The role of the multidisciplinary health care team in the management of patients with Marfan syndrome

References

• von KodolitschYDe BackerJSchülerHPerspectives on the revised Ghent criteria for the diagnosis of Marfan syndromeAppl Clin Genet2015813715526124674
   PubMedGoogle Scholar
• EidtDFrankMReimannAWagnerTOFMittendorfTGraf von der SchulenburgJMMaßnahmen zur Verbesserung der gesundheitlichen Situation von Menschen mit Seltenen Erkrankungen in Deutschland. Forschungsbericht [Actions to improve the health situation of people with rare diseases in Germany. A research report. Study on behalf of the federal ministry of health]Studie im Auftrag des Bundesministeriums für Gesundheit2009 Available from: http://www.bmg.bund.de/themen/praevention/gesundheitsgefahren/seltene-erkrankungen.htmlAccessed February 23, 2010 German
   Google Scholar
• Rand-HendriksenSSorensenIHolmstromHAnderssonSFinsetAFatigue, cognitive functioning and psychological distress in Marfan syndrome, a pilot studyPsychol Health Med200712330531317510900
   PubMedGoogle Scholar
• BathenTVelvinGRand-HendriksenSRobinsonHSFatigue in adults with Marfan syndrome, occurrence and associations to pain and other factorsAm J Med Genet A2014164a81931193924719044
   PubMed Web of Science ®Google Scholar
• PetersKFKongFHorneRFrancomanoCABieseckerBBLiving with Marfan syndrome I. Perceptions of the conditionClin Genet200160427328211683773
   PubMed Web of Science ®Google Scholar
• PetersKFPetrillSAComparison of the background, needs, and expectations for genetic counseling of adults with experience with Down syndrome, Marfan syndrome, and neurofibromatosisAm J Med Genet A2011155a468469621344640
   PubMed Web of Science ®Google Scholar
• Rand-HendriksenSJohansenHSembSOGeiranOStanghelleJKFinsetAHealth-related quality of life in Marfan syndrome: a cross-sectional study of Short Form 36 in 84 adults with a verified diagnosisGenet Med201012851752420613543
   PubMed Web of Science ®Google Scholar
• Fusar-PoliPKlersyCStramesiFCallegariAArbustiniEPolitiPDeterminants of quality of life in Marfan syndromePsychosomatics200849324324818448780
   PubMed Web of Science ®Google Scholar
• MurdochJLWalkerBAHalpernBLKuzmaJWMcKusickVALife expectancy and causes of death in the Marfan syndromeN Engl J Med1972286158048085011789
   PubMed Web of Science ®Google Scholar
• PyeritzREMarfan syndrome: 30 years of research equals 30 years of additional life expectancyHeart200995317317519001001
   PubMed Web of Science ®Google Scholar
• De BackerJRenardMCampensLMarfan syndrome and related heritable thoracic aortic aneurysms and dissectionsCurr Pharm Des201521284061407526306841
   PubMed Web of Science ®Google Scholar
• PyeritzRERecent progress in understanding the natural and clinical histories of the Marfan syndromeTrends Cardiovasc Med201626542342826908026
   PubMed Web of Science ®Google Scholar
• von KodolitschYBernhardtAMKölbelTDetterCReichenspurnerHDebusESMaximizing therapeutic success: the key concepts of individualized medical strategy (IMS)Cogent Med2015211109742
   Google Scholar
• Chamberlain-SalaunJMillsJUsherKTerminology used to describe health care teams: an integrative review of the literatureJ Multidiscip Healthc20136657423483767
   PubMedGoogle Scholar
• FajgenbaumDCRuthJRKelleherDRubensteinAHThe collaborative network approach: a new framework to accelerate Castleman’s disease and other rare disease researchLancet Haematol201634e150e15227063967
   PubMed Web of Science ®Google Scholar
