Understanding Care Needs of Older Adults with Disabilities: A Scoping Review

References

• United Nations. GLOBAL ISSUES Ageing; 2024. Available from: https://www.un.org/zh/global-issues/ageing. Accessed April 15. 2024.
   Google Scholar
• National Bureau of Statistics. Seventh National Population Census; 2021. Available from: http://www.stats.gov.cn/zt_18555/zdtjgz/zgrkpc/dqcrkpc/ggl/. Accessed July 9, 2021.
   Google Scholar
• Safiri S, Kolahi AA, Cross M, et al. Prevalence, deaths, and disability-adjusted life years due to musculoskeletal disorders for 195 countries and territories 1990–2017. Arthritis Rheumatol. 2021;73(4):702–714. doi:10.1002/art.41571
   PubMed Web of Science ®Google Scholar
• Hanass-Hancock JMG, Palmer M, Pinilla-Roncancio M, Rivas Velarde M, Mitra S The disability data report 2023; 2023. Available from: https://disabilitydata.ace.fordham.edu/wp-content/uploads/2023/06/Main-text-2023_remediated-edited-06-15-2023-1.pdf. Accessed 15, April 2024.
   Google Scholar
• Ji G. Second national sample survey of persons with disabilities main data bulletin (No. 2). Disabil China. 2007;06:12–13.
   Google Scholar
• Luo Y, Su B, Zheng X. Trends and Challenges for population and health during population aging - China, 2015–2050. China CDC Wkly. 2021;3(28):593–598. doi:10.46234/ccdcw2021.158
   PubMedGoogle Scholar
• Leonardi M, Lee H, Kostanjsek N, et al. 20 Years of ICF-International classification of functioning, disability and health: uses and applications around the world. Int J Environ Res Public Health. 2022;19(18). doi:10.3390/ijerph191811321
   Web of Science ®Google Scholar
• Jing YJ, Li Y. Analysis of the composition and long-term care needs of the disabled elderly in China. Popu J. 2014;36(02):55–63.
   Google Scholar
• Alhusein N, Macaden L, Smith A, Stoddart KM, Taylor AJ. ‘Has she seen me?’: a multiple methods study of the pharmaceutical care needs of older people with sensory impairment in Scotland. BMJ open. 2018;8(8):e023198. doi:10.1136/bmjopen-2018-023198
   PubMed Web of Science ®Google Scholar
• Xue J. The latest data bulletin of the second national sample survey of people with disabilities. Chin Sci J Hear Speech Rehabil. 2007;2:1.
   Google Scholar
• United Nations. Convention On The Rights Of Persons With Disabilities (CRPD); 2023. Available from: https://social.desa.un.org/issues/disability/crpd/convention-on-The-rights-of-persons-with-disabilities-crpd. Accessed May 30, 2023.
   Google Scholar
• Mcdougall J, Wright V, Rosenbaum P. The ICF model of functioning and disability: incorporating quality of life and human development. Dev Neurorehabil. 2010;13(3):204–211. doi:10.3109/17518421003620525
   PubMed Web of Science ®Google Scholar
• Madden RH, Bundy A. The ICF has made a difference to functioning and disability measurement and statistics. Disabil Rehabil. 2019;41(12):1450–1462. doi:10.1080/09638288.2018.1431812
   PubMed Web of Science ®Google Scholar
• Arksey H, O’malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32. doi:10.1080/1364557032000119616
   Google Scholar
• Levac D, Colquhoun H, O’brien KK. Scoping studies: advancing the methodology. Implement Sci. 2010;5(1):69. doi:10.1186/1748-5908-5-69
   PubMed Web of Science ®Google Scholar
• Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8:45. doi:10.1186/1471-2288-8-45
   PubMed Web of Science ®Google Scholar
• Alford VM, Ewen S, Webb GR, Mcginley J, Brookes A, Remedios LJ. The use of the International Classification of Functioning, Disability and Health to understand the health and functioning experiences of people with chronic conditions from the person perspective: a systematic review. Disabil Rehabil. 2015;37(8):655–666. doi:10.3109/09638288.2014.935875
   PubMed Web of Science ®Google Scholar
• Cao PY, Zhao QH, Xiao MC, et al. Development of long-term care demand assessment questionnaire for the disabled elderly in nursing homes: testing of reliability and validity. J Nurs Sci. 2018;33(12):84–88. doi:10.3870/j.issn.1001-4152.2018.12.084
   Google Scholar
• Che XW, Shen J. Development of a health education needs questionnaire for elderly people with disabilities based on Delphi method. Chin J Gerontol. 2015;18. doi:10.3969/j.issn.1005-9202.2015.18.120
   Google Scholar
• Li HQ. Survey on the needs of elderly aphasic patients and nursing countermeasures. Med J Chin Civ Adm. 2000;3:173–174.
