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ORIGINAL RESEARCH

Lived Experiences of Newly Diagnosed Type 1 Diabetes Mellitus Children and Adolescents in Uganda

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Pages 2647-2665 | Received 08 Sep 2022, Accepted 03 Nov 2022, Published online: 18 Nov 2022

References

  • International Diabetes Federation. (2021). IDF diabetes atlas. Available from: http://www.diabetesatlas.org. Accessed November 10, 2022.
  • Atkinson MA, Eisenbarth GS, Michels AW. Type 1 diabetes. Lancet. 2014;383(9911):69–82. doi:10.1016/S0140-6736(13)60591-7
  • Akbarizadeh M, Far MN, Ghaljaei F. Prevalence of depression and anxiety among children with type 1 and type 2 diabetes: a systematic review and meta-analysis. World J Pediatrics. 2022;18(1):16–26. doi:10.1007/s12519-021-00485-2
  • Almeida MC, Claudino DA, Grigolon RB, Fleitlich-Bilyk B, Claudino AM. Psychiatric disorders in adolescents with type 1 diabetes: a case-control study. Revista Brasileira de Psiquiatria. 2018;40(3):284–289. doi:10.1590/1516-4446-2017-2259
  • Grey M, Whittemore R, Tamborlane W. Depression in type 1 diabetes in children: natural history and correlates. J Psychosom Res. 2002;53(4):907–911. doi:10.1016/S0022-3999(02)00312-4
  • Hood KK, Huestis S, Maher A, Butler D, Volkening L, Laffel LMB. Depressive Symptoms in Children and Adolescents With Type 1 Diabetes: association with diabetes-specific characteristics. Diabetes Care. 2006;29(6):1389. doi:10.2337/dc06-0087
  • Zenlea IS, Mednick L, Rein J, Quinn M, Wolfsdorf J, Rhodes ET. Routine behavioral and mental health screening in young children with type 1 diabetes mellitus. Pediatr Diabetes. 2014;15(5):384–388. doi:10.1111/pedi.12099
  • Almeida AC. The Influence of Family Support, Parental Coping and School Support on Adherence to Type 1 Diabetes’ Self-Care in Adolescents. Pereira MG, editor. IntechOpen; 2013:17. doi:10.5772/53062
  • Hapunda G, Abubakar A, van de Vijver F, Pouwer F. Living with type 1 diabetes is challenging for Zambian adolescents: qualitative data on stress, coping with stress and quality of care and life. BMC Endocr Disord. 2015;15(1):20. doi:10.1186/s12902-015-0013-6
  • Iturralde E, Rausch JR, Weissberg-Benchell J, Hood KK. Diabetes-related emotional distress over time. Pediatrics. 2019;143(6):e20183011. doi:10.1542/peds.2018-3011
  • Palmer T, Waliaula C, Shannon G, et al. Understanding the lived experience of children with type 1 diabetes in Kenya: daily routines and adaptation over time. Qual Health Res. 2022;32(1):145–158. doi:10.1177/10497323211049775
  • Whittemore R, Jaser S, Chao A, Jang M, Grey M. Psychological experience of parents of children with type 1 diabetes: a systematic mixed-studies review. Diabetes Educ. 2012;38(4):562–579. doi:10.1177/0145721712445216
  • Marshall M, Carter B, Rose K, Brotherton A. Living with type 1 diabetes: perceptions of children and their parents. J Clin Nurs. 2009;18(12):1703–1710. doi:10.1111/j.1365-2702.2008.02737.x
  • Rankin D, Harden J, Barnard KD, Stephen J, Kumar S, Lawton J. Pre-adolescent children’s experiences of receiving diabetes-related support from friends and peers: a qualitative study. Health Expectations. 2018;21(5):870–877. doi:10.1111/hex.12802
  • Vde CS, Jacob E, Nascimento LC. What is it like to be a child with type 1 diabetes mellitus? Pediatr Nurs. 2015;41(1):17–22.
  • Capistrant BD, Friedemann-Sánchez G, Pendsey S. Diabetes stigma, parent depressive symptoms and Type-1 diabetes glycemic control in India. Null. 2019;58(10):919–935. doi:10.1080/00981389.2019.1679321
  • Haugvik S, Beran D, Klassen P, Hussain A, Haaland A. “My heart burns” – a qualitative study of perceptions and experiences of type 1 diabetes among children and youths in Tajikistan. Chronic Illn. 2017;13(2):128–139. doi:10.1177/1742395316668566
  • Djarova T, Tivchev G. Frequency of stressful life events as risk indicating factors for onset of type 1 diabetes in Africa children. S Afr J Sci. 2007;1:103.
  • Bradshaw C, Atkinson S, Doody O. Employing a Qualitative Description Approach in Health Care Research. Global Qualitative Nursing Res. 2017;4:2333393617742282. doi:10.1177/2333393617742282
  • Weaver K, Olson JK. Understanding paradigms used for nursing research. J Adv Nurs. 2006;53(4):459–469. doi:10.1111/j.1365-2648.2006.03740.x
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Quality Health Care. 2007;19(6):349–357. doi:10.1093/intqhc/mzm042
  • Ministry of Health. (2014). Uganda Hospital and Health Centre IV Census Survey. Available from: https://www.who.int/healthinfo/systems/SARA_H_UGA_Results_2014.pdf. Accessed November 10, 2022.
