Lived Experience of People with Type 1 Diabetes in North East Ethiopia; Psycho-Social and Economical Perspective, a Phenomenological Study

References

• WHO. Classification of Diabetes Mellitus; 2019.
   Google Scholar
• FDRE-MOH. Guidelines on clinical and programmatic management of major non communicable diseases, Addis Ababa, Ethiopia; 2016:37.
   Google Scholar
• Kalyva E, Malakonaki E, Eiser C, Mamoulakis D. Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions. Pediatr Diabet. 2011;12(1):34–40. PMID: 20546163. doi:10.1111/j.1399-5448.2010.00653.x
   PubMed Web of Science ®Google Scholar
• Thomas NJ, Jones SE, Weedon MN, Shields BM, Oram RA, Hattersley AT. Frequency and phenotype of type 1 diabetes in the first six decades of life: a cross-sectional, genetically stratified survival analysis from UK Biobank. Lancet Diabet Endocrinol. 2018;6(2):122–129. PMID: 29199115; PMCID: PMC5805861. doi:10.1016/S2213-8587(17)30362-5
   PubMed Web of Science ®Google Scholar
• Onwudiwe NC, Mullins CD, Winston RA, et al. Barriers to self-management of diabetes: a qualitative study among low-income minority diabetics. Ethn Dis. 2011;21(1):27–32. PMID: 21462726.
   PubMed Web of Science ®Google Scholar
• Celik S, Kelleci M, Avcı D, et al. Psychosocial adaptation and strategies for coping with stress of adolescents with type 1 diabetes (in Turkish) . Florence Nightingale J Nur. 2015;23(2):105–115.
   Google Scholar
• IDF, International Diabetes Federation. Diabetes atlas 10 edition; 2021. Available from: https://diabetesatlas.org/idfawp/resourcefiles/2021/07/IDF_Atlas_10th_Edition_2021.pdf. Accessed November 28, 2023.
   Google Scholar
• Wang H, Naghavi M, Allen C, et al. Global, regional, and national life expectancy, all-cause mortality, and cause-specific mortality for 249 causes of death, 1980-2015: a systematic analysis for the global burden of disease study 2015. Lancet. 2016;388(10053):1459–1544.
   PubMed Web of Science ®Google Scholar
• International Diabetes Federation. (IDF) Diabetes Atlas. 7th Edition, International Diabetes Federation, Brussels, Belgium; 2015. Available from: http://www.diabetesatlas.org. Accessed November 28, 2023.
   Google Scholar
• UK Department of Health. National Service Framework for Diabetes; 2016.
   Google Scholar
• Hapunda G, Abubakar A, van de Vijver F, Pouwer F. Living with type 1 diabetes is challenging for Zambian adolescents: qualitative data on stress, coping with stress and quality of care and life. BMC Endocr Disord. 2015;15(1):20. PMID: 25928592; PMCID: PMC4411790. doi:10.1186/s12902-015-0013-6
   PubMed Web of Science ®Google Scholar
• Nielsen HB, Ovesen LL, Mortensen LH, Lau CJ, Joensen LE. Type 1 diabetes, quality of life, occupational status and education level - A comparative population-based study. Diabet Res Clin Pract. 2016;121:62–68. PMID: 27662040. doi:10.1016/j.diabres.2016.08.021
   PubMed Web of Science ®Google Scholar
• Agalu A, Zeleke A, Woldie M. Diabetic complications among adult diabetic patients of a tertiary hospital in northeast Ethiopia. Adv Public Health. 2015;1–7. doi:10.1155/2015/290920
   Google Scholar
• Habtewold TD, Tsega WD, Wale BY. Diabetes mellitus in outpatients in debre berhan referral hospital, Ethiopia. J Diabet Res. 2016;2016:3571368. PMID: 26881245; PMCID: PMC4736777. doi:10.1155/2016/3571368
   PubMedGoogle Scholar
• Abebe N, Kebede T, Addise D Diabetes in Ethiopia 2000–2016 – prevalence and related acute and chronic complications; a systematic review; 2017.
   Google Scholar
• Alemu F. Prevalence of diabetes mellitus disease and its association with level of education among adult patients attending at dilla referral hospital, Ethiopia. J Diabet Metab. 2015;6(521):1.
   Google Scholar
• Lincoln Y, Guba E. Handbook of Qualitative Research. Thousand Oaks, CA: Sage; 2000.
   Google Scholar
• Hortensius J, Kars M, Wierenga W, et al. Perspectives of patients with type 1 or insulin-treated type 2 diabetes on self-monitoring of blood glucose: a qualitative study. BMC Public Health. 2012;12(167). doi:10.1186/1471-2458-12-167
   PubMedGoogle Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa
   Google Scholar
• Balfe M, Doyle F, Smith D, et al. What’s distressing about having type 1 diabetes? A qualitative study of young adults’ perspectives. BMC Endocr Disord. 2013;13:14.
   PubMed Web of Science ®Google Scholar
• King K, Nayar R, Wilkes S. Perceptions of adolescent patients of the “lived experience” of type 1 diabetes. Am Diabet Ass. 2017;30(1):23–35.
   Google Scholar
• Garmo A, Hornsten A, Leksell J. The pump was a saviour for me.’ Patients’ experiences of insulin pump therapy. Diabet Med. 2013;30(6):717–723. doi:10.1111/dme.12155
   PubMed Web of Science ®Google Scholar
• Ryninks K, Sutton E, Thomas E, et al. Attitudes to exercise and diabetes in young people with type 1 diabetes mellitus: a qualitative analysis. PLoS One. 2015;10(10):e0137562. doi:10.1371/journal.pone.0137562
   PubMed Web of Science ®Google Scholar
• DeWall CN, Deckman T, Gailliot MT, Bushman BJ. Sweetened blood cools hot tempers: physiological self-control and aggression. Aggress Behav. 2011;37(1):73–80. doi:10.1002/ab.20366
   PubMed Web of Science ®Google Scholar
• Trief P, Sandberg J, Dimmock J, et al. Personal and relationship challenges of adults with type 1 diabetes: a qualitative focus group study. Diabet Care. 2013;36(9):2483–2488. doi:10.2337/dc12-1718
   PubMed Web of Science ®Google Scholar
• Rintala T, Paavilainen E, Åstedt-Kurki P. Everyday life of a family with diabetes as described by adults with type 1 diabetes. Eur Diabet Nurs. 2013;10(3):86–90. doi:10.1002/edn.234
   Google Scholar
• Brod M, Pohlman B, Wolden M, et al. Non-severe nocturnal hypoglycemic events: experience and impacts on patient functioning and well-being. Qual Life Res. 2013;22(5):997–1004. doi:10.1007/s11136-012-0234-3
   PubMed Web of Science ®Google Scholar
• Sourav A, Arijit S, Uttam K, et al. A qualitative study on the thoughts of diabetics against initiation of insulin therapy. Int J Sci Stud. 2017;5(2):21.
   Google Scholar
• Hill S, Gingras J, Gucciardi E. The lived experience of Canadian University students with type 1 diabetes mellitus. Can J Diabet. 2013;37(4):237–242. doi:10.1016/j.jcjd.2013.04.009
   PubMed Web of Science ®Google Scholar
• Ruston A, Smith A, Fernando B. Diabetes in the workplace, diabetic’s perceptions and experiences of managing their disease at work: a qualitative study. BMC Public Health. 2013;13(10). doi:10.1186/1471-2458-13-386
   PubMedGoogle Scholar