   Google Scholar
• Wang YH, Feng YN, Hou WW, Wu FC. Long-term care need of the Xinjiang-aiding han national disabled elderly and their home caregivers. Chin Gen Pract. 2013;16(11). doi:10.3969/j.issn.1007-9572.2013.04.058
   Google Scholar
• Zhang YJ, Liu YS, Hu TY, Yu CN. Study of long⁃term care needs of disabled elderly with chronic respiratory disease. Chin Nurs Res. 2021;35(1):01. 010. doi:10.12102/j.issn.1009-6493.2021
   Google Scholar
• Zhong KY The Survey of Long-Term Care Needs of Elderly with Different Degrees of Disability Based on Kano Model [ Master]. China Medical University; 2022.
   Google Scholar
• Li H. Involvement of informal and formal service providers: meeting the home care needs of older adults with severe functional impairments. Home Health Care Serv Q. 2006;25(3–4):167–183. doi:10.1300/J027v25n03_10
   PubMedGoogle Scholar
• Turcotte PL, Larivière N, Desrosiers J, et al. Participation needs of older adults having disabilities and receiving home care: met needs mainly concern daily activities, while unmet needs mostly involve social activities. BMC Geriatr. 2015;15:95. doi:10.1186/s12877-015-0077-1
   PubMed Web of Science ®Google Scholar
• Liu LL The Investigation About Life Quality of Family Caregivers and Compulsory Community Care for Alzheimer Patient in WuHan [ Master]. Hubei University of Chinese Medicine; 2010.
   Google Scholar
• Chang HX, Du J, Ma XH. Investigation and analysis of the demands for community health service among severely disabled elderly. Chin J Soc Med. 2018;35(3). doi:10.3969/j.issn.1673-5625.2018.03.014
   Google Scholar
• Gao XF, Zhang LZ, Huang LQ, Li XW. The construction of an index system for professional care needs of urban elderly with disabilities at home based on Delphi method. Nurs Rehabil J. 2022;21(10):32–6+40. doi:10.3969/j.issn.16719875.2022.10.008
   Google Scholar
• Lai L, Wu XQ, Xie JF, Tang SY, Duan YL. A qualitative study on the needs of long-term care and rehabilitation of disabled elderly from the perspective of community pension. Mod Nurs. 2021;28(06):1–5. doi:10.19792/j.cnki.1006-6411.2021.17.001
   Google Scholar
• Li B, Yuan Y. Investigation on Living status and medical care needs of home-based disabled elderly and their caregivers in community. Community Physicians China. 2022;38(28). doi:10.3969/j.issn.1007-614x.2022.28.045
   Google Scholar
• Liu R, Guo S, Yang SQ. Community care needs of disabled elderly people in Beijing. China Cont Med Edu. 2017;9(31):131–133. doi:10.3969/j.issn.1674-9308.2017.31.072
   Google Scholar
• Wang SH. Survey on the demand for medical and nursing care for the disabled elderly in changde city. Charming Chin. 2021;39:31. doi:10.12294/j.issn.1673-0992.2021.39.035
   Google Scholar
• Xie Q, Cai M, Zhou YP, Peng CH, Lu YM. Survey on the demand for community health services for the disabled elderly in Guangzhou. Pract Clin Med. 2018;19(09):94–96. doi:10.13764/j.cnki.lcsy.2018.09.036
   Google Scholar
• Xu P Nanchang Community Home Care Needs of Disabled Elderly Long-Term Care and Classification of Content to Explore [ Master]. Nanchang University; 2015.
