.1002/14651858.CD005074.pub2
  • Effing T, Kerstjens H, van der Valk P, Zielhuis G. van der Palen J. (Cost)-effectiveness of self-treatment of exacerbations on the severity of exacerbations in patients with COPD: the COPE II study. Thorax. 2009;64(11):956–962. doi:10.1136/thx.2008.112243
  • Jolly K, Majothi S, Sitch AJ, et al. Self-management of health care behaviors for COPD: a systematic review and meta-analysis. Int J Chron Obstruct Pulmon Dis. 2016;11:305–326.
  • Murphy LA, Harrington P, Taylor SJ, et al. Clinical-effectiveness of self-management interventions in chronic obstructive pulmonary disease: an overview of reviews. Chron Respir Dis. 2017;14(3):276–288. doi:10.1177/1479972316687208
  • Jordan RE, Majothi S, Heneghan NR, et al. Supported self-management for patients with moderate to severe chronic obstructive pulmonary disease (COPD): an evidence synthesis and economic analysis. Health Technol Assess. 2015;19(36):1–516. doi:10.3310/hta19360
  • Jonkman NH, Westland H, Trappenburg JC, et al. Characteristics of effective self-management interventions in patients with COPD: individual patient data meta-analysis. Eur Respir J. 2016;48(1):55–68. doi:10.1183/13993003.01860-2015
  • Pinnock H, Steed L, Jordan R. Supported self-management for COPD: making progress, but there are still challenges. Eur Respir J. 2016;48(1):6–9. doi:10.1183/13993003.00576-2016
  • Taylor SJ, Sohanpal R, Bremner SA, et al. Self-management support for moderate-to-severe chronic obstructive pulmonary disease: a pilot randomised controlled trial. Br J Gen Pract. 2012;62(603):e687–695. doi:10.3399/bjgp12X656829
  • Corhay JL, Dang DN, Van Cauwenberge H, Louis R. Pulmonary rehabilitation and COPD: providing patients a good environment for optimizing therapy. Int J Chron Obstruct Pulmon Dis. 2014;9:27–39. doi:10.2147/COPD.S52012
  • Royal College of Physicians. National Asthma and Chronic Obstructive Pulmonary Disease Audit Programme (NACAP); 2019. Available from: https://www.rcplondon.ac.uk/projects/outputs/national-asthma-and-copd-audit-programme-nacap-pulmonary-rehabilitation-clinical-0. Accessed May 18, 2021.
  • Camp PG, Hernandez P, Bourbeau J, et al. Pulmonary rehabilitation in Canada: a report from the Canadian Thoracic Society COPD clinical assembly. Can Respir J. 2015;22(3):147–152. doi:10.1155/2015/369851
  • Gibson PG, Powell H, Coughlan J, et al. Self-management education and regular practitioner review for adults with asthma. Cochrane Database Syst Rev. 2002;(1):CD001117. doi:10.1002/14651858.CD001117
  • Ure J, Pinnock H, Hanley J, et al. Piloting tele-monitoring in COPD: a mixed methods exploration of issues in design and implementation. Prim Care Respir J. 2012;21(1):57–64. doi:10.4104/pcrj.2011.00065
  • Pinnock H. Supported self-management for asthma. Breathe. 2015;11(2):98–109. doi:10.1183/20734735.015614
  • Kielmann T, Huby G, Powell A, et al. From support to boundary: a qualitative study of the border between self-care and professional care. Patient Educ Couns. 2010;79(1):55–61. doi:10.1016/j.pec.2009.07.015
  • Chetty U, McLean G, Morrison D, Agur K, Guthrie B, Mercer SW. Chronic obstructive pulmonary disease and comorbidities: a large cross-sectional study in primary care. Br J Gen Pract. 2017;67(658):e321–e328. doi:10.3399/bjgp17X690605
  • Pendleton D, Schofield T, Tate P, Havelock P. The Consultation: An Approach to Learning and Teaching. Oxford: Oxford University Press; 1984.
