163
Views
37
CrossRef citations to date
0
Altmetric
Original Research

“What we want”: chronically ill adolescents’ preferences and priorities for improving health care

, , &
Pages 291-305 | Published online: 21 Jun 2011

References

  • HartCChessonRChildren as consumersBr Med J19983167144160016039596605
  • CoyneIConsultation with children in hospital: Children, parents’ and nurses’ perspectivesJ Clin Nurs200615617116390525
  • HomerCJMarinoBClearyPDQuality of care at a children’s hospital: The parent’s perspectiveArch Pediatr Adolesc Med1999153111123112910555712
  • IreysHTPerryJJDevelopment and evaluation of a satisfaction scale for parents of children with special health care needsPediatrics19991045 Pt 21182119110545571
  • YggeBMArnetzJEQuality of paediatric care: Application and validation of an instrument for measuring parent satisfaction with hospital careInt J Qual Health Care2001131334311330441
  • CoJPFerrisTGMarinoBLHomerCJPerrinJMAre hospital characteristics associated with parental views of pediatric inpatient care quality?Pediatrics2003111230831412563056
  • MackJWCoJPGoldmannDAWeeksJCClearyPDQuality of health care for children: Role of health and chronic illness in inpatient care experiencesArch Pediatr Adolesc Med2007161982883417768281
  • CarterBChildren – silent consumers of health careJ Child Health Care1998225710474409
  • FarrantBWatsonPDHealth care delivery: Perspectives of young people with chronic illness and their parentsJ Paediatr Child Health200440417517915009544
  • ChesneyMLindekeLJohnsonLJukkalaALynchSComparison of child and parent satisfaction ratings of ambulatory pediatric subspecialty careJ Pediatr Health Care200519422122916010261
  • MahJKToughSFungTDouglas-EnglandKVerhoefMAdolescent quality of life and satisfaction with careJ Adolesc Health2006385e601e607
  • BrittoMTDeVellisRFHornungRWDeFrieseGHAthertonHDSlapGBHealth care preferences and priorities of adolescents with chronic illnessesPediatrics200411451272128015520107
  • LittIFSatisfaction with health care: The adolescent’s perspectiveJ Adolesc Health199823259609714165
  • AldersonPCompetent children? Minors’ consent to health care treatment and researchSoc Sci Med200765112272228317854964
  • LindekeLNakaiMJohnsonLCapturing children’s voices for quality improvementMCN Am J Matern Child Nurs200631529029517013067
  • PelanderTLeino-KilpiHQuality in pediatric nursing care: Children’s expectationsIssues Compr Pediatr Nurs200427313915115371112
  • AldissSHorstmanMO’LearyCRichardsonAGibsonFWhat is important to young children who have cancer while in hospital?Children and Society20092328598
  • AldersonPSutcliffeKCurtisKChildren as partners with adults in their medical careArch Dis Child200691430030316399782
  • CoadJEShawKLIs children’s choice in health care rhetoric or reality? A scoping reviewJ Adv Nurs200864431832718990109
  • GinsburgKRMenapaceASSlapGBFactors affecting the decision to seek health care: The voice of adolescentsPediatrics199710069229309374558
  • GinsburgKRSlapGBCnaanAForkeCMBalsleyCMRouselleDMAdolescents’ perceptions of factors affecting their decisions to seek health careJAMA199527324191319187783300
  • ChengTLSavageauJASattlerALDeWittTGConfidentiality in health care. A survey of knowledge, perceptions, and attitudes among high school studentsJAMA199326911140414078441216
  • WoodgateRLHealth professionals caring for chronically ill adolescents: Adolescents’ perspectivesJ Soc Pediatr Nurs19983257689670167
  • Dovey-PearceGHurrellRMayCWalkerCDohertyYYoung adults’ (16–25 years) suggestions for providing developmentally appropriate diabetes services: A qualitative studyHealth Soc Care Community200513540941916048529
  • KlostermannBKSlapGBNebrigDMTivorsakTLBrittoMTEarning trust and losing it: Adolescents’ views on trusting physiciansJ Fam Pract200554867968716061053
