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Original Research

Proposal for a Framework to Enable Elicitation of Preferences for Clients in Need of Long-Term Care

ORCID Icon, , , & ORCID Icon
Pages 1553-1566 | Published online: 25 Aug 2020

References

  • Elwyn G, Lloyd A, May C, et al. Collaborative deliberation: a model for patient care. Patient Educ Couns. 2014;97(2):158–164. doi:10.1016/j.pec.2014.07.027
  • Elwyn G, Cochran N, Pignone M. Shared decision making – the importance of diagnosing preferences. JAMA Intern Med. 2017;177(9):1239–1240. doi:10.1001/jamainternmed.2017.1923
  • Llewellyn-Thomas HA, Crump RT. Decision support for patients: values clarification and preference elicitation. Med Care Res Rev. 2013;70(1 Suppl):50S–79S. doi:10.1177/1077558712461182
  • Elwyn G, Frosch D, Thomson R, et al. Shared decision making: a model for clinical practice. J Gen Intern Med. 2012;27(10):1361–1367. doi:10.1007/s11606-012-2077-6
  • Elwyn G, Durand MA, Song J, et al. A three-talk model for shared decision making: multistage consultation process. BMJ. 2017;359:j4891. doi:10.1136/bmj.j4891
  • Utens CMA, Dirksen CD, van der Weijden T, Joore MA. How to integrate research evidence on patient preferences in pharmaceutical coverage decisions and clinical practice guidelines: a qualitative study among Dutch stakeholders. Health Policy (New York). 2016;120(1):120–128. doi:10.1016/j.healthpol.2015.10.005
  • Dai XC, Brendl CM, Ariely D. Wanting, liking, and preference construction. Emotion. 2010;10(3):324–334. doi:10.1037/a0017987
  • van Leersum CM, Moser A, van Steenkiste B, Wolf J, van der Weijden T. Getting to grips with the process of decision-making in long-term care. Descriptive cases illustrate the chaotic reality of the construction of preferences. PLoS One. 2019;14(5):e0217338. doi:10.1371/journal.pone.0217338
  • Warren C, McGraw AP, Van Boven L. Values and preferences: defining preference construction. Wiley Interdiscip Rev Cogn Sci. 2011;2(2):193–205. doi:10.1002/wcs.98
  • Borcherding K, Schmeer S, Weber M. Biases in multiattribute weight elicitation. In: Contributions to Decision Making - I. 1995:3–28.
  • Feldman-Stewart D, Brundage MD, Van Manen L, Svenson O. Patient-focussed decision-making in early-stage prostate cancer: insights from a cognitively based decision aid. Health Expect. 2004;7(2):126–141.
  • Jayadevappa R, Chhatre S, Gallo JJ, et al. Treatment preference and patient centered prostate cancer care: design and rationale. Contemp Clin Trials. 2015;45(Pt B):296–301. doi:10.1016/j.cct.2015.09.024
  • Crump T, Llewellyn-Thomas HA. Assessing Medicare beneficiaries’ strength-of-preference scores for health care options: how engaging does the elicitation technique need to be? Health Expect. 2011;14(Suppl 1):33–45. doi:10.1111/j.1369-7625.2010.00632.x
  • Lichtenstein S, Slovic P. The Construction of Preferences: An Overview. 1st ed. New York, USA: Cambridge University Press; 2006.
  • Murray MA, Wilson K, Kryworuchko J, Stacey D, O’Connor A. Nurses’ perceptions of factors influencing patient decision support for place of care at the end of life. Am J Hosp Palliat Care. 2009;26(4):254–263. doi:10.1177/1049909108331316
  • Rathert C, Wyrwich MD, Boren SA. Patient-centered care and outcomes: a systematic review of the literature. Med Care Res Rev. 2013;70(4):351–379. doi:10.1177/1077558712465774
  • Kaiser K, Beaumont JL, Webster K, et al. Development and validation of the functional assessment of cancer therapy-antiangiogenesis subscale. Cancer Med. 2015;4(5):690–698. doi:10.1002/cam4.385
  • Turnpenny A, Beadle-Brown J. Use of quality information in decision-making about health and social care services – a systematic review. Health Soc Care Comm. 2015;23(4):349–361. doi:10.1111/hsc.12133
  • O’Connor AM, Fiset V, DeGrasse C, et al. Decision aids for patients considering options affecting cancer outcomes: evidence of efficacy and policy implications. J Natl Cancer Inst Monogr. 1999;1999(25):67–80. doi:10.1093/oxfordjournals.jncimonographs.a024212
  • Fagerlin A, Pignone M, Abhyankar P, et al. Clarifying values: an updated review. BMC Med Inform Decis Mak. 2013;13(Suppl 2):S8. doi:10.1186/1472-6947-13-S2-S8
  • van Summeren JJ, Schuling J, Haaijer-Ruskamp FM, Denig P. Outcome prioritisation tool for medication review in older patients with multimorbidity: a pilot study in general practice. Br J Gen Pract. 2017;67(660):e501–e506. (). doi:10.3399/bjgp17X690485
  • McCall N. Long term care: definition, demand, cost, and finance. In: McCall N, editor. Who Will Pay for Long Term Care?: Insights from the Partnership Programs. University of Michigan: Health Administration Press; 2001:3–31.
