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Original Research

Patient engagement in type 2 diabetes mellitus research: what patients want

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Pages 595-606 | Published online: 20 Apr 2018

References

  • SacristánJAAguarónAAvendaño-SoláCPatient involvement in clinical research: why, when, and howPatient Prefer Adherence20161063164027175063
  • FleurenceRSelbyJVOdom-WalkerKHow the Patient-Centered Outcomes Research Institute is engaging patients and others in shaping its research agendaHealth Aff2013322393400
  • ChafeRBornKBSlutskyASLaupacisAThe rise of people powerNature2011472734441041121525907
  • ChalmersIBrackenMBDjulbegovicBHow to increase value and reduce waste when research priorities are setLancet2014383991215616524411644
  • EntwistleVCalnanMDieppePConsumer involvement in setting the health services research agenda: persistent questions of valueJ Health Serv Res Policy200813Suppl 3768118806196
  • SnowRCrockerJCCroweSMissed opportunities for impact in patient and carer involvement: a mixed methods case study of research priority settingRes Involv Engagem20151111329062490
  • ForsytheLPFrankLWalkerKOPatient and clinician views on comparative effectiveness research and engagement in researchJ Comp Eff Res201541112525565066
  • VayenaEBrownswordREdwardsSJResearch led by participants: a new social contract for a new kind of researchJ Med Ethics201642421621925825527
  • DomecqJPPrutskyGElraiyahTPatient engagement in research: a systematic reviewBMC Health Serv Res20141418924568690
  • ShippeeNDDomecq GarcesJPPrutsky LopezGJPatient and service user engagement in research: a systematic review and synthesized frameworkHealth Expect20151851151116623731468
  • MullinsCDAbdulhalimAMLavalleeDCContinuous patient engagement in comparative effectiveness researchJAMA2012307151587158822511684
  • ForsytheLPEllisLEEdmundsonLPatient and stakeholder engagement in the PCORI pilot projects: description and lessons learnedJ Gen Intern Med2016311132126160480
  • SchroederEBDesaiJSchmittdielJAAn innovative approach to informing research: gathering perspectives on diabetes care challenges from an online patient communityInteract J Med Res201542e1326126421
  • TurneyLPockneeCVirtual focus groups: new frontiers in researchInt J Qual Methods2005423243
  • CampbellMKMeierACarrCHealth behavior changes after colon cancer: a comparison of findings from face-to-face and on-line focus groupsFam Community Health20012438810311563947
  • StewartKWilliamsMResearching online populations: the use of online focus groups for social researchQual Res200554395416
  • ThomasCWoottenARobinsonPThe experiences of gay and bisexual men diagnosed with prostate cancer: results from an online focus groupEur J Cancer Care (Engl)201322452252923730947
  • OringderffJ“My way”: piloting an online focus groupInt J Qual Methods200433110
  • ForsytheLPSzydlowskiVMuradMHA systematic review of approaches for engaging patients for research on rare diseasesJ Gen Intern Med201429Suppl 3S800
  • Centers for Disease Control and PreventionNational diabetes statistics report: estimates of diabetes and its burden in the United States, 2014Atlanta, GAUS Department of Health and Human Services2014
  • International Diabetes FederationIDF Diabetes Atlas8th edBrussels, BelgiumInternational Diabetes Federation2017
  • CroweSFentonMHallMCowanKChalmersIPatients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatchRes Involv Engagem201511229062491
  • Diabetes UKType 2 diabetes priority setting partnershipDiabetes UK website2017 Available from: https://web.archive.org/web/20170927142650/https://www.diabetes.org.uk/research/our-approach-to-research/have-your-say/type-2-diabetes-priority-setting-partnershipAccessed January 1, 2017
  • HenninkMMKaiserBNSekarSGriswoldEPAliMKHow are qualitative methods used in diabetes research? A 30-year systematic reviewGlob Public Health201712220021926758478
  • LutfeyKFreeseJToward some fundamentals of fundamental causality: socioeconomic status and health in the routine clinic visit for diabetesAm J Sociol2005110513261372
  • FleurenceRLCurtisLHCaliffRMPlattRSelbyJVBrownJSLaunching PCORnet, a national patient-centered clinical research networkJ Am Med Inform Assoc201421457858224821743
  • BradyESegarJSandersCAccessing support and empowerment online: the experiences of individuals with diabetesHealth Expect20172051088109528718928
  • WicksPMassagliMKulkarniADastaniHUse of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)J Med Internet Res2011131e1221266318
  • WorkmanTAEngaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research NetworksRockville, MDAgency for Healthcare Research and Quality2013
  • DaughertySEWahbaSFleurenceRPatient-powered research networks: building capacity for conducting patient-centered clinical outcomes researchJ Am Med Inform Assoc201421458358624821741
  • FleurenceRLBealACSheridanSEJohnsonLBSelbyJVPatient-powered research networks aim to improve patient care and health researchHealth Aff201433712121219
  • HuhJMcDonaldDWHartzlerAPrattWPatient moderator interaction in online health communitiesAMIA Annual Symposium Proceedings of the American Medical Informatics AssociationWashington, DCNovember 16–20, 2013627636
  • HsiehHFShannonSEThree approaches to qualitative content analysisQual Health Res20051591277128816204405
  • WeissRSLearning from Strangers: The Art and Method of Qualitative Interview StudiesNew YorkSimon and Schuster1994
  • MuhrTFrieseSUser’s Manual for ATLAS.ti 5.0BerlinATLAS ti Scientific Software Development GmbH2004
  • BrownKDyasJChahalPKhalilYRiazPCummings-JonesJDiscovering the research priorities of people with diabetes in a multicultural community: a focus group studyBr J Gen Pract20065652420621316536961
  • ArnoldsSHeckermannSHeiseTSawickiPTSpectrum of diabetes research does not reflect patients’ scientific preferences: a longitudinal evaluation of diabetes research areas 2010–2013 vs. a cross-sectional survey in patients with diabetesExp Clin Endocrinol Diabetes2015123529930225658664
  • GadsbyRSnowRDalyACSetting research priorities for type 1 diabetesDiabet Med201229101321132622823450
  • Finney RuttenLJMorrisMASchraderLMApproaching patient engagement in research: what do patients with cardiovascular disease think?Patient Prefer Adherence201591061106426251578
  • DiCicco-BloomBCrabtreeBFThe qualitative research interviewMed Educ200640431432116573666
  • HarrisMIEastmanRCCowieCCFlegalKMEberhardtMSRacial and ethnic differences in glycemic control of adults with type 2 diabetesDiabetes Care199922340340810097918
  • ChenLMaglianoDJZimmetPZThe worldwide epidemiology of type 2 diabetes mellitus – present and future perspectivesNat Rev Endocrinol201284228236
  • JohnsonDSBushMTBrandzelSWernliKJThe patient voice in research – evolution of a roleRes Involv Engagem2016211629062502