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Original Research

Perinatal Grief Among Poor Rural and Urban Women in Central India

ORCID Icon, ORCID Icon, ORCID Icon &
Pages 305-315 | Published online: 09 Mar 2021

References

  • Akuze J, Blencowe H, Waiswa P, et al. Randomised comparison of two household survey modules for measuring stillbirths and neonatal deaths in five countries: the Every Newborn-INDEPTH study. Lancet Global Health. 2020;8(4):e555–e566. doi:10.1016/S2214-109X(20)30044-9
  • Wang H, Liddell CA, Coates MM, et al. Global, regional, and national levels of neonatal, infant, and under-5 mortality during 1990–2013: a systematic analysis for the Global Burden of Disease Study 2013. Lancet. 2014;384(9947):957–979. doi:10.1016/S0140-6736(14)60497-9
  • Frøen JF, Friberg IK, Lawn JE, et al. Stillbirths: progress and unfinished business. Lancet. 2016;387(10018):574–586. doi:10.1016/S0140-6736(15)00818-1
  • Liu L, Oza S, Hogan D, et al. Global, regional, and national causes of under-5 mortality in 2000–15: an updated systematic analysis with implications for the sustainable development goals. Lancet. 2016;388(10063):3027–3035. doi:10.1016/S0140-6736(16)31593-8
  • Wang H, Bhutta ZA, Coates MM, et al. Global, regional, national, and selected subnational levels of stillbirths, neonatal, infant, and under-5 mortality, 1980–2015: a systematic analysis for the Global Burden of Disease Study 2015. Lancet. 2016;388(10053):1725–1774.
  • WHO. Children: improving survival and well-being. Newsroom Factsheet; 2020. https://www.who.int/news-room/fact-sheets/detail/children-reducing-mortality#:~:text=Children%20under%20the%20age%20of%205&text=The%20total%20number%20of%20under,1990%20to%2038%20in%202019. Accessed October 14, 2020.
  • Blencowe H, Cousens S, Jassir FB, et al. National, regional, and worldwide estimates of stillbirth rates in 2015, with trends from 2000: a systematic analysis. Lancet Global Health. 2016;4:e98–e108. doi:10.1016/S2214-109X(15)00275-2
  • Sankar M, Neogi S, Sharma J, et al. State of newborn health in India. J Perinatol. 2016;36(s3):S3. doi:10.1038/jp.2016.183
  • Swaminathan A, Fell DB, Regan A, Walker M, Corsi DJ. Association between interpregnancy interval and subsequent stillbirth in 58 low-income and middle-income countries: a retrospective analysis using demographic and health surveys. Lancet Global Health. 2020;8(1):e113–e122. doi:10.1016/S2214-109X(19)30458-9
  • Saleem S, Tikmani SS, McClure EM, et al. Trends and determinants of stillbirth in developing countries: results from the Global Network’s Population-Based Birth Registry. Reprod Health. 2018;15(S1):100. doi:10.1186/s12978-018-0526-3
  • Roy MP. Mitigating the stillbirth challenge in India. Lancet. 2016;387(10032):1995. doi:10.1016/S0140-6736(16)30460-3
  • Temmerman M, Lawn JE. Stillbirths count, but it is now time to count them all. Lancet. 2018;392(10158):1602–1604. doi:10.1016/S0140-6736(18)32342-0
  • Dandona R, Kumar GA, Akbar M, Bhattacharya D, Nanda P, Dandona L. Deferred and referred deliveries contribute to stillbirths in the Indian state of Bihar: results from a population-based survey of all births. BMC Med. 2019;17(1):1–17. doi:10.1186/s12916-019-1265-1
  • Duffy CR, Moore JL, Saleem S, et al. Malpresentation in low- and middle-income countries: associations with perinatal and maternal outcomes in the Global Network. Acta Obstet Gynecol Scand. 2019;98(3):300–308. doi:10.1111/aogs.13502
  • Bapat U, Alcock G, More NS, Das S, Joshi W, Osrin D. Stillbirths and newborn deaths in slum settlements in Mumbai, India: a prospective verbal autopsy study. BMC Pregnancy Childbirth. 2012;12(1):39. doi:10.1186/1471-2393-12-39
  • More NS, Bapat U, Das S, et al. Community mobilization in Mumbai slums to improve perinatal care and outcomes: a cluster randomized controlled trial. PLoS Med. 2012;9(7):1–12. doi:10.1371/journal.pmed.1001257
  • Baschieri A, Gordeev VS, Akuze J, et al. “Every Newborn-INDEPTH”(EN-INDEPTH) study protocol for a randomised comparison of household survey modules for measuring stillbirths and neonatal deaths in five Health and Demographic Surveillance sites. J Glob Health. 2019;9(1). doi:10.7189/jogh.09.010901.
