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ORIGINAL RESEARCH

The Correlation Between Caregivers Burden and Quality of Life Among Family Caregivers of Stroke Survivors: The Mediating Role of Resilience

ORCID Icon, ORCID Icon &
Pages 91-102 | Received 08 Sep 2023, Accepted 06 Jun 2024, Published online: 20 Jun 2024

References

  • American Heart Association. Heart disease and stroke statistics update fact sheet at a glance. American Heart Association. 2021. Available from: https://www.heart.org/-/media/phd-files-2/science-news/2/2021-heart-and-stroke-stat-update/2021_heart_disease_and_stroke_statistics_update_fact_sheet_at_a_glance.pdf?la=en. Accessed June 17, 2024.
  • Yanti ADL, Santik YDP. Risk factors associated with disability among elderly with stroke in Indonesia: a secondary data analysis of 2018 national basic health research. J Public Heal Trop Coast Reg. 2022;5(3):140–154. doi:10.14710/jphtcr.v5i3.15694
  • Lima RJ, Rosa C, Neyla K, Macedo DF. Resilience, functional capacity, and social support of people with stroke sequelae. Rev Eletr Enferm. 2020;22(59542):1–8.
  • Eriksson GM, Kamwesiga JT, Guidetti S. The everyday life situation of caregivers to family members who have had a stroke and received the rehabilitation intervention in Uganda. Arch Public Health. 2021;79(1):1–10. doi:10.1186/s13690-021-00618-z
  • Achilike S, Beauchamp JES, Cron SG, et al. Caregiver burden and associated factors among informal caregivers of stroke survivors. J Neurosci Nurs. 2020;52(6):277–283. doi:10.1097/JNN.0000000000000552
  • Freytes IM, Sullivan M, Schmitzberger M, et al. Types of stroke-related deficits and their impact on family caregiver’s depressive symptoms, burden, and quality of life. Disabil Health J. 2021;14(2):101019. doi:10.1016/j.dhjo.2020.101019
  • Liu Z, Heffernan C, Tan J. Caregiver burden: a concept analysis. Int J Nurs Sci. 2020;7(4):438–445. doi:10.1016/j.ijnss.2020.07.012
  • de-Torres García I, Bustos F, Arango-Lasprilla JC, Fernández-Berrocal P. Emotional intelligence abilities of caregivers of patients with acquired brain injury and cognitive impairment: are they related to overload or resilience? Ansiedad y Estres. 2021;28(1):55–61. doi:10.5093/anyes2022a6
  • Palacio GC, Krikorian A, Gómez-Romero MJ, Limonero JT. Resilience in caregivers: a systematic review. Am J Hosp Palliat Med. 2020;37(8):648–658. doi:10.1177/1049909119893977
  • Inci FH, Temel AB. The effect of the support program on the resilience of female family caregivers of stroke patients: randomized controlled trial. Appl Nurs Res. 2016;32:233–240. doi:10.1016/j.apnr.2016.08.002
  • Walsh F. Family Resilience: a Dynamic Systemic Framework. In: Ungar M, editor. Multisystemic Resilience. Oxford University Press; 2021:255–270.
  • Chan ACY, Piehler TF, Gwk H. Resilience and mental health during the COVID-19 pandemic: findings from Minnesota and Hong Kong. J Affect Disord. 2021;295:771–780. doi:10.1016/j.jad.2021.08.144
  • Aparicio M, Centeno C, Carrasco JM, Barbosa A, Arantzamendi M. What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care. BMC Palliat Care. 2017;16(1):1–11. doi:10.1186/s12904-017-0229-5
  • Steigleder T, Kollmar R, Ostgathe C. Palliative Care for Stroke Patients and Their Families: barriers for Implementation. Front Neurol. 2019;10:1–8. doi:10.3389/fneur.2019.00164
  • Karimirad MR, Seyedfatemi N, Noghani F, Dehkordi AH, Barasteh S. The relationship between resilience and quality of life in family caregivers of patients with mental disorders. J Clin Diagn Res. 2018;12:11. doi:10.7860/JCDR/2018/29369.12239
  • Masoudian N, Sarmadi M, Najafi R, Najafi F, Maleki S. Burden of care and quality of life in home caregivers of patients with stroke in Iran. Home Health Care Manag Pract. 2019;31(4):213–218. doi:10.1177/1084822319843137
  • Uzar-Ozçetin YS, Dursun Sİ. Quality of life, caregiver burden, and resilience among the family caregivers of cancer survivors. Eur J Oncol Nurs. 2020;48. doi:10.1016/j.ejon.2020.101832
  • Fang L, Dong M, Fang W, Zheng J. Relationships between care burden, resilience, and depressive symptoms among the main family caregivers of stroke patients: a cross-sectional study. Front Psychiatry. 2022;13(3). doi:10.3389/fpsyt.2022.960830
