200
Views
2
CrossRef citations to date
0
Altmetric
REVIEW

Peer Support in Rheumatic Diseases: A Narrative Literature Review

, &
Pages 2433-2449 | Received 04 Mar 2023, Accepted 08 Sep 2023, Published online: 02 Oct 2023

References

  • Myasoedova E, Crowson CS, Kremers HM, Therneau TM, Gabriel SE. Is the incidence of rheumatoid arthritis rising?: results from Olmsted County, Minnesota, 1955-2007. Arthritis Rheum. 2010;62(6):1576–1582. doi:10.1002/art.27425
  • Hunter TM, Boytsov NN, Zhang X, Schroeder K, Michaud K, Araujo AB. Prevalence of rheumatoid arthritis in the United States adult population in healthcare claims databases, 2004-2014. Rheumatol Int. 2017;37(9):1551–1557. doi:10.1007/s00296-017-3726-1
  • Birnbaum H, Pike C, Kaufman R, Maynchenko M, Kidolezi Y, Cifaldi M. Societal cost of rheumatoid arthritis patients in the US. Curr Med Res Opin. 2010;26(1):77–90. doi:10.1185/03007990903422307
  • Barber MRW, Clarke AE. Socioeconomic consequences of systemic lupus erythematosus. Curr Opin Rheumatol. 2017;29(5):480–485. doi:10.1097/BOR.0000000000000416
  • Murimi-Worstell IB, Lin DH, Kan H, et al. Healthcare Utilization and Costs of Systemic Lupus Erythematosus by Disease Severity in the United States. J Rheumatol. 2021;48(3):385–393. doi:10.3899/jrheum.191187
  • Carter EE, Barr SG, Clarke AE. The global burden of SLE: prevalence, health disparities and socioeconomic impact. Nat Rev Rheumatol. 2016;12(10):605–620. doi:10.1038/nrrheum.2016.137
  • Griffith J, Carr A. What is the impact of early rheumatoid arthritis on the individual? Best Pract Res Clin Rheumatol. 2001;15(1):77–90. doi:10.1053/berh.2000.0127
  • Radford S, Carr M, Hehir M, et al. “It’s quite hard to grasp the enormity of it”: perceived needs of people upon diagnosis of rheumatoid arthritis. Musculoskeletal Care. 2008;6(3):155–167. doi:10.1002/msc.132
  • Williams EM, Egede L, Faith T, Oates J. Effective Self-Management Interventions for Patients With Lupus: potential Impact of Peer Mentoring. Am J Med Sci. 2017;353(6):580–592. doi:10.1016/j.amjms.2017.01.011
  • Bachen EA, Chesney MA, Criswell LA. Prevalence of mood and anxiety disorders in women with systemic lupus erythematosus. Arthritis Rheum. 2009;61(6):822–829. doi:10.1002/art.24519
  • Nikiphorou E, Santos EJF, Marques A, et al. 2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis. Ann Rheum Dis. 2021;80(10):1278–1285. doi:10.1136/annrheumdis-2021-220249
  • Iversen MD, Hammond A, Betteridge N. Self-management of rheumatic diseases: state of the art and future perspectives. Ann Rheum Dis. 2010;69(6):955–963. doi:10.1136/ard.2010.129270
  • Dennis CL. Peer support within a health care context: a concept analysis. Int J Nurs Stud. 2003;40(3):321–332. doi:10.1016/s0020-7489(02)00092-5
  • Embuldeniya G, Veinot P, Bell E, et al. The experience and impact of chronic disease peer support interventions: a qualitative synthesis. Patient Educ Couns. 2013;92(1):3–12. doi:10.1016/j.pec.2013.02.002
  • Thompson D. Peer support for people with chronic conditions: a systematic review of reviews. BMC Health Serv Res. 2022;22(1). doi:10.1186/s12913-022-07816-7
  • Morisky DE, Ang A, Coly A, Tiglao TV. A model HIV/AIDS risk reduction programme in the Philippines: a comprehensive community-based approach through participatory action research. Health Promot Int. 2004;19(1):69–76. doi:10.1093/heapro/dah109
  • Keyserling TC, Samuel-Hodge CD, Ammerman AS, et al. A randomized trial of an intervention to improve self-care behaviors of African-American women with type 2 diabetes: impact on physical activity. Diabetes Care. 2002;25(9):1576–1583. doi:10.2337/diacare.25.9.1576
  • Elliott MJ, Love S, Fox DE, et al. ’It’s the empathy’-defining a role for peer support among people living with chronic kidney disease: a qualitative study. BMJ Open. 2022;12(5):e057518. doi:10.1136/bmjopen-2021-057518
  • Ghahramani N. Potential impact of peer mentoring on treatment choice in patients with chronic kidney disease: a review. Arch Iran Med. 2015;18(4):239–243.
