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ORIGINAL RESEARCH

External Validation and User Experiences of the ProPal-COPD Tool to Identify the Palliative Phase in COPD

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Pages 3129-3138 | Received 26 Aug 2022, Accepted 24 Nov 2022, Published online: 22 Dec 2022

References

  • Lozano R, Naghavi M, Foreman K., et al. Global and regional mortality from 235 causes of death for 20 age groups in 1990 and 2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet. 2012;380:2095–2128. doi:10.1016/s0140-6736(12)61728-0
  • Habraken JM, van der Wal WM, Ter Riet G, et al. Health-related quality of life and functional status in end-stage COPD: a longitudinal study. Eur Respir J. 2011;37(2):280–288. doi:10.1183/09031936.00149309
  • Tavares N, Jarrett N, Hunt K, et al. Palliative and end-of-life care conversations in COPD: a systematic literature review. ERJ Open Res. 2017;3(2):00068–2016. doi:10.1183/23120541.00068-2016
  • Vermylen JH, Szmuilowicz E, Kalhan R. Palliative care in COPD: an unmet area for quality improvement. Int J Chron Obstruct Pulmon Dis. 2015;10:1543–1551. doi:10.2147/copd.s74641
  • Beernaert K, Cohen J, Deliens L, et al. Referral to palliative care in COPD and other chronic diseases: a population-based study. Respir Med. 2013;107:1731–1739. doi:10.1016/j.rmed.2013.06.003
  • National Institute for Health and Care Excellence. Quality Standard for End of Life Care for Adults. Issued: August 2011 Last Modified: October 2013. National Institute for Health and Care Excellence; 2013.
  • Rietjens JAC, Sudore RL, Connolly M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017;18:e543–e551. doi:10.1016/s1470-2045(17)30582-x
  • Boddaert M. Netherlands Quality Framework for Palliative Care. IKNL/Palliactief; 2017.
  • Duenk RG, Verhagen C, Dekhuijzen P, et al. The view of pulmonologists on palliative care for patients with COPD: a survey study. Int J Chron Obstruct Pulmon Dis. 2017;12:299–311. doi:10.2147/copd.s121294
  • Momen N, Hadfield P, Kuhn I, et al. Discussing an uncertain future: end-of-life care conversations in chronic obstructive pulmonary disease. A systematic literature review and narrative synthesis. Thorax. 2012;67:777–780. doi:10.1136/thoraxjnl-2012-201835
  • Broese JMC, van der Kleij R, Verschuur EML, et al. Provision of Palliative Care in Patients with COPD: a Survey Among Pulmonologists and General Practitioners. Int J Chron Obstruct Pulmon Dis. 2021;16:783–794. doi:10.2147/COPD.S293241
  • GOLD. Pocket Guide to COPD Diagnosis, Management, and Prevention. A Guide for Health Care Professionals; 2017.
  • Marin JM, Alfageme I, Almagro P, et al. Multicomponent indices to predict survival in COPD: the COCOMICS study. Eur Respir J. 2013;42:323–332. doi:10.1183/09031936.00121012
  • Bellou V, Belbasis L, Konstantinidis AK, et al. Prognostic models for outcome prediction in patients with chronic obstructive pulmonary disease: systematic review and critical appraisal. BMJ. 2019;367:l5358. doi:10.1136/bmj.l5358
  • Thomas K, Armstrong WJ. Gold Standards Framework Proactive Identification Guidance. 6th ed. London: Gold Standards Framework and Royal College of General Practitioners; 2016.
  • White N, Kupeli N, Vickerstaff V, et al. How accurate is the ‘Surprise Question’ at identifying patients at the end of life? A systematic review and meta-analysis. BMC Med. 2017;15:139. doi:10.1186/s12916-017-0907-4
  • Tripp D, Janis J, Jarrett B, et al. How Well Does the Surprise Question Predict 1-year Mortality for Patients Admitted with COPD? J Gen Intern Med. 2021;36(9):2656–2662. doi:10.1007/s11606-020-06512-8
  • Casale G, Magnani C, Fanelli R, et al. Supportive and palliative care indicators tool (SPICT™): content validity, feasibility and pre-test of the Italian version. BMC Palliat Care. 2020;19(1):79. doi:10.1186/s12904-020-00584-3
  • Thoonsen B, Engels Y, van Rijswijk E. Early identification of palliative care patients in general practice: development of RADboud indicators for PAlliative Care Needs (RADPAC). Br J Gen Pract. 2012;62(602):e625–e631. doi:10.3399/bjgp12X654597
