Parenting adolescents with cystic fibrosis: the adolescents’ and young adults’ perspectives

References

• NavarroJRainisioMHarmsHKFactors associated with poor pulmonary function: cross-sectional analysis of data from the ERCF. European Epidemiologic Registry of Cystic FibrosisJ Eur Respir2001182298305
   Web of Science ®Google Scholar
• KonstanMWMorganWJButlerSMRisk factors for rate of decline in forced expiratory volume in one second in children and adolescents with cystic fibrosisJ Pediatr2007151213413917643762
   PubMed Web of Science ®Google Scholar
• WhiteHWolfeSPFoyJNutritional intake and status in children with cystic fibrosis: does age matter?J Pediatr Gastroenterol Nutr200744111612317204964
   PubMed Web of Science ®Google Scholar
• BrittoMTKotagalURHornungRWImpact of recent pulmonary exacerbations on quality of life in patients with cystic fibrosisChest20021211647211796433
   PubMed Web of Science ®Google Scholar
• GeeLAbbottJConwaySPEtheringtonCWebbAKQuality of life in cystic fibrosis: the impact of gender, general health perceptions and disease severityJ Cyst Fibros20032420621315463875
   PubMedGoogle Scholar
• FitzgeraldDNon-compliance in adolescents with chronic lung disease: causative factors and practical approachPaediatr Respir Rev20012326026712052328
   PubMedGoogle Scholar
• ZindaniGNStreetmanDDStreetmanDSNasrSZAdherence to treatment in children and adolescent patients with cystic fibrosisJ Adolesc Health2006381131716387243
   PubMed Web of Science ®Google Scholar
• ZackJJacobsCPKeenanPMPerspectives of patients with cystic fibrosis on preventive counseling and transition to adult carePediatr Pulmonol200336537638314520719
   PubMed Web of Science ®Google Scholar
• LaursenBCollinsWAParent-child relationships during adolescenceLernerRMSteinbergLHandbook of Adolescent Psychology. Vol 2: Contextual Influences on Adolescent Development3rd edNew Jersey, USAJohn Wiley and Sons2009342
   Google Scholar
• BaumrindDCurrent patterns of parental authorityDev Psychol197141 Pt 21103
   Web of Science ®Google Scholar
• DarlingNSteinbergLParenting style as context: an integrative modelPsychol Bull19931133487496
   Web of Science ®Google Scholar
• LilaMvan AkenMMusituGBuelgaSMFamily and adolescenceJacksonSGoossensLHandbook of Adolescent DevelopmentEast Sussex, UKPsychology Press2006154174
   Google Scholar
• TaylorRMGibsonFFranckLSThe experience of living with a chronic illness during adolescence: a critical review of the literatureJ Clin Nurs200817233083309119012778
   PubMed Web of Science ®Google Scholar
• KyngäsHRissanenMSupport as a crucial predictor of good compliance of adolescents with a chronic diseaseJ Clin Nurs200110676777411822848
   PubMed Web of Science ®Google Scholar
• ModiACMarcielKKSlaterSKDrotarDQuittnerALThe influence of parental supervision on medical adherence in adolescents with cystic fibrosis: developmental shifts from pre to late adolescenceChildren’s Health Care20083717892
   Web of Science ®Google Scholar
• WysockiTGrecoPSocial support and diabetes management in childhood and adolescence: influence of parents and friendsCurr Diab Rep20066211712216542622
   PubMedGoogle Scholar
• Botello-HarbaumMNanselTHaynieDLIannottiRJSimons-MortonBResponsive parenting is associated with improved type 1 diabetesrelated quality of lifeChild Care Health Dev200834567568118796059
   PubMed Web of Science ®Google Scholar
• AtkinKLiving a “normal” life: young people coping with thalassaemia major or sickle cell disorderSoc Sci Med200153561562611478541
   PubMed Web of Science ®Google Scholar
• DeLamboKEIevers-LandisCEDrotarDQuittnerALAssociation of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosisJ Pediatr Psychol200429534335315187173
   PubMed Web of Science ®Google Scholar
• SzyndlerJETownsSJvan AsperenPPMcKayKOPsychological and family functioning and quality of life in adolescents with cystic fibrosisJ Cyst Fibros20054213514415914095
   PubMedGoogle Scholar
• GraetzBWShuteRHSawyerMGAn Australian study of adolescents with cystic fibrosis: perceived supportive and nonsupportive behaviors from families and friends and psychological adjustmentJ Adolesc Health2000261646910638720
   PubMed Web of Science ®Google Scholar
• ThorneSInterpretive DescriptionWalnut Creek, CALeft Coasr Press Inc2008
   Google Scholar
• ThorneSKirkhamSMacDonald-EmesJFocus on qualitative methods. Interpretive description: a noncategorical qualitative alternative for developing nursing knowledgeRes Nurs Health1997201691779100747
   PubMed Web of Science ®Google Scholar
• ThorneSEthical and representational issues in qualitative secondary analysisQual Health Res19988454755510558343
   PubMed Web of Science ®Google Scholar
• SteinbergLWe know some things: parent-adolescent relationships in retrospect and prospectJ Res Adolesc2001111119
   Web of Science ®Google Scholar
• KyngäsHBarlowJDiabetes: an adolescent’s perspectiveJ Adv Nurs19952259419478568069
   PubMed Web of Science ®Google Scholar
• MichaudPSurisJVinerRWHOThe adolescent with a chronic condition2007 Available from: http://www.who.int/child_adolescent_health/documents/9789241595704/en/Accessed October 22, 2010
   Google Scholar
• SawyerSDrewSDuncanRAdolescents with chronic disease – the double whammyAust Fam Physician200736862262717676185
   PubMedGoogle Scholar
• KyngäsHSupport network of adolescents with chronic disease: adolescents’ perspectiveNurs Health Sci20046428729315507049
   PubMedGoogle Scholar
• KratzLUdingNTrahmsCMVillarealeNKieckheferGMManaging childhood chronic illness: parent perspectives and implications for parent-provider relationshipsFam Syst Health200927430331320047354
   PubMed Web of Science ®Google Scholar
• BregnballeV299* Ten years’ of experience in patient education of families with a child/adolescent suffering from cystic fibrosisJ Cyst Fibros20076Suppl 1S73
   Google Scholar
• ThorneSSecondary analysis in qualitative research: Issues and implicationsMorseJCritical Issues in Qualitative Research MethodsNewbury ParkSage Publications1994263279
   Google Scholar