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Original Research

Patient-Reported Outcome Measures (PROMs) to Support Adherence to Falls Prevention Clinic Recommendations: A Qualitative Study

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Pages 2105-2121 | Published online: 30 Oct 2020

References

  • Murray C, Lopez A. Global and regional descriptive epidemiology of disability: incidence, prevalence, health expectancies, and years lived with disability. In: Murray C, Lopez A, editors. The Global Burden of Disease. Boston: The Harvard School of Public Health; 1996:201–246.
  • Force USPST, Grossman DC, Curry SJ, Owens DK, et al. Interventions to prevent falls in community-dwelling older adults: US preventive services task force recommendation statement. JAMA. 2018;319(16):1696–1704. doi:10.1001/jama.2018.3097
  • Inouye SK, Studenski S, Tinetti ME, Kuchel GA. Geriatric syndromes: clinical, research, and policy implications of a core geriatric concept. J Am Geriatr Soc. 2007;55(5):780–791. doi:10.1111/j.1532-5415.2007.01156.x
  • Pluijm S, Smit J, Tromp E, et al. A risk profile for identifying community-dwelling elderly with a high risk of recurrent falling: results of a 3-year prospective study. Osteoporosis Int. 2006;17(3):417–425. doi:10.1007/s00198-005-0002-0
  • Formiga F, Navarro M, Duaso E, et al. Factors associated with hip fracture-related falls among patients with a history of recurrent falling. Bone. 2008;43(5):941–944. doi:10.1016/j.bone.2008.06.014
  • Rockwood K, Stolee P, McDowell I. Factors associated with institutionalization of older people in Canada: testing a multifactorial definition of frailty. J Am Geriatr Soc. 1996;44(5):578–582. doi:10.1111/j.1532-5415.1996.tb01446.x
  • SMARTRISK. The Economic Burden of Injury in Canada. Toronto; Ontario; 2009.
  • Palvanen M, Kannus P, Piirtola M, Niemi S, Parkkari J, Jarvinen M. Effectiveness of the chaos falls clinic in preventing falls and injuries of home-dwelling older adults: a randomised controlled trial. Injury. 2014;45(1):265–271. doi:10.1016/j.injury.2013.03.010
  • Chang JT, Morton SC, Rubenstein LZ, et al. Interventions for the prevention of falls in older adults: systematic review and meta-analysis of randomised clinical trials. BMJ. 2004;328(7441):680. doi:10.1136/bmj.328.7441.680
  • Gillespie LD, Robertson MC, Gillespie WJ, et al. Interventions for preventing falls in older people living in the community. Cochrane Database Syst Rev. 2012;9:CD007146.
  • Close J, Ellis M, Hooper R, Glucksman E, Jackson S, Swift C. Prevention of falls in the elderly trial (PROFET): a randomised controlled trial. Lancet. 1999;353(9147):93–97. doi:10.1016/S0140-6736(98)06119-4
  • Davis JC, Dian L, Parmar N, et al. Geriatrician-led evidence-based falls prevention clinic: a prospective 12-month feasibility and acceptability cohort study among older adults. BMJ Open. 2018;8(12):e020576. doi:10.1136/bmjopen-2017-020576
  • Hill KD, Moore KJ, Dorevitch MI, Day LM. Effectiveness of falls clinics: an evaluation of outcomes and client adherence to recommended interventions. J Am Geriatr Soc. 2008;56(4):600–608. doi:10.1111/j.1532-5415.2007.01626.x
  • Sherrington C, Michaleff ZA, Fairhall N, et al. Exercise to prevent falls in older adults: an updated systematic review and meta-analysis. Br J Sports Med. 2017;51(24):1750–1758. doi:10.1136/bjsports-2016-096547
  • Essery R, Geraghty AW, Kirby S, Yardley L. Predictors of adherence to home-based physical therapies: a systematic review. Disabil Rehabil. 2017;39(6):519–534. doi:10.3109/09638288.2016.1153160
  • Findorff MJ, Wyman JF, Gross CR. Predictors of long-term exercise adherence in a community-based sample of older women. J Womens Health. 2009;18(11):1769–1776. doi:10.1089/jwh.2008.1265
  • Picorelli AM, Pereira DS, Felicio DC, et al. Adherence of older women with strength training and aerobic exercise. Clin Interv Aging. 2014;9:323–331. doi:10.2147/CIA.S54644
  • Arkkukangas M, Soderlund A, Eriksson S, Johansson AC. One-year adherence to the otago exercise program with or without motivational interviewing in community-dwelling older adults. J Aging Phys Act. 2018;26(3):390–395. doi:10.1123/japa.2017-0009
