Caregiver’s Quality of Life Among Children with Cerebral Palsy in the Kingdom of Saudi Arabia, and Various Influencing Factors: A Single Cohort Study

References

• Murphy NA, Christian B, Caplin DA, Young PC. The health of caregivers for children with disabilities: caregiver perspectives. Child Care Health Dev. 2007;33(2):180–187. doi:10.1111/j.1365-2214.2006.00644.x
   PubMed Web of Science ®Google Scholar
• Buhse M. Assessment of caregiver burden in families of persons with multiple sclerosis. J Neurosci Nurs. 2008;40(1):25–31. doi:10.1097/01376517-200802000-00005
   PubMed Web of Science ®Google Scholar
• Kim Y, Given BA. Quality of life of family caregivers of cancer survivors: across the illness trajectory. Cancer. 2008;112(S11):2556–2568. doi:10.1002/cncr.23449
   PubMed Web of Science ®Google Scholar
• Riffin C, Van Ness PH, Wolff JL, Fried T. Multifactorial examination of caregiver burden in a national sample of family and unpaid caregivers. J Am Geriatr Soc. 2019;67(2):277–283. doi:10.1111/jgs.15664
   PubMed Web of Science ®Google Scholar
• Vadivelan K, Sekar P, Sruthi SS, Gopichandran V. Burden of caregivers of children with cerebral palsy: an intersectional analysis of gender, poverty, stigma, and public policy. BMC Public Health. 2020;20:1–8. doi:10.1186/s12889-020-08808-0
   PubMed Web of Science ®Google Scholar
• Tyagi S, Luo N, Tan CS, et al. Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an Asian setting. BMC Neurol. 2021;21(1):1–16. doi:10.1186/s12883-021-02463-7
   PubMed Web of Science ®Google Scholar
• Preussler JM, Mau LW, Majhail NS, et al. Caregiver availability and patient access to hematopoietic cell transplantation: social worker perspectives inform practice. Support Care Cancer. 2019;27:4253–4264. doi:10.1007/s00520-019-04696-2
   PubMed Web of Science ®Google Scholar
• Barros ALO, de Gutierrez GM, Barros AO, Santos MTBR. Quality of life and burden of caregivers of children and adolescents with disabilities. Spec Care Dent. 2019;39(4):380–388. doi:10.1111/scd.12400
   PubMed Web of Science ®Google Scholar
• Fairfax A, Brehaut J, Colman I, et al. A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability. BMC Pediatr. 2019;19(1):1–16. doi:10.1186/s12887-019-1587-3
   PubMedGoogle Scholar
• Sadowska M, Sarecka-Hujar B, Kopyta I. Cerebral palsy: current opinions on definition, epidemiology, risk factors, classification and treatment options. Neuropsychiatr Dis Treat. 2020;Volume 16:1505. doi:10.2147/NDT.S235165
   Web of Science ®Google Scholar
• Sankar C, Mundkur N. Cerebral palsy-definition, classification, etiology and early diagnosis. Indian J Pediatr. 2005;72(10):865–868. doi:10.1007/BF02731117
   PubMedGoogle Scholar
• Farajzadeh A, Maroufizadeh S, Amini M. Factors associated with quality of life among mothers of children with cerebral palsy. Int J Nurs Pract. 2020;26(3):e12811. doi:10.1111/ijn.12811
   PubMed Web of Science ®Google Scholar
• Khoshhal S, Al-Harbi K, Al-Mozainy I, et al. Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia. Health Qual Life Outcomes. 2019;17(1):1–8. doi:10.1186/s12955-019-1249-z
   PubMed Web of Science ®Google Scholar
• Skevington SM, Lotfy M, O’Connell KA. The World Health Organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual life Res. 2004;13:299–310. doi:10.1023/B:QURE.0000018486.91360.00
   PubMed Web of Science ®Google Scholar
• Vahedi S. World Health Organization Quality-of-Life Scale (WHOQOL-BREF): analyses of their item response theory properties based on the graded responses model. Iran J Psychiatry. 2010;5(4):140.
