211
Views
1
CrossRef citations to date
0
Altmetric
Original Research

Quality of Life in Family Caregivers of Adolescents with Depression in China: A Mixed-Method Study

, , &
Pages 1317-1327 | Published online: 30 Jul 2020

References

  • Siu AL. Screening for depression in children and adolescents: US preventive services task force recommendation statement. Pediatrics. 2016;137(3):e20154467. doi:10.1542/peds.2015-4467
  • Polanczyk GV, Salum GA, Sugaya LS, Caye A, Rohde LA. Annual research review: a meta-analysis of the worldwide prevalence of mental disorders in children and adolescents. J Child Psychol Psychiatry. 2015;56(3):345–365. doi:10.1111/jcpp.12381
  • Xu DD, Rao WW, Cao XL, et al. Prevalence of major depressive disorder in children and adolescents in China: a systematic review and meta-analysis. J Affect Disord. 2018;241:592–598. doi:10.1016/j.jad.2018.07.083
  • Bahls SC. Depression in childhood and adolescence: clinical features. J Pediatr (Rio J). 2002;78(5):359–366.
  • Fernando K, Carter JD, Frampton CM, et al. Childhood-, teenage-, and adult-onset depression: diagnostic and individual characteristics in a clinical sample. Compr Psychiatry. 2011;52(6):623–629. doi:10.1016/j.comppsych.2010.12.006
  • MacQueen GM, Frey BN, Ismail Z, et al. Canadian Network for Mood and Anxiety Treatments (CANMAT) 2016 clinical guidelines for the management of adults with major depressive disorder: section 6. Special populations: youth, women, and the elderly. Can J Psychiatry. 2016;61(9):588–603. doi:10.1177/0706743716659276
  • Li C, Miao J, Gao X, et al. Factors associated with caregiver burden in primary caregivers of patients with adolescent scoliosis: a descriptive cross-sectional study. Med Sci Monit. 2018;24:6472–6479. doi:10.12659/MSM.909599
  • Yang X, Byrne V, Chiu MY. Caregiving experience for children with intellectual disabilities among parents in a developing area in China. J Appl Res Intellect Disabil. 2016;29(1):46–57. doi:10.1111/jar.12157
  • Perez AG, MacPherson HA, Youngstrom EA, et al. Parenting stress among caregivers of children with bipolar spectrum disorders. J Clin Child Adolesc Psychol. 2018;47(1):306–320. doi:10.1080/15374416.2017.1280805
  • Radfar M, Ahmadi F, Fallahi KM. Turbulent life: the experiences of the family members of patients suffering from depression. J Psychiatr Ment Health Nurs. 2014;21(3):249–256. doi:10.1111/jpm.12077
  • Darmi E, Bellali T, Papazoglou I, Karamitri I, Papadatou D. Caring for an intimate stranger: parenting a child with psychosis. J Psychiatr Ment Health Nurs. 2017;24(4):194–202. doi:10.1111/jpm.12367
  • Ndikuno C, Namutebi M, Kuteesa J, Mukunya D, Olwit C. Quality of life of caregivers of patients diagnosed with severe mental illness at the national referral hospitals in Uganda. BMC Psychiatry. 2016;16(1):400. doi:10.1186/s12888-016-1084-2
  • Caqueo-Urizar A, Alessandrini M, Urzua A, Zendjidjian X, Boyer L, Williams DR. Caregiver’s quality of life and its positive impact on symptomatology and quality of life of patients with schizophrenia. Health Qual Life Outcomes. 2017;15(1):76. doi:10.1186/s12955-017-0652-6
  • Jalenques I, Cleret M, Richard B, Rondepierre F, Auclair C. Spouses’ health-related quality of life evaluation of elderly patients with depression. Presse Medicale. 2017;46(11):249–258. doi:10.1016/j.lpm.2016.07.027
  • Boyer L, Baumstarck K, Alessandrini M, et al. Emotional intelligence and coping strategies as determinants of quality of life in depressed patient-caregiver dyads: an actor-partner interdependence analysis. Compr Psychiatry. 2017;74:70–79. doi:10.1016/j.comppsych.2017.01.003