   Google Scholar
• Guo YT, Hao Y, Zhang Y. The disabled elderly service needs research of elderly home care in city———A Case Study of Changning District in Shanghai. Sci Res Aging. 2017;5:3.
   Google Scholar
• Zhang J, Cong YN, Li HL, Lu J, Zhou JW. Investigation and analysis of long-term care needs of disabled elderly people at home. Jiangsu Health Syst Manage. 2020;31:8.
   Google Scholar
• Zuo DX, Zuo DQ, Jiang JX, Zhang YJ, Zhang J, Shi Y. Survey analysis of specialized care needs of disabled elderly people after stroke in five general hospitals in Shanghai. Chin J Mod Nurs. 2020;26:15.
   Google Scholar
• Dubuc N, Dubois MF, Raîche M, Gueye NR, Hébert R. Meeting the home-care needs of disabled older persons living in the community: does integrated services delivery make a difference? BMC Geriatr. 2011;11:67. doi:10.1186/1471-2318-11-67
   PubMed Web of Science ®Google Scholar
• Jiang H, Xiao S, Hu H, He H. Study on the measurement and influencing factors of care service demand of disabled elderly in Urban and Rural China. Int J Environ Res Public Health. 2022;19(17). doi:10.3390/ijerph191711112
   Web of Science ®Google Scholar
• Tang Q, Yuan M, Wu W, et al. Health status and individual care needs of disabled elderly at home in different types of care. Int J Environ Res Public Health. 2022;19(18). doi:10.3390/ijerph191811371
   Web of Science ®Google Scholar
• Kong WY, Ceng HY, Li L, Fan XW. Targeted Solutions to public service system loopholes——Take the elderly care service for the disabled in Wenchuan County, Sichuan Province as an example. Macroecon Manage. 2020;7:78–85.
   Google Scholar
• Bennion A, Forshaw MJ. Insights from the experiences of older people with hearing impairment in the United Kingdom: recommendations for nurse-led rehabilitation. Int J Older People Nurs. 2013;8(4):270–278. doi:10.1111/j.1748-3743.2012.00318.x
   PubMedGoogle Scholar
• Zhang R, Zhang Z, Peng Y, Zhai S, Zhou J, Chen J. The multi-subject cooperation mechanism of home care for the disabled elderly in Beijing: a qualitative research. BMC Prim Care. 2022;23(1):186. doi:10.1186/s12875-022-01777-w
   PubMedGoogle Scholar
• Wang BY Long Term Care Services Needs of Disabled Elderly at Home and its Influencing Factors: An Empirical Analysis Based on Yanhu District of Yuncheng City [ Master]. Shanxi University of Finance and Economics; 2021.
   Google Scholar
• Zhang H, Shen J, Yu XL. Current status of long-term care needs of disabled elders in medical and nursing institutions and its influence factors: a 352-case study. J Nurs. 2020;27(21). doi:10.16460/j.issn1008-9969.2020.21.007
   Google Scholar
• Shen T, Wang NN, Liu PY, Wang X. Survey study on nursing needs of 120 disabled elderly people based on perspective of community home care. Chongqing Med. 2020;49(09):1520–1524. doi:10.3969/j.issn.1671-8348.2020.09.033
   Google Scholar
• Feng ZF, Zhou ZH. Survey on the health status and health service needs of the elderly disabled community in Kaifeng City. Chin J Gerontol. 2015;35(12):3402–3404. doi:10.3969/j.issn.1005-9202.2015.12.102
   Google Scholar
• Li F, Wei W. A study on the needs of family visits for home care of disabled elderly. Electron J Pract Clinical Nurs Sci. 2019;4(41):2–3.