  • Ip L, Smith A, Papachristou I, Tolani E. 3 Dimensions for Long-Term Conditions - creating a sustainable bio-psycho-social approach to healthcare. Int J Integr Care. 2019;194:5. doi:10.5334/ijic.s3005
  • Gayle C, Ismail K. 3 Dimensions for Long-term Conditions (3DLC); 2021. Available from: https://www.kcl.ac.uk/research/3-dimensions-for-long-term-conditions-3dlc. Accessed November 23, 2021.
  • Bodenheimer T, Wagner EH, Grumbach K. Improving primary care for patients with chronic illness. JAMA. 2002;288(14):1775–1779. doi:10.1001/jama.288.14.1775
  • Kendall M, Buckingham S, Ferguson S, et al. Exploring the concept of need in people with very severe chronic obstructive pulmonary disease: a qualitative study. BMJ Support Palliat Care. 2018;8(4):468–474. doi:10.1136/bmjspcare-2015-000904
  • Baiardini I, Contoli M, Corsico AG, et al. Exploring the relationship between disease awareness and outcomes in patients with chronic obstructive pulmonary disease. Respiration. 2021;100(4):291–297. doi:10.1159/000513953
  • Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1–7. doi:10.1207/S15324796ABM2601_01
  • McCarthy B, Casey D, Devane D, Murphy K, Murphy E, Lacasse Y, Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2015;2:CD003793. doi:10.1002/14651858.CD003793.pub3
  • Coronini-Cronberg S, Heffernan C, Robinson M. Effective smoking cessation interventions for COPD patients: a review of the evidence. JRSM Short Rep. 2011;2(10):78. doi:10.1258/shorts.2011.011089
  • Simpson E, Jones MC. An exploration of self-efficacy and self-management in COPD patients. Br J Nurs. 2013;22(19):1105–1109. doi:10.12968/bjon.2013.22.19.1105
  • Higginson IJ, Bausewein C, Reilly CC, et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. Lancet Respir Med. 2014;2(12):979–987. doi:10.1016/S2213-2600(14)70226-7
  • Taylor SJC, Pinnock H, Epiphaniou E, et al. A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS - Practical systematic review of self-management support for long-term conditions. Southampton (UK): NIHR Journals Library; Vol. 2, 2014.
  • Kauppi P, Linna M, Martikainen J, Makela MJ, Haahtela T. Follow-up of the Finnish Asthma Programme 2000–2010: reduction of hospital burden needs risk group rethinking. Thorax. 2013;68(3):292–293. doi:10.1136/thoraxjnl-2011-201028
  • Ogunbayo OJ, Russell S, Newham JJ, et al. Understanding the factors affecting self-management of COPD from the perspectives of healthcare practitioners: a qualitative study. NPJ Prim Care Respir Med. 2017;27(1):54. doi:10.1038/s41533-017-0054-6
  • Kennedy A, Rogers A, Chew-Graham C, et al. Implementation of a self-management support approach (WISE) across a health system: a process evaluation explaining what did and did not work for organisations, clinicians and patients. Implement Sci. 2014;9(1):129. doi:10.1186/s13012-014-0129-5
  • Young HM, Apps LD, Harrison SL, Johnson-Warrington VL, Hudson N, Singh SJ. Important, misunderstood, and challenging: a qualitative study of nurses’ and allied health professionals’ perceptions of implementing self-management for patients with COPD. Int J Chron Obstruct Pulmon Dis. 2015;10:1043–1052. doi:10.2147/COPD.S78670
  • Attar-Zadeh D, Lewis H, Orlovic M. Health-care resource requirements and potential financial consequences of an environmentally driven switch in respiratory inhaler use in England. J Health Econ Outcomes Res. 2021;8(2):46–54. doi:10.36469/jheor.2021.26113
  • Brown D, Portlock J, Rutter P, Nazar Z. From community pharmacy to healthy living pharmacy: positive early experiences from Portsmouth, England. Res Social Adm Pharm. 2014;10(1):72–87. doi:10.1016/j.sapharm.2013.04.014
  • Hill A, Wilcock M. Exploring pharmacist involvement in the discharge medicines reconciliation process and information transfer to primary care: an observational study. Int J Clin Pharm. 2021. doi:10.1007/s11096-021-01300-8
  • NHS England. Case study: structured medication reviews and the primary care network multidisciplinary approach; 2020. Available from: https://www.england.nhs.uk/gp/case-studies/structured-medication-reviews-and-the-primary-care-network-multidisciplinary-approach/. Accessed July 6, 2021.