  • Duenk RG, Verhagen S, Bronkhorst EM, et al. Development of the ProPal-COPD tool to identify patients with COPD for proactive palliative care. Int J Chron Obstruct Pulmon Dis. 2017;12:2121–2128. doi:10.2147/COPD.S140037
  • Müllerova H, Maselli DJ, Locantore N, et al. Hospitalized exacerbations of COPD: risk factors and outcomes in the ECLIPSE cohort. Chest. 2015;147:999–1007. doi:10.1378/chest.14-0655
  • Meehan E, Foley T, Kelly C, et al. Advance Care Planning for Individuals With Chronic Obstructive Pulmonary Disease: a Scoping Review of the Literature. J Pain Symptom Manage. 2020;59:1344–1361. doi:10.1016/j.jpainsymman.2019.12.010
  • Bleeker SE, Moll HA, Steyerberg EW, et al. External validation is necessary in prediction research: a clinical example. J Clin Epidemiol. 2003;56:826–832. doi:10.1016/s0895-4356(03)00207-5
  • Broese JMC, van der Kleij R, Kerstjens HAM, et al. A cluster randomized controlled trial on a multifaceted implementation strategy to promote integrated palliative care in COPD: study protocol of the COMPASSION study. BMC Palliat Care. 2020;19:155. doi:10.1186/s12904-020-00657-3
  • Broese JMC, Van der Kleij RMJJ, Verschuur EML, et al. Implementation of a palliative care intervention into routine COPD-care – mixed-method evaluation of the COMPASSION study. BMC Palliative Care. 2022, 12;21:219 doi:10.1186/s12904-022-01110-3
  • Newton AS, March S, Gehring ND, et al. Establishing a Working Definition of User Experience for eHealth Interventions of Self-reported User Experience Measures With eHealth Researchers and Adolescents: scoping Review. J Med Internet Res. 2021;23(12):e25012. doi:10.2196/25012
  • van Wijmen MPS, Schweitzer BPM, Pasman HR, et al. Identifying patients who could benefit from palliative care by making use of the general practice information system: the Surprise Question versus the SPICT. Fam Pract. 2020;37:641–647. doi:10.1093/fampra/cmaa049
  • Tan JY, Conceicao EP, Wee LE, et al. COVID-19 public health measures: a reduction in hospital admissions for COPD exacerbations. Thorax. 2021;76(5):512–513. doi:10.1136/thoraxjnl-2020-216083
  • Gerayeli FV, Milne S, Cheung C, et al. COPD and the risk of poor outcomes in COVID-19: a systematic review and meta-analysis. EClinicalMedicine. 2021;33:100789. doi:10.1016/j.eclinm.2021.100789
  • Veldhoven CMM, Nutma N, De Graaf W, et al. Screening with the double Surprise question to predict deterioration and death: an explorative study. BMC Palliat Care. 2019;18:118. doi:10.1186/s12904-019-0503-9
  • Ermers DJ, Kuip EJ, Veldhoven C, et al. Timely identification of patients in need of palliative care using the Double Surprise Question: a prospective study on outpatients with cancer. Palliat Med. 2021;35:592–602. doi:10.1177/0269216320986720
  • Epiphaniou E, Shipman C, Harding R, et al. Avoid ‘prognostic paralysis’--just get ahead and plan and co-ordinate care. NPJ Prim Care Respir Med. 2014;24:14085. doi:10.1038/npjpcrm.2014.85
  • Ament SMC, van den Beuken-Everdingen M, Maessen JMC, et al. Professionals guidance about palliative medicine in chronic heart failure: a mixed-method study. BMJ Support Palliat Care. 2020. doi:10.1136/bmjspcare-2020-002580
  • Finamore P, Spruit MA, Schols J, et al. Clustering of patients with end-stage chronic diseases by symptoms: a new approach to identify health needs. Aging Clin Exp Res. 2021;33(2):407–417. doi:10.1007/s40520-020-01549-5
  • Collins GS, Ogundimu EO, Altman DG. Sample size considerations for the external validation of a multivariable prognostic model: a resampling study. Stat Med. 2016;35(2):214–226. doi:10.1002/sim.6787
  • Broese JMC, Van der Kleij RMJJ, Verschuur EML, et al. The effect of an integrated palliative care intervention on quality of life and acute healthcare use in patients with COPD: results of the COMPASSION cluster randomized controlled trial. Submitted. 2022.
  • Straw S, Byrom R, Gierula J, et al. Predicting one-year mortality in heart failure using the ‘Surprise Question’: a prospective pilot study. Eur J Heart Fail. 2019;21:227–234. doi:10.1002/ejhf.1353