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Original Research

Documenting Patient Data in Psoriasis Clinical Practice—Patient Focus Groups Supporting Psoriasis Experts’ Decision-making

ORCID Icon & ORCID Icon
Pages 549-557 | Published online: 08 Mar 2021

References

  • World Health Organization (WHO). Global report on psoriasis; 2016. Available from: https://apps.who.int/iris/bitstream/handle/10665/204417/9789241565189_eng.pdf?sequence=1&isAllowed=y. Accessed August 22, 2019.
  • Stern RS, Nijsten T, Feldman SR, Margolis DJ, Rolstad T. Psoriasis is common, carries a substantial burden even when not extensive, and is associated with widespread treatment dissatisfaction. J Investig Dermatol Symp Proc. 2004;9(2):136–139. doi:10.1046/j.1087-0024.2003.09102.x
  • Kimball AB, Jacobson C, Weiss S, Vreeland MG, Wu Y. The psychosocial burden of psoriasis. Am J Clin Dermatol. 2005;6(6):383–392. doi:10.2165/00128071-200506060-00005
  • Schmitt J, Apfelbacher C, Spuls P-I, et al. The Harmonizing Outcome Measures for Eczema (HOME) roadmap: a methodological framework to develop core sets of outcome measurements in dermatology. J Invest Dermatol. 2015;135(1):24–30. doi:10.1038/jid.2014.320
  • Leung FK, Savithiri R. Spotlight on focus groups. Can Fam Physician. 2009;55(2):218–219.
  • Blome C, Augustin M, Behechtnejad J, Rustenbach SJ. Dimensions of patient needs in dermatology: subscales of the patient benefit index. Arch Dermatol Res. 2011;303(1):11–17. doi:10.1007/s00403-010-1073-0
  • Blome C, Gosau R, Radtke MA, et al. Patient-relevant treatment goals in psoriasis. Arch Dermatol Res. 2016;308(2):69–78. doi:10.1007/s00403-015-1613-8
  • Gutknecht M, Schaarschmidt ML, Danner M, Otten M, Augustin M. How to weight patient-relevant treatment goals for assessing treatment benefit in psoriasis: preference elicitation methods vs. rating scales. Arch Dermatol Res. 2018;310:567–577. doi:10.1007/s00403-018-1846-4
  • Duffin KC, Merola JF, Christensen R, et al. Identifying a core domain set to assess psoriasis in clinical trials. JAMA Dermatol. 2018;154(10):1137–1144.
  • Feldman SR, Regnier SA, Chirilov A, Hey F, Gilloteau I, Cella D. Patient-reported outcomes are important elements of psoriasis treatment decision making: a discrete choice experiment survey of dermatologists in the United States. J Am Acad Dermatol. 2018;80(6):1650–1657. doi:10.1016/j.jaad.2018.09.053
  • Ormandy P, Hulme C. Measuring patients’ preferences and priorities for information in chronic kidney disease. Inf Res. 2013;18(3):paper588.
  • Chawla S. A novel approach to outpatient clinic management. Br J Dermatol. 2019;180(6):1560–1561. doi:10.1111/bjd.17643
  • Larsen MH, Hagen KB, Krogstad AL, Wahl AK. Shared decision making in psoriasis: a systematic review of quantitative and qualitative studies. Am J Clin Dermatol. 2019;20(1):13–29. doi:10.1007/s40257-018-0390-5
  • Scala E, Megna M, Amerio P, et al. Patients’ demographic and socioeconomic characteristics influence the therapeutic decision-making process in psoriasis. PLoS One. 2020;15(8):e0237267. doi:10.1371/journal.pone.0237267