  • Heitkemper MM, Jarrett ME, Levy RL, et al. Self-management for women with irritable bowel syndrome. Clin Gastroenterol Hepatol. 2004;2(7):585–596. doi:10.1016/S1542-3565(04)00242-3
  • Pleasants RA, Riley IL, Mannino DM. Defining and targeting health disparities in chronic obstructive pulmonary disease. Int J Chron Obstruct Pulmon Dis. 2016;11:2475–2496. doi:10.2147/COPD.S79077
  • Celedon JC, Roman J, Schraufnagel DE, Thomas A, Samet J. Respiratory health equality in the United States. The American Thoracic Society perspective. Ann Am Thorac Soc. 2014;11(4):473–479. doi:10.1513/AnnalsATS.201402-059PS
  • Calderon-Larranaga A, Carney L, Soljak M, et al. Association of population and primary healthcare factors with hospital admission rates for chronic obstructive pulmonary disease in England: national cross-sectional study. Thorax. 2011;66(3):191–196. doi:10.1136/thx.2010.147058
  • The Lancet Respiratory Medicine. COVID-19 casts light on respiratory health inequalities. Lancet Respir Med. 2020;8(8):743. doi:10.1016/S2213-2600(20)30308-8
  • Philip KEJ, Lonergan B, Cumella A, Farrington-Douglas J, Laffan M, Hopkinson NS. COVID-19 related concerns of people with long-term respiratory conditions: a qualitative study. BMC Pulm Med. 2020;20(1):319. doi:10.1186/s12890-020-01363-9
  • The Lancet Respiratory Medicine. COVID-19 heralds a new era for chronic diseases in primary care. Lancet Respir Med. 2020;8(7):647. doi:10.1016/S2213-2600(20)30274-5
  • Tsutsui M, Gerayeli F, Sin DD. Pulmonary rehabilitation in a post-COVID-19 world: telerehabilitation as a new standard in patients with COPD. Int J Chron Obstruct Pulmon Dis. 2021;16:379–391. doi:10.2147/COPD.S263031
  • Kaye L, Theye B, Smeenk I, Gondalia R, Barrett MA, Stempel DA. Changes in medication adherence among patients with asthma and COPD during the COVID-19 pandemic. J Allergy Clin Immunol Pract. 2020;8(7):2384–2385. doi:10.1016/j.jaip.2020.04.053
  • National Health Service. The NHS long term plan; 2019 [ Updated August 21, 2019]. Available from: https://www.longtermplan.nhs.uk/wp-content/uploads/2019/08/nhs-long-term-plan-version-1.2.pdf. Accessed April 30, 2021.
  • Ding H, Fatehi F, Maiorana A, Bashi N, Hu W, Edwards I. Digital health for COPD care: the current state of play. J Thorac Dis. 2019;11(Suppl 17):S2210–S2220. doi:10.21037/jtd.2019.10.17
  • Shaw G, Whelan ME, Armitage LC, Roberts N, Farmer AJ. Are COPD self-management mobile applications effective? A systematic review and meta-analysis. NPJ Prim Care Respir Med. 2020;30(1):11. doi:10.1038/s41533-020-0167-1
  • Williams V, Price J, Hardinge M, Tarassenko L, Farmer A. Using a mobile health application to support self-management in COPD: a qualitative study. Br J Gen Pract. 2014;64(624):e392–400. doi:10.3399/bjgp14X680473
  • Zwerink M, Brusse-Keizer M, van der Valk PD, et al. Self management for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2014;2014(3):CD002990.
  • Effing T, Monninkhof EM, van der Valk PD, et al. Self-management education for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2007;(4):CD002990. doi:10.1002/14651858.CD002990.pub2
  • International Consortium for Health Outcomes Measurement. Standard Sets. Start measuring outcomes that matter most to patients. Available from: https://www.ichom.org/standard-sets/. Accessed July 6, 2021.