193
Views
0
CrossRef citations to date
0
Altmetric
ORIGINAL RESEARCH

The ESSENCE-Questionnaire in Medical Records Screening for Neurodevelopmental Symptoms/Problems: Utility and Clinical Validity

ORCID Icon, , , , & ORCID Icon
Pages 2559-2574 | Received 21 Mar 2022, Accepted 20 Sep 2022, Published online: 03 Nov 2022

References

  • Spitzer RL. Psychiatric diagnosis: are clinicians still necessary? Compr Psychiatry. 1983;24(5):399–411. doi:10.1016/0010-440X(83)90032-9
  • Gillberg C. The ESSENCE in child psychiatry: early symptomatic syndromes eliciting neurodevelopmental clinical examinations. Res Dev Disabil. 2010;31(6):1543–1551. doi:10.1016/j.ridd.2010.06.002
  • Mulligan A, Anney RJL, O’Regan M, et al. Autism symptoms in attention-deficit/hyperactivity disorder: a familial trait which correlates with conduct, oppositional defiant, language and motor disorders. J Autism Dev Disord. 2009;39(2):210–211. doi:10.1007/s10803-008-0640-0
  • Cross-Disorder Group of the Psychiatric Genomics Consortium. Genetic relationship between five psychiatric disorders estimated from genome-wide SNPs. Nat Genet. 2013;45(9):984–994. doi:10.1038/ng.2711
  • Pettersson E, Anckarsäter H, Gillberg C, Lichtenstein P. Different neurodevelopmental symptoms have a common genetic etiology. J Child Psychol Psychiatry. 2013;54(12):1356–1365. doi:10.1111/jcpp.12113
  • Bahmanyar S, Sundström A, Kaijser M, von Knorring AL, Kieler H. Pharmacological treatment and demographic characteristics of pediatric patients with attention deficit hyperactivity disorder, Sweden. Eur Neuropsychopharmacol. 2013;23(12):1732–1738. doi:10.1016/j.euroneuro.2013.07.009
  • Dalsgaard S, Thorsteinsson E, Trabjerg BB, et al. Incidence rates and cumulative incidences of the full spectrum of diagnosed mental disorders in childhood and adolescence. JAMA Psychiatry. 2020;77(2):155–164. doi:10.1001/jamapsychiatry.2019.3523
  • Caye A, Rocha TB-M, Anselmi L. Attention-deficit/hyperactivity disorder trajectories from childhood to young adulthood: evidence from a birth cohort supporting a late-onset syndrome. JAMA Psychiatry. 2016;73:705. doi:10.1001/jamapsychiatry.2016.0383
  • Cooper M, Hammerton G, Collishaw S, et al. Investigating late-onset ADHD: a population cohort investigation. J Child Psychol Psychiatry. 2018;59(10):1105–1113. doi:10.1111/jcpp.12911
  • Taylor MJ, Larsson H, Gillberg C, Lichtenstein P, Lundström S. Investigating the childhood symptom profile of community-based individuals diagnosed with attention-deficit/hyperactivity disorder as adults. J Child Psychol Psychiatry. 2019;60(3):259–266. doi:10.1111/jcpp.12988
  • Riglin L, Wootton RE, Thapar AK, et al. Variable emergence of autism spectrum disorder symptoms from childhood to early adulthood. Am J Psychiatry. 2021;178(8):752–760. doi:10.1176/appi.ajp.2020.20071119
  • Zegers M, de Bruijne MC, Spreeuwenberg P, Wagner C, Groenewegen PP, van der Wal G. Quality of patient record keeping: an indicator of the quality of care? BMJ Qual Saf. 2011;20(4):314–318. doi:10.1136/bmjqs.2009.038976
  • Worster A, Haines T. Advanced statistics: understanding medical record review (MRR) studies. Acad Emerg Med. 2004;11(2):187–192. doi:10.1111/j.1553-2712.2004.tb01433.x
  • Jensen-Doss A, Youngstrom EA, Youngstrom JK, Feeny NC, Findling RL. Predictors and moderators of agreement between clinical and research diagnoses for children and adolescents. J Consult Clin Psychol. 2014;82(6):1151–1162. doi:10.1037/a0036657
  • Ludvigsson JF, Andersson E, Ekbom A, et al. External review and validation of the Swedish national inpatient register. BMC Public Health. 2011;11:450. doi:10.1186/1471-2458-11-450
  • Marlow M, Servili C, Tomlinson M. A review of screening tools for the identification of autism spectrum disorders and developmental delay in infants and young children: recommendations for use in low- and middle-income countries. Autism Res. 2019;12(2):176–199. doi:10.1002/aur.2033
