References
- Basch E, Deal AM, Kris MG, et al. Symptom monitoring with patient-reported outcomes during routine cancer treatment: a randomized controlled trial. J Clin Oncol. 2016;34(6):557–565. doi:10.1200/JCO.2015.63.0830
- Basch E, Deal AM, Dueck AC, et al. Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine cancer treatment. JAMA. 2017;318(2):197–198. doi:10.1001/jama.2017.7156
- Dirven L, Armstrong TS, Blakeley JO, et al. Working plan for the use of patient-reported outcome measures in adults with brain tumours: a response assessment in neuro-oncology (RANO) initiative. Lancet Oncol. 2018;19(3):e173–e180. doi:10.1016/S1470-2045(18)30004-4
- Rosenlund L, Degsell E, Jakola AS. Moving from clinician-defined to patient-reported outcome measures for survivors of high-grade glioma. Patient Relat Outcome Meas. 2019;10:267–276. doi:10.2147/PROM.S179313
- Leeper H, Milbury K. Survivorship care planning and implementation in neuro-oncology. Neuro Oncol. 2018;20(Suppl7):vii40–vii46. doi:10.1093/neuonc/noy110
- President’s commission for the study of ethical problems in medicine and biomedical and behavioral research; 1982. Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship. Available from: https://repository.library.georgetown.edu/handle/10822/559354. Accessed January 17, 2020.
- Makoul G, Clayman ML. An integrative model of shared decision making in medical encounters. Patient Educ Couns. 2006;60(3):301–312. doi:10.1016/j.pec.2005.06.010
- Fritz L, Dirven L, Reijneveld JC, et al. Advance care planning in glioblastoma patients. Cancers (Basel). 2016;8(11):102. doi:10.3390/cancers8110102
- Philip J, Collins A, Brand C, et al. A proposed framework of supportive and palliative care for people with high-grade glioma. Neuro Oncol. 2018;20(3):391–399. doi:10.1093/neuonc/nox140
- Vierhout M, Daniels M, Mazzotta P, et al. The views of patients with brain cancer about palliative care: a qualitative study. Curr Oncol. 2017;24(6):374–382. doi:10.3747/co.24.3712
- Institute of Medicine; Board on Health Care Services; Committee on Improving the Quality of Cancer Care: Addressing the Challenges of an Aging Population. Levit L, Balogh E, Nass S, Ganz PA, eds. Delivering high-quality cancer care: charting a new course for a system in crisis. The National Academies Press; 2013. Available from: http://www.nap.edu/catalog.php?record_id=18359. Accessed January 17, 2020.
- Brom L, De Snoo-trimp JC, Onwuteaka-Philipsen BD, et al. Challenges in shared decision making in advanced cancer care: a qualitative longitudinal observational and interview study. Health Expect. 2017;20(1):69–84. doi:10.1111/hex.12434
- Corell A, Guo A, Vecchio TG, et al. Shared decision-making in neurosurgery: a scoping review. Acta Neurochir (Wien). 2021;163:2371–2382. doi:10.1007/s00701-021-04867-3
- Triebel KL, Martin RC, Nabors LB, Marson DC. Medical decision-making capacity in patients with malignant glioma. Neurol. 2009;73(24):2086–2092. doi:10.1212/WNL.0b013e3181c67bce
- Li XZ, Li YB, Cao Y, et al. Prognostic implications of resection extent for patients with glioblastoma multiforme: a meta-analysis. J Neurosurg Sci. 2017;61(6):631–639. doi:10.23736/S0390-5616.16.03619-5
- Levit L, Balogh E, Nass S, Ganz PA, eds; for the Committee on Improving the Quality of Cancer Care: Addressing the Challenges of an Aging Population; Board on Health Care Services; Institute of Medicine. Delivering High-Quality Cancer Care: charting a New Course for a System in Crisis. The National Academies Press; 2013.
- Gorodeski EZ, Goyal P, Cox ZL, et al. Virtual visits for care of patients with heart failure in the era of COVID-19: a statement from the Heart Failure Society of America. J Card Fail. 2020;26(6):448–456. doi:10.1016/j.cardfail.2020.04.008
- Ediebah DE, Reijneveld JC, Taphoorn MJB, et al. Impact of neurocognitive deficits on patient–proxy agreement regarding health-related quality of life in low-grade glioma patients. Qual Life Res. 2017;26(4):869–880. doi:10.1007/s11136-016-1426-z
- Shay LA, Lafata JE. Where is the evidence? A systematic review of shared decision making and patient outcomes. Med Decis Making. 2014;35(1):114–131. doi:10.1177/0272989X14551638
- Agency for Healthcare Research and Quality (AHRQ). The CAHPS ambulatory care improvement guide: practical strategies for improving patient experience; 2013. Available from: https://www.ahrq.gov/cahps/quality-improvement/improvement-guide/improvement-guide.html. Accessed January 28, 2020.