   Google Scholar
• Zhang YJ Research On Quality Of Life And Nursing Needs Of Disabled Elderly In Rural Area In Kaifeng [ Master]. Henan University; 2015.
   Google Scholar
• Kietzman KG, Wallace SP, Durazo EM, et al. A portrait of older Californians with disabilities who rely on public services to remain independent. Home Health Care Serv Q. 2012;31(4):317–336. doi:10.1080/01621424.2012.734744
   PubMedGoogle Scholar
• Okamoto AZ. Need assessment of visiting nursing and rehabilitation services for noninstitutionalized elderly. J Aging Health. 1997;9(4):514–528. doi:10.1177/089826439700900405
   PubMed Web of Science ®Google Scholar
• Chen HR, Gao XL, Liu YS. Study on the status, demands and its influencing factors of integrated care among the disabled elderly. J Nurs Adm. 2022;22(8). doi:10.3969/j.issn.1671-315x.2022.08.003
   Google Scholar
• Zhu XH, Liu L, Yang B. Survey research on the demand for elderly services for the disabled in Zhengzhou City. China Med Eng. 2019;27(6). doi:10.19338/j.issn.167-2019.2019.06.131
   Google Scholar
• Anderson WL, Wiener JM. The impact of assistive technologies on formal and informal home care. Gerontologist. 2015;55(3):422–433. doi:10.1093/geront/gnt165
   PubMed Web of Science ®Google Scholar
• Che XW, Ren NJ, Shen J. Analysis for the influencing factors of rehabilitation needs for rural elderly people with disabilities. J Nurs Training. 2012;27(22). doi:10.16821/j.cnki.hsjx.2012.22.002
   Google Scholar
• Zuo DX, Zuo DQ, Jiang JX, Dong HQ, Yang X, Shi Y. A qualitative study on the needs of home care service for disabled elderly patients after stroke. China Med Herald. 2020;17:16.
   Google Scholar
• Ying Y, Huang L, Shen L, Zhou C, Zhu X, Yin Z. Rehabilitation psychological experience of the elderly within 6 months of initial disability: a qualitative study. Disabil Rehabil. 2022;44(11):2332–2339. doi:10.1080/09638288.2020.1833091
   PubMed Web of Science ®Google Scholar
• Chen HY, Lin YQ, Wang YY, Xu HF. Investigation on mental health education needs of senile patients with mental disorders in community. Health Educ Health Promot. 2019;14(1). doi:10.16117/j.cnki.31-1974/r.201901012
   Google Scholar
• Chen LL, Deng RL, Chen SH, Zhang JH, Duan MJ. Survey and study on nursing needs of disabled elderly in elderly care institution. Nurs Rehabil J. 2016;15(6). doi:10.3969/j.issn.1671-9875.2016.06.007
   Google Scholar
• Wang JH, Chen ZY. An analysis of the demand and factors influencing the integration of community care and health care for the elderly with disabilities. Health Manage. 2021;16:191–192.
   Google Scholar
• Momtaz YA, Hamid TA, Ibrahim R. Unmet needs among disabled elderly Malaysians. Soc Sci Med. 2012;75(5):859–863. doi:10.1016/j.socscimed.2012.03.047
   PubMed Web of Science ®Google Scholar
• Wu D, Gao X, Xie Z, Xu Z. Understanding the unmet needs among community-dwelling disabled older people from a linkage perspective. Int J Environ Res Public Health. 2021;18(2). doi:10.3390/ijerph18020389
   Web of Science ®Google Scholar
• Xu J Research on Home Care Bed Design Based on User Behavior Analysis [ Master]: Hubei University of Technology; 2018.