  • Wu ZJ, Liu QY. Psychological state and quality of life of the major depressed patients’ relatives. Chin J Health Psychol. 2018;26(03):330–333. doi:10.13342/j.cnki.cjhp.2018.03.004
  • Zhang Y, Tang GF. Study on quality of life of family members of depression patients. Mod Preventive Med. 2005;32(12):1700–1701. doi:10.3969/j.issn.1003-8507.2005.12.059
  • Leng A, Xu C, Nicholas S, Nicholas J, Wang J. Quality of life in caregivers of a family member with serious mental illness: evidence from China. Arch Psychiatr Nurs. 2019;33(1):23–29. doi:10.1016/j.apnu.2018.08.010
  • Li ZJ. Family functioning of patients with depression and their family members. J Tongji Med Univ. 2013;34(01):103–107. doi:10.3969/j.issn1008-0392.2013.01.024
  • Lum HD, Lo D, Hooker S, Bekelman DB. Caregiving in heart failure: relationship quality is associated with caregiver benefit finding and caregiver burden. Heart Lung. 2014;43(4):306–310. doi:10.1016/j.hrtlng.2014.05.002
  • Barbour RS. The case for combining qualitative and quantitative approaches in health services research. J Health Serv Res Policy. 1999;4(1):39–43. doi:10.1177/135581969900400110
  • Ni P, Chen JL, Liu N. The sample size estimation hi quantitative nursing research. Chin J Nurs. 2010;45(4):378–380. doi:10.3761/j.issn.0254-1769.2010.04.037
  • Huang ZH, Yang LQ. Family functioning in patients with depression and quality of life of caregivers. Mod Med J China. 2011;13(10):42–44. doi:10.3969/j.issn.1672-9463.2011.10.015
  • Pan TF, Si CZ, He HJ, Wang B, Shan GL. Survey of health-related quality of life in population of 6 Chinese cities. Basic Clin Medicine. 2011;06:636–641. doi:10.16352/j.issn.1001-6325.2011.06.004
  • Moser A, Korstjens I. Series: practical guidance to qualitative research. Part 3: sampling, data collection and analysis. Eur J Gen Pract. 2018;24(1):9–18. doi:10.1080/13814788.2017.1375091
  • Ware JE, Sherbourne CD, The MOS. 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30(6):473–483. doi:10.1097/00005650-199206000-00002
  • Li TC, Lee YD, Lin CC, Amidon RL. Quality of life of primary caregivers of elderly with cerebrovascular disease or diabetes hospitalized for acute care: assessment of well-being and functioning using the SF-36 health questionnaire. Qual Life Res. 2004;13(6):1081–1088. doi:10.1023/B:QURE.0000031349.25124.d6
  • Li L, Wang H, Shen Y. Chinese SF-36 health survey: translation, cultural adaptation, validation, and normalisation. J Epidemiol Community Health. 2003;57(4):259–263. doi:10.1136/jech.57.4.259
  • Watson D, Clark LA, Tellegen A. Development and validation of brief measures of positive and negative affect: the PANAS scales. J Pers Soc Psychol. 1988;54(6):1063–1070. doi:10.1037/0022-3514.54.6.1063
  • Fianco A, Sartori RD, Negri L, Lorini S, Valle G, Delle FA. The relationship between burden and well-being among caregivers of Italian people diagnosed with severe neuromotor and cognitive disorders. Res Dev Disabil. 2015;39:43–54. doi:10.1016/j.ridd.2015.01.006
  • Huang L, Yang TZ, Ji ZM. Applicability of the positive and negative affect scale in Chinese. Chin Ment Health J. 2003;01:54–56.
  • Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontological. 1980;20(6):649–655. doi:10.1093/geront/20.6.649
  • Yu Y, Liu ZW, Zhou W, et al. Cutoff of the zarit burden interview in predicting depression and anxiety. Qual Life Res. 2019;28(9):2525–2533. doi:10.1007/s11136-019-02208-7
  • Lu L, Wang L, Yang X, Feng Q. Zarit caregiver burden interview: development, reliability and validity of the Chinese version. Psychiatry Clin Neurosci. 2009;63(6):730–734. doi:10.1111/j.1440-1819.2009.02019.x
  • Smilkstein G. The family APGAR: a proposal for a family function test and its use by physicians. J Fam Pract. 1978;6(6):1231–1239.
