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ORIGINAL RESEARCH

Experiences of Heart Failure and the Treatment Journey: A Mixed-Methods Study Among Patients with Heart Failure in Sweden

, ORCID Icon, ORCID Icon &
Pages 1935-1947 | Received 26 Apr 2023, Accepted 28 Jul 2023, Published online: 09 Aug 2023

References

  • Alpert CM, Smith MA, Hummel SL, Hummel EK. Symptom burden in heart failure: assessment, impact on outcomes, and management. Heart Fail Rev. 2017;22:25‒29. doi:10.1007/s10741-016-9581-4
  • McMurray JJ, Adamopoulos S, Anker SD, et al; ESC Committee for Practice Guidelines. ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: the task force for the diagnosis and treatment of acute and chronic heart failure 2012 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association (HFA) of the ESC. Eur Heart J. 2012;33:1787‒1847. doi:10.1093/eurheartj/ehs104
  • Ponikowski P, Voors AA, Anker SD, et al; ESC Scientific Document Group. 2016 ESC guidelines for the diagnosis and treatment of acute and chronic heart failure: the task force for the diagnosis and treatment of acute and chronic heart failure of the European Society of Cardiology (ESC) developed with the special contribution of the Heart Failure Association (HFA) of the ESC. Eur Heart J. 2016;37:2129‒2200. doi:10.1093/eurheartj/ehw128
  • Yasin ZM, Anderson PD, Lingman M, et al. Receiving care according to national heart failure guidelines is associated with lower total costs: an observational study in Region Halland, Sweden. Eur Heart J Qual Care Clin Outcomes. 2021;7:280‒286. doi:10.1093/ehjqcco/qcaa020
  • Ødegaard KM, Hallén J, Lirhus SS, Melberg HO, Halvorsen S. Incidence, prevalence, and mortality of heart failure: a nationwide registry study from 2013 to 2016. ESC Heart Fail. 2020;7:1917–1926. doi:10.1002/ehf2.12773
  • Westlake C, Dracup K, Creaser J, et al. Correlates of health-related quality of life in patients with heart failure. Heart Lung. 2002;31:85‒93. doi:10.1067/mhl.2002.122839
  • Boyd KJ, Murray SA, Kendall M, Worth A, Frederick Benton T, Clausen H. Living with advanced heart failure: a prospective, community based study of patients and their carers. Eur J Heart Fail. 2004;6:585‒591. doi:10.1016/j.ejheart.2003.11.018
  • Rector TS, Anand IS, Cohn JN. Relationships between clinical assessments and patients’ perceptions of the effects of heart failure on their quality of life. J Card Fail. 2006;12:87‒92. doi:10.1016/j.cardfail.2005.10.002
  • Juenger J. Health related quality of life in patients with congestive heart failure: comparison with other chronic diseases and relation to functional variables. Heart. 2002;87(3):235‒241. doi:10.1136/heart.87.3.235
  • van Jaarsveld CH, Sanderman R, Miedema I, Ranchor AV, Kempen GI. Changes in health-related quality of life in older patients with acute myocardial infarction or congestive heart failure: a prospective study. J Am Geriatr Soc. 2001;49:1052‒1058. doi:10.1046/j.1532-5415.2001.49208.x
  • Lewis EF, Johnson PA, Johnson W, Collins C, Griffin L, Stevenson LW. Preferences for quality of life or survival expressed by patients with heart failure. J Heart Lung Transplant. 2001;20:1016‒1024. doi:10.1016/s1053-2498(01)00298-4
  • Stevenson LW, Hellkamp AS, Leier CV, et al. Changing preferences for survival after hospitalization with advanced heart failure. J Am Coll Cardiol. 2008;52:1702‒1788. doi:10.1016/j.jacc.2008.08.028
  • Jonkman NH, Westland H, Groenwold RH, et al. What are effective program characteristics of self-management interventions in patients with heart failure? An individual patient data meta-analysis. J Card Fail. 2016;22:861‒871. doi:10.1016/j.cardfail.2016.06.422
  • Freedland KE, Rich MW, Carney RM. Improving quality of life in heart failure. Curr Cardiol Rep. 2021;23:159. doi:10.1007/s11886-021-01588-y
  • Austin RC, Schoonhoven L, Clancy M, Richardson A, Kalra PR, May CR. Do chronic heart failure symptoms interact with burden of treatment? Qualitative literature systematic review. BMJ Open. 2021;11:e047060. doi:10.1136/bmjopen-2020-047060
  • RAND. 36-item short form survey instrument (SF-36); 2022. Available from: https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form.html. Accessed January 26, 2023.
  • WPAI coding 2019; Margaret Reilly Associates Inc. Available from: http://www.reillyassociates.net/WPAI_Coding.html. Accessed January 26, 2023.
  • Ohlsson-Nevo E, Hiyoshi A, Norén P, Möller M, Karlsson J. The Swedish RAND-36: psychometric characteristics and reference data from the Mid-Swed Health Survey. J Patient Rep Outcomes. 2021;5:66. doi:10.1186/s41687-021-00331-z
  • Samsa G, Edelman D, Rothman ML, Williams GR, Lipscomb J, Matchar D. Determining clinically important differences in health status measures: a general approach with illustration to the Health Utilities Index Mark II. Pharmacoeconomics. 1999;15:141‒155. doi:10.2165/00019053-199915020-00003
  • Rädiker S, Kuckartz U. Focused analysis of qualitative interviews with MAXQDA. Step by step. Berlin: MAXQDA Press; 2020. Available from: https://www.maxqda-press.com/catalog/books/focused-analysis-of-qualitative-interviews-with-maxqda. Accessed January 26, 2023.
  • Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15:1277‒1288. doi:10.1177/1049732305276687
  • Wideqvist M, Cui X, Magnusson C, Schaufelberger M, Fu M. Hospital readmissions of patients with heart failure from real world: timing and associated risk factors. ESC Heart Fail. 2021;8:1388‒1397. doi:10.1002/ehf2.13221
  • McDonagh TA, Metra M, Adamo M, et al; ESC Scientific Document Group. 2021 ESC guidelines for the diagnosis and treatment of acute and chronic heart failure. Eur Heart J. 2021;42:3599. doi:10.1093/eurheartj/ehab368
  • Kobayashi M, Wilcke C, Girerd N. Assessment of patient knowledge, awareness, and adherence in heart failure in a real-life setting: insights from data acquired in pharmacies. J Clin Med. 2022;11:863. doi:10.3390/jcm11030863
  • Centrella-Nigro AM, Alexander C. Using the teach-back method in patient education to improve patient satisfaction. J Contin Educ Nurs. 2017;48:47‒52. doi:10.3928/00220124-20170110-10
  • Luttik ML, Jaarsma T, van Geel PP, et al. Long-term follow-up in optimally treated and stable heart failure patients: primary care vs. heart failure clinic. Results of the COACH-2 study. Eur J Heart Fail. 2014;16:1241‒1248. doi:10.1002/ejhf.173
  • Schou M, Gustafsson F, Videbaek L, et al; NorthStar Investigators, all members of The Danish Heart Failure Clinics Network. Extended heart failure clinic follow-up in low-risk patients: a randomized clinical trial (NorthStar). Eur Heart J. 2013;34:432‒442. doi:10.1093/eurheartj/ehs235