182
Views
0
CrossRef citations to date
0
Altmetric
Original Research

Development of Japanese Versions of the Control Preferences Scale and Information Needs Questionnaire: Role of Decision-Making and Information Needs for Japanese Breast Cancer Patients

, ORCID Icon, , , , , , & show all
Pages 1017-1026 | Published online: 18 May 2021

References

  • Politi MC, Studts JL, Hayslip JW. Shared decision making in oncology practice: what do oncologists need to know? Oncologist. 2012;17:91–100. doi:10.1634/theoncologist.2011-0261
  • Arora NK. Interacting with cancer patients: the significance of physicians’ communication behavior. Soc Sci Med. 2003;57(5):791–806. doi:10.1016/S0277-9536(02)00449-5
  • Fowler FJ Jr, Gallagher PM, Drake KM, Sepucha KR. Decision dissonance: evaluating an approach to measuring the quality of surgical decision making. Jt Comm J Qual Patient Saf. 2013;39:136–144. doi:10.1016/s1553-7250(13)39020-5
  • Arora NK, Weaver KE, Clayman ML, Oakley-Girvan I, Potosky AL. Physicians’ decision-making style and psychosocial outcomes among cancer survivors. Patient Educ Couns. 2009;77(3):404–412. doi:10.1016/j.pec.2009.10.004
  • Fallowfield LJ. Treatment decision-making in breast cancer: the patient-doctor relationship. Breast Cancer Res Treat. 2008;112:5–13. doi:10.1007/s10549-008-0077-3
  • Singh S, Butow P, Charles M, Tattersall MHN. Shared decision making in oncology: assessing oncologist behavior in consultations in which adjuvant therapy is considered after primary surgical treatment. Health Expect. 2010;13:244–257. doi:10.1111/j.1369-7625.2009.00587.x
  • Mead EL, Doorenbos AZ, Javid SH, et al. Shared decision-making for cancer care among racial and ethnic minorities: a systematic review. Am J Public Health. 2013;103:e15–e29. doi:10.2105/AJPH.2013.301631
  • Obeidat RF, Homish GG, Lally RM. Shared decision making among individuals with cancer in non-Western cultures: a literature review. Oncol Nurs Forum. 2013;40(5):454–463. doi:10.1188/13.ONF.454-463
  • Institute of Medicine. Delivering High‐Quality Cancer Care: Charting a New Course for a System in Crisis. Washington, DC: The National Academies Press; 2013.
  • Yılmaz NG, Schouten BC, Schinkel S, van Weert JCM. Information and participation preferences and needs of non-Western ethnic minority cancer patients and survivors: a systematic review of the literature. Patient Educ Couns. 2019;102(4):631–650. doi:10.1016/j.pec.2018.11.018
  • Nomura K, Ohno M, Fujinuma Y, Ishikawa H. Patient autonomy preferences among hypertensive outpatients in a primary care setting in Japan. Intern Med. 2007;46:1403–1408. doi:10.2169/internalmedicine.46.0141
  • Slingsby BT. Decision-making models in Japanese psychiatry: transitions from passive to active patterns. Soc Sci Med. 2004;59:83–91. doi:10.1016/j.socscimed.2003.10.006
  • Watanabe Y, Takahashi M, Kai I. Japanese cancer patient participation in and satisfaction with treatment-related decision-making: a qualitative study. BMC Public Health. 2008;27(8):77. doi:10.1186/1471-2458-8-77
  • Degner LF, Sloan JA, Venkatesh P. The Control Preferences Scale. Can J Nurs Res. 1997;29:21–43.
  • Davison BJ, Degner LF. Empowerment of men newly diagnosed with prostate cancer. Cancer Nurs. 1997;20:187–196. doi:10.1097/00002820-199706000-00004
  • Hack TF, Pickles T, Bultz BD, Ruether JD, Degner LF. Impact of providing audiotapes of primary treatment consultations to men with prostate cancer: a multi-site, randomized, controlled trial. Psychooncology. 2007;16:543–552. doi:10.1002/pon.1094
  • Hack TF, Pickles T, Bultz BD, et al. Impact of providing audio-tapes of primary adjuvant treatment consultations to women with breast cancer: a multisite, randomized, controlled trial. J Clin Oncol. 2003;21(22):4138–4144. doi:10.1200/JCO.2003.12.155
  • Degner LF, Kristjanson LJ, Bowman D, et al. Information needs and decisional preferences in women with breast cancer. JAMA. 1997;277(18):1485–1492. doi:10.1001/jama.1997.03540420081039
  • Keating NL, Landrum MB, Arora NK, et al. Cancer patients‘ roles in treatment decisions: do characteristics of the decision influence roles? J Clin Oncol. 2010;28(28):4364–4370. doi:10.1200/JCO.2009.26.8870
  • Schattner A, Bronstein A, Jellin N. Information and shared decision-making are top patients‘ priorities. BMC Health Serv Res. 2006;6(1):21. doi:10.1186/1472-6963-6-21
  • Strull WM. Do patients want to participate in medical decision making? JAMA. 1984;252(21):2990–2994. doi:10.1001/jama.1984.03350210038026
  • Mossman J, Boudioni M, Slevin ML. Cancer information: a cost-effective intervention. Eur J Cancer. 1999;35(11):1587–1591. doi:10.1016/S0959-8049(99)00195-1
  • Cassileth BR, Zupkis RV, Sutton-Smith K, March V. Information and participation preferences among cancer patients. Ann Int Med. 1980;92(6):832–836. doi:10.7326/0003-4819-92-6-832
