References
- Parker SP, Stoler JM. Clinical manifestations and diagnosis of Ehlers-Danlos syndrome. In Post TW, ed. UpToDate; 2021. Available from: https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-ehlers-danlos-syndromes. Accessed May 1, 2022.
- Malfait F, Francomano C, Byers P, et al. The 2017 international classification of the Ehlers-Danlos syndromes. Am J Med Genet C Semin Med Genet. 2017;175(1):8–26. doi:10.1002/ajmg.c.31552
- Ehlers-Danlos Support UK. Types of EDS; 2017. Available from: https://www.ehlers-danlos.org/what-is-eds/information-on-eds/types-of-eds/. Accessed November 4, 2021.
- Chopra P, Tinkle B, Hamonet C, et al. Pain management in the Ehlers-Danlos syndromes. Am J Med Genet C Semin Med Genet. 2017;175(1):212–219. doi:10.1002/ajmg.c.31554
- Grahame R, Hakim AJ, Tofts L. Clinical manifestations, and diagnosis of hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder. In Post TW, ed. UpToDate; 2021. Available from: https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-hypermobile-ehlers-danlos-syndrome-and-hypermobility-spectrum-disorder. Accessed November 4, 2021.
- Callewaert B, Malfait F, Loeys B, De Paepe A. Ehlers-Danlos syndromes and Marfan syndrome. Best Pract Res Clin Rheumatol. 2008;22(1):165–189. doi:10.1016/j.berh.2007.12.005
- International Association for the Study of Pain (IASP). Terminology. Washington DC: International Association for the Study of Pain (IASP); 2021. Available from: https://www.iasp-pain.org/resources/terminology/. Accessed August 10, 2022.
- Malfait F, Colman M, Vroman R, et al. Pain in the Ehlers-Danlos syndromes: mechanisms, models, and challenges. Am J Med Genet C Semin Med Genet. 2021;187(4):429–445. doi:10.1002/ajmg.c.31950
- De Wandele I, Colman M, Hermans L, et al. Exploring pain mechanisms in hypermobile Ehlers-Danlos syndrome: a case-control study. Eur J Pain. 2022;26(6):1355–1367. doi:10.1002/ejp.1956
- The Ehlers-Danlos Society. Why do we need awareness? Available from: https://www.ehlers-danlos.com/may-awareness/why-we-need-awareness/. Accessed November 4, 2021.
- Roberts J. Ehlers-Danlos Syndrome (EDS). DynaMed. EBSCO Information Services; 2021. Available from: https://www.dynamed.com/condition/ehlers-danlos-syndrome-eds. Accessed November 4, 2021.
- Grahame R, Hakin AJ, Tofts L. Treatment and prognosis of hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder. In Post TW, ed. UpToDate; 2021. Available from: https://www.uptodate.com/contents/treatment-and-prognosis-of-hypermobile-ehlers-danlos-syndrome-and-hypermobility-spectrum-disorder. Accessed November 4, 2021.
- OCEBM Levels of Evidence Working Group. The Oxford levels of evidence 2. Oxford Centre for Evidence-Based Medicine. Available from: https://www.cebm.ox.ac.uk/resources/levels-of-evidence/ocebm-levels-of-evidence. Accessed August 10, 2022.
- Palmer S, Davey I, Oliver L, Preece A, Sowerby L, House S. The effectiveness of conservative interventions for the management of syndromic hypermobility: a systematic literature review. Clin Rheumatol. 2021;40(3):1113–1129. doi:10.1007/s10067-020-05284-0
- Celletti C, Paolucci T, Maggi L, et al. Pain management through neurocognitive therapeutic exercises in hypermobile Ehlers-Danlos syndrome patients with chronic low back pain. Biomed Res Int. 2021;2021:6664864. doi:10.1155/2021/6664864
- Demes JS, McNair B, Taylor MRG. Use of complementary therapies for chronic pain management in patients with reported Ehlers-Danlos syndrome or hypermobility spectrum disorders. Am J Med Genet A. 2020;182(11):2611–2623. doi:10.1002/ajmg.a.61837
- Arthur K, Caldwell K, Forehand S, Davis K. Pain control methods in use and perceived effectiveness by patients with Ehlers-Danlos syndrome: a descriptive study. Disabil Rehabil. 2016;38(11):1063–1074. doi:10.3109/09638288.2015.1092175
- Toprak Celenay S, Ozer Kaya D. Effects of spinal stabilization exercises in women with benign joint hypermobility syndrome: a randomized controlled trial. Rheumatol Int. 2017;37(9):1461–1468. doi:10.1007/s00296-017-3713-6
- Daman M, Shiravani F, Hemmati L, Taghizadeh S. The effect of combined exercise therapy on knee proprioception, pain intensity and quality of life in patients with hypermobility syndrome: a randomized clinical trial. J Bodyw Mov Ther. 2019;23(1):202–205. doi:10.1016/j.jbmt.2017.12.012
- Reychler G, Liistro G, Piérard GE, Hermanns-Lê T, Manicourt D. Inspiratory muscle strength training improves lung function in patients with the hypermobile Ehlers-Danlos syndrome: a randomized controlled trial. Am J Med Genet A. 2019;179(3):356–364. doi:10.1002/ajmg.a.61016
- Pacey V, Tofts L, Adams RD, Munns CF, Nicholson LL. Exercise in children with joint hypermobility syndrome and knee pain: a randomised controlled trial comparing exercise into hypermobile versus neutral knee extension. Pediatr Rheumatol Online J. 2013;11(1):30. doi:10.1186/1546-0096-11-30
- Kemp S, Roberts I, Gamble C, et al. A randomized comparative trial of generalized vs targeted physiotherapy in the management of childhood hypermobility. Rheumatology. 2010;49(2):315–325. doi:10.1093/rheumatology/kep362
- Bale P, Easton V, Bacon H, et al. The effectiveness of a multidisciplinary intervention strategy for the treatment of symptomatic joint hypermobility in childhood: a randomised, single Centre parallel group trial (The Bendy Study). Pediatr Rheumatol Online J. 2019;17(1):2. doi:10.1186/s12969-018-0298-x
- Palmer S, Cramp F, Clark E, et al. The feasibility of a randomised controlled trial of physiotherapy for adults with joint hypermobility syndrome. Health Technol Assess. 2016;20(47):1–264. doi:10.3310/hta20470
- Bathen T, Hångmann AB, Hoff M, Andersen LØ, Rand-Hendriksen S. Multidisciplinary treatment of disability in Ehlers-Danlos syndrome hypermobility type/hypermobility syndrome: a pilot study using a combination of physical and cognitive-behavioral therapy on 12 women. Am J Med Genet A. 2013;161(12):3005–3011. doi:10.1002/ajmg.a.36060
- Moret C, Briley M. Antidepressants in the treatment of fibromyalgia. Neuropsychiatr Dis Treat. 2006;2(4):537–548. doi:10.2147/nedt.2006.2.4.537