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Review

Deliberative democracy in health care: current challenges and future prospects

Pages 123-136 | Published online: 16 Dec 2015

References

  • DryzekJAyirtmanSNiemeyerSDeliberative democracyBevirMEncyclopedia of Political TheoryThousand Oaks, CASAGE Publications Inc2010353357
  • DryzekJFoundations and Frontiers of Deliberative GovernanceOxfordOxford University Press2010
  • ElsterJDeliberative Democracy (Cambridge Studies in the Theory of Democracy)CambridgeCambridge University Press1998
  • ErcanSADeliberative democracyPhillipsDCEncyclopedia of Educational Theory and PhilosophyThousand Oaks, CASAGE Publications2014214216
  • FishkinJWhen the People SpeakOxfordOxford University Press2011
  • CohenJDeliberative democracy and democratic legitimacyHamlinAPettitPThe Good PolityOxfordBlackwell19891734
  • GutmannAThompsonDWhy Deliberative Democracy?PrincetonPrinceton University Press200237
  • SmithGWalesCCitizens’ juries and deliberative democracyPolit Stud2000485165
  • MillerDDeliberative democracy and social choicePolit Stud1992XLSpecial Issue5467
  • BlattbergCPatriotic, not deliberative, democracyCrit Rev Int Soc Polit Philos199461155174
  • RyfeDMDoes deliberative democracy work?Annu Rev Polit Sci200584971
  • WarrenMDemocracy and AssociationsPrinceton, NJPrinceton University Press2001
  • SandersLMAgainst deliberationPolit Theory1997253347376
  • MansbridgeJBohmanJChambersSA systemic approach to deliberative democracyParkinsonJMansbridgeJDeliberative Systems: Deliberative Democracy at the Large Scale Theories of Institutional DesignCambridge, UKCambridge University Press2012126
  • BohmanJThe coming of age of deliberative democracyJ Polit Philos199864400425
  • FungARecipes for public spheres: eight institutional design choices and their consequencesJ Polit Philos2003113338367
  • ThompsonDFDeliberative democratic theory and empirical political scienceAnnu Rev Polit Sci200811497520
  • WHODeclaration of Alma-Ata. International Conference on Primary Health Care, Alma-Ata, USSR; 6–12 September 1978GenevaWorld Health Organization1978
  • HubbardGKiddLDonaghyEMcDonalsCKearneyNA review about involving people affected by cancer in research, policy and planning and practicePatient Educ Couns200765213316860517
  • ForbatLHubbardGKeaneyNPatient and public involvement: models and muddlesJ Clin Nurs2009182547255419207798
  • ForsterRGabeJVoice or choice? patient and public involvement in the National Health Service in England under New LabourInt J Health Serv200838233335618459284
  • KelsonMUser Involvement: A Guide to Developing Effective User Involvement Strategies in the NHSLondonCollege of Health1997
  • ExecutiveNHSPatient and Public Involvement in the New NHSLeedsDepartment of Health1999
  • ExecutiveNHSThe NHS Plan: A Plan for Involvement, a Plan for ReformLondonDepartment of Health2000
  • BeresfordPCroftSCitizen Involvement: A Practical Guide for ChangeBasingstokeMacmillan1993
  • Council of EuropeRecommendations of the Committee of Ministers of the Council of Europe on the Development of Structures for Citizen and Patient Participation in the Decision-Making Process Affecting Health CareStrasbourgCouncil of Europe2000
  • CalnanMJanozHJolantaSCitizen participation and patient choice in health reformSaltmanRBFiguerasJSakellaridesCCritical Challenges for Health Reform in EuropeBuckinghamOpen University Press1998325338
  • FroschDLMoultonBWWexlerRMHolmes-RovnerMVolkRJLevinCAShared decision making in the United States: policy and implementation activity on multiple frontsZ Evid Fortbild Qual Gesundhwes201110530531221620326
  • Premier’s Council on Health, Well-Being and Social JusticeA Framework for Evaluating DevolutionTorontoThe Task Force1994
  • Nova Scotia’s Blueprint for Health System ReformReport of the Minister’s Action Committee on Health System ReformHalifax, NSDepartment of Health1994
  • MaxwellJRosellSPierre-GerlierFGiving citizens a voice in health-care policy in CanadaBMJ20033261031103312742930
  • Commonwealth Department of Health and Aged CareNational Health Strategy. Healthy Participation – Achieving Greater Public Participation and Accountability in the Australian Health Care SystemBackground Paper No 12Commonwealth of AustraliaCanberra1993
  • NSW Department of HealthCommunity Consultation and Participation Resource Kit for Area Health Service Managers and Project LeadersState Health Publication No 9801881999
  • MartinGPFinnRPatient as team members: opportunities, challenges and paradoxes of including patients in multi-professional healthcare teamsSociol Health Illn20113371050106521668454
  • DonovanJLCoastJPublic participation in priority setting: commitment or illusion?CoastJPriority Setting: The Health Care DebateChichesterWiley1996
  • CalnanMCitizens, users and health careEur J Public Health1997712
