References
- SrivastavaABrewerAKMauser-BunschotenEPGuidelines for the management of hemophiliaHaemophilia2013191e1e4722776238
- MannucciPMTuddenhamEGDThe hemophilias – from royal genes to gene therapyN Engl J Med2001344231773177911396445
- HermansCDe MoerloosePManagement of acute haemarthrosis in haemophilia A without inhibitors: literature review, European survey and recommendationsHaemophilia20111738339221323794
- ElanderJA review of the evidence about behavioural and psychological aspects of chronic joint pain among people with haemophiliaHaemophilia20142016817524533948
- JacksonSCYangMMinukLProphylaxis in older Canadian adults with hemophilia A: lessons and more questionsBMC Hematol201515425692030
- JacksonSCYangMMinukLPatterns of tertiary prophylaxis in Canadian adults with severe and moderately severe haemophilia BHaemophilia2014203e199e20424589126
- CollinsPWFischerKMorfiniMBlanchetteVSBjorkmanSInternational Prophylaxis Study Group Pharmacokinetics Expert Working Group. Implications of coagulation factor VIII and IX pharmacokinetics in the prophylactic treatment of haemophiliaHaemophilia201117121020731726
- TagliaferriAFranchiniMCoppolaAEffects of secondary prophylaxis started in adolescent and adult haemophiliacsHaemophilia200814594595118540895
- CollinsPFaradjiAMorfiniMEnriquezMMSchwartzLEfficacy and safety of secondary prophylactic vs on-demand sucrose-formulated recombinant factor VIII treatment in adults with severe hemophilia A: results from a 13-month crossover studyJ Thromb Haemost201081838919817995
- TagliaferriAFranca RivoltaGRossettiGPattaciniCGandiniGFranchiniMExperience of secondary prophylaxis in 20 adolescent and adult Italian hemophiliacsThromb Haemost200696454254317003937
- KhawajiMAstermarkJBerntorpELifelong prophylaxis in a large cohort of adult patients with severe haemophilia: a beneficial effect on orthopedic outcome and quality of lifeEur J Haematol20138832933522221195
- De MoerloosePUrbancikWvan den BergHMRichardsMAA survey of adherence to haemophilia therapy in six European countries: results and recommendationsHaemophilia20081493193818684125
- McLaughlinJMWitkopMLLambingAAndersonTLMunnJTortellaBBetter adherence to prescripbed treatment regimen is related to less chronic pain among adolescents and young adults with moderate or severe haemophiliaHaemophilia20142050651224517097
- SchrijversLHUitslagerNSchuurmansMJFischerKBarriers and motivators of adherence to prophylactic treatment in haemophilia: a systematic reviewHaemophilia20131935536123279084
- SoucieJMNussREvattBLMortality among males with hemophilia: relations with source of medical careBlood20009643744210887103
- WeatherstonAGueDEffectiveness of live telephone support in improving haemophilia clinic attendanceJ Epidemiol Commun Health201468391
- McKintoshKSquireSBartholomewCCampPJacksonSIndividualization of prophylaxis in adults improves bleeding outcomesHaemophilia201420Suppl 399
- International Association of FacilitatorsIAF Core Competencies Available from: http://www.iaf-world.org/index/certification/CompetenciesforCertification.aspxAccessed March 10, 2015
- Institute of Cultural Affairs International Available from: http://www.ica-international.org/top/top-intro.htmAccessed March 10, 2015
- SpencerLWinning Through ParticipationDubuque, IowaKendall/Hunt Publishing1989
- MillerWRRollnickSMotivational Interviewing: Preparing People for ChangeNew YorkGuilford Press1991
- KhairKCompliance, concordance and adherence: what are we talking about?Haemophilia201420560160325113162
- MarklandDRyanRMTobinVJRollnickSMotivational interviewing and self-determination theoryJ Social Clin Psychol2005246811831
- VallisMAre behavioural interventions doomed to fail? Challenges to self-management support in chronic diseasesCan J Diabetes201539433033425837809
- KalmarLJacksonSGueDOliffeJCurrieLMen, masculinities and hemophiliaAm J Mens Health Epub2015729