  • Connor KM, Davidson JRT. Development of a new Resilience scale: the Connor-Davidson Resilience scale (CD-RISC). Depress Anxiety. 2003;18(2):76–82. doi:10.1002/da.10113
  • Kobasa SC. Stressful life events, personality, and health: an inquiry into hardiness. J Pers Soc Psychol. 1979;37(1):1–11. doi:10.1007/BF00263951
  • Cohen S, Kamarck T, Mermelstein R. A global measure of perceived stress. J Health Soc Behav. 1983;24(4):385–396. doi:10.2307/2136404
  • Elmståhl S, Malmberg B, Annerstedt L. Caregiver’s burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Arch Phys Med Rehabil. 1996;77(2):177–182. doi:10.1016/S0003-9993(96)90164-1
  • World Health Organization. The World Health Organization Quality of Life (WHOQOL)- BREF Edisi Bahasa Indonesia. Program Mental Health. 2004:1–5. Available from: 10.1023/B:QURE.0000018486.91360.00. Accessed June 17, 2024.
  • Resmiya L, Misbach IH. Development tool of quality of life in Indonesia (Pengembangan Alat Ukur Kualitas Hidup Indonesia). J Ilm Pendidik Lingkung Dan Pembang. 2016;17(01):34–41. doi:10.21009/plpb.171.04
  • Rusti S, Helda H, Ronoatmodjo S, Sunarti E, Latifah MM, Andreas AM. Determinants of family resilience in ischemic stroke patients. Open Access Maced J Med Sci. 2022;10:1246–1251. doi:10.3889/oamjms.2022.9783
  • Zhang W, Zhou W, Ye M, Gao Y, Zhou L. Family resilience of stroke survivors within 6 months after a first-episode stroke: a longitudinal study. Front Psychiatry. 2022;13. doi:10.3389/fpsyt.2022.968933
  • Asti AD, Novariananda S, Sumarsih T. Caregiver burden and stress among stoke patients (beban caregiver dan stres keluarga pasien stroke). J Ilm Kesehat Keperawatan. 2021;17(2):157. doi:10.26753/jikk.v17i2.667
  • Caro CC, Costa JD, Da Cruz DMC. Burden and quality of life of family caregivers of stroke patients. Occup Ther Heal Care. 2018;32(2):154–171. doi:10.1080/07380577.2018.1449046
  • Ba MS, Monkong S, Leelacharas S, Satitvipawee P. Factors explaining quality of life among family caregivers of people with stroke in Myanmar: a cross-sectional study. Pacific Rim Int J Nurs Res. 2022;26(2):355–369.
  • Kumar R, Kaur S. Predictors of quality of life and its impact on coping styles in stroke caregivers. J Neurol Disord. 2017;05(02):2–5. doi:10.4172/2329-6895.1000336
  • Weisser FB, Bristowe K, Jackson D. Experiences of burden, needs, rewards and resilience in family caregivers of people living with motor neuron disease/amyotrophic lateral sclerosis: a secondary thematic analysis of qualitative interviews. Palliat Med. 2015;29(8):737–745. doi:10.1177/0269216315575851
  • Meyers EE, McCurley J, Lester E, Jacobo M, Rosand J, Vranceanu AM. Building resiliency in dyads of patients admitted to the neuroscience intensive care unit and their family caregivers: lessons learned from William and Laura. Cogn Behav Pract. 2020;27(3):321–335. doi:10.1016/j.cbpra.2020.02.001
  • Gómez-Trinidad MN, Chimpén-López CA, Rodríguez-Santos L, Moral MA, Rodríguez-Mansilla J. Resilience, emotional intelligence, and occupational performance in family members who are the caretakers of patients with dementia in Spain: a cross-sectional, analytical, and descriptive study. J Clin Med. 2021;10(18):1–18. doi:10.3390/jcm10184262
  • Herdiana I, Suryanto D, Handoyo S. Family resilience: a conceptual review. Adv Soc Sci Educ Humanit Res. 2018;133(1984):42–48. doi:10.2991/acpch-17.2018.9
  • Efi P, Fani K, Eleni T, et al. Quality of life and psychological distress of caregivers of stroke people. Acta Neurol Taiwan. 2017;26(4):154–166.
  • Tsai YH, Lou MF, Feng TH, Chu TL, Chen YJ, Liu HE. Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year. BMC Neurol. 2018;18(1):1–9. doi:10.1186/s12883-018-1057-9
  • Oh S, Chang SJ. Concept analysis: family resilience. Open J Nurs. 2014;04(13):980–990. doi:10.4236/ojn.2014.413105
  • Simpson G, Jones K. How important is resilience among family members supporting relatives with traumatic brain injury or spinal cord injury? Clin Rehabil. 2013;27(4):367–377. doi:10.1177/0269215512457961
  • Holloway RG, Arnold RM, Creutzfeldt CJ, et al. Palliative and end-of-life care in stroke: a statement for healthcare professionals from the American Heart Association/American Stroke Association. Stroke. 2014;45:1887–1916. doi:10.1161/STR.0000000000000015