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Journal of Multidisciplinary Healthcare Volume 13, 2020 - Issue
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Original Research

Multidisciplinary Management of Tethered Spinal Cord Syndrome in Children: Operationalizing an Outpatient Patient-Centered Workflow

Mandana Behbahani1 Division of Pediatric Neurosurgery, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA;2 Department of Neurosurgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
,
Nathan Shlobin1 Division of Pediatric Neurosurgery, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA;2 Department of Neurosurgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
,
Colleen Rosen1 Division of Pediatric Neurosurgery, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA
,
Elizabeth Yerkes3 Division of Pediatric Urology, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA;4 Department of Urology, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
,
Vineeta Swaroop5 Division of Pediatric Orthopedic Surgery, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA;6 Department of Orthopedic Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USAORCID Iconhttps://orcid.org/0000-0001-9461-4449
ORCID Icon,
Sandi Lam1 Division of Pediatric Neurosurgery, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA;2 Department of Neurosurgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USAORCID Iconhttps://orcid.org/0000-0003-3294-6637
ORCID Icon &
Robin Bowman1 Division of Pediatric Neurosurgery, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA;2 Department of Neurosurgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USACorrespondence[email protected]
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Pages 1283-1290 | Published online: 28 Oct 2020

References

  • Brustrom J, Thibadeau J, John L, et al. Care coordination in the spina bifida clinic setting: current practice and future directions. J Pediatr Health Car. 2012;26(1):16–26. doi:10.1016/j.pedhc.2010.06.003
  • Sawin KJ, Liu T, Ward E, et al. The national spina bifida patient registry: profile of a large cohort of participants from the first 10 clinics. J Pediatr. 2015;166(2):444–450. e441. doi:10.1016/j.jpeds.2014.09.039
  • Rocque BG, Ralee’Bishop E, Scogin MA, et al. Assessing health-related quality of life in children with spina bifida. J Neurosurg Pediatr. 2015;15(2):144–149.
  • Campbell JB, Moore KN, Voaklander DC, et al. Complications associated with clean intermittent catheterization in children with spina bifida. J Urol. 2004;171(6 Part 1):2420–2422. doi:10.1097/01.ju.0000125200.13430.8a
  • Szymanski KM, Cain MP, Hardacker TJ, et al. How successful is the transition to adult urology care in spina bifida? A single center 7-year experience. J Pediatr Urol. 2017;13(1):40. e41–40. e46. doi:10.1016/j.jpurol.2016.09.020
  • Ramachandra P, Palazzi KL, Skalsky AJ, et al. Shunted hydrocephalus has a significant impact on quality of life in children with spina bifida. PM&R. 2013;5(10):825–831. doi:10.1016/j.pmrj.2013.05.011
  • Chehroudi C, MacNeily A. Further thoughts on transition of care for spina bifida patients: experiences in BC. Can Urol Assoc J. 2016;10(11–12):377. doi:10.5489/cuaj.4249
  • Lightfoot MA, Cheng JW, Hu X, et al. Assessment of health literacy in adolescents with spina bifida and their caregivers: a multi-institutional study. J Pediatr Urol. 2020;16(2):167–e1.
  • Rekate HL. The pediatric neurosurgical patient: the challenge of growing up. Paper presented at: Seminars in pediatric neurology; 2009.
  • Kinsman S, Levey E, Ruffing V, et al. Beyond multidisciplinary care: a new conceptual model for spina bifida services. European J Pediatr Surg Rep. 2000;10(S 1):35–38. doi:10.1055/s-2008-1072413
  • Yamada S, Won DJ, Pezeshkpour G, et al. Pathophysiology of tethered cord syndrome and similar complex disorders. Neurosurg Focus. 2007;23(2):1–10. doi:10.3171/FOC-07/08/E6
  • Lew SM, Kothbauer KF. Tethered cord syndrome: an updated review. Pediatr Neurosurg. 2007;43(3):236–248. doi:10.1159/000098836
  • Bui CJ, Tubbs RS, Oakes WJ. Tethered cord syndrome in children: a review. Neurosurg Focus. 2007;23(2):1–9. doi:10.3171/FOC-07/08/E2
  • Sanchez T, John RM. Early identification of tethered cord syndrome: a clinical challenge. J Pediatr Health Car. 2014;28(3):e23–e33. doi:10.1016/j.pedhc.2013.06.007
  • Lad SP, Patil CG, Ho C, et al. Tethered cord syndrome: nationwide inpatient complications and outcomes. Neurosurg Focus. 2007;23(2):1–5. doi:10.3171/FOC-07/08/E3
  • Bowman RM, McLone DG, Grant JA, et al. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg. 2001;34(3):114–120. doi:10.1159/000056005
  • Tuuha SE, Aziz D, Drake J, et al. Is surgery necessary for asymptomatic tethered cord in anorectal malformation patients? J Pediatr Surg. 2004;39(5):773–777.
  • Bradko V, Castillo H, Janardhan S, et al. Towards guideline-based management of tethered cord syndrome in spina bifida: a global health paradigm shift in the era of prenatal surgery. Neurospine. 2019;16(4):715. doi:10.14245/ns.1836342.171
  • Calado E, Loff C. The failures of spina bifida transdisciplinary care. Eur J Pediatr Surg. 2002;S51–S52.
  • Brei TJ. The future of the multidisciplinary clinic. Sci World J. 2007;7:1752–1756.
  • Palfrey JS, Sofis LA, Davidson EJ, et al. The pediatric alliance for coordinated care: evaluation of a medical home model. Pediatrics. 2004;113(Supplement 4):1507–1516.
  • Thibadeau J, Walker WO Jr, Castillo J, et al. Philosophy of care delivery for spina bifida. Disabil Health J. 2020;13(2):100883.
  • Gibbons C, Coyle D, White C, et al. Assessment of neurogenic bowel symptoms with the bowel dysfunction score in children with spina bifida: a prospective case–control study. Pediatr Surg Int. 2020;1–5.
  • Liptak GS, El Samra A. Optimizing health care for children with spina bifida. Dev Disabil Res Rev. 2010;16(1):66–75. doi:10.1002/ddrr.91

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