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Study Protocol

Farm-based day care services – a prospective study protocol on health benefits for people with dementia and next of kin

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Pages 643-653 | Published online: 14 Aug 2019

References

  • World Health Organization. Dementia. Fact sheet; 2017 Available from: www.who.int/news-room/fact-sheets/detail/dementia. Accessed 320, 2019.
  • World Health Organization, Altzheimer’s Disease International. Dementia: A Public Health Priority. World Health Organization Geneva; 2012 Available from: http://www.who.int/mental_health/publications/dementia_report_2012/en/. Accessed March 20, 2019.
  • Engedal K, Haugen P. Demens - Sykdommer, Diagnostikk Og Behandling [dementia – Diseases, Diagnostics and Treatment]. Tønsberg: Norwegian National Advisory Unite on Ageing and Health; 2017.
  • Prince M, Bryce R, Albanese E, Wimo A, Ribeiro W, Ferri CP. The global prevalence of dementia: a systematic review and metaanalysis. Alzheimers Dement. 2013;9(1):63–75 e62. doi:10.1016/j.jalz.2012.11.00723305823
  • Sanders S. Is the glass half empty or half full? Reflections on strain and gain in caregivers of individuals with Alzheimer’s disease. Soc Work Health Care. 2005;40(3):57–73. doi:10.1300/J010v40n03_0415837668
  • George LK, Gwyther LP. Caregiver weil-being: a multidimensional examination of family caregivers of demented adults. Gerontologist. 1986;26(3):253–259. doi:10.1093/geront/26.3.2533721232
  • Bruvik FK Persons with dementia and their family carers - quality of life, burden of care, depression and the effect of psychosocial support [dissertation]. Oslo: University of Oslo; 2014.
  • Pinquart M, Sorensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003;18(2):250–267.12825775
  • Nortug B Caring burden of cohabitants living with partners suffering from chronic obstructive pulmonary disease or dementia [dissertation]. Trondheim, Norwegian University of Science and Technology; 2011.
  • Norwegian Ministry of Health and Care Services. Dementia Plan 2020 - a More Dementia Friendly Society. Oslo; 2015 Available from: https://www.regjeringen.no/en/dokumenter/dementia-plan-2020/id2465117/. Accessed March 20, 2019.
  • Norwegian Ministry of Health and Care Services. Mestring, muligheter og mening [Mastery, possibilities and meaning]. White paper No: 25 (2005–2006). Oslo 2006 Available from: https://www.regjeringen.no/no/dokumenter/stmeld-nr-25-2005-2006-/id200879/sec1. Assessed 320, 2019.
  • Gjøra L, Eek A, Kirkevold Ø. Nasjonal Kartlegging Av Tilbudet Til Personer Med Demens [national Survey of Services for People with Dementia]. Tønsberg: Norwegian National Advisory Unit for Ageing and Health; 2015.
  • Ibsen TL, Eriksen S, Patil GG. Farm based day care in Norway–a complementary service for people with dementia. JMDH. 2018;11:349. doi:10.2147/JMDH.S16713530100730
  • Norwegian Ministry of Local Government and Regional Development and Ministry of Agriculture and Food. Inn På Tunet. Handlingsplan 20132017. [care Farming – Action Plan 2013–2017]. Oslo; 2013 Available from: https://www.regjeringen.no/no/dokumenter/inn-pa-tunet/id735080/. Accessed March 20, 2019.
  • Norwegian Ministry of Food and Agriculture. Garden som ressurs – marknaden som mål — vekst og gründerskap innan landbruksbaserte næringar [The farm as a resource - The market as a goal - Growth and entrepreneurship in agriculture based industry], White paper No: 31 (2014–2015). Assessed 320, 2019.
