Quality of Life Assessment and Pain Severity in Breast Cancer Patients Prior to Palliative Oncology Treatment in Indonesia: A Cross-Sectional Study

References

• IARC. Globocan 2020: estimated cancer incidence, mortality, and prevalence worldwide in 2020. Cancer fact sheet: breast. Available from: https://gco.iarc.fr/today/data/factsheets/cancers/20-Breast-fact-sheet.pdf. Accessed January 12, 2021.
   Google Scholar
• IARC. Globocan 2020: estimated cancer incidence, mortality, and prevalence worldwide in 2020. Indonesia fact sheets. Available from: https://gco.iarc.fr/today/data/factsheets/populations/360-indonesia-fact-sheets.pdf. Accessed September 10, 2020.
   Google Scholar
• Aboshaiqah A, Al-Saedi TSB, Abu-Al-Ruyhaylah MMM, et al. Quality of life and satisfaction with care among palliative cancer patients in Saudi Arabia. Palliat Support Care. 2016;14(6):621–627. doi:10.1017/S1478951516000432
   Web of Science ®Google Scholar
• Astrup GL, Hofso K, Bjordal K, et al. Patient factors and quality of life outcomes differ among four subgroups of oncology patients based on symptom occurrence. Acta Oncol. 2017;56(3):462–470. doi:10.1080/0284186X.2016.1273546
   PubMed Web of Science ®Google Scholar
• Li Q, Xu Y, Zhou H, Loke AY. Factors influencing the health-related quality of life of Chinese advanced cancer patients and their spousal caregivers: a cross-sectional study. BMC Palliat Care. 2016;15:72. doi:10.1186/s12904-016-0142-3
   Web of Science ®Google Scholar
• Krok JL, Baker TA, McMillan SC. Age differences in the presence of pain and psychological distress in younger and older cancer patients. J Hosp Palliat Nurs. 2013;15(2):107–113. doi:10.1097/NJH.0b013e31826bfb63
   Google Scholar
• Nishiura M, Tamura A, Nagai H, Matsushima E. Assessment of sleep disturbance in lung cancer patients: relationship between sleep disturbance and pain, fatigue, quality of life, and psychological distress. Palliat Support Care. 2015;13(3):575–581. doi:10.1017/S1478951513001119
   PubMed Web of Science ®Google Scholar
• Snyder CF, Blackford AL, Okuyama T, et al. Using the EORTC-QLQ-C30 in clinical practice for patient management: identifying scores requiring a clinician’s attention. Qual Life Res. 2013;22(10):2685–2691. doi:10.1007/s11136-013-0387-8
   PubMed Web of Science ®Google Scholar
• Chen CH, Kuo SC, Tang ST. Current status of accurate prognostic awareness in advanced/terminally ill cancer patients: systematic review and meta-regression analysis. Palliat Med. 2017;31(5):406–418. doi:10.1177/0269216316663976
   PubMed Web of Science ®Google Scholar
• Byrd DR, Carducci MA, Compton CC, Fritz AG, Greene FL. AJCC Cancer Staging Manual. New York: Springer; 2018.
   Google Scholar
• Ministry of Health the Republic of Indonesia. Pedoman nasional pelayanan kedokteran tata laksana kanker payudara (National guidelines of breast cancer treatments) No. HK.01.07/MENKES/414/2018. Jakarta, Indonesia: Ministry of Health, the Republic of Indonesia; 2018.
   Google Scholar
• Klimek L, Bergmann KC, Biedermann T, et al. Visual analogue scales (VAS): measuring instruments for the documentation of symptoms and therapy monitoring in cases of allergic rhinitis in everyday health care. Allergo J Int. 2017;26(1):16–24.
   PubMedGoogle Scholar
• Karnofsky DA, Burchenal JH. The clinical evaluation of chemotherapeutic agents in cancer. In: MacLeod CM, editor. Evaluation of Chemotherapeutic Agents. New York: Columbia University Press; 1949:196.
   Google Scholar
• Fayers PM, Aaronson NK, Bjordal K, et al. The EORTC QLQ-C30 Scoring Manual. 3rd ed. Brussels, Belgium: European Organization for Research and Treatment of Cancer; 2001.
   Google Scholar
• Groenvold M, Petersen M; Group obotEQoL. Addendum to the EORTC QLQ-C30 scoring manual: scoring of the EORTC QLQ-C15-PAL. Brussels, Belgium: EORTC Quality of Life Unit; 2006.