  • Black N. Patient reported outcome measures could help transform healthcare. BMJ. 2013;346(jan28 1):f167. doi:10.1136/bmj.f167
  • Davis JC, Liu-Ambrose T, Richardson CG, Bryan S. A comparison of the ICECAP-O with EQ-5D in a falls prevention clinical setting: are they complements or substitutes? Qual Life Res. 2013;22(5):969–977. doi:10.1007/s11136-012-0225-4
  • Davis JC, Bryan S, McLeod R, Rogers J, Khan K, Liu-Ambrose T. Exploration of the association between quality of life, assessed by the EQ-5D and ICECAP-O, and falls risk, cognitive function and daily function, in older adults with mobility impairments. BMC Geriatr. 2012;12:65. doi:10.1186/1471-2318-12-65
  • Davis JC, Bryan S, Best JR, et al. Mobility predicts change in older adults’ health-related quality of life: evidence from a Vancouver falls prevention prospective cohort study. Health Qual Life Outcomes. 2015;13:101. doi:10.1186/s12955-015-0299-0
  • Talib TL, DeChant P, Kean J, et al. A qualitative study of patients’ perceptions of the utility of patient-reported outcome measures of symptoms in primary care clinics. Qual Life Res. 2018;27(12):3157–3166. doi:10.1007/s11136-018-1968-3
  • Turner GM, Litchfield I, Finnikin S, Aiyegbusi OL, Calvert M. General practitioners’ views on use of patient reported outcome measures in primary care: a cross-sectional survey and qualitative study. BMC Fam Pract. 2020;21(1):14. doi:10.1186/s12875-019-1077-6
  • Gutacker N, Street A. Use of large-scale HRQoL datasets to generate individualised predictions and inform patients about the likely benefit of surgery. Qual Life Res. 2017;26(9):2497–2505. doi:10.1007/s11136-017-1599-0
  • Room J, Hannink E, Dawes H, Barker K. What interventions are used to improve exercise adherence in older people and what behavioural techniques are they based on? A systematic review. BMJ Open. 2017;7(12):e019221. doi:10.1136/bmjopen-2017-019221
  • Dolan P, Hallsworth M, Halpern D, King D, Metcalfe R, Vlaev I. Influencing behaviour: the mindspace way. J Econ Psychol. 2012;33(1):264–277. doi:10.1016/j.joep.2011.10.009
  • Wasson JH, Stukel TA, Weiss JE, Hays RD, Jette AM, Nelson EC. A randomized trial of the use of patient self-assessment data to improve community practices. Eff Clin Pract. 1999;2(1):1–10.
  • Boyce MB, Browne JP, Greenhalgh J. The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research. BMJ Qual Saf. 2014;23(6):508–518. doi:10.1136/bmjqs-2013-002524
  • Von Korff M, Gruman J, Schaefer J, Curry SJ, Wagner EH. Collaborative management of chronic illness. Ann Intern Med. 1997;127(12):1097–1102. doi:10.7326/0003-4819-127-12-199712150-00008
  • Reuben DB, Hirsch SH, Frank JC, et al. The Prevention for Elderly Persons (PEP) program: a model of municipal and academic partnership to meet the needs of older persons for preventive services. J Am Geriatr Soc. 1996;44(11):1394–1398. doi:10.1111/j.1532-5415.1996.tb01416.x
  • Dowrick C, Leydon GM, McBride A, et al. Patients’ and doctors’ views on depression severity questionnaires incentivised in UK quality and outcomes framework: qualitative study. BMJ. 2009;338:b663. doi:10.1136/bmj.b663
  • Hiligsmann M, Rademacher S, Kaal KJ, Bansback N, Harrison M. The use of routinely collected patient-reported outcome measures in rheumatoid arthritis. Semin Arthritis Rheum. 2018;48(3):357–366. doi:10.1016/j.semarthrit.2018.03.006
  • Olson RA, Howard F, Lapointe V, et al. Provincial development of a patient-reported outcome initiative to guide patient care, quality improvement, and research. Healthc Manage Forum. 2018;31(1):13–17. doi:10.1177/0840470417715478
  • Smith PC, Street AD. On the uses of routine patient-reported health outcome data. Health Econ. 2013;22(2):119–131. doi:10.1002/hec.2793
  • Trujols J, Portella MJ, Iraurgi I, Campins MJ, Sinol N, de Los Cobos JP. Patient-reported outcome measures: are they patient-generated, patient-centred or patient-valued? J Ment Health. 2013;22(6):555–562. doi:10.3109/09638237.2012.734653
  • Van Der Wees PJ, Nijhuis-van Der Sanden MW, Ayanian JZ, Black N, Westert GP, Schneider EC. Integrating the use of patient-reported outcomes for both clinical practice and performance measurement: views of experts from 3 countries. Milbank Q. 2014;92(4):754–775. doi:10.1111/1468-0009.12091
