Experiences of Active Everyday Life Among Persons with Prodromal Alzheimer’s Disease: A Qualitative Study

References

• Smith AD, Mangialasche F, Kivipelto M. Dementia research priorities-2. Lancet Neurol. 2017;16(3):181–182. doi:10.1016/S1474-4422(16)30401-X
   PubMed Web of Science ®Google Scholar
• Ngandu T, Lehtisalo J, Solomon A, et al. A 2-year multidomain intervention of diet, exercise, cognitive training, and vascular risk monitoring versus control to prevent cognitive decline in at-risk elderly people (FINGER): a randomised controlled trial. Lancet. 2015;385(9984):2255–2263. doi:10.1016/S0140-6736(15)60461-5
   PubMed Web of Science ®Google Scholar
• Stern C, Konno R. Physical leisure activities and their role in preventing dementia: a systematic review. Int J Evid Based Healthc. 2009;7(4):270–282. doi:10.1111/j.1744-1609.2009.00144.x
   PubMedGoogle Scholar
• Stern C, Munn Z. Cognitive leisure activities and their role in preventing dementia: a systematic review. Int J Evid Based Healthc. 2010;8(1):2–17. doi:10.1111/j.1744-1609.2010.00150.x
   PubMedGoogle Scholar
• World Health Organization. Active ageing: a policy framework. World Health Organization; 2002. Available from: https://apps.who.int/iris/handle/10665/67215. Accessed August 23, 2022.
   Google Scholar
• World Health Organization. Risk Reduction of Cognitive Decline and Dementia: WHO Guidelines. Geneva: World Health Organization; Licence: CC BY-NC-SA 3.0 IGO; 2019.
   Google Scholar
• Fallahpour M, Borell L, Luborsky M, Nygard L. Leisure-activity participation to prevent later-life cognitive decline: a systematic review. Scand J Occup Ther. 2016;23(3):162–197. doi:10.3109/11038128.2015.1102320
   PubMed Web of Science ®Google Scholar
• Kielhofner G. A Model of Human Occupation: Theory and Application. Baltimore: Lippincott Williams & Wilkins; 2008.
   Google Scholar
• Hemmingsson H, Jonsson H. An occupational perspective on the concept of participation in the international classification of functioning, disability and health–some critical remarks. Am J Occup Ther. 2005;59(5):569–576. doi:10.5014/ajot.59.5.569
   PubMed Web of Science ®Google Scholar
• Noguchi T, Hayashi T, Kubo Y, Tomiyama N, Ochi A, Hayashi H. Association between decreased social participation and depressive symptom onset among community-dwelling older adults: a longitudinal study during the COVID-19 pandemic. J Nutr Health Aging. 2021;25(9):1070–1075. doi:10.1007/s12603-021-1674-7
   PubMed Web of Science ®Google Scholar
• Lofgren M, Larsson E, Isaksson G, Nyman A. Older adults’ experiences of maintaining social participation: creating opportunities and striving to adapt to changing situations. Scand J Occup Ther. 2021;1–11. doi:10.1080/11038128.2021.1974550
   Web of Science ®Google Scholar
• Colucci E, Nadeau S, Higgins J, et al. COVID-19 lockdowns’ effects on the quality of life, perceived health and well-being of healthy elderly individuals: a longitudinal comparison of pre-lockdown and lockdown states of well-being. Arch Gerontol Geriatr. 2022;99:104606. doi:10.1016/j.archger.2021.104606
   PubMed Web of Science ®Google Scholar
• Dubois B, Feldman HH, Jacova C, et al. Advancing research diagnostic criteria for Alzheimer’s disease: the IWG-2 criteria. Lancet Neurol. 2014;13(6):614–629. doi:10.1016/S1474-4422(14)70090-0
   PubMed Web of Science ®Google Scholar