  • Mulraney M, Arrondo G, Musullulu H, et al. Systematic review and meta-analysis: screening tools for attention-deficit/hyperactivity disorder in children and adolescents. J Am Acad Child Adolesc Psychiatry. 2021. doi:10.1016/j.jaac.2021.11.031
  • Landgren V, Svensson L, Knez R, et al. The ESSENCE-questionnaire for neurodevelopmental problems – a Swedish school-based validation study in 11-year-old children. Neuropsychiatr Dis Treat. 2022;Volume 18:2055–2067. doi:10.2147/NDT.S374930
  • Roid GH, Pomplun M, Martin JJ. Leiter International Performance Scale − 3rd Edition. 3rd ed. Stoelting; 2013. Available from https://hogrefe.se/klinisk-psykologi/leiter-3/.
  • Malmberg M, Rydell Margret A, Smedje H. Validity of the Swedish version of the Strengths and Difficulties Questionnaire (SDQ-Swe). Nord J Psychiatry. 2003;57(5):357–363. doi:10.1080/08039480310002697
  • Busner J, Targum SD. The clinical global impressions scale. Psychiatry Edgmont. 2007;4(7):28–37.
  • Örtenstrand A, Waldenström U. Mothers’ experiences of child health clinic services in Sweden. Acta Paediatr. 2005;94(9):1285–1294. doi:10.1111/j.1651-2227.2005.tb02090.x
  • Kornfält R. Survey of the pre-school child health surveillance programme in Sweden. Acta Paediatr Oslo Nor. 2000;89(434):2–7. doi:10.1111/j.1651-2227.2000.tb03088.x
  • Swedish National Board of Health and Welfare. Health care for mothers and children within the primary health care system. Allmänna råd från Socialstyrelsen 1981. 1981:4.
  • Swedish National Board of Health and Welfare. Kvalitetssäkring av Barnhälsovården. Att skydda skyddsnätet [Quality assurance of child health care. Protecting the safety net]. SoS-rapport 1994. 1994:19.
  • University of Gothenburg. ESSENCE-Q screening questionnaire. Available from: https://www.gu.se/en/gnc/gncs-resources/screening-questionnaires/essence-q-screening-questionnaire. Accessed November 4, 2021.
  • Hatakenaka Y, Ninomiya H, Billstedt E, Fernell E, Gillberg C. ESSENCE-Q - used as a screening tool for neurodevelopmental problems in public health checkups for young children in south Japan. Neuropsychiatr Dis Treat. 2017;13:1271–1280. doi:10.2147/NDT.S132546
  • Stevanovic D, Knez R, Zorcec T, et al. ESSENCE-Q: Slavic language versions for developmental screening in young children. Neuropsychiatr Dis Treat. 2018;14:2141–2148. doi:10.2147/NDT.S171359
  • Hatakenaka Y, Maeda M, Ninomiya H, Hachiya K, Fernell E, Gillberg C. ESSENCE-Q obtained in routine Japanese public child health check-ups may be a valuable tool in neurodevelopmental screening. Acta Paediatr. 2020;109(4):764–773. doi:10.1111/apa.15029
  • Mitani AA, Freer PE, Nelson KP. Summary measures of agreement and association between many raters’ ordinal classifications. Ann Epidemiol. 2017;27(10):677–685.e4. doi:10.1016/j.annepidem.2017.09.001
  • Nelson KP, Edwards D. Measures of agreement between many raters for ordinal classifications. Stat Med. 2015;34(23):3116–3132. doi:10.1002/sim.6546
  • Mitani A, Nelson K. Modeling agreement between binary classifications of multiple raters in R and SAS. J Mod Appl Stat Methods. 2017;16(2):277–309. doi:10.22237/jmasm/1509495300
  • Cohen J. A coefficient of agreement for nominal scales. Educ Psychol Meas. 1960;20(1):37–46. doi:10.1177/001316446002000104
  • Shrout PE, Fleiss JL. Intraclass correlations: uses in assessing rater reliability. Psychol Bull. 1979;86(2):420–428. doi:10.1037/0033-2909.86.2.420
  • Koo TK, Li MY. A guideline of selecting and reporting intraclass correlation coefficients for reliability research. J Chiropr Med. 2016;15(2):155–163. doi:10.1016/j.jcm.2016.02.012
  • McHugh ML. Interrater reliability: the kappa statistic. Biochem Medica. 2012;22(3):276–282. doi:10.11613/BM.2012.031
  • RStudio Team. RStudio: integrated development environment for R; 2020. Available from: http://www.rstudio.com/. Accessed October 10, 2022.