• Cystic Fibrosis Foundation. [homepage on the Internet] Available from https://www.cff.org/for-caregivers/cf-care-centers/Accessed August 16 2016
   Google Scholar
• Muscular Dystrophy Assoication. [homepage on the Internet] Available from https://www.mda.org/services/your-mda-care-centerAccessed August 16 2016
   Google Scholar
• Cure hht. [homepage on the Internet] Available from http://curehht.org/resources/hht-treatment-centers/Accessed August 16 2016
   Google Scholar
• PyeritzREMarfan syndrome: 30 years of research equals 30 years of additional life expectancyHeart20099517317519001001
   PubMed Web of Science ®Google Scholar
• The Marfan Foundation. [homepage on the Internet] Available from https://www.marfan.org/Accessed August 16 2016
   Google Scholar
• Genetic Aortic Disorders Assciation Canada. [homepage on the Internet] Available from http://www.gadacanada.ca/Accessed August 16 2016
   Google Scholar
• von KodolitschYRaghunathMNienaberCADas Marfan Syndrom. Strategien einer interdisziplinären Betreuung. Marfan syndrome: strategies of interdisciplinary careDtsch Med Wochenschr19981231–22125 German9465852
   PubMed Web of Science ®Google Scholar
• von KodolitschYBernhardtAMRobinsonPNAnalysis of strengths, weaknesses, opportunities, and threats as a tool for translating evidence into individualized medical strategies (I-SWOT)Aorta (Stamford)2015339810727069939
   PubMedGoogle Scholar
• von KodolitschYRybczynskiMBernhardtAMarfan syndrome and the evolving spectrum of heritable thoracic aortic disease: do we need genetics for clinical decisions?Vasa2010391173220186673
   PubMed Web of Science ®Google Scholar
• ManowMLPaulsenNRybczynskiMAnalyse der Erlössituation bei der ambulanten Behandlung nach § 116 b SGB V am Beispiel des Marfan-Syndroms [Analysis of costs and profits of ambulatory care of marfan patients after initiation of a novel German legal directive (section sign 116 b SGB V)]Med Klin (Munich)20101058529537 German20824410
   PubMedGoogle Scholar
• von KodolitschYBlankartCRVoglerMKallenbachKRobinsonPNGenetik und Prävention am Beispiel genetischer Aortensyndrome (GAS) und des Marfan-Syndroms [Genetics and prevention of genetic aortic syndromes (GAS) and of the Marfan syndrome]Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz2015582146153 German25446311
   PubMed Web of Science ®Google Scholar
• von KodolitschYRybczynskiMTrivicVHofmannTMeinertzTIn Kompetenzzentren behandeln: lebensqualität und Lebenserwartung beim Marfan-Syndrom verbessern [Treatment in a center of competence: Improving quality of life and life expectancy in Marfan syndrome]Klinikarzt200231201206 German
   Google Scholar
• BravermanACHarrisKMKovacsRJMaronBJEligibility and disqualification recommendations for competitive athletes with cardiovascular abnormalities: task force 7: aortic diseases, including Marfan syndrome: a scientific statement from the American Heart Association and American College of CardiologyJ Am Coll Cardiol201566212398240526542664
   PubMed Web of Science ®Google Scholar
• MuellerGCSteinerKWildJMStarkVKozlik-FeldmannRMirTSHealth-related quality of life is unimpaired in children and adolescents with Marfan syndrome despite its distinctive phenotypeActa Paediatr2016105331131626566600
   PubMed Web of Science ®Google Scholar
• MuellerGCStarkVSteinerKImpact of age and gender on cardiac pathology in children and adolescents with Marfan syndromePediatr Cardiol201334499199823183959
   PubMed Web of Science ®Google Scholar