• Donohue MC, Sperling RA, Salmon DP, et al. The preclinical Alzheimer cognitive composite: measuring amyloid-related decline. JAMA Neurol. 2014;71(8):961–970. doi:10.1001/jamaneurol.2014.803
   PubMed Web of Science ®Google Scholar
• Amieva H, Le Goff M, Millet X, et al. Prodromal Alzheimer’s disease: successive emergence of the clinical symptoms. Ann Neurol. 2008;64(5):492–498. doi:10.1002/ana.21509
   PubMed Web of Science ®Google Scholar
• Sindi S, Thunborg C, Rosenberg A, et al. Multimodal preventive trial for Alzheimer’s disease: MIND-ADMINI pilot trial study design and progress. J Prev Alzheimers Dis. 2022;9(1):30–39. doi:10.14283/jpad.2022.4
   PubMed Web of Science ®Google Scholar
• Akenine U, Thunborg C, Kivipelto M, Fallahpour M. Experiences of participation in a multimodal preventive trial MIND-ADMINI Among persons with prodromal Alzheimer’s disease: a qualitative study. J Multidiscip Healthc. 2022;15:219–234. doi:10.2147/JMDH.S345607
   PubMed Web of Science ®Google Scholar
• Charmaz K. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. London: Sage Publications; 2006.
   Google Scholar
• World Medical Association. World medical association declaration of Helsinki ethical principles for medical research involving human subjects. J Am Med Assoc. 2013;310(20):2191–2194. doi:10.1001/jama.2013.281053
   PubMed Web of Science ®Google Scholar
• Kvale S. Interviews: An Introduction to Qualitative Research Interviewing. Lund: Studentlitteratur; 2007.
   Google Scholar
• Whiting LS. Semi-structured interviews: guidance for novice researchers. Nurs Stand. 2008;22(23):35–40. doi:10.7748/ns2008.02.22.23.35.c6420
   PubMedGoogle Scholar
• Glaser B, Strauss A. The Discovery of Grounded Theory. Mill Valley, CA: Society Press; 1967.
   Google Scholar
• Fallahpour M, Jonsson H, Joghataei MT, Nasrabadi AN, Tham K. “I am not living my life”: lived experience of participation in everyday occupations after stroke in Tehran. J Rehabil Med. 2013;45(6):528–534. doi:10.2340/16501977-1143
   PubMed Web of Science ®Google Scholar
• Nyman A, Josephsson S, Isaksson G. Being part of an enacted togetherness: narratives of elderly people with depression. J Aging Stud. 2012;26(4):410–418. doi:10.1016/j.jaging.2012.05.003
   PubMed Web of Science ®Google Scholar
• Phinney A, Chaudhury H, O’connor DL. Doing as much as I can do: the meaning of activity for people with dementia. Aging Ment Health. 2007;11(4):384–393. doi:10.1080/13607860601086470
   PubMed Web of Science ®Google Scholar
• Fivush R, Booker JA, Graci ME. Ongoing narrative meaning-making within events and across the life span. Imagin Cogn Pers. 2017;37(2):127–152. doi:10.1177/0276236617733824
   Google Scholar
• Nyman A, Josephsson S, Isaksson G. Being part of an unfolding story: togetherness in everyday occupations when ageing. Scand J Occup Ther. 2014;21(5):368–376. doi:10.3109/11038128.2014.911956
   PubMed Web of Science ®Google Scholar
• Bergstrom AL, Eriksson G, Asaba E, Erikson A, Tham K. Complex negotiations: the lived experience of enacting agency after a stroke. Scand J Occup Ther. 2015;22(1):43–53. doi:10.3109/11038128.2014.954611
   PubMed Web of Science ®Google Scholar
• Hedman R, Norberg A, Hellstrom I. Agency and communion in people with Alzheimer’s disease, as described by themselves and their spousal carers. Dementia. 2019;18(4):1354–1372. doi:10.1177/1471301217706268
   PubMedGoogle Scholar