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Original Research

Type 1 Diabetes Mellitus in Pediatric Patients and Its Impact on Relationships in the Family Environment

, , , , & ORCID Icon
Pages 4973-4980 | Published online: 15 Dec 2020

References

  • Fortins RF, Lacerda EMA, Silverio RNC, et al. Predictor factors of glycemic control in children and adolescents with type 1 diabetes mellitus treated at a referral service in Rio de Janeiro, Brazil. Diabetes Res Clin Pract. 2019;154:138–145. doi:10.1016/j.diabres.2019.05.027
  • Mills SA, Hofman PL, Jiang Y, et al. Health-related quality of life of Taranaki children with Type 1 diabetes. N Z Med J. 2015;128:25–32.
  • Iversen AS, Graue M, Haugstvedt A, et al. Being mothers and fathers of a child with type 1 diabetes aged 1 to 7 years: a phenomenological study of parents’ experiences. Int J Qual Stud Health Well-Being. 2018;13(1):1487758. doi:10.1080/17482631.2018.1487758
  • Hilliard ME, Tully C, Monaghan M, et al. Design and development of a stepped-care behavioral intervention to support parents of young children newly diagnosed with type 1 diabetes. Contemp Clin Trials. 2017;62:1–10. doi:10.1016/j.cct.2017.08.009
  • Pickup JC, Harris A. Assessing quality of life for new diabetes treatments and technologies: a simple patient-centered score. J Diabetes Sci Technol. 2007;1(3):394–399. doi:10.1177/193229680700100312
  • Smith LB, Liu X, Johnson SB, et al. Family adjustment to diabetes diagnosis in children: can participation in a study on type 1 diabetes genetic risk be helpful?. Pediatr Diabetes. 2018;19(5):1025–1033. doi:10.1111/pedi.12674
  • Visekruna S, McGillis Hall L, Parry M, et al. Intersecting health policy and the social determinants of health in pediatric Type 1 diabetes management and care. J Pediatr Nurs. 2017;37:62–69. doi:10.1016/j.pedn.2017.06.001
  • Millan M. [Quality-of-life questionnaire designed for diabetes mellitus (EsDQOL)]. Aten Primaria. 2002;29(8):517–521. doi:10.1016/S0212-6567(02)70623-9. Spanish.
  • Burroughs TE, Desikan R, Waterman BM, et al. Development and validation of the diabetes quality of life brief clinical inventory. Diabetes Spectr. 2004;17(1):41–49. doi:10.2337/diaspect.17.1.41
  • Dudzińska M, Tarach JS, Burroughs TE, et al. Validation of the polish version of Diabetes Quality of Life – Brief Clinical Inventory (DQL-BCI) among patients with type 2 diabetes. Arch Med Sci. 2014;5:891–898. doi:10.5114/aoms.2014.46210
  • Hansen JA, Weissbrod C, Schwartz DD, et al. Paternal involvement in pediatric Type 1 diabetes: fathers’ and mothers’ psychological functioning and disease management. Fam Syst Health. 2012;30(1):47–59. doi:10.1037/a0027519
  • Teasdale A, Limbers C. Avoidant coping moderates the relationship between paternal involvement in the child’s type 1 diabetes (T1D) care and parenting stress. J Child Health Care. 2018;22(4):606–618. doi:10.1177/1367493518767068
  • Pate T, Klemenčič S, Battelino T, et al. Fear of hypoglycemia, anxiety, and subjective well-being in parents of children and adolescents with type 1 diabetes. J Health Psychol. 2019;24(2):209–218. doi:10.1177/1359105316650931
  • Saoji N, Palta M, Young HN, et al. The relationship of Type 1 diabetes self-management barriers to child and parent quality of life: a US cross-sectional study. Diabet Med. 2018;35(11):1523–1530. doi:10.1111/dme.13760
  • Anderson YC, Wynter LE, Treves KF, et al. Assessment of health-related quality of life and psychological well-being of children and adolescents with obesity enrolled in a New Zealand community-based intervention programme: an observational study. BMJ Open. 2017;7(8):e015776. doi:10.1136/bmjopen-2016-015776
  • Malerbi FE, Negrato CA, Gomes MB. Assessment of psychosocial variables by parents of youth with type 1 diabetes mellitus. Diabetol Metab Syndr. 2012;4:48. doi:10.1186/1758-5996-4-48