• TrojanAKooperation von Selbsthilfegruppen mit Einrichtungen des Gesundheitswesens: die Ergebnisse der SHILD-Studie im Kontext von Praxis und Forschung [Cooperation of support groups with institutions of health service: The results of the SHILD-study in the context of practice and research]Medizinsoziologie: Selbsthilfe und Selbsthilfeunterstützung in Deutschland2016244.3277301 German
   Google Scholar
• Marfan-HilfeDMarfan-Syndrom: Ein Ratgeber für Patienten, Angehörige und Betreuende [Marfan syndrome: A guide for patients, relatives and carers]Marfan Support (Germany) eV2007 German
   Google Scholar
• Hilfe M [webpage on the Internet]Bedürfnisse von Patienten in Bezug auf Kliniken mit Marfan-Sprechstunde in Deutschland2016 Available from: http://www.marfan.de/images/stories/pdf/Wissenschaft/Umfrage_MarfanCenter_2016.pdfAccessed May 6, 2016
   Google Scholar
• Marfan [webpage on the Internet]Umfrage Marfan-Sprechstunden 20162016 Available from: http://www.marfan.de/weiterfuehrende-infos/336-umfrage-marfan-sprechstunden-2016.htmlAccessed July 28, 2016
   Google Scholar
• UKE [webpage on the Internet]Welcome to the Martin Zeitz Center for Rare Diseases Available from: http://www.uke.de/english/departments-institutes/centers/martin-zeitz-center-for-rare-diseases/index.htmlAccessed March 5, 2016
   Google Scholar
• NAMSENationaler Aktionsplan für Menschen mit Seltenen Erkrankungen. Handlungsfelder, Empfehlungen und Maßnahmenvorschläge [National action plan for people with rare diseases. Fields of action, recommendations and suggestions of measures]2013 German.
   Google Scholar
• GreutmannMPieperPGPregnancy in women with congenital heart diseaseEur Heart J201536372491249926112887
   PubMed Web of Science ®Google Scholar
• OstermeyerJPerfektion und Exzellenz. Erinnerungen an John W. Kirklin [Perfection and excellence. Memories of John W. Kirklin]Hamburger Ärzteblatt2011121217 German
   Google Scholar
• TinkleBTSaalHMCommittee on geneticsHealth supervision for children with Marfan syndromePediatrics20131324e1059e107224081994
   PubMed Web of Science ®Google Scholar
• MuellerGCStarkVSteinerKWeilJvon KodolitschYMirTSThe kid-short marfan score (Kid-SMS) – an easy executable risk score for suspected paediatric Marfan patientsActa Paediatr20131022e84e8923110520
   PubMed Web of Science ®Google Scholar
• ChevallierBOberkampfBStheneurCSuivi et prise en charge multidisciplinaire du syndrome de Marfan de l’enfant [Multidisciplinary management and paediatric Marfan syndrome]Arch Pediatr2008155582583 French18582679
   PubMed Web of Science ®Google Scholar
• von KodolitschYRobinsonPNMarfan syndrome: an update of genetics, medical and surgical managementHeart200793675576017502658
   PubMed Web of Science ®Google Scholar
• DietzHCMarfan SyndromePagonRAAdamMPArdingerHHGeneReviews(R)Seattle, WA1993
   Google Scholar
• LoeysBLDietzHCLoeys-Dietz SyndromePagonRAAdamMPArdingerHHGeneReviews(R)Seattle, WA1993
   Google Scholar
• MilewiczDMRegaladoEThoracic Aortic Aneurysms and Aortic DissectionsPagonRAAdamMPArdingerHHGeneReviews(R)Seattle, WA1993
   Google Scholar
• PepinMGMurrayMLByersPHVascular Ehlers-Danlos SyndromePagonRAAdamMPArdingerHHGeneReviews(R)Seattle, WA1993
   Google Scholar
• Arslan-KirchnerMArbustiniEBoileauCClinical utility gene card for: hereditary thoracic aortic aneurysm and dissection including next-generation sequencing-based approachesEur J Hum Genet2016241e1e5
   Web of Science ®Google Scholar
