“My cancer is not my deepest concern”: life course disruption influencing patient pathways and health care needs among persons living with colorectal cancer

References

• Cancer Registry of NorwayCancer in Norway 2012 – Cancer Incidence, Mortality, Survival and Prevalence in NorwayOslo, NorwayCancer Registry of Norway2014
   Google Scholar
• LarsenIKBrayFTrends in colorectal cancer incidence in Norway 1962–2006: an interpretation of the temporal patterns by anatomic subsiteInt J Cancer2010126372173219688825
   PubMed Web of Science ®Google Scholar
• Ait OuakrimDPizotCBoniolMTrends in colorectal cancer mortality in Europe: retrospective analysis of the WHO mortality databaseBMJ2015351h497026442928
   PubMed Web of Science ®Google Scholar
• BrownHRandleJLiving with a stoma: a review of the literatureJ Clin Nurs200514748115656851
   PubMed Web of Science ®Google Scholar
• Camilleri-BrennanJSteeleRJProspective analysis of quality of life after reversal of a defunctioning loop ileostomyColorectal Dis20024316717112780610
   PubMedGoogle Scholar
• DesnooLFaithfulSA qualitative study of anterior resection syndrome: the experiences of cancer survivors who have undergone resection surgeryEur J Cancer Care2006153244251
   PubMed Web of Science ®Google Scholar
• GrayNMHallSJBrowneSPredictors of anxiety and depression in people with colorectal cancerSupport Care Cancer201422230731424077745
   PubMed Web of Science ®Google Scholar
• HubbardGKiddLKearneyNDisrupted lives and threats to identity: the experience of people with colorectal cancer within the first year of diagnosisHealth20101413120164162
   PubMed Web of Science ®Google Scholar
• BrownCRWhere are the patients in the quality of health care?Int J Qual Health Care200719312512617426104
   PubMed Web of Science ®Google Scholar
• RotterTKinsmanLJamesEClinical pathways: effects on professional practice, patient outcomes, length of stay and hospital costsCochrane Database Syst Rev20103CD00663220238347
   PubMed Web of Science ®Google Scholar
• SackettDLRosenbergWMGrayJAHavnesRBRichardsonWSEvidence based medicine: what it is and what it isn’tBMJ1996312702371728555924
   PubMed Web of Science ®Google Scholar
• PikeKLanguage in Relation to a Unified Theory of the Structure of Human NatureThe Hague, the NetherlandsMouton & Co1967
   Google Scholar
• HarrisMCows, Pigs, Wars and Witches: The Riddles of CultureNew York, NYRandom House1974
   Google Scholar
• HarrisMCultural Materialism: the Struggle for a Science of CultureNew York, NYRandom House1979
   Google Scholar
• MinichielloVAroniRTimewellEAlexanderLIn-depth Interviewing. Researching PeopleMelbourne, VictoriaLongman Cheshire1990
   Google Scholar
• GoboGRe-conceptualizing generalization: old issues in a new frameAlasuutariPBickmanLBrannenJThe SAGE Handbook of Social Research MethodsLondon, UKSage2004193213
   Google Scholar
• BrymanASocial Research MethodsOxford, UKOxford University Press2004
   Google Scholar
• KvaleSInterviews. An Introduction to Qualitative Research InterviewingThousand Oaks, CASage1996
   Google Scholar
• HsiehHFShannonSEThree approaches to qualitative content analysisQual Health Res20051591277128816204405
   PubMed Web of Science ®Google Scholar
• GoboGDoing EthnographyLos Angeles, CASage2008
   Google Scholar
• World Medical AssociationDeclaration of Helsinki Code of Ethics 1964 (revised)Edinburgh, ScotlandWorld Medical Association2000
   Google Scholar
• McIlfatrickSSullivanKMcKennaHExploring the ethical issues of the research interview in the cancer contextEur J Oncol Nurs200610394715993646
   PubMed Web of Science ®Google Scholar
• RoseKUnstructured and semi-structured interviewingNurs Res1994132332
   PubMedGoogle Scholar
• BuryMChronic illness as a biographical disruptionSociol Health Illn198241674182
   Google Scholar
• BeckerGDisrupted Lives. How to Create Meaning Out of ChaosBerkeley, CAUniversity of California Press1997
   Google Scholar
• ExleyCLetherbyGManaging a disrupted life course: issues of identity and emotion workHealth20015112
   Web of Science ®Google Scholar
• HubbardGForbatLCancer as biographical disruption: constructions of living with cancerSupport Care Cancer20122092033204022076620
   PubMed Web of Science ®Google Scholar
• ReeveJLloyd-WilliamsMPayneSDowrickCRevisiting biographical disruption: exploring individual embodied illness experience in people with terminal cancerHealth20101417819520164165
   PubMed Web of Science ®Google Scholar
• CoulterAEntwistleVAEcclesARyanSShepperdSPereraRPersonalised care planning for adults with chronic or long-term health conditionsCochrane Database Syst Rev20153CD01052325733495
   PubMed Web of Science ®Google Scholar
• MayCMontoriVMMairFSWe need minimally disruptive medicineBMJ2009339b280319671932
   PubMed Web of Science ®Google Scholar
• CoulterAEllinsJEffectiveness of strategies for informing, educating, and involving patientsBMJ200733576092417615222
   PubMed Web of Science ®Google Scholar
• WensingMWollersheimHGrolROrganizational interventions to implement improvements in patient care: a structured review of reviewsImplement Sci200611216722567
   PubMed Web of Science ®Google Scholar