  • Brownson CA, Heisler M. The role of peer support in diabetes care and self-management. Patient. 2009;2(1):5–17. doi:10.2165/01312067-200902010-00002
  • Helgeson VS, Cohen S, Schulz R, Yasko J. Group support interventions for women with breast cancer: who benefits from what? Health Psychol off J Div Health Psychol Am Psychol Assoc. 2000;19(2):107–114. doi:10.1037//0278-6133.19.2.107
  • Helgeson VS, Cohen S, Schulz R, Yasko J. Long-term effects of educational and peer discussion group interventions on adjustment to breast cancer. Health Psychol off J Div Health Psychol Am Psychol Assoc. 2001;20(5):387–392. doi:10.1037//0278-6133.20.5.387
  • Lorig K, Lubeck D, Kraines RG, Seleznick M, Holman HR. Outcomes of self-help education for patients with arthritis. Arthritis Rheum. 1985;28(6):680–685. doi:10.1002/art.1780280612
  • Lorig K, Ritter PL, Plant K. A disease-specific self-help program compared with a generalized chronic disease self-help program for arthritis patients. Arthritis Care Res. 2005;53(6):950–957. doi:10.1002/art.21604
  • Kruger JMS, Helmick CG, Callahan LF, Haddix AC. Cost-effectiveness of the Arthritis Self-Help Course. Arch Intern Med. 1998;158(11):1245–1249. doi:10.1001/archinte.158.11.1245
  • Berland GK, Elliott MN, Morales LS, et al. Health Information on the Internet: accessibility, Quality, and Readability in English and Spanish. JAMA. 2001;285(20):2612–2621. doi:10.1001/jama.285.20.2612
  • Hadert A, Rodham K. The invisible reality of arthritis: a qualitative analysis of an online message board. Musculoskeletal Care. 2008;6(3):181–196. doi:10.1002/msc.131
  • Shigaki CL, Smarr KL, Gong Y, et al. Social interactions in an online self-management program for rheumatoid arthritis. Chronic Illn. 2008;4(4):239–246. doi:10.1177/1742395308097862
  • Sandhu S, Veinot P, Embuldeniya G, et al. Peer-to-peer mentoring for individuals with early inflammatory arthritis: feasibility pilot. BMJ Open. 2013;3(3):e002267. doi:10.1136/bmjopen-2012-002267
  • McCarron A. An exploration of the perceived effects of a support group for individuals with rheumatoid arthritis. J Am Assoc Nurse Pract. 2015;27(3):160–166. doi:10.1002/2327-6924.12146
  • Shadick NA, Zibit MJ, Iannaccone CK, et al. A Development and Feasibility Study of a Peer Support Telephone Program in Rheumatoid Arthritis. J Clin Rheumatol Pract Rep Rheum Musculoskelet Dis. 2018;24(6):346–349. doi:10.1097/RHU.0000000000000661
  • Des Bordes JKA, Foreman J, Westrich-Robertson T, et al. Interactions and Perceptions of Patients with Rheumatoid Arthritis Participating in an Online Support Group. Clin Rheumatol. 2020;39(6):1775–1782. doi:10.1007/s10067-020-04967-y
  • Lopez-Olivo MA, Foreman JT, Leung C, et al. A randomized controlled trial evaluating the effects of social networking on chronic disease management in rheumatoid arthritis. Semin Arthritis Rheum. 2022;56:152072. doi:10.1016/j.semarthrit.2022.152072
  • Kaya T, Goksel Karatepe A, Atici Ozturk P, Gunaydin R. Impact of peer-led group education on the quality of life in patients with ankylosing spondylitis. Int J Rheum Dis. 2016;19(2):184–191. doi:10.1111/1756-185X.12256
  • Kaya T, Atıcı P, Karatepe AG, Günaydın R. Peer-led education or booklet for knowledge transfer about disease: a randomized-controlled trial with ankylosing spondylitis patients. Arch Rheumatol. 2021;36(4):560–569. doi:10.46497/ArchRheumatol.2021.8334
  • Withall J, Haase AM, Walsh NE, Young A, Cramp F. Physical activity engagement in early rheumatoid arthritis: a qualitative study to inform intervention development. Physiotherapy. 2016;102(3):264–271. doi:10.1016/j.physio.2015.07.002
  • Dures E, Almeida C, Caesley J, et al. Patient preferences for psychological support in inflammatory arthritis: a multicentre survey. Ann Rheum Dis. 2016;75(1):142–147. doi:10.1136/annrheumdis-2014-205636
  • Des Bordes JKA, Gonzalez E, Lopez-Olivo MA, Shethia M, Nayak P, Suarez-Almazor ME. Assessing information needs and use of online resources for disease self-management in patients with rheumatoid arthritis: a qualitative study. Clin Rheumatol. 2018;37(7):1791–1797. doi:10.1007/s10067-018-4047-9
  • Navarro-Millán I, Zinski A, Shurbaji S, et al. Perspectives of Rheumatoid Arthritis Patients on Electronic Communication and Patient-Reported Outcome Data Collection: a Qualitative Study. Arthritis Care Res. 2019;71(1):80–87. doi:10.1002/acr.23580
  • Loyola-Sanchez A, Pelaez-Ballestas I, Crowshoe L, et al. “There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic. BMC Health Serv Res. 2020;20(1):1076. doi:10.1186/s12913-020-05909-9
  • Swärdh E, Nordgren B, Opava CH, Demmelmaier I. “A Necessary Investment in Future Health”: perceptions of Physical Activity Maintenance Among People With Rheumatoid Arthritis. Phys Ther. 2020;100(12):2144–2153. doi:10.1093/ptj/pzaa176
  • Van der Elst K, De Cock D, Bangels L, et al. “More than just chitchat”: a qualitative study concerning the need and potential format of a peer mentor programme for patients with early rheumatoid arthritis. RMD Open. 2021;7(3):e001795. doi:10.1136/rmdopen-2021-001795
  • Feldman C, Bermas B, Zibit M, et al. Designing an intervention for women with systemic lupus erythematosus from medically underserved areas to improve care: a qualitative study. Lupus. 2013;22(1):52–62. doi:10.1177/0961203312463979
  • Toral P, Flores MT, Horton R, Rose J Evaluation of a Longstanding Telephone Peer Counseling Service on People with Systemic Lupus Erythematosus and Their Loved Ones. ACR Meeting Abstracts. Available from: https://acrabstracts.org/abstract/evaluation-of-a-longstanding-telephone-peer-counseling-service-on-people-with-systemic-lupus-erythematosus-and-their-loved-ones/. Accessed January 30, 2023.