   Google Scholar
• Chen S, Zheng J, Chen C, et al. Unmet needs of activities of daily living among a community-based sample of disabled elderly people in Eastern China: a cross-sectional study. BMC Geriatr. 2018;18(1):160. doi:10.1186/s12877-018-0856-6
   PubMedGoogle Scholar
• Ling XC. Analysis of the demand for community services and its influencing factors among the disabled elderly in the context of graded care and health care integration. Chin Gen Pract Nurs. 2020;18(26). doi:10.12104/j.issn.1674-4748.2020.26.040
   Google Scholar
• Liu T, Yu JY, Zhu SH, Jiang H. Research on supply and demand of long⁃term care for disabled elderly in rural areas. Chin Nurs Res. 2020;34(22). doi:10.12102/j.issn.1009-6493.2020.22.038
   Google Scholar
• Allen SM, Mor V. The prevalence and consequences of unmet need. Contrasts between older and younger adults with disability. Med Care. 1997;35(11):1132–1148. doi:10.1097/00005650-199711000-00005
   PubMed Web of Science ®Google Scholar
• Bien B, Mckee KJ, Döhner H, et al. Disabled older people’s use of health and social care services and their unmet care needs in six European countries. Eur J Public Health. 2013;23(6):1032–1038. doi:10.1093/eurpub/cks190
   PubMed Web of Science ®Google Scholar
• Jiao JW Analysis of the Main Influencing Factors of Malfunctional Population Care Services Based on Health Insurance Perspective [ Master]. Shandong University; 2021.
   Google Scholar
• Liu ZZ, Jing LJ, Wang X, Ma XH, Xia XL, Li L. Satisfaction degree and influencing factors of the daily care needs of the rural home-based elderly disabled people in China from the perspective of family resource endowment. Mod Prevent Med. 2022;49(15). doi:10.12102/j.issn.1009-6493.2020.22.038
   Google Scholar
• Harries U, Landes R, Popay J. Visual disability among older people: a case study in assessing needs and examining services. J Public Health Med. 1994;16(2):211–218. doi:10.1093/oxfordjournals.pubmed.a042959
   PubMedGoogle Scholar
• Yang YH, Wang LH. A study on the social security needs of mentally disabled people of different age groups: a survey and reflection based on rural disabled people in Northeast China. Heilongjiang Soc Sci. 2014;1:90–97.
   Google Scholar
• Yang J. Examining the direction of policy transformation from the characteristics of welfare needs of the elderly with disabilities. J Tianjin Admin Inst. 2013;15(04):96–100.
   Google Scholar
• Chen ZH, Chen PM, Mao YR, et al. Survey and research on the current situation and rehabilitation needs of patients with disabilities in the community. Chin J Rehabil. 2014;29(06):471–473.
   Google Scholar
• Yi SJ, Jeong YM, Kim JH. The influence of total sleep time on chronic disease in people with disabilities in South Korea: an analysis of panel data. J Clin Sleep Med. 2022;18(5):1307–1318. doi:10.5664/jcsm.9848
   PubMed Web of Science ®Google Scholar
• Amjad H, Mulcahy J, Kasper JD, et al. Do caregiving factors affect hospitalization risk among disabled older adults? J Am Geriatr Soc. 2021;69(1):129–139. doi:10.1111/jgs.16817
   PubMed Web of Science ®Google Scholar
• Fuchs Z, Blumstein T, Novikov I, et al. Morbidity, comorbidity, and their association with disability among community-dwelling oldest-old in Israel. J Gerontol a Biol Sci Med Sci. 1998;53(6):M447–55. doi:10.1093/gerona/53a.6.m447
   PubMed Web of Science ®Google Scholar
• Lam K, Shi Y, Boscardin J, Covinsky KE. Unmet need for equipment to help with bathing and toileting among older US Adults. JAMA Intern Med. 2021;181(5):662–670. doi:10.1001/jamainternmed.2021.0204
   PubMed Web of Science ®Google Scholar
• Fredericksburg Today. New research: 50% of people with disabilities in Virginia are living in financial hardship; 2022. Available from: https://fredericksburg.today/2022/07/31/new-research-50-of-people-with-disabilities-in-virginia-are-living-in-financial-hardship/. Accessed June 23, 2023.
