Chinese Parents’ Perceptions, Attitudes, and Treatment-Seeking Intentions Toward Congenital Heart Disease with Charitable Assistance: A Cross-Sectional Study in a Congenital Heart Center in Southern China

References

• van der Linde D, Konings EEM, Slager MA, et al. Birth prevalence of congenital heart disease worldwide: a systematic review and meta-analysis. J Am Coll Cardiol. 2011;58(21):2241–2247. doi:10.1016/j.jacc.2011.08.025
   PubMed Web of Science ®Google Scholar
• Gug C, Stoicanescu D, Mozos I, et al. De novo 8p21.3→ p23.3 duplication with t(4;8)(q35;p21.3) translocation associated with mental retardation, autism spectrum disorder, and congenital heart defects: case report with literature review. Front Pediatr. 2020;8:375. doi:10.3389/fped.2020.00375
   Web of Science ®Google Scholar
• Mat Bah MN, Sapian MH, Jamil MT, et al. The birth prevalence, severity, and temporal trends of congenital heart disease in the middle-income country: a population-based study. Congenit Heart Dis. 2018;13(6):1012–1027. doi:10.1111/chd.12672
   Web of Science ®Google Scholar
• Helm PC, Bauer UMM, Abdul-Khaliq H, et al. Patients with congenital heart defect and their families support genetic heart research. Congenit Heart Dis. 2018;13(5):685–689. doi:10.1111/chd.12630
   Web of Science ®Google Scholar
• Leca F, Karam J, Vouhe PR, et al. Surgical treatment of multiple ventricular septal defects using a biologic glue. J Thorac Cardiovasc Surg. 1994;107(1):96–102. doi:10.1016/S0022-5223(94)70458-9
   Web of Science ®Google Scholar
• Hirata Y, Hirahara N, Murakami A, Motomura N, Miyata H, Takamoto S. Current status of cardiovascular surgery in Japan 2013 and 2014: a report based on the Japan Cardiovascular Surgery Database. 2: congenital heart surgery. Gen Thorac Cardiovasc Surg. 2018;66(1):4–7. doi:10.1007/s11748-017-0841-6
   Web of Science ®Google Scholar
• Serraf A, Bruniaux J, Lacour-Gayet F, et al. Anatomic correction of transposition of the great arteries with ventricular septal defect. Experience with 118 cases. J Thorac Cardiovasc Surg. 1991;102(1):140–147. doi:10.1016/S0022-5223(19)36593-6
   Web of Science ®Google Scholar
• Costello CL, Gellatly M, Daniel J, Justo RN, Weir K. Growth restriction in infants and young children with congenital heart disease. Congenit Heart Dis. 2015;10(5):447–456. doi:10.1111/chd.12231
   Web of Science ®Google Scholar
• Ferentzi H, Pfitzer C, Rosenthal L-M, Berger F, Schmitt KRL. Long-term early development research in congenital heart disease (LEADER-CHD): a study protocol for a prospective cohort observational study investigating the development of children after surgical correction for congenital heart defects during the first 3 years of life. BMJ Open. 2017;7(12):e018966.
   Web of Science ®Google Scholar
• Allison Russo C, Elixhauser A. Hospitalizations for birth defects, 2004: statistical brief #24. Healthcare Cost and Utilization Project (HCUP) statistical briefs [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2007.
