Flying the nest: a challenge for young adults with cystic fibrosis and their parents

Vibeke Bregnballe1 Department of Clinical Medicine, Aarhus University, AarhusCorrespondence[email protected]

Kirsten A Boisen2 Center of Adolescent Medicine, Department of Pediatric and Adolescent Medicine, Rigshospitalet, University Hospital of Copenhagen, Copenhagen

Peter Oluf Schiøtz3 Department of Pediatrics, Aarhus University Hospital, Aarhus

Tacjana Pressler4 Cystic Fibrosis Centre, Rigshospitalet, University Hospital of Copenhagen, Copenhagen

Kirsten Lomborg1 Department of Clinical Medicine, Aarhus University, Aarhus;5 Department of Public Health, Aarhus University, Aarhus, Denmark

Pages 229-236 | Published online: 13 Feb 2017

Cite this article
CrossMark

Full Article
Figures & data
References
Citations
Metrics
Licensing
Reprints & Permissions
View PDF PDF

References

OrensteinDMWinnieGBAltmanHCystic fibrosis: a 2002 updateJ Pediatr2002140215616411865265
PubMed Web of Science ®Google Scholar
RavillySOlesenHVQuintonHBStudy on cystic fibrosis mortality in 5 countriesJ Cyst Fibros20054Suppl 1S119S125
Google Scholar
SawickiGSSellersDERobinsonWMHigh treatment burden in adults with cystic fibrosis: challenges to disease self-managementJ Cyst Fibros200982919618952504
PubMed Web of Science ®Google Scholar
BadlanKYoung people living with cystic fibrosis: an insight into their subjective experienceHealth Soc Care Community200614326427016650123
PubMed Web of Science ®Google Scholar
BregnballeVSchiøtzPOLomborgKParenting adolescents with cystic fibrosis: the adolescents’ and young adults’ perspectivesPatient Prefer Adherence2011556357022114471
PubMed Web of Science ®Google Scholar
LowtonKParents and partners: lay carers’ perceptions of their role in the treatment and care of adults with cystic fibrosisJ Adv Nurs200239217418112100661
PubMed Web of Science ®Google Scholar
McGuffieKSellersDESawickiGSRobinsonWMSelf-reported involvement of family members in the care of adults with CFJ Cyst Fibros2008729510117631424
PubMed Web of Science ®Google Scholar
BregnballeVSchiøtzPOBoisenKAPresslerTThastumMBarriers to adherence in adolescents and young adults with cystic fibrosis: a questionnaire study in young patients and their parentsPatient Prefer Adherence2011550751522114464
PubMed Web of Science ®Google Scholar
IlesNLowtonKWhat is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services?Health Soc Care Community2010181212919637994
PubMed Web of Science ®Google Scholar
SawickiGSSellersDEMcGuffieKRobinsonWAdults with cystic fibrosis report important and unmet needs for disease informationJ Cyst Fibros20076641141617452026
PubMed Web of Science ®Google Scholar
DashiffCSuzuki-CrumlyJKrackeBBrittonLMorelandECystic fibrosis-related diabetes in older adolescents: parental support and self-managementJ Spec Pediatr Nurs2013181425323289454
PubMed Web of Science ®Google Scholar
SattoeJNTHilberinkSRvan StaaABalRLagging behind or not? Four distinctive social participation patterns among young adults with chronic conditionsJ Adolesc Health201454439740324280304
PubMed Web of Science ®Google Scholar
SattoeJNTBalMIRoelofsPDDMBalRMiedemaHSvan StaaASelf-management interventions for young people with chronic conditions: a systematic overviewPatient Educ Couns201598670471525819373
PubMed Web of Science ®Google Scholar
WilliamsBMukhopadhyaySDowellJCoyleJFrom child to adult: an exploration of shifting family roles and responsibilities in managing physiotherapy for cystic fibrosisSoc Sci Med200765102135214617719160
PubMed Web of Science ®Google Scholar
SteinbergLWe know some things: parent–adolescent relationships in retrospect and prospectJ Res Adolesc2001111119
Web of Science ®Google Scholar
SawyerSMSelf-management in adolescents with chronic illness. What does it mean and how can it be achieved?Med J Aust2005183840540916225444
PubMed Web of Science ®Google Scholar
HafetzJMillerVAChild and parent perceptions of monitoring in chronic illness management: a qualitative studyChild Care Health Dev201036565566220533917
PubMed Web of Science ®Google Scholar
KnudsenKBPresslerTMortensenLHAssociations between adherence, depressive symptoms and health-related quality of life in young adults with cystic fibrosisSpringerplus201651121627516954
PubMedGoogle Scholar
MoriskyDEAngAKrousel-WoodMWardHJPredictive validity of a medication adherence measure in an outpatient settingJ Clin Hypertens (Greenwich)200810534835418453793
PubMed Web of Science ®Google Scholar
ZindaniGNStreetmanDDStreetmanDSNasrSZAdherence to treatment in children and adolescent patients with cystic fibrosisJ Adolesc Health2006381131716387243
PubMed Web of Science ®Google Scholar
MastersonTLWildmanBGNewberryBHOmlorGJImpact of age and gender on adherence to infection control guidelines and medical regimens in cystic fibrosisPediatr Pulmonol201146329530120967838
PubMed Web of Science ®Google Scholar
DziubanEJSaab-AbazeedLChaudhrySRStreetmanDSNasrSZIdentifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosisPediatr Pulmonol201045545045820425852
PubMed Web of Science ®Google Scholar
GeorgeMRand-GiovannettiDEakinMNBorrelliBZettlerMRiekertKAPerceptions of barriers and facilitators: self-management decisions by older adolescents and adults with CFJ Cyst Fibros20109642543220846910
PubMed Web of Science ®Google Scholar
HanghøjSBoisenKASelf-reported barriers to medication adherence among chronically ill adolescents: a systematic reviewJ Adolesc Health201454212113824182940
PubMed Web of Science ®Google Scholar
ModiACMarcielKKSlaterSKDrotarDQuittnerALThe influence of parental supervision on medical adherence in adolescents with cystic fibrosis: developmental shifts from pre to late adolescenceChild Health Care20083717892
Web of Science ®Google Scholar
WysockiTGrecoPSocial support and diabetes management in childhood and adolescence: influence of parents and friendsCurr Diab Rep20066211712216542622
PubMedGoogle Scholar

Share icon
Back to Top

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.

People also read
Recommended articles
Cited by

To cite this article:

Reference style: APA Chicago Harvard

Citation copied to clipboard

Reference styles above use APA (6th edition), Chicago (16th edition) & Harvard (10th edition)

Download citation

Download a citation file in RIS format that can be imported by citation management software including EndNote, ProCite, RefWorks and Reference Manager.

Choose format: RIS BibTex RefWorks Direct Export

Choose options: Citation Citation & abstract Citation & references

Flying the nest: a challenge for young adults with cystic fibrosis and their parents

References

Information for

Open access

Opportunities

Help and information

Your download is now in progress and you may close this window

Login or register to access this feature

Flying the nest: a challenge for young adults with cystic fibrosis and their parents

References

Related research

To cite this article:

Download citation

Information for

Open access

Opportunities

Help and information

Keep up to date