• CampensLCallewaertBMuino MosqueraLGene panel sequencing in heritable thoracic aortic disorders and related entities – results of comprehensive testing in a cohort of 264 patientsOrphanet J Rare Dis201510925644172
   PubMed Web of Science ®Google Scholar
• ProostDVandeweyerGMeesterJAPerformant mutation identification using targeted next-generation sequencing of 14 thoracic aortic aneurysm genesHum Mutat201536880881425907466
   PubMed Web of Science ®Google Scholar
• Wooderchak-DonahueWVanSant-WebbCTvrdikTClinical utility of a next generation sequencing panel assay for Marfan and Marfan-like syndromes featuring aortopathyAm J Med Genet A2015167A81747175725944730
   PubMed Web of Science ®Google Scholar
• DavidTEFeindelCMDavidCMManlhiotCA quarter of a century of experience with aortic valve-sparing operationsJ Thorac Cardiovasc Surg20141483872879 discussion 879–88024930611
   PubMed Web of Science ®Google Scholar
• BernhardtAMTreedeHRybczynskiMComparison of aortic root replacement in patients with Marfan syndromeEur J Cardiothorac Surg20114051052105721435894
   PubMed Web of Science ®Google Scholar
• von KodolitschYRobinsonPBergerJWhen should surgery be performed in marfan syndrome and other connective tissue disorders to protect against type a dissection?BonserRSPaganoDHaverichAMascaroJControversies in Aortic Dissection and Aneurysmal DiseaseLondonSpringer20141747
   Google Scholar
• SilvermanDIBurtonKJGrayJLife expectancy in the Marfan syndromeAm J Cardiol19957521571607810492
   PubMed Web of Science ®Google Scholar
• von KodolitschYSachwehABernhardtAMI-SWOT: ein Instrument zur Individualisierung medizinischer Entscheidungen [I-SWOT: an instrument to individualize medical decisions]Journal für angeborene Herzfehler2016044651 German
   Google Scholar
• LoeysBLDietzHCBravermanACThe revised Ghent nosology for the Marfan syndromeJ Med Genet201047747648520591885
   PubMed Web of Science ®Google Scholar
• DrolsumLRand-HendriksenSPausBGeiranORSembSOOcular findings in 87 adults with Ghent-1 verified Marfan syndromeActa Ophthalmol2015931465324853997
   PubMed Web of Science ®Google Scholar
• CoselliJSGreenSYPriceMDResults of open surgical repair in patients with marfan syndrome and distal aortic dissectionAnn Thorac Surg201610162193220126876340
   PubMed Web of Science ®Google Scholar
• den HartogAWFrankenRZwindermanAHThe risk for type B aortic dissection in Marfan syndromeJ Am Coll Cardiol201565324625425614422
   PubMed Web of Science ®Google Scholar
• MillerDJBlumABLevineWNAhmadCSPopkinCAPreparticipation evaluation of the young athlete: what an orthopaedic surgeon needs to knowAm J Sports Med20164461605161526330569
   PubMed Web of Science ®Google Scholar
• McKeonPOHertelJBrambleDDavisIThe foot core system: a new paradigm for understanding intrinsic foot muscle functionBr J Sports Med201549529024659509
   PubMed Web of Science ®Google Scholar
• BeeneLCTraboulsiEISevenICorneal deformation response and ocular geometry: a noninvasive diagnostic strategy in Marfan syndromeAm J Ophthalmol201616156–64e51
   Google Scholar
• SteinbergJFringsAMousliANew scheimpflug dynamic in vivo curve analyses to characterize biomechanical changes of the cornea after cross-linking for progressive keratoconusJ Refract Surg2016321343926812712
   PubMed Web of Science ®Google Scholar
• MarianoCHolistic nursing as a specialty: holistic nursing - scope and standards of practiceNurs Clin North Am2007422165188v17544677
   PubMed Web of Science ®Google Scholar