  • BeresfordBASloperPChronically ill adolescents’ experiences of communicating with doctors: A qualitative studyJ Adolesc Health200333317217912944007
  • TivorsakTLBrittoMTKlostermannBKNebrigDMSlapGBAre pediatric practice settings adolescent friendly? An exploration of attitudes and preferencesClin Pediatr (Phila)2004431556114968893
  • BattrickCGlasperEAThe views of children and their families on being in hospitalBr J Nurs200413632833615126966
  • CoadJCoadNChildren and young people’s preference of thematic design and colour for their hospital environmentJ Child Health Care2008121334818287183
  • UllánAMBelverMHSerranoIDelgadoJBadíaMPerspectives of youths and adults to improve the care of hospitalized adolescents in SpainJ Pediatr Health Care9202010 [Epub ahead of print]
  • BrittoMTTivorsakTLSlapGBAdolescents’ needs for health care privacyPediatrics20101266e1469e147621098148
  • KnopfJMHornungRWSlapGBDeVellisRFBrittoMTViews of treatment decision making from adolescents with chronic illnesses and their parents: A pilot studyHealth Expect200811434335419076663
  • MoulesT‘They wouldn’t know how it feels ...’: Characteristics of quality care from young people’s perspectives: A participatory research projectJ Child Health Care200913432233219833668
  • MokkinkLBvan der LeeJHGrootenhuisMAOffringaMvan PraagBMSHeymansHSAOmvang en gevolgen van chronische aandoeningen bij kinderen. [Extent and consequences of chronic conditions in children]Tijdschr Kindergeneeskd2007754138142 Dutch.
  • SnelMCDokter, dit vind ik! Verbeterpunten voor een megacool ziekenhuis [Doctor, this is my opinion! Ideas for a megacool hospital]Kind en Ziekenhuis20062911822 Dutch.
  • Van StaaALOn Your Own Feet Research GroupUnraveling triadic communication in hospital consultations with adolescents with chronic conditions: The added value of mixed methods researchPatient Educ Couns201182345546421194872
  • van StaaALvan der StegeHAJedelooSMollHAHilberinkSReadiness to transfer to adult care of adolescents with chronic conditions: Exploration of associated factorsJ Adolesc Health201148329530221338902
  • CreswellJWResearch Design: Qualitative, Quantitative, and Mixed Methods Approaches2nd edLondon, UKSage Publications2003
  • O’CathainAMurphyENichollJWhy, and how, mixed methods research is undertaken in health services research in England: A mixed methods studyBMC Health Serv Res200778517570838
  • Van StaaALJedelooSLatourJMTrappenburgMJExciting but exhausting: Experiences with participatory research with chronically ill adolescentsHealth Expect20101319510719682098
  • BrymanABarriers to integrating quantitative and qualitative researchJ Mix Methods Res200711822
  • O’CathainAMurphyENichollJThe quality of mixed methods studies in health services researchJ Health Serv Res Policy20081329298
  • BraunVClarkeVUsing thematic analysis in psychologyQual Res Psychol20063277101
  • Van StaaALJedelooSKuijperMLatourJMOp Eigen Benen. Jongeren met chronische aandoeningen: wat willen en kunnen zij in de zorg? [On Your Own Feet. Young people with Chronic Conditions: What are their Preferences and Competencies for Health Care?]Rotterdam, the NetherlandsHogeschool Rotterdam [Rotterdam University]2007
  • JedelooSvan StaaALLatourJMvan ExelNJPreferences for health care and self-management among Dutch adolescents with chronic conditions: A Q-methodological investigationInt J Nurs Stud201047559360319900675
  • FreakeHBarleyVKentGAdolescents’ views of helping professionals: A review of the literatureJ Adolesc200730463965316867305
  • WrayJMaynardLSpecialist cardiac services: What do young people want?Cardiol Young200818656957418940027
  • SmithSAdolescent units – an evidence-based approach to quality nursing in adolescent careEur J Oncol Nurs200481202915003741
  • SawyerSMDrewSYeoMSBrittoMTAdolescents with a chronic condition: Challenges living, challenges treatingLancet200736995711481148917467519