  • Osterberg L, Blaschke T. Adherence to medication. N Engl J Med. 2005;353(5):487–497. doi:10.1056/NEJMra050100
  • Horne R, Weinman J. Patients’ beliefs about prescribed medicines and their role in adherence to treatment in chronic physical illness. J Psychosom Res. 1999;47(6):555–567. doi:10.1016/S0022-3999(99)00057-4
  • Horne R, Price D, Cleland J, et al. Can asthma control be improved by understanding the patient’s perspective? BMC Pulm Med. 2007;7:8. doi:10.1186/1471-2466-7-8
  • Weinman J, Petrie KJ, Moss-morris R, Horne R. The illness perception questionnaire: a new method for assessing the cognitive representation of illness. Psychol Health. 1996;11(3):431–445. doi:10.1080/08870449608400270
  • Sabaté E. Adherence to Long-Term Therapies: Evidence for Action. Geneva: World Health Organization; 2003.
  • Weinman J. Providing written information for patients: psychological considerations. J R Soc Med. 1990;83(5):303–305. doi:10.1177/014107689008300508
  • Horne R. Representations of medication and treatment: advances in theory and measurement. In: Petrie KJ, Weinman JA, editors. Perceptions of Health and Illness: Current Research and Applications. London: Harwood Academic Press; 1997:155–188.
  • Leventhal H, Brissette I, Leventhal E. The common-sense model of self-regulation of health and illness. In: Cameron LD, Leventhal H, editors. The Self-Regulation of Health and Illness Behaviour. New York: Routledge; 2003:42.
  • Kleinman A. Illness meanings and illness behaviour. In: McHugh S, Vallis TM, editors. Illness Behavior: A Multidisciplinary Model. Boston, MA, US: Springer; 1986:149–160.
  • Aikens JE, Nease DE Jr, Nau DP, Klinkman MS, Schwenk TL. Adherence to maintenance-phase antidepressant medication as a function of patient beliefs about medication. Ann Fam Med. 2005;3(1):23–30. doi:10.1370/afm.238
  • Butler JA, Peveler RC, Roderick P, Smith PW, Horne R, Mason JC. Modifiable risk factors for non-adherence to immunosuppressants in renal transplant recipients: a cross-sectional study. Nephrol Dial Transplant. 2004;19(12):3144–3149. doi:10.1093/ndt/gfh505
  • Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44(5):681–692. doi:10.1016/S0277-9536(96)00221-3
  • Greenfield S, Kaplan S, Ware JE Jr. Expanding patient involvement in care. Effects on patient outcomes. Ann Intern Med. 1985;102(4):520–528. doi:10.7326/0003-4819-102-4-520
  • Guadagnoli E, Ward P. Patient participation in decision-making. Soc Sci Med. 1998;47(3):329–339. doi:10.1016/S0277-9536(98)00059-8
  • Lee W, Noh Y, Kang H, Hong SH. The mediatory role of medication adherence in improving patients’ medication experience through patient-physician communication among older hypertensive patients. Patient Prefer Adherence. 2017;11:1119–1126. doi:10.2147/PPA.S137263
  • Zolnierek KB, Dimatteo MR. Physician communication and patient adherence to treatment: a meta-analysis. Med Care. 2009;47(8):826–834. doi:10.1097/MLR.0b013e31819a5acc
  • Ratanawongsa N, Karter AJ, Parker MM, et al. Communication and medication refill adherence: the diabetes study of Northern California. JAMA Intern Med. 2013;173(3):210–218. doi:10.1001/jamainternmed.2013.1216
  • Brooks C, Ballinger C, Nutbeam D, Adams J. The importance of building trust and tailoring interactions when meeting older adults’ health literacy needs. Disabil Rehabil. 2017;39(23):2428–2435. doi:10.1080/09638288.2016.1231849
  • Davis JC, Best JR, Dian L, et al. Are the EQ-5D-3L and the ICECAP-O responsive among older adults with impaired mobility? Evidence from the vancouver falls prevention cohort study. Qual Life Res. 2017;26(3):737–747. doi:10.1007/s11136-016-1487-z
  • Peters M, Crocker H, Jenkinson C, Doll H, Fitzpatrick R. The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey. BMJ Open. 2014;4(2):e003968. doi:10.1136/bmjopen-2013-003968
  • Kellogg International Work Group. The prevention of falls in later life. A report of the Kellogg International Work Group on the prevention of falls in the elderly. Dan Med Bull. 1987;34(Suppl 4):1–24.