• BrinkmannBMadeaBHandbuch gerichtliche Medizin, Bd. 1 [Handbook of Forensic Medicine]Heidelberg, New York, TokyoSpringer2003 Auflage German
   Google Scholar
• MadeaBRechtsmedizin –Befunderhebung, Rekonstruktion, BegutachtungHeidelberg, New York, TokyoSpringer2015 Auflage
   Google Scholar
• De CosterPDe PauwGMartensLDe PaepeACraniofacial structure in Marfan syndrome: a cephalometric studyAm J Med Genet A2004131324024815523638
   PubMed Web of Science ®Google Scholar
• BannasPGrothMRybczynskiMAssessment of aortic root dimensions in patients with suspected Marfan syndrome: intraindividual comparison of contrast-enhanced and non-contrast magnetic resonance angiography with echocardiographyInt J Cardiol2013167119019622240770
   PubMed Web of Science ®Google Scholar
• RussoVRenzulliMButtazziKFattoriRAcquired diseases of the thoracic aorta: role of MRI and MRAEur Radiol200616485286516222534
   PubMed Web of Science ®Google Scholar
• BannasPGrothMRybczynskiMAssessment of aortic root dimensions in patients with suspected Marfan syndrome: intraindividual comparison of contrast-enhanced and non-contrast magnetic resonance angiography with echocardiographyInt J Cardiol2013167119019622240770
   PubMed Web of Science ®Google Scholar
• VeldhoenSBehzadiCDerlinTExact monitoring of aortic diameters in Marfan patients without gadolinium contrast: intraindividual comparison of 2D SSFP imaging with 3D CE-MRA and echocardiographyEur Radiol201525387288225316057
   PubMed Web of Science ®Google Scholar
• GrothMHenesFOMullerleileKBannasPAdamGRegierMAccuracy of thoracic aortic measurements assessed by contrast enhanced and unenhanced magnetic resonance imagingEur J Radiol201281476276621310568
   PubMed Web of Science ®Google Scholar
• KimSTBrinjikjiWKallmesDFPrevalence of intracranial aneurysms in patients with connective tissue diseases: a retrospective studyAJNR Am J Neuroradiol Epub201638
   Web of Science ®Google Scholar
• FrankenREl MorabitAde WaardVIncreased aortic tortuosity indicates a more severe aortic phenotype in adults with Marfan syndromeInt J Cardiol201519471226005802
   PubMed Web of Science ®Google Scholar
• von KodolitschYRaghunathMNienaberCAMarfan syndrome: prevalence and natural course of cardiovascular manifestationsZ Kardiol19988731501609586150
   PubMedGoogle Scholar
• YetmanATBornemeierRAMcCrindleBWLong-term outcome in patients with Marfan syndrome: is aortic dissection the only cause of sudden death?J Am Coll Cardiol200341232933212535830
   PubMed Web of Science ®Google Scholar
• CorsicoAGGrossoATriponBPulmonary involvement in patients with Marfan SyndromePanminerva Med201456217718224994580
   PubMed Web of Science ®Google Scholar
• DevereuxRBRomanMJAortic disease in Marfan’s syndromeN Engl J Med1999340171358135910219073
   PubMed Web of Science ®Google Scholar
• HoffmannBARybczynskiMRostockTProspective risk stratification of sudden cardiac death in Marfan’s syndromeInt J Cardiol201216762539254522738784
   PubMed Web of Science ®Google Scholar
• SchaefferBNRybczynskiMSheikhzadehSHeart rate turbulence and deceleration capacity for risk prediction of serious arrhythmic events in Marfan syndromeClin Res Cardiol2015104121054106326033711
   PubMed Web of Science ®Google Scholar
• SavolainenAKupariMToivonenLKaitilaIViitasaloMAbnormal ambulatory electrocardiographic findings in patients with the Marfan syndromeJ Intern Med199724132212269104435
   PubMed Web of Science ®Google Scholar