   Google Scholar
• Imran M, Al-Wassia R, Alkhayyat SS, Baig M, Al-Saati BA. Assessment of quality of life (QoL) in breast cancer patients by using EORTC QLQ-C30 and BR-23 questionnaires: a tertiary care center survey in the western region of Saudi Arabia. PLoS One. 2019;14(7):e0219093. doi:10.1371/journal.pone.0219093
   PubMed Web of Science ®Google Scholar
• Jassim GA, Whitford DL. Quality of life of Bahraini women with breast cancer: a cross sectional study. BMC Cancer. 2013;13:212. doi:10.1186/1471-2407-13-212
   PubMed Web of Science ®Google Scholar
• Rinck GC, van den Bos GA, Kleijnen J, de Haes HJ, Schade E, Veenhof CH. Methodologic issues in effectiveness research on palliative cancer care: a systematic review. J Clin Oncol. 1997;15(4):1697–1707. doi:10.1200/JCO.1997.15.4.1697
   PubMed Web of Science ®Google Scholar
• Hancock K, Clayton JM, Parker SM, et al. Truth-telling in discussing prognosis in advanced life-limiting illnesses: a systematic review. Palliat Med. 2007;21(6):507–517. doi:10.1177/0269216307080823
   PubMed Web of Science ®Google Scholar
• Higginson IJ, Costantini M. Dying with cancer, living well with advanced cancer. Eur J Cancer. 2008;44(10):1414–1424. doi:10.1016/j.ejca.2008.02.024
   Web of Science ®Google Scholar
• Claramita M, Utarini A, Soebono H, Van Dalen J, Van der Vleuten C. Doctor-patient communication in a Southeast Asian setting: the conflict between ideal and reality. Adv Health Sci Educ Theory Pract. 2011;16(1):69–80. doi:10.1007/s10459-010-9242-7
   PubMed Web of Science ®Google Scholar
• Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA. 1995;273(1):59–65. doi:10.1001/jama.1995.03520250075037
   PubMed Web of Science ®Google Scholar
• Effendy C, Vernooij-Dassen M, Setiyarini S, et al. Family caregivers’ involvement in caring for a hospitalized patient with cancer and their quality of life in a country with strong family bonds. Psycho-Oncology. 2015;24(5):585–591. doi:10.1002/pon.3701
   Web of Science ®Google Scholar
• Cui J, Fang F, Shen F, et al. Quality of life in patients with advanced cancer at the end of life as measured by the McGill quality of life questionnaire: a survey in China. J Pain Symptom Manage. 2014;48(5):893–902. doi:10.1016/j.jpainsymman.2014.02.016
   PubMed Web of Science ®Google Scholar
• Kristanti MS, Setiyarini S, Effendy C. Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training. BMC Palliat Care. 2017;16(1):4. doi:10.1186/s12904-016-0178-4
   PubMed Web of Science ®Google Scholar
• Iskandarsyah A, de Klerk C, Suardi DR, Soemitro MP, Sadarjoen SS, Passchier J. Satisfaction with information and its association with illness perception and quality of life in Indonesian breast cancer patients. Support Care Cancer. 2013;21(11):2999–3007. doi:10.1007/s00520-013-1877-5
   Web of Science ®Google Scholar
• Pokpalagon P, Hanucharurnkul S, McCorkle R, Tongprateep T, Patoomwan A, Viwatwongkasem C. Comparison of care strategies and quality of life of advanced cancer patients from four different palliative care settings. Pac Rim Int J Nurs Res. 2012;16(4):326–342.
   Google Scholar
• Gayatri D, Efremov L, Kantelhardt EJ, Mikolajczyk R. Quality of life of cancer patients at palliative care units in developing countries: systematic review of the published literature. Qual Life Res. 2021;30:315–343.
   Web of Science ®Google Scholar
• Koenig H, King D, Carson VB. Handbook of Religion and Health. New York: Oxford University Press; 2012.
   Google Scholar
• Haun MW, Estel S, Rucker G, et al. Early palliative care for adults with advanced cancer. Cochrane Database Syst Rev. 2017;6:CD011129.
   PubMedGoogle Scholar
• Wang Y, Shen J, Xu Y. Symptoms and quality of life of advanced cancer patients at home: a cross-sectional study in Shanghai, China. Support Care Cancer. 2011;19(6):789–797. doi:10.1007/s00520-010-0884-z
   Web of Science ®Google Scholar
• Hamood R, Hamood H, Merhasin I, Keinan-Boker L. Chronic pain and other symptoms among breast cancer survivors: prevalence, predictors, and effects on quality of life. Breast Cancer Res Treat. 2018;167(1):157–169. doi:10.1007/s10549-017-4485-0
   PubMed Web of Science ®Google Scholar
• Hjermstad M, Haugen DF, Bennett MI, Kaasa S. Pain assessment tools in palliative care and cancer. In: Moore RJ, editor. Handbook of Pain and Palliative Care: Biobehavioral Approaches for the Life Course. New York: Springer; 2011.
   Google Scholar
• Donovan KA, Thompson LMA, Jacobsen PB. Pain, depression and anxiety in cancer. In: Moore RJ, editor. Pain, Depression and Anxiety in Cancer. New York: Springer; 2011.
   Google Scholar
• Fayers PM. Interpreting quality of life data: population-based reference data for the EORTC QLQ-C30. Eur J Cancer. 2001;37(11):1331–1334. doi:10.1016/S0959-8049(01)00127-7
   PubMed Web of Science ®Google Scholar
• World Health Organization. World Health Organization: definition of palliative care. 2002. Available from: https://www.who.int/cancer/palliative/definition/en/. Accessed September 12, 2018.
   Google Scholar