Involving “authentic” cancer patients, their caregivers, and multidisciplinary professionals in a quality improvement trajectory in a hospital cancer pathway: a study protocol

References

• Nederlandse Kankerregistratie, Integraal Kankercentrum Nederland, c2011-2018 [updated 2018 February 2]. Available from: https://www.cijfersoverkanker.nlAccessed June 5, 2018
   Google Scholar
• FaberMJGrandeSWollersheimHHermensRElwynGNarrowing the gap between organisational demands and the quest for patient involvement: the case for coordinated care pathwaysInt J Care Coord2014171–27278
   Google Scholar
• RotterTKinsmanLJamesEClinical pathways: effects on professional practice, patient outcomes, length of stay and hospital costsCochrane Database Syst Rev201033CD006632
   Google Scholar
• RøsstadTGaråsenHSteinsbekkASletvoldOGrimsmoADevelopment of a patient-centred care pathway across healthcare providers: a qualitative studyBMC Health Serv Res20131312123547654
   PubMed Web of Science ®Google Scholar
• CharlesCGafniAWhelanTDecision-making in the physician-patient encounter: revisiting the shared treatment decision-making modelSoc Sci Med199949565166110452420
   PubMed Web of Science ®Google Scholar
• Friesen-StormsJHBoursGJvan der WeijdenTBeurskensAJShared decision making in chronic care in the context of evidence based practice in nursingInt J Nurs Stud201552139340225059684
   PubMed Web of Science ®Google Scholar
• ParsonsEAtkinsonPLay constructions of genetic risksSociol Health Illn199214437455
   Web of Science ®Google Scholar
• CrawfordMJRutterDManleyCSystematic review of involving patients in the planning and development of health careBMJ200232573751263126712458240
   PubMed Web of Science ®Google Scholar
• RobertGCornwellJLocockLPurushothamASturmeyGGagerMPatients and staff as codesigners of healthcare servicesBMJ2015350g771425670179
   PubMed Web of Science ®Google Scholar
• AttreePMorrisSPayneSVaughanSHinderSExploring the influence of service user involvement on health and social care services for cancerHealth Expect2010144858
   Web of Science ®Google Scholar
• TsianakasVRobertGMabenJImplementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer servicesSupport Care Cancer201220112639264722544223
   PubMed Web of Science ®Google Scholar
• FudgeNWolfeCDMckevittCAssessing the promise of user involvement in health service development: ethnographic studyBMJ2008336763931331718230646
   PubMed Web of Science ®Google Scholar
• AhmedFBurtJRolandMMeasuring patient experience: concepts and methodsPatient20147323524124831941
   PubMedGoogle Scholar
• CraigGMInvolving users in developing health servicesBMJ2008336763928628718230645
   PubMed Web of Science ®Google Scholar
• DewarBMackayRSmithSPullinSTocherRUse of emotional touchpoints as a method of tapping into the experience of receiving compassionate care in a hospital settingJ Res Nurs20101512941
   Google Scholar
• BakKMacdougallLGreenEHindsight is 20/20: lessons learned after implementing experience based designPXJ2014121219
   Google Scholar
• RenedoAMarstonCSpyridonidisDBarlowJPatient and public involvement in healthcare quality improvement: how organizations can help patients and professionals to collaboratePublic Manag Rev20151711734
   Web of Science ®Google Scholar
• ArmstrongNHerbertGAvelingELDixon-WoodsMMartinGOptimizing patient involvement in quality improvementHealth Expect2013163e364723374430
   PubMed Web of Science ®Google Scholar
• DonettoSTsianakasVRobertGUsing experience-based co-design (EBCD) to improve the quality of healthcare: mapping where we are now and establishing future directionsLondonKing’s College London2014
   Google Scholar
• BossenCDindlerCIversenOSImpediments to User Gains: Experiences from a Critical Participatory Design ProjectProceedings of the Participatory Design ConferenceNew YorkACM Press20123140
   Google Scholar
• BowenSMcsevenyKLockleyEWolstenholmeDCobbMDeardenAHow was it for you? Experiences of participatory design in the UK health serviceCoDesign201394230246
   Web of Science ®Google Scholar
• MockfordCStaniszewskaSGriffithsFHerron-MarxSThe impact of patient and public involvement on UK NHS health care: a systematic reviewIJQHC2012242838
   Google Scholar
• DaykinNEEvansDPetsoulasCSayersAEvaluating the impact of patient and public involvement initiatives on UK health services: a systematic reviewEvid Policy200734765
   Google Scholar
• ReedJCookGBolterVDouglasBOlder people involved in policy and planning: factors which support engagementJ Aging Stud200822273281
   Web of Science ®Google Scholar
• BatePRobertGBringing user experience to healthcare improvement: the concepts, methods and practices of experience-based designOxford/New YorkRadcliffe Publishing2007
   Google Scholar
• HartgerinkJMCrammJMBakkerTJvan EijsdenAMMackenbachJPNieboerAPThe importance of multidisciplinary teamwork and team climate for relational coordination among teams delivering care to older patientsJ Adv Nurs201470479179923980594
   PubMed Web of Science ®Google Scholar
• BalducciLYatesJGeneral guidelines for the management of older patients with cancerOncology20001411A22122711195414
   PubMed Web of Science ®Google Scholar
• WolstenholmeDCobbMBowenSWrightPDeardenADesign led service improvement for older peopleAMJ201038465470
   Google Scholar
• BatePRobertGToward more user-centric OD: lessons from the field of experience-based design and a case studyJ Appl Behav Sci2007434166
   Google Scholar
• Statistics NetherlandsCBS StatLine Available from: https://opendata.cbs.nl/statline/#/CBS/nl/Accessed September 20, 2018
   Google Scholar
• ZuyderlandMCAtriumMCContract met de samenleving: het eeuwfeest 2004 als startpunt [Contract with society: the century festivities 2004 as a starting point]2004 Available from: https://www.atriummc.nl/home/patienten-bezoekers/patientenservice/contract-met-de-samenleving/contract-met-de-samenleving/Accessed October 4, 2018 Dutch
   Google Scholar
• El EnanyNCurrieGLockettAA paradox in healthcare service development: professionalization of service usersSoc Sci Med201380243023415588
   PubMed Web of Science ®Google Scholar
• RussellBHResearch Methods in Anthropology: Qualitative and Quantitative ApproachesLanham, MDAltaMira Press2006
   Google Scholar
• TaylorMJMcnicholasCNicolayCDarziABellDReedJESystematic review of the application of the plan-do-study-act method to improve quality in healthcareBMJ Qual Saf2014234290298
   PubMed Web of Science ®Google Scholar
• StraussACorbinJBasics of Qualitative Research: Grounded Theory Procedures and TechniquesNewbury Park, CASage2008
   Google Scholar
• LincolnYSGubaEGNaturalistic InquiryNewbury Park, CASage Publications1985
   Google Scholar
• CookGKleinBInvolvement of older people in care, service and policy planningJ Clin Nurs200514Suppl 143
   Web of Science ®Google Scholar
• LatimerJThe dark at the bottom of the stairs: performance and participation of hospitalized older peopleMed Anthropol Q199913218621310440029
   PubMed Web of Science ®Google Scholar
• ArnsteinSRA ladder of citizen participationJ Am Inst Plann1969354216224
   Web of Science ®Google Scholar