• ChenSFaganLFNouriSDonahoeJLVentricular dysrhythmias in children with Marfan’s syndromeAm J Dis Child198513932732763976608
   PubMedGoogle Scholar
• RybczynskiMKoschykDKarmeierAFrequency of sleep apnea in adults with the Marfan syndromeAm J Cardiol2010105121836184120538140
   PubMed Web of Science ®Google Scholar
• SampolGRomeroOSalasAObstructive sleep apnea and thoracic aorta dissectionAm J Respir Crit Care Med2003168121528153112904327
   PubMed Web of Science ®Google Scholar
• HetzerRGehlePEnnkerJResults of cardiovascular surgery for Marfan syndrome in BerlinHetzerRGehlePEnnkerJCardiovascular Aspects of Marfan SyndromeDarmstadtSteinkopff Verlag1995109118
   Google Scholar
• AydinAAdsayBASheikhzadehSObservational cohort study of ventricular arrhythmia in adults with Marfan syndrome caused by FBN1 mutationsPLoS One2013812e8128124349050
   PubMed Web of Science ®Google Scholar
• WitykRJZanferrariCOppenheimerSNeurovascular complications of Marfan syndrome: a retrospective, hospital-based studyStroke200233368068411872887
   PubMed Web of Science ®Google Scholar
• ArnoldMKappelerLGeorgiadisDGender differences in spontaneous cervical artery dissectionNeurology20066761050105217000975
   PubMed Web of Science ®Google Scholar
• SavolainenANisulaLKetoPLeft ventricular function in children with the Marfan syndromeEur Heart J19941556256308056001
   PubMed Web of Science ®Google Scholar
• KiotsekoglouASutherlandGRMoggridgeJCNassiriDKCammAJChildAHThe unravelling of primary myocardial impairment in Marfan syndrome by modern echocardiographyHeart200995191561156619224905
   PubMed Web of Science ®Google Scholar
• WoodJRBellamyDChildAHCitronKMPulmonary disease in patients with Marfan syndromeThorax198439107807846495247
   PubMed Web of Science ®Google Scholar
• KarpmanCAughenbaughGLRyuJHPneumothorax and bullae in Marfan syndromeRespiration201182321922421252480
   PubMed Web of Science ®Google Scholar
• StaufenbielIHauschildCKahl-NiekeBPeriodontal conditions in patients with Marfan syndrome – a multicenter case control studyBMC Oral Health20131315924165013
   PubMed Web of Science ®Google Scholar
• BassaniLGraffeoCSBehroozNNoninvasive diagnosis and management of spontaneous intracranial hypotension in patients with Marfan syndrome: case Report and Review of the LiteratureSurg Neurol Int20145824575323
   PubMedGoogle Scholar
• VoyvodicFScroopRSandersRRAnterior sacral meningocele as a pelvic complication of Marfan syndromeAust N Z J Obstet Gynaecol199939226226510755797
   PubMed Web of Science ®Google Scholar
• DebetteSGermainDPNeurologic manifestations of inherited disorders of connective tissueHandb Clin Neurol201411956557624365320
   PubMedGoogle Scholar
• RodriguesVJElsayedSLoeysBLDietzHCYousemDMNeuroradiologic manifestations of Loeys-Dietz syndrome type 1AJNR Am J Neuroradiol20093081614161919556353
   PubMed Web of Science ®Google Scholar
• RossiterJPRepkeJTMoralesAJMurphyEAPyeritzREA prospective longitudinal evaluation of pregnancy in the Marfan syndromeAm J Obstet Gynecol19951735159916067503207
   PubMed Web of Science ®Google Scholar
• Westhoff-BleckMHilfiker-KleinerDMarfan syndrome and pregnancy: monitoring and managementEur Heart J201536181066106726151074
   PubMed Web of Science ®Google Scholar
• G-BA [webpage on the Internet]Richtlinie über die grundsätzlichen Anforderungen an ein einrichtungsinternes Qualitätsmanagement für nach § 108 SGB V zugelassene Krankenhäuser; Gemeinsamer Bundesausschuss [Guideline on the basic requirements of an institutional quality management for hospitals with authorization according to directive § 108 SGB V]2016 Available from: https://www.g-ba.de/informationen/richtlinien/40/Accessed March 2, 2016 German