   Google Scholar
• Raj M, Paul M, Sudhakar A, et al. Micro-economic impact of congenital heart surgery: results of a prospective study from a limited-resource setting. PLoS One. 2015;10(6):e0131348. doi:10.1371/journal.pone.0131348
   Web of Science ®Google Scholar
• Ludomirsky AB, Bucholz EM, Newburger JW. Association of financial hardship because of medical bills with adverse outcomes among families of children with congenital heart disease. JAMA Cardiol. 2021;6(6):713–717. doi:10.1001/jamacardio.2020.6449
   Web of Science ®Google Scholar
• Nathan PC, Henderson TO, Kirchhoff AC, Park ER, Robin Yabroff K. Financial hardship and the economic effect of childhood cancer survivorship. J Clin Oncol. 2018;36(21):2198–2205. doi:10.1200/JCO.2017.76.4431
   Web of Science ®Google Scholar
• Li Z, Wu J, Zhao Y, et al. Influence of medical insurance schemes and charity assistance projects on regular prophylaxis treatment of the boys with severe haemophilia A in China. Haemophilia. 2018;24(1):126–133. doi:10.1111/hae.13372
   Web of Science ®Google Scholar
• Fanaroff AC, Peterson ED, Kaltenbach LA, et al. Association of a P2Y12 inhibitor copayment reduction intervention with persistence and adherence with other secondary prevention medications: a post hoc analysis of the ARTEMIS cluster-randomized clinical trial. JAMA Cardiol. 2020;5(1):38–46. doi:10.1001/jamacardio.2019.4408
   Web of Science ®Google Scholar
• Jenkins KJ, Correa A, Feinstein JA, et al.; American Heart Association Council on Cardiovascular Disease in the Young. Noninherited risk factors and congenital cardiovascular defects: current knowledge: a scientific statement from the American Heart Association Council on Cardiovascular Disease in the Young: endorsed by the American Academy of Pediatrics. Circulation. 2007;115(23):2995–3014. doi:10.1161/CIRCULATIONAHA.106.183216
   PubMed Web of Science ®Google Scholar
• Qiu X, Weng Z, Liu M, et al. Prenatal diagnosis and pregnancy outcomes of 1492 fetuses with congenital heart disease: role of multidisciplinary-joint consultation in prenatal diagnosis. Sci Rep. 2020;10(1):7564. doi:10.1038/s41598-020-64591-3
   Web of Science ®Google Scholar
• Marantz P, Grinenco S, Pestchanker F, Meller CH, Izbizky G. Prenatal diagnosis of CHDs: a simple ultrasound prediction model to estimate the probability of the need for neonatal cardiac invasive therapy. Cardiol Young. 2016;26(2):347–353. doi:10.1017/S1047951115000293
   Web of Science ®Google Scholar
• Zhao L, Chen L, Yang T, et al. Birth prevalence of congenital heart disease in China, 1980–2019: a systematic review and meta-analysis of 617 studies. Eur J Epidemiol. 2020;35(7):631–642. doi:10.1007/s10654-020-00653-0
   PubMed Web of Science ®Google Scholar
• Knowles RL, Ridout D, Crowe S, et al. Ethnic and socioeconomic variation in incidence of congenital heart defects. Arch Dis Child. 2017;102(6):496–502. doi:10.1136/archdischild-2016-311143
   Web of Science ®Google Scholar
• Peyvandi S, Baer RJ, Moon-Grady AJ, et al. Socioeconomic mediators of racial and ethnic disparities in congenital heart disease outcomes: a population-based study in California. J Am Heart Assoc. 2018;7(20):e010342. doi:10.1161/JAHA.118.010342
   PubMed Web of Science ®Google Scholar
• Ladouceur M, Iserin L, Cohen S, Legendre A, Boudjemline Y, Bonnet D. Key issues of daily life in adults with congenital heart disease. Arch Cardiovasc Dis. 2013;106(6–7):404–412. doi:10.1016/j.acvd.2013.02.004
   Web of Science ®Google Scholar
• Xiang L, Su Z, Liu Y, et al. Impact of family socioeconomic status on health-related quality of life in children with critical congenital heart disease. J Am Heart Assoc. 2019;8(1):e010616. doi:10.1161/JAHA.118.010616
   Web of Science ®Google Scholar
• Wiegand S, Marggraf J, Wilhelm T, Eivazi B, Werner JA. Internet-mediated physician-patient interaction focusing on extracranial hemangiomas and vascular malformations. Head Neck. 2014;36(2):187–190. doi:10.1002/hed.23282
   Web of Science ®Google Scholar