  • Kane RA. Long-term care and a good quality of life: bringing them closer together. Gerontologist. 2001;41(3):293–304. doi:10.1093/geront/41.3.293
  • Carter G, van der Steen JT, Galway K, Brazil K. General practitioners’ perceptions of the barriers and solutions to good-quality palliative care in dementia. Dementia. 2015;2.
  • Hansen H. Managing to beat death: the narrative construction process. J Organ Change Manag. 2011;24(4):442–463. doi:10.1108/09534811111144610
  • Janus SI, Weernink MG, van Til JA, Raisch DW, van Manen JG. A systematic review to identify the use of preference elicitation methods in health care decision making. Value Health. 2014;17(7):A515–A516. doi:10.1016/j.jval.2014.08.1596
  • Constand MK, MacDermid JC, Dal Bello-Haas V, Law M. Scoping review of patient-centered care approaches in healthcare. BMC Health Serv Res. 2014;14(1):271. doi:10.1186/1472-6963-14-271
  • Vermunt N, Elwyn G, Westert G, Harmsen M, Olde Rikkert M, Meinders M. Goal setting is insufficiently recognised as an essential part of shared decision-making in the complex care of older patients: a framework analysis. BMC Fam Pract. 2019;20(1):76. doi:10.1186/s12875-019-0966-z
  • van Bon J. IT Service Management Best Practices. Vol. 4. ‘s-Hertogenbosch: Van Haren Publishing; 2007.
  • Creswell JW, Plano Clark VL. Designing and Conducting Mixed Methods Research. Third ed. Los Angeles: SAGE Publications, Inc; 2018.
  • de Vries M, Fagerlin A, Witteman HO, Scherer LD. Combining deliberation and intuition in patient decision support. Patient Educ Couns. 2013;91(2):154–160. doi:10.1016/j.pec.2012.11.016
  • Hordern A, Georgiou A, Whetton S, Prgomet M. Consumer e-health: an overview of research evidence and implications for future policy. Health Inf Manag. 2011;40(2):6–14. doi:10.1177/183335831104000202
  • Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–115. doi:10.1111/j.1365-2648.2007.04569.x
  • Lincoln YS, Guba EG. Naturalistic Inquiry. Newsbury Park: CA: SAGE Publications; 1985.
  • Gray J, Lie ML, Murtagh MJ, Ford GA, McMeekin P, Thomson RG. Health state descriptions to elicit stroke values: do they reflect patient experience of stroke? BMC Health Serv Res. 2014;14(1):573. doi:10.1186/s12913-014-0573-6
  • Cabri J, Pollard M, Pena A, et al. Impact of a decision aid and preference assessment on urolithiasis patient decision making. J Urology. 2018;199(4):. doi:10.1016/j.juro.2018.02.2356
  • Henselmans I, Van Laarhoven HW, Van der Vloodt J, De Haes HC, Smets EM. Shared decision making about palliative chemotherapy: a qualitative observation of talk about patients’ preferences. Palliat Med. 2017;31(7):625–633. doi:10.1177/0269216316676010
  • CZ. ZoWel Model. CZnl Alles Voor Betere Zorg. 2013;1.