  • Vernooij-Dassen M, Vasse E, Zuidema S, Cohen-Mansfield J, Moyle W. Psychosocial interventions for dementia patients in long-term care. Int Psychogeriatr. 2010;22(7):1121–1128. doi:10.1017/S104161021000136520813074
  • Alm AK, Danielsson S, Porskrog-Kristiansen L, Non-pharmalogical interventions towards behavioural and psychological symptoms of dementia—an integrated literature review. Open J Nurs. 2018;8:434–447. doi:10.4236/ojn.2018.87034
  • Caspar S, Davis ED, Douziech A, Scott DR. Non-pharmacological management of behavioral and psychological symptoms of dementia: what works, in what circumstances, and why? Innov Aging. 2018;1(3):1–10.
  • Rokstad AMM, Engedal K, Kirkevold O, Benth JS, Barca ML, Selbaek G. The association between attending specialized day care centers and the quality of life of people with dementia. Int Psychogeriatr. 2017;29(4):627–636. doi:10.1017/S104161021600201527852334
  • Reinar LM, Fure B, Kirkehei I, Dahm KT, Landmark B Effekten av tilrettelagt dagsentertilbud til personer med demens [The effect of adapted day care services for people with dementia]. Report No 21-2011. Oslo: National knowledge centre for health services; 2011.
  • Strandenæs MG, Lund A, Rokstad AMM. Experiences of attending day care services designed for people with dementia–a qualitative study with individual interviews. Aging Ment Health. 2018;22(6):764–772. doi:10.1080/13607863.2017.130489228345965
  • Rokstad AMM, McCabe L, Robertson JM, Strandenaes MG, Tretteteig S, Vatne S. Day Care for People with Dementia: A Qualitative Study Comparing Experiences from Norway and Scotland. Dementia (London); 2017.
  • Vandepitte S, Van Den Noortgate N, Putman K, Verhaeghe S, Verdonck C, Annemans L. Effectiveness of respite care in supporting informal caregivers of persons with dementia: a systematic review. Int J Geriatr Psychiatry. 2016;31(12):1277–1288. doi:10.1002/gps.450427245986
  • Tretteteig S, Vatne S, Rokstad AM. The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature. Aging Ment Health. 2016;20(5):450–462. doi:10.1080/13607863.2015.102376525815563
  • Pedersen I, Patil G, Berget B, Ihlebaek C, Gonzalez MT. Mental health rehabilitation in a care farm context: a descriptive review of Norwegian intervention studies. Work J Prev Assess Rehab. 2016;53(1):31–43.
  • Pedersen I, Ihlebaek C, Kirkevold M. Important elements in farm animal-assisted interventions for persons with clinical depression: a qualitative interview study. Disabil Rehabil. 2012;34(18):1526–1534. doi:10.3109/09638288.2011.65030922324733
  • Elings M, Hassink J The added value of care farms and effects on clients. Paper presented at: Building Sustainable Rural Futures; 9th European IFSA Symposium; 2010; Vienna.
  • Hassink J, Elings M, Zweekhorst M, van Den Nieuwenhuizen N, Smit A. Care farms in the Netherlands: attractive empowerment-oriented and strengths-based practices in the community. Health Place. 2010;16(3):423–430. doi:10.1016/j.healthplace.2009.10.01620079675
  • Hine R, Peacock J, Pretty JN. Care Farming in the UK: Evidence and Opportunities. Essex: University of Essex Report for the National Care Farming Initiative (UK); 2008.
  • Orr N, Wagstaffe A, Briscoe S, Garside R. How do older people describe their sensory experiences of the natural world? A systematic review of the qualitative evidence. BMC Geriatr. 2016;16(1):116. doi:10.1186/s12877-016-0288-027245753
  • Hendriks IH, van Vliet D, Gerritsen DL, Droes RM. Nature and dementia: development of a person-centered approach. Int Psychogeriatr. 2016;28(9):1455–1470. doi:10.1017/S104161021600061227140909
  • Swane CE. Green Care - the significance of nature to dementia sufferers. Sygeplejersken. 2005;14:22–26.