  • TenbenselTVirtual special issue introduction: Public participation in health policy in high income countries – a review of why, who, what, which, and where?Soc Sci Med2010711537154020869799
  • MilewaTCommunity participation and health care priorities: reflections on policy, theatre and reality in BritainHealth Promot Int1997122161168
  • LomasJReluctant rationers: public input to health care prioritiesJ Health Serv Res Policy19972210311110180361
  • HarrisonSMortMWhich Champions? Which People? Public and User Involvement in Health Care as a Technology of LegitimationSoc Policy Adm19983216070
  • MilewaTValentineJCalnanMCommunity participation and citizenship in British health care planning: narratives of power and involvement in the changing welfare stateSociol Health Illn1999214445465
  • SaltmanRBFiguerasJEuropean Health Care Reform. Analysis of Current StrategiesCopenhagenWHO Regional Publications, European Series, No 721997112 Available from: http://www.euro.who.int/en/about-us/partners/observatory/publications/studies/european-health-care-reform.-analysis-of-current-strategiesAccessed April 25, 2015
  • ArnsteinSA ladder of citizen participationJ Am Inst Plan196935216224
  • FinegoldBCitizen participation: a review of the issuesRosenHMMetschJMLeveySThe Consumer and the Health Care System: Social and Managerial PerspectivesNew YorkSpectrum1997
  • EmanuelEJEmanuelLLFour models of the physician-patient relationshipJAMA199226716222122261556799
  • CahillJPatient participation: a concept analysisJ Adv Nurs1996245615718876417
  • HanleyBBradburnJBarnesMInvolving the public in NHS, Public Health and Social Care Research: Briefing Notes for Researchers2nd edHampshireINVOLVE2004
  • ThompsonAGHThe meaning of patient involvement and participation in health care consultations: a taxonomySoc Sci Med2007641297131017174016
  • CharlesCDeMaioSLay participation in health care decision making: A conceptual frameworkJ Health Polit Policy Law1993188819048120350
  • DeberRBBaumannAOClinical reasoning in medicine and nursing: decision making vs problem solvingTeach Learn Med19924140146
  • DeberRBKraetschmerNUrowitzSSharpeSDo people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populationsHealth Expect20071024825817678513
  • TritterJQMcCallumAThe snakes and ladders of user involvement: moving beyond ArnsteinHealth Policy20067615616816006004
  • MarentBForsterRNowakPConceptualizing Lay Participation in Professional Health Care OrganizationsAdm Soc201547827850
  • LuhmannNSocial SystemsStanford, CAStanford University Press1995
  • CarmanKDardessPMaurerMPatient and family engagement: a framework for understanding the elements and developing interventions and policiesHealth Aff2013322223231
  • HaynesBHainesABarriers and bridges to evidence based clinical practiceBMJ19983172732769677226
  • BarryMJEdgman-LevitanSShared decision making – the pinnacle of patient-centered careN Engl J Med2012366978078122375967
  • Secretary of State for HealthEquity and Excellence. Liberating the NHSLondonThe Stationary Office2010 Report No: Cm 7881. Quoted in Coulter et al [87]301
  • CharlesCGafniAWhelanTShared decision-making in the medical encounter: What does it mean? (Or it takes at least two to tango)Soc Sci Med19974456816929032835
  • CharlesCGafniAWhelanTDecision-making in the physician-patient encounter: revisiting the shared treatment decision-making modelSoc Sci Med19994965166110452420
  • LegareFWittmanHOShared decision making: examining key elements and barriers to adoption into routine clinical practiceHealth Aff2013322276284
  • WagnerEHBarrettPBarryMJBarlowWFowlerFJJrThe effect of a shared decision-making program on rates of surgery for benign prostatic hyperplasia. Pilot resultsMed Care1995337657707543638
  • O’ConnerAMRostomAFisetVDecision aids for patients facing health treatment or screening decisions: systematic reviewBMJ199931973173410487995
  • SchollILoonMK-vSepuchaKElwynGLegareFHarterMMeasurement of shared decision making – a review of instrumentsZ Evid Fortbild Qual Gesundhwes201110531332421620327
  • MoumjidNGafniABremondACarrereM-OShared decision making in the medical encounter: are we all talking about the same thing?Med Decis Making20072753954617873252
  • StaceyDLegareFPouliotSShared decision making models to inform an interprofessional perspective on decision making: a theory analysisPatient Educ Couns20108016417219945813
  • ParkinsonJRDeliberating in the Real World: Problems of Legitimacy in Deliberative DemocracyOxfordOxford University Press2006 Quoted in Mansbridge et al [14]6
  • AbelsonJEylesJMcLeodCBDoes deliberation make a difference? Results from a citizens panel study of health goals priority settingHealth Policy20036696106
  • CrawfordMJRutterDManleyCSustematic review of involving patients in the planning and development of health careBMJ20023251512098707