  • Huber M, van Vliet M, Giezenberg M, et al. Towards a ‘patient-centred’ operationalisation of the new dynamic concept of health: a mixed methods study. BMJ Open. 2016;6(1):e010091. doi:10.1136/bmjopen-2015-010091
  • Lenzen SA, Daniels R, van Bokhoven MA, van der Weijden T, Beurskens A. Development of a conversation approach for practice nurses aimed at making shared decisions on goals and action plans with primary care patients. BMC Health Serv Res. 2018;18(1):891. doi:10.1186/s12913-018-3734-1
  • Westermann GM, Verheij F, Winkens B, Verhulst FC, Van Oort FV. Structured shared decision-making using dialogue and visualization: a randomized controlled trial. Patient Educ Couns. 2013;90(1):74–81. doi:10.1016/j.pec.2012.09.014
  • Wolf JRLM. Kracthwerk: Methodisch Werken Aan Participatie En Zelfregie. 2 ed. Bussum: Uitgeverij Coutinho; 2016.
  • Huber M, Knottnerus JA, Green L, et al. How should we define health? BMJ. 2011;343(jul26 2):d4163. doi:10.1136/bmj.d4163
  • Lenzen SA, Daniels R, van Bokhoven MA, van der Weijden T, Beurskens A. Setting goals in chronic care: shared decision making as self-management support by the family physician. Eur J Gen Pract. 2015;21(2):138–144. doi:10.3109/13814788.2014.973844
  • Rapp CA, Goscha RJ. The Strengths Model. A Recovery-Oriented Approach to Mental Health Services. 3 ed. Oxford/New York: Oxford University Press; 2011.
  • CZ. Evaluatierapportage ZoWel Model. CZnl Alles Voor Betere Zorg. 2016.
  • Maurer J, Westermann G. Beter Communiceren in De Hulpverlening: Het Dialoogmodel Als Leidraad. Houten: Bohn Stafleu van Loghum; 2007.
  • Virues-Ortega J, Pritchard K, Grant RL, et al. Clinical decision making and preference assessment for individuals with intellectual and developmental disabilities. Ajidd-Am J Intellect. 2014;119(2):151–170.
  • Vlek H. Plan van eigen generiek Individueel ZorgPlan. Vilans. 2014;1:2546.
  • Span M, Smits C, Groen-van de Ven L, et al. Towards an interactive web tool that supports shared decision-making in dementia: identifying user requirements. Int J Adv Life Sci. 2014;6:3&4.
  • Span M, Smits C, Jukema J, et al. An interactive web tool for facilitating shared decision-making in dementia-care networks: a field study. Front Aging Neurosci. 2015;7.
  • Mousseau V, Pirlot M. Preference elicitation and learning. Euro J Decis Process. 2015;3(1–2):1–3. doi:10.1007/s40070-015-0044-2
  • Rolland A, Ah-Pine J, Mayag B. Elicitation of 2-additive bi-capacity parameters. Euro J Decis Process. 2015;3(1–2):5–28. doi:10.1007/s40070-015-0043-3
  • Benabbou N, Gonzales C, Perny P, Viappiani P. Minimax regret approaches for preference elicitation with rank-dependent aggregators. Euro J Decis Process. 2015;3(1–2):29–64. doi:10.1007/s40070-015-0040-6
  • Labreuche C, Mayag B, Duqueroie B. Extension of the MACBETH approach to elicit an ordered weighted average operator. Euro J Decis Process. 2015;3(1–2):65–105. doi:10.1007/s40070-015-0041-5
  • Lehnert T, Heuchert M, Hussain K, König H. Stated Preferences for Long-Term Care: A Literature Overview. Ageing & Society Cambridge University Press; 2018.
  • Castle NG. Searching for and selecting a nursing facility. Med Care Res Rev. 2003;60(2):223–247. doi:10.1177/1077558703060002005
  • Davies S, Nolan M. ‘Making the best of things’: relatives’ experiences of decisions about care-home entry. Ageing Soc. 2003;23:429–450. doi:10.1017/S0144686X03001259
  • Baxter K, Glendinning C. Making choices about support services: disabled adults’ and older people’s use of information. Health Soc Care Community. 2011;19(3):272–279. doi:10.1111/j.1365-2524.2010.00979.x
  • Witt J, Elwyn G, Wood F, Brain K. Decision making and coping in healthcare: the Coping in Deliberation (CODE) framework. Patient Educ Couns. 2012;88(2):256–261. doi:10.1016/j.pec.2012.03.002
  • Li LC, Adam PM, Townsend AF, et al. Usability testing of ANSWER: a web-based methotrexate decision aid for patients with rheumatoid arthritis. BMC Med Inform Decis Mak. 2013;13(1):131. doi:10.1186/1472-6947-13-131