  • Gonzalez MT, Kirkevold M. Benefits of sensory garden and horticultural activities in dementia care: a modified scoping review. J Clin Nurs. 2014;23(19–20):2698–2715. doi:10.1111/jocn.1238824128125
  • de Bruin S, Oosting S, Van Der Zijpp A, Enders-Slegers M-J, Schols J. The concept of green care farms for older people with dementia: an integrative framework. Dementia. 2010;9(1):79–128. doi:10.1177/1471301209354023
  • de Boer B, Hamers JP, Zwakhalen SM, Tan FE, Beerens HC, Verbeek H. Green care farms as innovative nursing homes, promoting activities and social interaction for people with dementia. J Am Med Dir Assoc. 2017;18(1):40–46. doi:10.1016/j.jamda.2016.10.01328012503
  • de Bruin SRD, Oosting SJ, Kuin Y, et al. Green care farms promote activity among elderly people with dementia. J Housing Elder. 2009;23(4):368–389. doi:10.1080/02763890903327275
  • de Bruin S, Oosting S, Tobi H, Blauw Y, Schols J, De Groot C. Day care at green care farms: a novel way to stimulate dietary intake of community-dwelling older people with dementia? J Nutr Health Aging. 2010;14(5):352–357.20424801
  • Taranrød LB. Mellom Hjem Og Institusjon: Dagtilbud Tilrettelagt for Personer Med Demens: Utviklingsprogram Om Dagtilbud Og Avlastningsordninger for Personer Med Demens [between Home and Institution: Day Care Services Adapted for People with Dementia: An Program on Day Care Services and Releif Support for People with Dementia]. Tønsberg: Norwegian National Advisory Unit for Aging and Health; 2012.
  • Strandli EHA, Skovdahl K, Kirkevold Ø, Ormstad H. Inn på tunet− et helsefremmende tilbud-En studie om ektefellers opplevelse med dagaktivitetstilbud for personer med demens [care farming – a health promotion intervention. A study on spouses’ experiences with day care services for people with dementia]. Tidsskr Omsorgsforsk. 2016;2(03):202–211. doi:10.18261/issn.2387-5984-2016-03-06
  • Foss C, Ellefsen B. The value of combining qualitative and quantitative approaches in nursing research by means of method triangulation. J Adv Nurs. 2002;40(2):242–248.12366654
  • Rokstad AMM, Engedal K, Kirkevold Ø, Benth JŠ, Selbæk G. The impact of attending day care designed for home-dwelling people with dementia on nursing home admission: a 24-month controlled study. BMC Health Serv Res. 2018;18(1):864. doi:10.1186/s12913-018-3686-530445937
  • Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in Alzheimer’s disease: patient and caregiver reports. J Ment Health Aging. 1999;5:21–32.
  • World Health Organization, Well-being Measures in Primary Health Care-the DepCare Project. Copenhagen 1998 Available from: http://www.euro.who.int/__data/assets/pdf_file/0016/130750/E60246.pdf. Assessed 320, 2019.