   Google Scholar
• Bengtsson S, Datta Gupta N. Identifying the effects of education on the ability to cope with a disability among individuals with disabilities. PLoS One. 2017;12(3):e0173659. doi:10.1371/journal.pone.0173659
   PubMed Web of Science ®Google Scholar
• Lindsay S, Cancelliere S. A model for developing disability confidence. Disabil Rehabil. 2018;40(18):2122–2130. doi:10.1080/09638288.2017.1326533
   PubMed Web of Science ®Google Scholar
• Houdijk H, Janssen TW. Disability and rehabilitation on the move: mobility, exercise and sports for people with physical disabilities. Disabil Rehabil. 2017;39(2):113–114. doi:10.1080/09638288.2016.1217079
   PubMed Web of Science ®Google Scholar
• Brach JS, Perera S, Gilmore S; PCORI Final Research Reports, et al. Comparing Two Types of Exercise Classes to Help Older Adults Improve Walking Ability. Washington (DC): Patient-Centered Outcomes Research Institute (PCORI); 2018.
   Google Scholar
• Paradies Y, Ben J, Denson N, et al. Racism as a determinant of health: a systematic review and meta-analysis. PLoS One. 2015;10(9):e0138511. doi:10.1371/journal.pone.0138511
   PubMed Web of Science ®Google Scholar
• Hackett RA, Steptoe A, Lang RP, Jackson SE. Disability discrimination and well-being in the United Kingdom: a prospective cohort study. BMJ Open. 2020;10(3):e035714. doi:10.1136/bmjopen-2019-035714
   PubMed Web of Science ®Google Scholar
• Borade N, Ingle A, Nagarkar A. Lived experiences of people with mobility-related disability using assistive devices. Disabil Rehabil Assist Technol. 2021;16(7):730–734. doi:10.1080/17483107.2019.1701105
   PubMed Web of Science ®Google Scholar
• Dodevska GA, Vassos MV. What qualities are valued in residential direct care workers from the perspective of people with an intellectual disability and managers of accommodation services? J Intellect Disabil Res. 2013;57(7):601–615. doi:10.1111/j.1365-2788.2012.01565.x
   PubMed Web of Science ®Google Scholar
• Hassmiller SB, Wakefield MK. The Future of Nursing 2020–2030: charting a path to achieve health equity. Nurs Outlook. 2022;70(6 Suppl 1):S1–S9. doi:10.1016/j.outlook.2022.05.013
   PubMed Web of Science ®Google Scholar
• Honda H, Ashizawa R, Take K, Hirase T, Arizono S, Yoshimoto Y. Effect of chronic pain on the occurrence of falls in older adults with disabilities: a prospective cohort study. Physiother Theory Pract. 2022;1–9. doi:10.1080/09593985.2022.2141597
   PubMed Web of Science ®Google Scholar
• Weltz J, Volfovsky A, Laber EB. Reinforcement learning methods in public health. Clin Ther. 2022;44(1):139–154. doi:10.1016/j.clinthera.2021.11.002
   PubMed Web of Science ®Google Scholar
• Lewis RQ, Checkland K, Durand MA, et al. Integrated care in England - what can we learn from a decade of National Pilot Programmes? Int J Integr Care. 2021;21(4):5. doi:10.5334/ijic.5631
   PubMedGoogle Scholar
• Schweyer F-X. Les médecins avec l’État pour former à la coordination des maisons de santé pluriprofessionnelles: entre instrumentation et professionnalisation. J de gestion et d’économie de la santé. 2019;1(1):33–53. doi:10.3917/jges.191.0033
   Google Scholar