  • Folstein MF, Folstein SE, McHugh PR. “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12(3):189–198. doi:10.1016/0022-3956(75)90026-6
  • Lord S, Sherrington C, Menz H. A physiological profile approach for falls prevention. In: Falls in Older People. Risk Factors and Strategies for Prevention. Cambridge: Cambridge University Press; United Kingdom 2001:221–238.
  • Whitney JC, Lord SR, Close JCT. Streamlining assessment and intervention in a falls clinic using the timed up and go test and physiological profile assessments. Age Ageing. 2005;34(6):567–571. doi:10.1093/ageing/afi178
  • Lawton MP, Brody EM. Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969;9(3 Part 1):179–186. doi:10.1093/geront/9.3_Part_1.179
  • Guralnik JM, Ferrucci L, Simonsick EM, Salive ME, Wallace RB. Lower-extremity function in persons over the age of 70 years as a predictor of subsequent disability. N Engl J Med. 1995;332(9):556–562. doi:10.1056/NEJM199503023320902
  • Yesavage JA, Brink TL, Rose TL, et al. Development and validation of a geriatric depression screening scale: a preliminary report. J Psychiatr Res. 1982;17(1):37–49. doi:10.1016/0022-3956(82)90033-4
  • van Marwijk HW, Wallace P, de Bock GH, Hermans J, Kaptein AA, Mulder JD. Evaluation of the feasibility, reliability and diagnostic value of shortened versions of the geriatric depression scale. Br J Gen Pract. 1995;45(393):195–199.
  • Spreen O, Strauss E. A Compendium of Neurological Tests. 2nd ed. New York: Oxford University Press, Inc.; 1998.
  • Nasreddine ZS, Phillips NA, Bedirian V, et al. The Montreal Cognitive Assessment, MoCA: a brief screening tool for mild cognitive impairment. J Am Geriatr Soc. 2005;53(4):695–699. doi:10.1111/j.1532-5415.2005.53221.x
  • Coenen M, Stamm TA, Stucki G, Cieza A. Individual interviews and focus groups in patients with rheumatoid arthritis: a comparison of two qualitative methods. Qual Life Res. 2012;21(2):359–370. doi:10.1007/s11136-011-9943-2
  • Strauss A, Corbin J. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. 2nd ed. Thousand Oaks, California: Sage Publications, Inc.; 1998.
  • El Miedany Y, El Gaafary M, Palmer D. Assessment of the utility of visual feedback in the treatment of early rheumatoid arthritis patients: a pilot study. Rheumatol Int. 2012;32(10):3061–3068. doi:10.1007/s00296-011-2098-1
  • van Cranenburgh OD, Prinsen CA, Sprangers MA, Spuls PI, de Korte J. Health-related quality-of-life assessment in dermatologic practice: relevance and application. Dermatol Clin. 2012;30(2):323–332, x. doi:10.1016/j.det.2011.11.004
  • Kitzinger J. The methodology of Focus Groups: the importance of interaction between research participants. Sociol Health Illn. 1994;16(1):103–121. doi:10.1111/1467-9566.ep11347023