  • Williams EM, Hyer JM, Viswanathan R, et al. Peer-to-Peer Mentoring for African American Women With Lupus: a Feasibility Pilot. Arthritis Care Res. 2018;70(6):908–917. doi:10.1002/acr.23412
  • Faith TD, Egede L, Williams EM. Research Ethics in Behavioral Interventions Among Special Populations: lessons From the Peer Approaches to Lupus Self-Management Study. Am J Med Sci. 2018;355(2):104–112. doi:10.1016/j.amjms.2017.08.021
  • Flournoy-Floyd M, Ortiz K, Egede L, Oates JC, Faith TD, Williams EM. “We Would Still Find Things to Talk About”: assessment of Mentor Perspectives in a Systemic Lupus Erythematosus Intervention to Improve Disease Self-Management, Empowering SLE Patients. J Natl Med Assoc. 2018;110(2):182–189. doi:10.1016/j.jnma.2017.05.003
  • Williams EM, Dismuke CL, Faith TD, et al. Cost-effectiveness of a peer mentoring intervention to improve disease self-management practices and self-efficacy among African American women with systemic lupus erythematosus: analysis of the Peer Approaches to Lupus Self-management (PALS) pilot study. Lupus. 2019;28(8):937–944. doi:10.1177/0961203319851559
  • White A, Faith TD, Ba A, et al. Support Methodologies for African American Women With Lupus – comparing Three Methods’ Effects on Patient Activation and Coping. Front Psychol. 2021;12:734390. doi:10.3389/fpsyg.2021.734390
  • Alexander DS, Hogan SL, Jordan JM, Devellis RF, Carpenter DM. The relationship between peer support, medication adherence, and quality of life among patients with vasculitis. Clin Exp Rheumatol. 2015;33(2 Suppl 89):S1856.
  • Mendelson C, Poole JL. Become your own advocate: advice from women living with scleroderma. Disabil Rehabil. 2007;29(19):1492–1501. doi:10.1080/09638280601029480
  • van der Vaart R, Repping-Wuts H, Drossaert CHC, Taal E, Knaapen-Hans HKA, van de Laar MAFJ. Need for online information and support of patients with systemic sclerosis. Arthritis Care Res. 2013;65(4):594–600. doi:10.1002/acr.21875
  • Delisle VC, Gumuchian ST, El-Baalbaki G, et al. Training and support needs of scleroderma support group facilitators: the North American Scleroderma Support Group Facilitators Survey. Disabil Rehabil. 2019;41(20):2477–2482. doi:10.1080/09638288.2018.1467970
  • Pépin M, Kwakkenbos L, Carrier ME, et al. Reasons for attending support groups and organizational preferences: a replication study using the North American Scleroderma Support Group Survey. J Scleroderma Relat Disord. 2019;4(3):173–186. doi:10.1177/2397198319849806
  • Gumuchian ST, Delisle VC, Kwakkenbos L, et al. Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey. Disabil Rehabil. 2019;41(8):974–982. doi:10.1080/09638288.2017.1416497
  • Kwakkenbos L, Carboni-Jiménez A, Carrier ME, et al. Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys. Disabil Rehabil. 2021;43(9):1279–1286. doi:10.1080/09638288.2019.1656292
  • Delisle VC, Gumuchian ST, Pelaez S, et al. Reasons for non-participation in scleroderma support groups. Clin Exp Rheumatol. 2016;34 Suppl 100(5):56–62.
  • Heisler M. Building Peer Support Programs to Manage Chronic Disease: seven Models for Success. California Health Care Foundation. 2006:67.
  • Eysenbach G, Powell J, Englesakis M, Rizo C, Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ. 2004;328(7449):1166. doi:10.1136/bmj.328.7449.1166