  • Nasreddine ZS, Phillips NA, Bedirian V, et al. The montreal cognitive assessment, MoCA: a brief screening tool for mild cognitive impairment. J Am Geriatr Soc. 2005;53(4):695–699. doi:10.1111/j.1532-5415.2005.53221.x15817019
  • Hughes CP, Berg L, Danziger WL, Coben LA, Martin RL. A new clinical scale for the staging of dementia. Br J Psychiatry. 1982;140(6):566–572. doi:10.1192/bjp.140.6.5667104545
  • Morris JC. The Clinical Dementia Rating (CDR): current version and scoring rules. Neurol. 1993;43(11):2412–2414. doi:10.1212/WNL.43.11.2412-a
  • Reed BR, Jagust WJ, Coulter L. Anosognosia in Alzheimer’s disease: relationships to depression, cognitive function, and cerebral perfusion. J Clin Exp Neuropsychol. 1993;15(2):231–244. doi:10.1080/016886393084025608491848
  • Cummings JL, Mega M, Gray K, Rosenberg-Thompson S, Carusi DA, Gornbein J. The neuropsychiatric inventory comprehensive assessment of psychopathology in dementia. Neurol. 1994;44(12):2308. doi:10.1212/WNL.44.12.2308
  • Montgomery SA, Asberg M. A new depression scale designed to be sensitive to change. Br J Psychiatry. 1979;134(4):382–389. doi:10.1192/bjp.134.4.382444788
  • Alexopoulos GS, Abrams RC, Young RC, Shamoian CA. Cornell scale for depression in dementia. Biol Psychiatry. 1988;23(3):271–284.3337862
  • Shankar KK, Walker M, Frost D, Orrell MW. The development of a valid and reliable scale for rating anxiety in dementia (RAID). Aging Ment Health. 1999;3(1):39–49. doi:10.1080/13607869956424
  • Lyketsos CG, Galik E, Steele C, et al. The general medical health rating: a bedside global rating of medical comorbidity in patients with dementia. J Am Geriatr Soc. 1999;47(4):487–491. doi:10.1111/j.1532-5415.1999.tb07245.x10203127
  • Podsiadlo D, Richardson S. The timed “up & go”: a test of basic functional mobility for frail elderly persons. J Am Geriatr Soc. 1991;39(2):142–148. doi:10.1111/j.1532-5415.1991.tb01616.x1991946
  • Lawton MP, Brody EM. Assessment of older people: self-maintaining and instrumental activities of daily living. Nurs Res. 1970;19(3):278. doi:10.1097/00006199-197005000-00029
  • Kunz S. Psychometric properties of the EQ-5D in a study of people with mild to moderate dementia. Qual Life Res. 2010;19(3):425–434. doi:10.1007/s11136-010-9600-120146008
  • Dalgard OS, Dowrick C, Lehtinen V, et al. Negative life events, social support and gender difference in depression: a multinational community survey with data from the ODIN study. Soc Psychiatry Psychiatr Epidemiol. 2006;41(6):444–451. doi:10.1007/s00127-006-0051-516572275
  • Craig AR, Franklin JA, Andrews G. A scale to measure locus of control of behaviour. Psychol Psychother. 1984;57(2):173–180.
  • Wimo A, Jonsson L, Zbrozek A. The resource utilization in dementia (RUD) instrument is valid for assessing informal care time in community-living patients with dementia. J Nutr Health Aging. 2010;14(8):685–690.20922346
  • Jr JE W, Sherbourne CD, The MOS. 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care. 1992;30(6)473–483.1593914
  • Greene JG, Smith R, Gardiner M, Timbury GC. Measuring behavioural disturbance of elderly demented patients in the community and its effects on relatives: a factor analytic study. Age Ageing. 1982;11(2):121–126. doi:10.1093/ageing/11.2.1217102472
  • Kraijo H, Brouwer W, de Leeuw R, Schrijvers G, van Exel J. The perseverance time of informal carers of dementia patients: validation of a new measure to initiate transition of care at home to nursing home care. J Alzheimers Dis. 2014;40(3):631–642. doi:10.3233/JAD-13242024496076
  • Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67(6):361–370.6880820
  • Fangen K. Deltagende Observasjon. Bergen: Fagbokforlaget; 2010.
  • Field A. Discovering Statistics Using IBM SPSS Statistics. Fifth ed. Los Angeles: SAGE Publishing; 2018.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112. doi:10.1016/j.nedt.2003.10.00114769454
  • Shadish WR, Cook TD, Campbell DT. Experimental and Quasi-experimental Designs for Generalized Causal Inference. 2nd ed. Hampshire: Cengage Learning; 2002.
  • Schuklenk U. Protecting the vulnerable: testing times for clinical research ethics. Soc Sci Med. 2000;51(6):969–977.10972439
  • Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet. 2001;358(9280):483–488. doi:10.1016/S0140-6736(01)05627-611513933