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Original Research

How do parents and providers trade-off between disability and survival? Preferences in the treatment of pediatric medulloblastoma

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Pages 2103-2110 | Published online: 10 Oct 2018

References

  • TurcotteLMNegliaJPHayatMASurvivors of childhood cancer: risk of new primary neoplasms of the CNSHayatMATumors of the Central Nervous System12 InternetSpringerNetherlands2014 cited 2017 Mar 10137145 Available from: http://link.springer.com/chapter/10.1007/978-94-007-7217-5_12Accessed March 20, 2018
  • RisMDPackerRGoldweinJJones-WallaceDBoyettJMIntellectual outcome after reduced-dose radiation therapy plus adjuvant chemotherapy for medulloblastoma: a Children’s Cancer Group studyJ Clin Oncol200119153470347611481352
  • GrillJRenauxVKBulteauCLong-term intellectual outcome in children with posterior fossa tumors according to radiation doses and volumesInt J Radiat Oncol Biol Phys199945113714510477017
  • Kieffer-RenauxVBulteauCGrillJKalifaCViguierDJambaqueIPatterns of neuropsychological deficits in children with medulloblastoma according to craniospatial irradiation dosesDev Med Child Neurol2000421174174511104345
  • NorthcottPAShihDJPeacockJSubgroup-specific structural variation across 1,000 medulloblastoma genomesNature20124887409495622832581
  • ChoYJTsherniakATamayoPIntegrative genomic analysis of medulloblastoma identifies a molecular subgroup that drives poor clinical outcomeJ Clin Oncol201129111424143021098324
  • KoolMKosterJBuntJIntegrated genomics identifies five medulloblastoma subtypes with distinct genetic profiles, pathway signatures and clinicopathological featuresPLoS One200838e308818769486
  • EllisonDClassifying the medulloblastoma: insights from morphology and molecular geneticsNeuropathol Appl Neurobiol200228425728212175339
  • A clinical and molecular risk-directed therapy for newly diagnosed medulloblastoma Available from: https://clinicaltrials.gov/ct2/show/NCT01878617. NLM identifier: NCT01878617Accessed May 28, 2018
  • International society of paediatric oncology (SIOP) PNET 5 medulloblastoma Available from: https://clinicaltrials.gov/ct2/show/NCT02066220. NLM identifier: NCT02066220Accessed May 28, 2018
  • Reduced craniospinal radiation therapy and chemotherapy in treating younger patients with newly diagnosed WNT-Driven medulloblastoma Available from: https://clinicaltrials.gov/ct2/show/NCT02724579. NLM identifier: NCT02724579Accessed May 28, 2018
  • RamaswamyVRemkeMBouffetERisk stratification of childhood medulloblastoma in the molecular era: the current consensusActa Neuropathol2016131682183127040285
  • HenrichNMarraCAGastonguayLDe-escalation of therapy for pediatric medulloblastoma: trade-offs between quality of life and survivalPediatr Blood Cancer20146171300130424616367
  • KhakbanAMohammadiTLyndLDSocietal preferences in the treatment of pediatric medulloblastoma: balancing risk of death and quality of lifePediatr Blood Cancer2017646e26340
  • FinnALouviereJJDetermining the appropriate response to evidence of public concern: the case of food safetyJ Public Policy Mark19921121225
  • FlynnTNLouviereJJPetersTJCoastJEstimating preferences for a dermatology consultation using best-worst scaling: comparison of various methods of analysisBMC Med Res Methodol2008817619017376
  • BloomHJWallaceENHenkJMThe treatment and prognosis of medulloblastoma in children. a study of 82 verified casesAm J Roentgenol Radium Ther Nucl Med196910514362
  • BloomHJGGleesJBellJThe treatment and long-term prognosis of children with intracranial tumors: a study of 610 cases, 1950–1981Int J Radiat Oncol Biol Phys19901847237452323965
  • MühlbacherACKaczynskiAZweifelPJohnsonFRExperimental measurement of preferences in health and healthcare using best-worst scaling: an overviewHealth Econ Rev201661226743636
  • CheungKLWijnenBFHollinILUsing best-worst scaling to investigate preferences in health carePharmacoeconomics201634121195120927402349
  • Proceedings of the Sawtooth Software Conference 2000 Proceedings.pdf [Internet] [cited 2017 Mar 24]. Available from: http://www.saw-toothsoftware.com/download/techpap/2000Proceedings.pdf#page=175Accessed March 20, 2018
  • MarleyAAJLouviereJJSome probabilistic models of best, worst, and best–worst choicesJ Math Psychol2005496464480
  • MarleyAAJPihlensDModels of best–worst choice and ranking among multiattribute options (profiles)J Math Psychol20125612434
  • HessSDalyAHandbook of Choice ModellingNorthampton, MAEdward Elgar Publishing2014721
  • MackJWCookEFWolfeJGrierHEClearyPDWeeksJCUnderstanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interactionJ Clin Oncol200725111357136217416854
  • TomlinsonDBartelsUHendershotEMaloneyA-MEthierM-CSungLFactors affecting treatment choices in paediatric palliative care: Comparing parents and health professionalsEur J Cancer201147142182218721669517
  • TomlinsonDBartelsUGammonJChemotherapy versus supportive care alone in pediatric palliative care for cancer: comparing the preferences of parents and health care professionalsCMAJ201118317E1252E125822007121
  • SlevinMLStubbsLPlantHJAttitudes to chemotherapy: comparing views of patients with cancer with those of doctors, nurses, and general publicBMJ19903006737145814602379006
  • BremnesRMAndersenKWistEACancer patients, doctors and nurses vary in their willingness to undertake cancer chemotherapyEur J Cancer Oxf Engl 1990199531A1219551959
  • DaneaultSDionDSicotteCHope and noncurative chemotherapies: which affects the other?J Clin Oncol201028132310231320194838
  • DoyleCCrumpMPintilieMOzaAMDoes palliative chemotherapy palliate? Evaluation of expectations, outcomes, and costs in women receiving chemotherapy for advanced ovarian cancerJ Clin Oncol20011951266127411230467
  • Miron-ShatzTHanochYGraefDSagiMPresentation format affects comprehension and risk assessment: the case of prenatal screeningJ Health Commun200914543945019657924