References
- NCI Dictionary of Cancer Terms2017 Available from: https://www.cancer.gov/publications/dictionaries/cancer-terms?cdrid=346519Accessed July 31, 2017
- Institute of Medicine Committee on Quality of Health Care in AmericaCrossing the Quality Chasm: A New Health System for the 21st CenturyWashington, DCNational Academies Press2001
- PittsPJThe patient voice: at the intersection of a US regulatory revolutionPatient20169537337727581685
- Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidanceHealth Qual Outcomes2006479
- Agency for Healthcare Research and QualityNational Healthcare Quality ReportRockville, MDAgency for Healthcare Research and Quality2006
- BastianHSpeaking up for ourselves. The evolution of consumer advocacy in health careInt J Technol Assess Health Care19981413239509791
- HansenHThe patientKristensenFSigmundHThe Health Technology Assessment HandbookCopenhagenDanish Centre for Health Technology Assessment2007104114
- JanssenIMGerhardusASchröer-GüntherMAScheiblerFA descriptive review on methods to prioritize outcomes in a health care contextHealth Expect20151861873189325156207
- Methodology Committee of the Patient-Centered Outcomes Research Institute (PCORI)Methodological standards and patient-centeredness in comparative effectiveness research: the PCORI perspectiveJAMA2012307151636164022511692
- TerrySFPatrick-LakeBHearing voices: FDA seeks advice from patientsSci Transl Med20157313313ed12
- PyneJMLabbateCRanking of outcome domains for use in real-time outcomes feedback laboratory by patients with schizophreniaJ Nerv Ment Dis2008196433633918414130
- KinterETSchmedingARudolphIBridgesJFIdentifying patient-relevant endpoints among individuals with schizophrenia: an application of patient-centered health technology assessmentInt J Technol Assess Health Care20092501354119126249
- EntwistleVARenfrewMJYearleySForresterJLamontTLay perspectives: advantages for health researchBMJ199831671294634669492683
- Caron-FlintermanJFBroerseJEBundersJFThe experiential knowledge of patients: a new resource for biomedical research?Soc Sci Med200560112575258415814182
- MooneyGWhat else do we want from our health services?Soc Sci Med19943921511548066493
- BridgesJFJonesCPatient-based health technology assessment: a vision of the futureInt J Technol Assess Health Care2007231303517234014
- FrankLBaschESelbyJVPatient-Centered Outcomes ResearchIThe PCORI perspective on patient-centered outcomes researchJAMA2014312151513151425167382
- StewartRJCairdJOliverKOliverSPatients’ and clinicians’ research prioritiesHealth Expect201114443944821176014
- FaceyKBoivinAGraciaJPatients’ perspectives in health technology assessment: a route to robust evidence and fair deliberationInt J Technol Assess Health Care201026333434020584364
- Caron-FlintermanJFA New Voice in Science: Patient Participation in Decision-Making on Biomedical ResearchAmsterdamVrije Universiteit2005
- SilveiraMJKimSYLangaKMAdvance directives and outcomes of surrogate decision making before deathN Engl J Med2010362131211121820357283
- HellstadiusYLagergrenJZylstraJPrevalence and predictors of anxiety and depression among esophageal cancer patients prior to surgeryDis Esophagus20152981128113426542282
- LautretteADarmonMMegarbaneBA communication strategy and brochure for relatives of patients dying in the ICUN Engl J Med2007356546947817267907
- AslaksonRASchusterALReardonJPromoting perioperative advance care planning: a systematic review of advance care planning decision aidsJ Comp Effect Res201546615650
- AslaksonRASchusterALMillerJWeissMVolandesAEBridgesJFAn environmental scan of advance care planning decision AIDS for patients undergoing major surgery: a study protocolPatient20147220721724469597
- HamlinRMcNeillLDoes the Australasian “Health Star Rating” front of pack nutritional label system work?Nutrients201686327
- NathanRYaktineALichtensteinAHWartellaEAFront-of-Package Nutrition Rating Systems and Symbols: Promoting Healthier ChoicesWashington, DCNational Academies Press2012
- First Release of the Overall Hospital Quality Star Rating on Hospital Compare2016 Available from: https://www.cms.gov/Newsroom/MediaReleaseDatabase/Fact-sheets/2016-Fact-sheets-items/2016-07-27.htmlAccessed December 2017
- LomasJCulyerTMccutcheonCLawSTetroeJFinal Report-Conceptualizing and Combining Evidence for Health System Guidance2005
- D2D: The Driven to Discover Research Facility2017 Available from: http://d2d.umn.edu/Accessed July 31, 2017
- AslaksonRASchusterALLynchTJDeveloping the storyline for an advance care planning video for surgery patients: patient-centered outcomes research engagement from stakeholder summit to state fairJ Palliat Med Epub2017817
- Stata Statistical Software: Release 12 [computer program]College Station, TXStataCorp LP2011
- RatcliffeJLancsarEFlintTDoes one size fit all? Assessing the preferences of older and younger people for attributes of quality of lifeQual Life Res201726229930927553968
- van WijmenMPPasmanHRWWiddershovenGAOnwuteaka-PhilipsenBDContinuing or forgoing treatment at the end of life? Preferences of the general public and people with an advance directiveJ Med Ethics201541859960625182697
- TakHRuhnkeGWShihYCThe association between patient-centered attributes of care and patient satisfactionPatient20158218719725011683
- WileyJWestbrookMGreenfieldJRDayROBraithwaiteJShared decision-making: the perspectives of young adults with type 1 diabetes mellitusPatient Prefer Adherence2014842324729690
- SchwarzeMLBradleyCTBraselKJSurgical “buy-in”: the contractual relationship between surgeons and patients that influences decisions regarding life-supporting therapyCrit Care Med201038384384820048678
- SchwarzeMLRedmannAJAlexanderGCBraselKJSurgeons expect patients to buy-in to postoperative life support preoperatively: results of a national surveyCrit Care Med20134111823222269
- Clarence BraddockPLHIIIFeldmanJJBereknyeiSFrankelRMLevinsonW“Surgery is certainly one good option”: quality and time-efficiency of informed decision-making in surgeryJ Bone Joint Surg Am2008909183018762641
- EpsteinRThe science of patient-centered careJ Fam Pract200049980581011032204
- EpsteinRMFranksPFiscellaKMeasuring patient-centered communication in patient-physician consultations: theoretical and practical issuesSoc Sci Med20056171516152816005784
- LevinsonWHudakPTriccoACA systematic review of surgeon–patient communication: strengths and opportunities for improvementPatient Educ Counl2013931317
- AslaksonRAIsenbergSRCrossnohereNLUtilising advance care planning videos to empower perioperative cancer patients and families: a study protocol of a randomised controlled trialBMJ Open201775e016257