  • Revelle W. psych: procedures for psychological, psychometric, and personality research; 2020. Available from: https://CRAN.R-project.org/package=psych. Accessed October 10, 2022.
  • Mitani A. AyaMitani / modelkappa: v1. Zenodo https://github.com/AyaMitani/modelkappa/ Accessed14 October 2022; 2019. doi:10.5281/zenodo.3546381
  • Robin X, Turck N, Hainard A, et al. pROC: an open-source package for R and S+ to analyze and compare ROC curves. BMC Bioinform. 2011;12(1):77. doi:10.1186/1471-2105-12-77
  • Caspi A, Houts RM, Ambler A, et al. Longitudinal assessment of mental health disorders and comorbidities across 4 decades among participants in the Dunedin birth cohort study. JAMA Netw Open. 2020;3(4):e203221. doi:10.1001/jamanetworkopen.2020.3221
  • Eyre O, Hughes RA, Thapar AK, et al. Childhood neurodevelopmental difficulties and risk of adolescent depression: the role of irritability. J Child Psychol Psychiatry. 2019;60(8):866–874. doi:10.1111/jcpp.13053
  • Carballal Mariño M, Gago Ageitos A, Ares Alvarez J, et al. Prevalence of neurodevelopmental, behavioural and learning disorders in paediatric primary care. An Pediatría Engl. 2018;89(3):153–161. doi:10.1016/j.anpede.2017.10.005
  • American Psychiatric Association (APA). Diagnostic and Statistical Manual of Mental Disorders. Third ed. American Psychiatric Association (APA); 1980.
  • American Psychiatric Association (APA). Diagnostic and Statistical Manual of Mental Disorders. Fifth ed. American Psychiatric Association (APA); 2013.
  • Shelton AR, Malow B. Neurodevelopmental disorders commonly presenting with sleep disturbances. Neurotherapeutics. 2021;18(1):156–169. doi:10.1007/s13311-020-00982-8
  • Brimo K, Dinkler L, Gillberg C, Lichtenstein P, Lundström S, Johnels JÅ. The co-occurrence of neurodevelopmental problems in dyslexia. Dyslexia. 2021;27:277–293. doi:10.1002/dys.1681
  • Dinkler L, Bryant-Waugh R. Assessment of avoidant restrictive food intake disorder, pica and rumination disorder: interview and questionnaire measures. Curr Opin Psychiatry. 2021;34(6):532–542. doi:10.1097/YCO.0000000000000736
  • Smith B, Rogers SL, Blissett J, Ludlow AK. The relationship between sensory sensitivity, food fussiness and food preferences in children with neurodevelopmental disorders. Appetite. 2020;150:104643. doi:10.1016/j.appet.2020.104643
  • Liljequist D, Elfving B, Roaldsen KS. Intraclass correlation – a discussion and demonstration of basic features. PLoS One. 2019;14(7):e0219854. doi:10.1371/journal.pone.0219854