  • Fallowfield L, Ford S, Lewis S. No news is not good news: information preferences of patients with cancer. Psychooncology. 1995;4(3):197–202. doi:10.1002/pon.2960040305
  • Finney Rutten LJ, Arora NK, Bakos AD, Aziz N, Rowland J. Information needs and sources of information among cancer patients: a systematic review of research (1980-2003). Patient Educ Couns. 2005;57(3):250–261. doi:10.1016/j.pec.2004.06.006
  • Vogel BA, Bengel J, Helmes AW. Information and decision making: patients’ needs and experiences in the course of breast cancer treatment. Patient Educ Couns. 2008;71(1):79–85. doi:10.1016/j.pec.2007.11.023
  • Sekimoto M, Asai A, Ohnishi M, et al. Patients‘ preferences for involvement in treatment decision making in Japan. BMC Fam Pract. 2004;5(1):1. doi:10.1186/1471-2296-5-1
  • Okuhara T, Ishikawa H, Urakubo A, et al. Cancer information needs according to cancer type: a content analysis of data from Japan’s largest cancer information website. Preventive Medicine Reports. 2018;12:245–252. doi:10.1016/j.pmedr.2018.10.014
  • Galloway S, Graydon J, Harrison D, et al. Informational needs of women with a recent diagnosis of breast cancer: development and initial testing of a tool. J Adv Nurs. 1997;25:1175–1183. doi:10.1046/j.1365-2648.1997.19970251175.x
  • Bubela N, Galloway S, McCay E, et al. The Patient Learning Needs Scale: reliability and validity. J Adv Nurs. 1990;15:1181–1187. doi:10.1111/j.1365-2648.1990.tb01711.x
  • Krabbe PFM. Thurstone scaling as a measurement method to quantify subjective health outcomes. Med Care. 2008;46:357–365. doi:10.1097/MLR.0b013e31815ceca9
  • Degner LF, Davison BJ, Sloan JA, Mueller B. Development of a scale to measure information needs in cancer care. J Nurs Meas. 1998;6(2):137–153. doi:10.1891/1061-3749.6.2.137
  • Lipton HL, Byrns PJ, Soumerai SB, Chrischilles EA. Pharmacists as agents of change for rational drug therapy. Int J Technol Assess Health Care. 1995;11(3):485–508. doi:10.1017/S0266462300008692
  • Murray MD, Young J, Hoke S. Pharmacist intervention to improve medication adherence in heart failure: a randomized trial. Ann Int Med. 2007;146:714–725. doi:10.7326/0003-4819-146-10-200705150-00005
  • Lam MSH, Cheung N. Impact of oncology pharmacist-managed oral anticancer therapy in patients with chronic myelogenous leukemia. J Oncol Pharm Pract. 2016;22(6):741–748. doi:10.1177/1078155215608523
  • Morgado MP, Morgado SR, Mendes LC, Pereira LJ, Castelo-Branco M. Pharmacist interventions to enhance blood pressure control and adherence to antihypertensive therapy: review and meta-analysis. Am J Health Syst Pharm. 2011;68(3):241–253. doi:10.2146/ajhp090656
  • Bultman DC, Svarstad BL. Effects of pharmacist monitoring on patient satisfaction with antidepressant medication therapy. J Am Pharm Assoc. 2002;42:36–43.
  • Worley MM, Schommer JC, Brown LM, et al. Pharmacists‘ and patients‘ roles in the pharmacist-patient relationship: are pharmacists and patients reading from the same relationship script? Res Social Adm Pharm. 2007;3(1):47–69. doi:10.1016/j.sapharm.2006.03.003
  • Beaver K, Booth K. Information needs and decision-making preferences: comparing findings for gynaecological, breast and colorectal cancer. Eur J Oncol Nurs. 2007;11(5):409–416. doi:10.1016/j.ejon.2007.04.004
  • Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25(24):3186–3191. doi:10.1097/00007632-200012150-00014
  • Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44(5):681–692. doi:10.1016/S0277-9536(96)00221-3
  • van der Waal MAE, Casparie AF, Lako CJ. Quality of care: a comparison of preferences between medical specialists and patients with chronic diseases. Soc Sci Med. 1996;42:643–649. doi:10.1016/0277-9536(95)00200-6
  • Michelson BWH, Nystedt M, Bouland C, Degner LF, Wilking N. Information needs and preferences for participation in treatment decisions among Swedish breast cancer patients. Acta Oncol. 2000;39:467–476. doi:10.1080/028418600750013375
  • Choi KC, So WKW, Li PWC, Lau SF, Lo JCK. Consistency in paired comparisons of Information Needs Questionnaires (INQ) among Hong Kong Chinese breast cancer patients. Eur J Oncol Nurs. 2013;17:170–175. doi:10.1016/j.ejon.2012.04.002
  • Sugano K, Nakamura S, Ando J, et al. Cross-sectional analysis of germline BRCA1 and BRCA2 mutations in Japanese patients suspected to have hereditary breast/ovarian cancer. Cancer Sci. 2008;99:1967–1976.
  • Kawaguchi T, Azuma K, Yamaguchi T, et al. Development and validation of the Japanese version of the Decisional Conflict Scale to investigate the value of pharmacists’ information: a before and after study. BMC Med Inform Decis Mak. 2013;13:50. doi:10.1186/1472-6947-13-50
  • Kawaguchi T, Azuma K, Yamaguchi T, et al. Preferences for pharmacist counselling in patients with breast cancer: a discrete choice experiment. Biol Pharm Bull. 2014;37:1795–1802.