• EklundKWilhelmsonKOutcomes of coordinated and integrated interventions targeting frail elderly people: a systematic review of randomised controlled trialsHealth Soc Care Community200917544745819245421
   PubMed Web of Science ®Google Scholar
• PaparellaGPerson-Centred Care in Europe: a Cross-Country Comparison of Health System Performance, Strategies and StructuresOxford, UKPicker Institute Europe2016
   Google Scholar
• MaoJJPalmerSCStratonJBCancer survivors with unmet needs were more likely to use complementary and alternative medicineJ Cancer Surviv2008211612418648980
   PubMedGoogle Scholar
• FairclothCABoylsteinCRittmanMYoungMEGubriumJSudden illness and biographical flow in narratives of stroke recoverySociol Health Illn20042624226115027986
   PubMed Web of Science ®Google Scholar
• WilliamsSChronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core conceptSociol Health Illn2000224067
   Web of Science ®Google Scholar
• HallSGrayNBrowneSZieblandSCampbellNCA qualitative exploration of the role of primary care in supporting colorectal cancer patientsSupport Care Cancer201220123071307822402750
   PubMed Web of Science ®Google Scholar
• SalmonPClarkLMcGrathEFisherPScreening for psychological distress in cancer: renewing the research agendaPsychooncology201524326226825082459
   PubMed Web of Science ®Google Scholar
• BuryMThe sociology of chronic illness: a review of research and prospectsSociol Health Illn199113451468
   Web of Science ®Google Scholar
• BuryMIllness narratives: fact or fictionSociol Health Illn2001233263285
   Web of Science ®Google Scholar
• CaylessSForbatLIllingworthNHubbardGKearneyNMen with prostate cancer over the first year of illness: their experiences as biographical disruptionSupport Care Cancer2010181111919350286
   PubMed Web of Science ®Google Scholar
• KristoffersenAENorheimAJFønnebøVComplementary and alternative medicine use among Norwegian cancer survivors: Gender-specific prevalence and associations for useEvid Based Complement Alternat Med2013201331878123606877
   PubMed Web of Science ®Google Scholar
• SalamonsenADoctor-patient communication and cancer patients’ choice of alternative therapies as supplement or alternative to conventional careScand J Caring Sci2013271707622583118
   PubMed Web of Science ®Google Scholar
• SalamonsenAUse of complementary and alternative medicine in patients with cancer or multiple sclerosis: Possible public health implicationsEur J Public Health201526222522926450914
   PubMed Web of Science ®Google Scholar
• SalamonsenAKruseTEEriksenSHModes of embodiment in breast cancer patients using complementary and alternative medicineQual Health Res201222111497151222910592
   PubMed Web of Science ®Google Scholar
• MulkinsAMcKenzieEBalneavesLSalamonsenAVerhoefMFrom the conventional to the alternative: exploring patients’ pathways of cancer treatment and careJ Complement Integr Med2015131516426259233
   PubMedGoogle Scholar
• KiddLKearneyNO’CarrollRHubbardGExperiences of self-care in patients with colorectal cancer: a longitudinal studyJ Adv Nurs200864546947718764852
   PubMed Web of Science ®Google Scholar
• SorensenKBrouckeSVDFullhamJHealth literacy and public health: a systematic review and integration of definitions and modelsBMC Public Health20121218022276600
   PubMed Web of Science ®Google Scholar
• CoulterALocockLZieblandSCalabreseJCollecting data on patient experience is not enough: they must be used to improve careBMJ2014348g222524671966
   PubMed Web of Science ®Google Scholar
• AgledahlKMGulbrandsenPFørdeRWifstadÅCourteous but not curious: how doctors’ politeness masks their existential neglect. A qualitative study of video-recorded patient consultationsJ Med Ethics2011371165065421610269
   PubMed Web of Science ®Google Scholar
• BerntsenGHøyemAGammonDProsjektrapport: Helsetjenesten sett fra pasientens ståsted. Pasientforløp ved langvarige og komplekse behov i Troms og Ofoten. [Report: The health service seen from a patient perspective. Patient pathways in patients with longlasting and complex healthcare needs in Troms and Ofoten]TromsøNorwegian Center for Integrated Care and Telemedicine2014 Norwegian
   Google Scholar
• Canadian Cancer SocietySupportive Care for Colorectal Cancer Available from: http://www.cancer.ca/en/cancer-information/cancer-type/colorectal/supportive-care/?region=on#ixzz3QB3mNmvlAccessed February 1, 2016
   Google Scholar
• BerntsenGRGammonBDSteinsbekkAHow do we deal with multiple goals for care within an individual patient trajectory? A document content analysis of health service research papers on goals for careBMJ Open2015512e009403
   Web of Science ®Google Scholar
• GreenJBrittenNQualitative research and evidence based medicineBMJ19983167139123012329583929
   PubMed Web of Science ®Google Scholar
• SealeCQuality in qualitative researchSealeCGoboGGubriumJSilvermanDQualitative Research PracticeLondon, UKSage2004409419
   Google Scholar
• TodresLGalvinKTHollowayIThe humanization of healthcare: a value framework for qualitative researchInt J Qual Stud Health and Well-being2009426877
   Web of Science ®Google Scholar
• GubaELincolnYSFourth Generation EvaluationNewbury Park, CASage1989
   Google Scholar