   Google Scholar
• CremaMVerbanoCFuture developments in health care performance managementJ Multidiscip Healthc2013641542124255600
   PubMedGoogle Scholar
• OrlanderJDBarberTWFinckeBGThe morbidity and mortality conference: the delicate nature of learning from errorAcad Med200277101001100612377674
   PubMed Web of Science ®Google Scholar
• MeguidCRyanCEEdilBHEstablishing a framework for building multidisciplinary programsJ Multidiscip Healthc2015851952626664132
   PubMed Web of Science ®Google Scholar
• GrittiAPisanoSCatoneGIulianoRSalvatiTGrittiPPsychiatric and neuropsychological issues in Marfan syndrome: a critical review of the literatureInt J Psychiatry Med201550434736026526396
   PubMed Web of Science ®Google Scholar
• VelvinGBathenTRand-HendriksenSGeirdalAOSystematic review of the psychosocial aspects of living with Marfan syndromeClin Genet201587210911624813698
   PubMed Web of Science ®Google Scholar
• ZigmondASSnaithRPThe hospital anxiety and depression scaleActa Psychiatr Scand19836763613706880820
   PubMed Web of Science ®Google Scholar
• KaroffMHeldKBjarnason-WehrensBCardiac rehabilitation in GermanyEur J Cardiovasc Prev Rehabil2007141182717301623
   PubMedGoogle Scholar
• McKeeRStory: Style, Structure, Substance, and the Principles of ScreenwritingNew YorkHarper Collins2010
   Google Scholar
• FreidsonEProfession of Medicine: A Study of the Sociology of Applied KnowledgeChicago, ILUniversity of Chicago Press1988
   Google Scholar
• Contributors W [webpage on the Internet]‘Game of Thrones’, Wikipedia, The Free Encyclopedia, 9 May 2016, 15:05 UTC Available from: https://en.wikipedia.org/w/index.php?title=Game_of_Thrones&oldid=719414408Accessed May 10, 2016
   Google Scholar
• MintzbergHMintzberg on Management: Inside our Strange World of OrganizationsNew YorkFree PressLondonCollier Macmillan1989
   Google Scholar
• LegaFDePietroCConverging patterns in hospital organization: beyond the professional bureaucracyHealth Policy200574326128116226138
   PubMed Web of Science ®Google Scholar
• PoultonBCWestMAEffective multidisciplinary teamwork in primary health careJ Adv Nurs19931869189258320386
   PubMed Web of Science ®Google Scholar
• DaviesHNutleySMannionROrganisational culture and quality of health careQual Health Care20009211111911067249
   PubMedGoogle Scholar
• SachwehAvon KodolitschYKölbelTI-SWOT als Instrument zur individuell optimierten Therapie bei thorakoabdominalem Aortenaneurysma [I-SWOT as an instrument to individually optimize therapy of thoracoabdominal aortic aneurysm: effective, norm-compliant, and meeting the needs]GefäßchirugIn press2016 German
   Google Scholar
• HoyleDISO 9000 Quality Systems Handbook: Using the Standards as a Framework for Business ImprovementButterworth-Heinemann2009
   Google Scholar
• BergesonSCDeanJDA systems approach to patient-centered careJAMA2006296232848285117179462
   PubMed Web of Science ®Google Scholar
• SheikhzadehSKuschMLRybczynskiMA simple clinical model to estimate the probability of Marfan syndromeQJM2012105652753522301820
   PubMed Web of Science ®Google Scholar
• DavidTEFeindelCMAn aortic valve-sparing operation for patients with aortic incompetence and aneurysm of the ascending aortaJ Thorac Cardiovasc Surg199210346176211532219
   PubMed Web of Science ®Google Scholar