  • AbelsonJForestP-GEylesJDeliberations about deliberative methods: issues in the design and evaluation of public participation processesSoc Sci Med20035723925112765705
  • RennORisk communication: Towards a rational discourse with the publicJ Hazard Mater199229465519
  • WeblerT“Right” discourse in citizen participation: an evaluative yardstickRennOWeblerTWiedelmannPFairness and Competence in Citizen Participation: Evaluating Models for Environmental DiscourseBoston, MAKluwer Academic Press19953586
  • BeierleTCUsing social goals to evaluate public participation in environmental decisionsPolicy Stud Rev1999163–475103
  • GravelKLegareFGrahamIDBarriers and facilitators to implementing shared decision-making in clinical practice: a systematic review of health professionals’ perceptionsImplement Sci200616112
  • LegareFRatteSGravelKGrahamIDBarriers and facilitators to implementing shared decision-making in clinical practice: Update of a systematic review of health professionals’ perceptionsPatient Educ Couns20087352653518752915
  • MittonGSmithNPeacockSPublic participation in health care priority setting: a scoping reviewHealth Policy20099121922819261347
  • WhiteDConsumer and community participation: a reassessment of process, impact and valueAlbrechtGLFitzpatrickRScrimshawSCThe Handbook of Social Studies in Health and MedicineThousand OaksSage Publications2000465480
  • RoweGFrewerLJEvaluating public participation exercises: a research agendaSci Technol Human Values200429512556
  • RoweGFrewerLJPublic participation methods: a framework for evaluationSci Technol Human Values200425329
  • KieslerDJAuerbachSMOptimal matches of patient preferences for information, decision-making and interpersonal behaviour: evidence, models and interventionsPatient Educ Couns20066131934116368220
  • LegareFRatteSStaceyDInterventions for improving the adoption of shared decision making by healthcare professionalsCochrane Database Syst Rev2010CD00673220464744
  • LegareFSt-JacquesSGagnonSPrenatal screening for Down syndrome: a survey of willingness in women and family physicians to engage in shared decision-makingPrenat Diagn20113131932621268046
  • LegareFPolitiMCDroletRTraining health professionals in shared decision-making: an international environmental scanPatient Educ Couns20128815916922305195
  • JoostenEADefuentes-MerillasIde WeertGHSystematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health statusPsychother Pschycosom200877219226
  • DuncanEBestCHagenSShared decision making interventions for people with mental health conditionsCochrane Database Syst Rev2010CD00729720091628
  • CoulterAEdwardsAElwynGThomsonRImplementing shared decision making in the UKZ Evid Fortbild Qual Gesundhwes201110530030421620325
  • ChurchJSaundersDWankeMCitizen participation in health decision-making: past experience and future prospectsJ Public Health Policy2002231123212013713
  • CoulterAPatient engagement – what works?J Ambul Care Manage2012352808922415281
  • CoulterAEllinsJEffectiveness of strategies for informing, educating, and involving patientsBMJ20073357609242717615222
  • CoulterAEngaging patients in their healthcarePicker Institute Europe2006 Available from: http://www.pickereurope.org/wp-content/uploads/2014/10/Engaging-patients-in-their-healthcare-how-is-the-UK-doing.pdfAccessed June 11, 2015
  • CoulterAEngaging Patients in HealthcareNew York, NYMc Graw-Hill Education2011
  • Holmes-RovnerMValadeDOrlowskiCDrausCNabozny-ValerioBKeiserSImplementing shared decision-making in routine practice: barriers and opportunitiesHealth Expect2000318219111281928
  • FroschDLMaySGRendleKASTietbohlCElwynGAuthoritarian physicians and fear of being labeled ‘difficult’ among key obstacles to shared decision makingHealth Aff201231510301038
  • DolanPCooksonRFergusonBEffect of discussion and deliberation on the public’s views of priority setting in health care: focus group studyBMJ199931891691910102858
  • AbelsonJLomasJEylesJBirchSVeenstraGDoes the community want devolved authority? results of deliberative polling in OntarioCMAJ199515344034127634217
  • AbelsonJForestP-GEylesJObtaining public input for health systems decision making: Past experiences and future prospectsCan Pub Adm20024517097
  • WisemanVMooneyGBerryGTangKCInvolving the general public in priority setting: experiences from AustraliaSoc Sci Med2003561001101212593873
  • van de BovenkampHMTrappenburgMJGritKJPatient participation in collective healthcare decision-making: the Dutch modelHealth Expect2009131738519719537
  • LenaghanJInvolving the public in rationing decisions. The experience of citizens juriesHealth Policy1999491–2456110827290
  • AbelsonJForestP-GEylesJCasebeerAMartinEMackeanGExamining the role of context in the implementation of a deliberative public participation experiment: results from a Canadian comparative studySoc Sci Med2007642115212817368680