New Approach for Collecting Cancer Patients’ Views and Preferences Through Medical Staff

References

• Barbosa CD, Balp B, Kulich K, Germain N, Rofail D. A literature review to explore the link between treatment satisfaction and adherence, compliance, and persistence. Patient Prefer Adherence. 2012;6:39–48. doi:10.2147/PPA.S24752
   PubMed Web of Science ®Google Scholar
• Belinchón I, Rivera R, Blanch C, Comellas M, Lizán L. Adherence, satisfaction and preferences for treatment in patients with psoriasis in the European union: a systematic review of the literature. Patient Prefer Adherence. 2016;10:2357–2367. doi:10.2147/PPA.S117006
   PubMed Web of Science ®Google Scholar
• Joosten EAG, DeFuentes-Merillas L, de Weert GH, Sensky T, van der Staak CPF, de Jong CAJ. Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychother Psychosom. 2008;77(4):219–226. doi:10.1159/000126073
   PubMed Web of Science ®Google Scholar
• Hua A, Sesto ME, Zhang X, Wassenaar TR, Tevaarwerk AJ. Impact of survivorship care plans and planning on breast, colon, and prostate cancer survivors in a community oncology practice. J Cancer Educ. 2020;35(2):249–255. doi:10.1007/s13187-018-1457-y
   PubMed Web of Science ®Google Scholar
• Harrison JD, Young JM, Price MA, Butow PN, Solomon MJ. What are the unmet supportive care needs of people with cancer? A systematic review. Support Care Cancer. 2009;17(8):1117–1128. doi:10.1007/s00520-009-0615-5
   PubMed Web of Science ®Google Scholar
• Harrington CB, Hansen JA, Moskowitz M, Todd BL, Feuerstein M. It’s not over when it’s over: long-term symptoms in cancer survivors–a systematic review. Int J Psychiatry Med. 2020;40(2):163–181. doi:10.2190/PM.40.2.c
   Web of Science ®Google Scholar
• Stein KD, Syrjala KL, Andrykowski MA. Physical and psychological long-term and late effects of cancer. Cancer. 2008;112(S11):2577–2592. doi:10.1002/cncr.23448
   PubMed Web of Science ®Google Scholar
• Cormie P, Zopf EM, Zhang X, Schmitz KH. The impact of exercise on cancer mortality, recurrence, and treatment-related adverse effects. Epidemiol Rev. 2017;39(1):71–92. doi:10.1093/epirev/mxx007
   PubMed Web of Science ®Google Scholar
• Ebenau A, van Gurp J, Hasselaar J. Life values of elderly people suffering from incurable cancer: a literature review. Patient Educ Couns. 2017;100(10):1778–1786. doi:10.1016/j.pec.2017.05.027
   PubMed Web of Science ®Google Scholar
• Rogith D, Yusuf RA, Hovick SR, et al. Patient knowledge and information-seeking about personalized cancer therapy. Int J Med Inform. 2016;88:52–57. doi:10.1016/j.ijmedinf.2016.01.005
   Web of Science ®Google Scholar
• Blanch-Hartigan D, Chawla N, Moser RP, Finney Rutten LJ, Hesse BW, Arora NK. Trends in cancer survivors’ experience of patient-centered communication: results from the health information national trends survey (HINTS). J Cancer Surviv. 2016;10(6):1067–1077. doi:10.1007/s11764-016-0550-7
   PubMed Web of Science ®Google Scholar
• Higashi T, Nakamura F, Shibata A, Emori Y, Nishimoto H. The national database of hospital-based cancer registries: a nationwide infrastructure to support evidence-based cancer care and cancer control policy in Japan. Jpn J Clin Oncol. 2014;44(1):2–8. doi:10.1093/jjco/hyt013
   Web of Science ®Google Scholar
• Linn AJ, van der Goot MJ, Brandes K, van Weert JCM, Smit EG. Cancer patients’ needs for support in expressing instrumental concerns and emotions. Eur J Cancer Care. 2019;28(6):e13138. doi:10.1111/ecc.13138
   Web of Science ®Google Scholar
• Underhill ML, Sheldon LK, Halpenny B, Berry DL. Communication about symptoms and quality of life issues in patients with cancer: provider perceptions. J Cancer Educ. 2014;29(4):753–761. doi:10.1007/s13187-014-0651-9
   Web of Science ®Google Scholar
• Japanese association of clinical cancer centers: member of Japan association of clinical cancer centers; 2020. Available from: http://www.zengankyo.ncc.go.jp/. Accessed March 19, 2020.
   Google Scholar
• Takayama T, Yamaki C, Hayakawa M, Higashi T, Toh Y, Wakao F. Development of a new tool for better social recognition of cancer information and support activities under the national cancer control policy in Japan. J Public Health Manag Pract. 2020. doi:10.1097/PHH.0000000000001155
   Web of Science ®Google Scholar
• Littelejohn SW, Foss KA. The input-process-output model. In: Theories of Human Communication. 10th ed. Long Grove, Illinois: Waveland Press; 2010:268–273.
   Google Scholar
• Cancer mortality (1958–2018). Cancer registry and statistics. cancer information service, national cancer center, Japan (vital statistics of Japan); 2020. Available from: https://ganjoho.jp/reg_stat/statistics/dl/index.html. Accessed March 19, 2020.
   Google Scholar
• Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288. doi:10.1177/1049732305276687
   PubMed Web of Science ®Google Scholar
• Hewitt ME, Greenfield S, Stovall E. National Cancer Policy Board. From Cancer Patient to Cancer Survivor: Lost in Transition. Washington, DC: National Academies Press; 2006.