  • Black BP. Stillbirth at term: grief theories for care of bereaved women and families in intrapartum settings. J Midwifery Womens Health. 2020;65:316–322. doi:10.1111/jmwh.13108
  • Bhalotra S, Brulé R, Roy S. Women’s inheritance rights reform and the preference for sons in India. J Dev Econ. 2018;102275.
  • Jeffery P, Jeffery R. Delayed periods and falling babies: the ethnophysiology and politics of pregnancy loss in Rural North India. Anthropol Preg Loss. 1996;17.
  • Milazzo A. Why are adult women missing? Son preference and maternal survival in India. J Dev Econ. 2018;134:467–484. doi:10.1016/j.jdeveco.2018.06.009
  • Bhat A, Byatt N. Infertility and perinatal loss: when the bough breaks. Curr Psychiatry Rep. 2016;18(3):1–11. doi:10.1007/s11920-016-0663-8
  • Burden C, Bradley S, Storey C, et al. From grief, guilt pain and stigma to hope and pride–a systematic review and meta-analysis of mixed-method research of the psychosocial impact of stillbirth. BMC Pregnancy Childbirth. 2016;16(1):1–12. doi:10.1186/s12884-016-0800-8
  • Ellis A, Chebsey C, Storey C, et al. Systematic review to understand and improve care after stillbirth: a review of parents’ and healthcare professionals’ experiences. BMC Pregnancy Childbirth. 2016;16(1). doi:10.1186/s12884-016-0806-2.
  • Gold KJ, Sen A, Leon I. Whose fault is it anyway? Guilt, blame, and death attribution by mothers after stillbirth or infant death. Illness Crisis Loss. 2018;26(1):40–57. doi:10.1177/1054137317740800
  • Goldstein RD, Lederman RI, Lichtenthal WG, et al. The grief of mothers after the sudden unexpected death of their infants. Pediatrics. 2018;141(5):e20173651. doi:10.1542/peds.2017-3651
  • Heazell AE, Siassakos D, Blencowe H, et al. Stillbirths: economic and psychosocial consequences. Lancet. 2016;387(10018):604–616. doi:10.1016/S0140-6736(15)00836-3
  • Huberty JL, Matthews J, Leiferman J, Hermer J, Cacciatore J. When a baby dies: a systematic review of experimental interventions for women after stillbirth. Reprod Sci. 2016;24:1933719116670518. doi:10.1177/1933719116670518
  • Koopmans L, Wilson T, Cacciatore J, Flenady V. Support for mothers, fathers and families after perinatal death. Cochrane Database Syst Rev. 2013;(6). doi:10.1002/14651858.CD000452.pub3.