  • D´Annunzio G, Gialetti S, Carducci C, et al. Italian translation, cultural adaption and validation of the PedsQLTM3.0mdiabetes module questionnaire in children with type diabetes and their parents. Health Qual Life Outcomes. 2014;12(1):115. doi:10.1186/s12955-014-0115-2
  • Saylor J, Hanna KM, Calamaro CJ. Experiences of college students who are newly diagnosed with Type 1 diabetes mellitus. J Pediatr Nurs. 2019;44:74–80. doi:10.1016/j.pedn.2018.10.020
  • Boogerd EA, Damhuis AMA, van Alfen-van der Velden JA, et al. Assessment of psychosocial problems in children with type 1 diabetes and their families: the added value of using standardised questionnaires in addition to clinical estimations of nurses and paediatricians. J Clin Nurs. 2015;24(15–16):2143–2151. doi:10.1111/jocn.12789
  • Kim SH, Lee A. Health-literacy-sensitive diabetes self-management interventions: a systematic review and meta-analysis. Worldviews Evid Based Nurs. 2016;13(4):324–333. doi:10.1111/wvn.12157
  • Hoey H, Lange K, Skinner TC, et al. For Hvidoere International Study Group. Hvidoere smiley faces: international diabetes quality of life assessment tool for young children. Pediatr Diabetes. 2018;19(3):553–558. doi:10.1111/pedi.12602
  • Orenstein GA, Lewis L. Eriksons stages of psychosocial development. In: StatPearls. 2020. Available from: https://www.ncbi.nlm.nih.gov/books/NBK556096/. Accessed September 14, 2020.
  • Kelo M, Martikainen M, Eriksson E. Self-care of school-age children with diabetes: an integrative review. J Adv Nurs. 2011;67(10):2096–2108. doi:10.1111/j.1365-2648.2011.05682.x
  • Holmström MR, Häggström M, Söderberg S. Being facilitators in a challenging context-school personnel’s experiences of caring for youth with diabetes Type 1. J Pediatr Nurs. 2018;43:e114–e119. doi:10.1016/j.pedn.2018.08.007
  • Sparapani V, Borges ALV, Dantas IRDO, et al. Children with Type 1 diabetes mellitus and their friends: the influence of this interaction in the management of the disease. Rev Lat Am Enfermagem. 2012;20(1):117–125. doi:10.1590/S0104-11692012000100016
  • Czenczek-Lewandowska E, Leszczak J, Weres A, et al. Sedentary behaviors in children and adolescents with type 1 diabetes, depending on the insulin therapy used. Medicine (Baltimore). 2019;98(19):e15625. doi:10.1097/MD.0000000000015625
  • Yayan EH, Zengin M, Erden Karabulut Y, et al. The relationship between the quality of life and depression levels of young people with type I diabetes. Perspect Psychiatr Care. 2019;55(2):291–299. doi:10.1111/ppc.12349
  • Kummer S, Stahl-Pehe A, Castillo K, et al. Health behaviour in children and adolescents with type 1 diabetes compared to a representative reference population. PLoS One. 2014;9(11):e112083. doi:10.1371/journal.pone.0112083
  • Canbulat Sahiner N, Turkmen AS, Acikgoz A, et al. Effectiveness of two different methods for pain reduction during insulin injection in children with Type 1 diabetes: buzzy and shotBlocker. Worldviews Evid Based Nurs. 2018;15(6):464–470. doi:10.1111/wvn.12325
  • Anderson BJ, Laffel LM, Domenger C, et al. Factors associated with diabetes-specific health-related quality of life in youth with Type 1 diabetes: the Global TEENs Study. Diabetes Care. 2017;40(8):1002–1009. doi:10.2337/dc16-1990
  • Lindström C, Åman J, Norberg AL, et al. “Mission Impossible”; the mothering of a child with Type 1 diabetes - from the perspective of mothers experiencing burnout. J Pediatr Nurs. 2017;36:149–156. doi:10.1016/j.pedn.2017.06.002
  • Savin KL, Hamburger ER, Monzon AD, et al. Diabetes-specific family conflict: informant discrepancies and the impact of parental factors. J Fam Psychol. 2018;32(1):157–163. doi:10.1037/fam0000364
  • Dagan E, Dubovi I, Levy M, et al. Adherence to diabetes care: knowledge of biochemical processes has a high impact on glycaemic control among adolescents with type 1 diabetes. J Adv Nurs. 2019;75(11):2701–2709. doi:10.1111/jan.14098
  • Quaye AA, Coyne I, Söderbäck M, et al. Children´s active participation in decisión-making processes during hospitalisation: an observational study. J Clin Nurs. 2019;28(23–24):4525–4537. doi:10.1111/jocn.15042