  • Bahendeka S, Mutungi G, Tugumisirize F, et al. Healthcare delivery for paediatric and adolescent diabetes in low resource settings: type 1 diabetes clinics in Uganda. Glob Public Health. 2019;1–15. doi:10.1080/17441692.2019.1611897
  • Onwuegbuzie AJ, Leech NL. A Call for Qualitative Power Analyses. Qual Quant. 2007;41(1):105–121. doi:10.1007/s11135-005-1098-1
  • Miles MB, Huberman AM. Qualitative Data Analysis: An Expanded Sourcebook. 2nd ed. Sage Publications, Inc; 1994:xiv, 338.
  • Weiss RS (1995). Learning from strangers: the art and method of qualitative interview studies. Available from: https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=1963352. Accessed November 10, 2022.
  • Creswell J. Research Design: Qualitative, Quantitative and Mixed Method Approaches. 2nd ed. Thousand Oakes, CA: Sage Publications; 2004.
  • Saunders B, Sim J, Kingstone T, et al. Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. 2018;52(4):1893–1907. doi:10.1007/s11135-017-0574-8
  • Spratling R, Coke S, Minick P. Qualitative data collection with children. Applied Nursing Res. 2012;25(1):47–53. doi:10.1016/j.apnr.2010.02.005
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa
  • ATLAS.ti. (2022). ATLAS.ti Scientific Software Development GmbH (Version 9) [Computer software]. Available from: https://atlasti.com. Accessed November 10, 2022.
  • Özyazıcıoğlu N, Avdal EÜ, Sağlam H. A determination of the quality of life of children and adolescents with type 1 diabetes and their parents. Int J Nursing Sci. 2017;4(2):94–98. doi:10.1016/j.ijnss.2017.01.008
  • Babler E, Strickland CJ. Moving the Journey Towards Independence: adolescents Transitioning to Successful Diabetes Self-Management. J Pediatr Nurs. 2015;30(5):648–660. doi:10.1016/j.pedn.2015.06.005
  • McGill DE, Volkening LK, Pober DM, Muir AB, Young-Hyman DL, Laffel LM. Depressive Symptoms at Critical Times in Youth With Type 1 Diabetes: following Type 1 Diabetes Diagnosis and Insulin Pump Initiation. J Adolesc Health. 2018;62(2):219–225. doi:10.1016/j.jadohealth.2017.09.017
  • Ullah A, Graue M, Haugstvedt A. Adolescent’s Experiences with Diabetes Self-Management and the Use of Carbohydrate Counting in Their Everyday Life with Type 1 Diabetes. Patient Prefer Adherence. 2022;16:887–896. doi:10.2147/PPA.S354696
  • Leonard BJ, Garwick A, Adwan JZ. Adolescents’ perceptions of parental roles and involvement in diabetes management. J Pediatr Nurs. 2005;20(6):405–414. doi:10.1016/j.pedn.2005.03.010
  • Kalra S, Jena BN, Yeravdekar R. Emotional and Psychological Needs of People with Diabetes. Indian J Endocrinol Metab. 2018;22(5):696–704. doi:10.4103/ijem.IJEM_579_17
  • Din H, Ehsan S, Osman IF. Assessment of Diabetic Patient Waiting Time in A Primary Healthcare Clinic. Int Med J Malaysia. 2020;19:41–48. doi:10.31436/imjm.v19i2.1563
  • Keely E, Traczyk L, Liddy C. Patients’ Perspectives on Wait Times and the Referral-Consultation Process While Attending a Tertiary Diabetes and Endocrinology Centre: is Econsultation an Acceptable Option? Canadian J Diabetes. 2015;39(4):325–329. doi:10.1016/j.jcjd.2014.12.010
  • Xie Z, Or C. Associations Between Waiting Times, Service Times, and Patient Satisfaction in an Endocrinology Outpatient Department: a Time Study and Questionnaire Survey. J Med Care Org. 2017;54:0046958017739527. doi:10.1177/0046958017739527
  • Corona G, Pizzocaro A, Vena W, et al. Diabetes is most important cause for mortality in COVID-19 hospitalized patients: systematic review and meta-analysis. Rev Endocr Metab Disord. 2021;22(2):275–296. doi:10.1007/s11154-021-09630-8
  • Hill RM, Gallagher KAS, Eshtehardi SS, Uysal S, Hilliard ME. Suicide Risk in Youth and Young Adults with Type 1 Diabetes: a Review of the Literature and Clinical Recommendations for Prevention. Curr Diab Rep. 2021;21(12):51–y. doi:10.1007/s11892-021-01427-y
  • Majidi S, O’Donnell HK, Stanek K, Youngkin E, Gomer T, Driscoll KA. Suicide risk assessment in youth and young adults with type 1 diabetes. Diabetes Care. 2020;43(2):343–348. doi:10.2337/dc19-0831
  • Nabatanzi E, Edison AM, Mulungi B, Catherine N, Anne K. Quality of life and Associated Factors among Children aged 5 to 18 years with Diabetes Mellitus at St. Francis Hospital Nsambya and Mulago National Referral Hospital. Int J Diabetes Metabolic Disorders. 2019;4:6. doi:10.33140/IJDMD.04.06.06
  • Ogle GD, Kim H, Middlehurst AC, Silink M, Jenkins AJ. Financial costs for families of children with Type 1 diabetes in lower-income countries. Diabetic Med. 2016;33(6):820–826. doi:10.1111/dme.12997
  • Ottawa Charter. Ottawa Charter for health promotion. First International Conference on Health Promotion; 1986. 17–21.