  • Mehta L, Verma I. Helping parents to face perinatal loss. Indian J Pediatr. 1990;57(5):607–609. doi:10.1007/BF02728696
  • Gopichandran V, Subramaniam S, Kalsingh MJ. Psycho-social impact of stillbirths on women and their families in Tamil Nadu, India - a qualitative study. BMC Pregnancy Childbirth. 2018;18(1):N.PAG-N.PAG. doi:10.1186/s12884-018-1742-0
  • Mammen OK. Women’s reaction to perinatal loss in India: an exploratory, descriptive study. Infant Ment Health J. 1995;16(2):94–101. doi:10.1002/1097-0355(199522)16:2<94::AID-IMHJ2280160204>3.0.CO;2-3
  • Roberts LR, Anderson BA, Lee JW, Montgomery SB. Grief and women: stillbirth in the social context of India. Int J Childbirth. 2012;2(3):187–198. doi:10.1891/0886-6708.2.3.187
  • Roberts LR, Montgomery S, Lee JW, Anderson BA. Social and cultural factors associated with perinatal grief in Chhattisgarh, India. J Community Health. 2012;37(3):572–582.
  • Roberts LR, Montgomery SB. Mindfulness-based intervention for perinatal grief in rural India: improved mental health at 12 months follow-up. Issues Ment Health Nurs. 2016;37(12):942–951. doi:10.1080/01612840.2016.1236864
  • Horton R, Samarasekera U. Stillbirths: ending an epidemic of grief. Lancet. 2016;387(10018):515–516. doi:10.1016/S0140-6736(15)01276-3
  • Shakespeare C, Merriel A, Bakhbakhi D, et al. Parents’ and healthcare professionals’ experiences of care after stillbirth in low‐and middle‐income countries: a systematic review and meta‐summary. BJOG. 2019;126(1):12–21. doi:10.1111/1471-0528.15430
  • Testoni I, Bregoli J, Pompele S, Maccarini A. Social support in perinatal grief and Mothers’ continuing bonds: a qualitative study with Italian Mourners. Affilia. 2020;35(4):485–502. doi:10.1177/0886109920906784
  • Pancholi N, Rami B. Care of unfortunate mothers with perinatal loss. Int J Res Med Sci. 2018;6(8):2691. doi:10.18203/2320-6012.ijrms20183253
  • Rodriguez AL, Stephens DP, Brewe E, Ramarao I, Madhivanan P. A network analysis of domestic violence beliefs among young adults in India. J Interpers Violence. 2019;0886260519889923. doi:10.1177/0886260519889923
  • Kumar A, Mohanty SK. Intra-urban differentials in the utilization of reproductive healthcare in India, 1992–2006. J Urban Health. 2011;88(2):311–328. doi:10.1007/s11524-010-9532-7
  • Hazarika I. Women’s reproductive health in slum populations in India: evidence from NFHS-3. J Urban Health. 2010;87(2):264–277. doi:10.1007/s11524-009-9421-0
  • Government of India. National Family Health Survey (NFHS-4) 2015–16: India Fact Sheet. Mumbai: International Institute for Population Sciences; 2018.
  • Dixit P, Dwivedi L. Utilization of institutional delivery services across successive births in India. Int J Popul Stud. 2017;2(2). doi:10.18063/IJPS.2016.02.006
  • Yadav AK, Sahni B, Jena PK, Kumar D, Bala K. Trends, differentials, and social determinants of maternal health care services utilization in Rural India: an analysis from pooled data. Womens Health Rep. 2020;1(1):179–189. doi:10.1089/whr.2019.0022
  • Dongarwar D, Salihu HM. Place of residence and inequities in adverse pregnancy and birth outcomes in India. Int J Maternal Child Health AIDS. 2020;9(1):53.
  • Jones P, Lee J, Phillips L, Zhang X, Jaceldo K. An adaptation of Brislin’s translation model for cross-cultural research. Nurs Res. 2001;50(5):300–304. doi:10.1097/00006199-200109000-00008
  • Mosley-Williams A, Lumley MA, Gillis M, Leisen J, Guice D. Barriers to treatment adherence among African American and white women with systemic lupus erythematosus. Arthritis Rheumat. 2002;47(6):630–638. doi:10.1002/art.10790
  • Roberts LR, Montgomery SB, Lee JW, Anderson BA. Social and cultural factors associated with perinatal grief in Chhattisgarh, India. J Community Health. 2012;37(3):572–582. doi:10.1007/s10900-011-9485-0
  • Roberts L, Montgomery S. Mindfulness-based intervention for perinatal grief education and reduction among poor women in Chhattisgarh, India: a pilot study. Interdis J Pract Global Dev. 2016;2(1).