   PubMedGoogle Scholar
• Dalky HF, Meininger JC, Al-Ali NM. The reliability and validity of the Arabic World Health Organization quality of life-BREF instrument among family caregivers of relatives with psychiatric illnesses in Jordan. J Nurs Res. 2017;25(3):224–230. doi:10.1097/JNR.0000000000000146
   PubMedGoogle Scholar
• Silva SM, Santana ANC, Da silva NNB, Novaes MRCG. VES-13 and WHOQOL-bref cutoff points to detect quality of life in older adults in primary health care. Rev Saude Publica. 2019;53:26. doi:10.11606/S1518-8787.2019053000802
   PubMed Web of Science ®Google Scholar
• Silva PAB, Soares SM, Santos JFG, Silva LB. Cutoff point for WHOQOL-bref as a measure of quality of life of older adults. Rev Saude Publica. 2014;48:390–397. doi:10.1590/S0034-8910.2014048004912
   PubMed Web of Science ®Google Scholar
• Al Busaidi AMS, Al Masroori SAS, Awladthani BMS, Al Khaldi SA, Al Alawi N, Al Salmani AA. Quality of life and coping strategies used by parents of children with autism spectrum disorder in Oman. Autism Dev Lang Impair. 2022;7:23969415221142264. doi:10.1177/23969415221142262
   Google Scholar
• Aman AA, Baharoon B, Idrees HJ, Taj AM, Alzahrani BA, Muthaffar OY. A cross-sectional study to evaluate the quality of life of caregivers for children with cerebral palsy. Age. 2021;16(30):15.
   Google Scholar
• Alwhaibi RM, Zaidi U, Alzeiby I, Alhusaini A. Quality of life and socioeconomic status: a comparative study among mothers of children with and without disabilities in Saudi Arabia. Child Care Pract. 2020;26(1):62–80. doi:10.1080/13575279.2018.1512951
   Google Scholar
• Alhazmi A, Alduraibi A, Alhemaid M, Albreakan A, Alshaqha R. Quality of life among the parents of Saudi Arabian children with autistic spectrum disorder, Riyadh, KSA, Middle East. J Fam Med. 2023;7(10):101.
   Google Scholar
• Almugti HS, Shaiea MM, Alhammadi YM, et al. Quality of life and needs assessment of cancer patients’ caregivers in the Saudi culture. Cureus. 2022;14(8):1.
   Web of Science ®Google Scholar
• Eum I. New women for a new Saudi Arabia? Gendered analysis of Saudi Vision 2030 and women’s reform policies. Asian Women. 2019;35(3):115–133. doi:10.14431/aw.2019.09.35.3.115
   Web of Science ®Google Scholar
• Al-Rashdi NAS, Abdelwahed NAA. The empowerment of Saudi Arabian women through a multidimensional approach: the mediating roles of self-efficacy and family support. Sustainability. 2022;14(24):16349. doi:10.3390/su142416349
   Web of Science ®Google Scholar
• Mutoh T, Mutoh T, Tsubone H, et al. Impact of long-term hippotherapy on the walking ability of children with cerebral palsy and quality of life of their caregivers. Front Neurol. 2019;10:834. doi:10.3389/fneur.2019.00834
   PubMed Web of Science ®Google Scholar
• Alqahtani S, Cooper R, Cooper RA. Current state and conceptual framework of assistive technology provision in Saudi Arabia. Disabil Rehabil Assist Technol. 2021;2021:1–7.
   Google Scholar
• Alabdulwahab R. Transition services for students with intellectual disabilities in Saudi Arabia: available supports and future directions. TASH Connect. 2014;40(3):31–36.
   Google Scholar
• Abed MG, Shackelford TK. Educational support for Saudi students with learning disabilities in higher education. Learn Disabil Res Pract. 2020;35(1):36–44. doi:10.1111/ldrp.12214
   Web of Science ®Google Scholar
• Alkohaiz MA. Educational, financial, and social needs of families of children with multiple disabilities in Saudi Arabia; 2018.
   Google Scholar
• Alariefy MS. Exploring the Impact of Having a Child with a Disability in Saudi Arabia: Implications for Family Support Services. University of Hull; 2016.
   Google Scholar
• Christensen TL, Djurhuus CB, Clayton P, Christiansen JS. An evaluation of the relationship between adult height and health‐related quality of life in the general UK population. Clin Endocrinol. 2007;67(3):407–412. doi:10.1111/j.1365-2265.2007.02901.x
   PubMed Web of Science ®Google Scholar