  • Zhang Z, Deng H, Chen Y, et al. Cross-sectional survey of the relationship of symptomatology, disability and family burden among patients with schizophrenia in Sichuan, China. Shanghai Arch Psychiatry. 2014;26(1):22–29. doi:10.3969/j.issn.1002-0829.2014.01.004
  • Yang TT, Tong YQ, Yin XX, Lu ZX, Gong YH. Evaluation of morisky medication adherence scale and family APGAR applied to patients with tuberculosis. Chin J Social Med. 2016;033(006):580–582. doi:10.3969/j.issn.1673-5625.2016.06.024
  • Chen Q, Du W, Gao Y, et al. Analysis of family functioning and parent-child relationship between adolescents with depression and their parents. Shanghai Arch Psychiatry. 2017;29(6):365–372. doi:10.11919/j.issn.1002-0829.217067
  • Tompson MC, Connor EEO, Kemp GN, Langer DA, Asarnow JR. Depression in childhood and early adolescence: parental expressed emotion and family functioning. Ann Depress Anxiety. 2015;2(7).
  • Everhart RS, Greenlee JL, Winter MA, Fiese BH. Primary and secondary caregiver reports of quality of life in pediatric asthma: are they comparable? Appl Res Qual Life. 2018;13(2):371–383. doi:10.1007/s11482-017-9528-5
  • Ribé M, Salamero M, Pérez-Testor C, et al. Quality of life in family caregivers of schizophrenia patients in spain: caregiver characteristics, caregiving burden, family functioning, and social and professional support. Int J Psychiatry Clin Pract. 2018;22(1):25–33. doi:10.1080/13651501.2017.1360500
  • Gardner MH, Mrug S, Schwebel DC, Phipps S, Whelan K, Madan-Swain A. Benefit finding and quality of life in caregivers of childhood cancer survivors: the moderating roles of demographic and psychosocial factors. Cancer Nurs. 2017;40(5):28–37. doi:10.1097/NCC.0000000000000419
  • Mei Y, Wilson S, Lin B, Li Y, Zhang Z. Benefit finding for Chinese family caregivers of community-dwelling stroke survivors: a cross-sectional study. J Clin Nurs. 2018;27(7–8):e1419–e1428. doi:10.1111/jocn.14249
  • Straub J, Keller F, Sproeber N, Koelch MG, Plener PL. Suicidal behavior in german adolescents. Prevalence and association with depressive and manic symptoms. Z Kinder Jugendpsychiatr Psychother. 2015;43(1):39–45. doi:10.1024/1422-4917/a000331
  • Bodner N, Kuppens P, Allen NB, Sheeber LB, Ceulemans E. Affective family interactions and their associations with adolescent depression: a dynamic network approach. Dev Psychopathol. 2018;30(4):1459–1473. doi:10.1017/S0954579417001699
  • Inogbo CF, Olotu SO, James BO, Nna EO. Burden of care amongst caregivers who are first degree relatives of patients with schizophrenia. Pan Afr Med J. 2017;28:284. doi:10.11604/pamj.2017.28.284.11574
  • Johnco C, Rapee RM. Depression literacy and stigma influence how parents perceive and respond to adolescent depressive symptoms. J Affect Disord. 2018;241:599–607. doi:10.1016/j.jad.2018.08.062
  • Zeng Y, Zhou Y, Lin J. Perceived burden and quality of life in Chinese caregivers of people with serious mental illness: a comparison cross-sectional survey. Perspect Psychiatr Care. 2017;53(3):183–189. doi:10.1111/ppc.12151
  • Chinese Voice Online. Hunan: it took a per capita income of 3026 yuan to lift people out of poverty in 2016; 2016. December 2016. Available from: https://hunan.voc.com.cn/article/201612/201612111144378400.html. Accessed December 19, 2016.