  • Hatton C, Emerson E. The development of a shortened ‘ways of coping’ questionnaire for use with direct care staff in learning disability services. Ment Handicap Res. 1995;8(4):237–251. doi:10.1111/j.1468-3148.1995.tb00160.x
  • Mascha K. Staff morale in day care centres for adults with intellectual disabilities. J Appl Res Intellect Disab. 2007;20(3):191–199. doi:10.1111/j.1468-3148.2006.00316.x
  • Potvin L, Lasker J, Toedter L. Measuring grief: a short version of the perinatal grief scale. J Psychopathol Behav Assess. 1989;11(1):29–45. doi:10.1007/BF00962697
  • Toedter LJ, Lasker JN, Janssen HM. International comparison of studies using the Perinatal Grief Scale: a decade of research on pregnancy loss. Death Stud. 2001;25(3):205–228. doi:10.1080/074811801750073251
  • Paul M, Essén B, Sariola S, Iyengar S, Soni S, Klingberg Allvin M. Negotiating collective and individual agency: a qualitative study of young women’s reproductive health in Rural India. Qual Health Res. 2017;27(3):311–324. doi:10.1177/1049732315613038
  • Basu S, Zuo X, Lou C, Acharya R, Lundgren R. Learning to be gendered: gender socialization in early adolescence among urban poor in Delhi, India, and Shanghai, China. J Adolesc Health. 2017;61(4):S24–S29. doi:10.1016/j.jadohealth.2017.03.012
  • Choithani C. Gendered livelihoods: migrating men, left-behind women and household food security in India. Gender Place Culture. 2019;1–22.
  • Pallikadavath S, Bradley T. Dowry, ‘dowry autonomy’ and domestic violence among young married women in India. J Biosoc Sci. 2019;51(3):353–373. doi:10.1017/S0021932018000226
  • Rai P. The labor of social change: seasonal labor migration and social change in rural western India. Geoforum. 2018;92:171–180. doi:10.1016/j.geoforum.2018.04.015
  • Raman S, Srinivasan K, Kurpad A, Ritchie J, Razee H. “We have to ask and only then do”: unpacking agency and autonomy in women’s reproductive health in urban India. Health Care Women Int. 2016;37(10):1119–1137. doi:10.1080/07399332.2016.1140171
  • Venkatesh V, Rai A, Sykes TA, Aljafari R. Combating infant mortality in rural india: evidence from a field study of eHealth kiosk implementations. MIS Q. 2016;40(2):353–380. doi:10.25300/MISQ/2016/40.2.04
  • Arora S, Sanditov B Caste as community? Networks of social affinity in a South Indian village. 2009.
  • Dasgupta A, Battala M, Saggurti N, et al. Local social support mitigates depression among women contending with spousal violence and husband’s risky drinking in Mumbai slum communities. J Affect Disord. 2013;145(1):126–129. doi:10.1016/j.jad.2012.04.043
  • Andavarapu D, Edelman DJ, Monangi N. Victims or survivors: resilience from the slum Dwellers’ perspective. In: Galderisi A, Colucci A, editors. Smart, Resilient and Transition Cities: Emerging Approaches and Tools for a Climate-Sensitive Urban Development. Amsterdam, Netherlands: Elsevier; 2018:320.
  • Roberts LR, Montgomery SB. Mindfulness-based intervention for perinatal grief after Stillbirth in Rural India. Issues Ment Health Nurs. 2015;36(3):222–230. doi:10.3109/01612840.2014.962676