   Google Scholar
• Jo HS, Park K, Jung SM. A scoping review of consumer needs for cancer information. Patient Educ Couns. 2019;102(7):1237–1250. doi:10.1016/j.pec.2019.02.004
   PubMed Web of Science ®Google Scholar
• Questions and answers for “tingling/numbness/pain” cancer information service, national cancer center, Japan; 2020. Available from: https://ganjoho.jp/public/support/condition/peripheral_neuropathy/pnqa.html. Accessed January 9, 2021.
   Google Scholar
• Park ER, Norris RL, Bober SL. Sexual health communication during cancer care. Barriers and recommendations. Cancer J. 2009;15(1):74–77. doi:10.1097/PPO.0b013e31819587dc
   PubMed Web of Science ®Google Scholar
• Dyer K, Das Nair R. Why don’t healthcare professionals talk about sex? A systematic review of recent qualitative studies conducted in the United Kingdom. J Sex Med. 2019;10(11):2658–2670. doi:10.1111/j.1743-6109.2012.02856.x
   Web of Science ®Google Scholar
• Magnan MA, Reynolds KE, Galvin EA. Barriers to addressing patient sexuality in nursing practice. Medsurg Nurs. 2005;14(5):282–289;quiz290.
   Google Scholar
• Kim K, Kim JS. Intervention for patient reported urinary symptoms in prostate cancer survivors: systematic review. J Cancer Surviv. 2017;11(5):643–654. doi:10.1007/s11764-017-0637-9
   Web of Science ®Google Scholar
• Vistad I, Fosså SD, Dahl AA. A critical review of patient-rated quality of life studies of long-term survivors of cervical cancer. Gynecol Oncol. 2006;102(3):563–572. doi:10.1016/j.ygyno.2006.03.050
   PubMed Web of Science ®Google Scholar
• Bjoern MX, Nielsen S, Perdawood SK. Quality of life after surgery for rectal cancer: a comparison of functional outcomes after transanal and laparoscopic approaches. J Gastrointest Surg. 2019;23(8):1623–1630. doi:10.1007/s11605-018-4057-6
   Web of Science ®Google Scholar
• Zullo MA, Manci N, Angioli R, Muzii L, Panici PB. Vesical dysfunctions after radical hysterectomy for cervical cancer: a critical review. Crit Rev Oncol Hematol. 2003;48(3):287–293. doi:10.1016/s1040-8428(03)00125-2
   PubMed Web of Science ®Google Scholar
• Olsen AL, Smith VJ, Bergstrom JO, Colling JC, Clark AL. Epidemiology of surgically managed pelvic organ prolapse and urinary incontinence. Obstet Gynecol. 1997;89(4):501–506. doi:10.1016/S0029-7844(97)00058-6
   PubMed Web of Science ®Google Scholar
• Hershman DL, Lacchetti C, Dworkin RH, et al. Prevention and management of chemotherapy-induced peripheral neuropathy in survivors of adult cancers: American society of clinical oncology clinical practice guideline. J Clin Oncol. 2014;32(18):1941–1967. doi:10.1200/JCO.2013.54.0914
   PubMed Web of Science ®Google Scholar
• Colvin LA. Chemotherapy-induced peripheral neuropathy: where are we now? Pain. 2019;160(Suppl1):S1–S10. doi:10.1097/j.pain.0000000000001540
   PubMed Web of Science ®Google Scholar
• Kotronoulas G, Kearney N, Maguire R, et al. What is the value of the routine use of patient-reported outcome measures toward improvement of patient outcomes, processes of care, and health service outcomes in cancer care? A systematic review of controlled trials. J Clin Oncol. 2014;32(14):1480–1501. doi:10.1200/JCO.2013.53.5948
   PubMed Web of Science ®Google Scholar
• Harris J, Cheevers K, Armes J. The emerging role of digital health in monitoring and supporting people living with cancer and the consequences of its treatments. Curr Opin Support Palliat Care. 2018;12(3):268–275. doi:10.1097/SPC.0000000000000362
   PubMed Web of Science ®Google Scholar
• Brouwers MC, Kho ME, Browman GP, et al. AGREE II: advancing guideline development, reporting and evaluation in health care. J Clin Epidemiol. 2010;63(12):1308–1311. doi:10.1016/j.jclinepi.2010.07.001
   PubMed Web of Science ®Google Scholar
• Krahn M, Naglie G. The next step in guideline development: incorporating patient preferences. JAMA. 2008;300:436–438. doi:10.1001/jama.300.4.436
   PubMed Web of Science ®Google Scholar
• Chong CAKY, Chen IJ, Naglie G, Krahn MD. How well do guidelines incorporate evidence on patient preferences? J Gen Intern Med. 2009;24(8):977–982. doi:10.1007/s11606-009-0987-8
   PubMed Web of Science ®Google Scholar
• Selva A, Sanabria AJ, Pequeño S, et al. Incorporating patients’ views in guideline development: a systematic review of guidance documents. J Clin Epidemiol. 2017;88:102–112. doi:10.1016/j.jclinepi.2017.05.018
   Web of Science ®Google Scholar
• Brouwers MC, Vukmirovic M, Spithoff K, Zwaal C, McNair S, Peek N. Engaging cancer patients in clinical practice guideline development: a pilot study. Curr Oncol. 2018;25(4):250–256. doi:10.3747/co.25.3943
   Web of Science ®Google Scholar
• Epstein RM, Street RL. Shared mind: communication, decision making, and autonomy in serious illness. Ann Fam Med. 2011;9(5):454–461. doi:10.1370/afm.1301
   PubMed Web of Science ®Google Scholar
• Walsh J, Young JM, Harrison JD, et al. What is important in cancer care coordination? A qualitative investigation. Eur J Cancer Care. 2011;20(2):220–227. doi:10.1111/j.1365-2354.2010.01187.x
   Web of Science ®Google Scholar