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ORIGINAL RESEARCH

The Use of an Iterative Strategy of Cognitive Interview and Expert Consultation to Revise the Quality of Life Scale for Patients with Aplastic Anemia (QLS-AA)

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Pages 1741-1749 | Received 26 Apr 2023, Accepted 13 Jul 2023, Published online: 19 Jul 2023

References

  • Killick SB, Bown N, Cavenagh J, et al. Guidelines for the diagnosis and management of adult aplastic anaemia. Br j Haematol. 2016;172(2):187–207. doi:10.1111/bjh.13853
  • Liu C, Shao Z. Aplastic Anemia in China. J transl int med. 2018;6(3):134–137. doi:10.2478/jtim-2018-0028
  • Wang L, Liu H. Pathogenesis of aplastic anemia. Hematology. 2019;24(1):559–566. doi:10.1080/16078454.2019.1642548
  • Montané E, Ibáñez L, Vidal X, et al. Epidemiology of aplastic anemia: a prospective multicenter study. Haematologica. 2008;93(4):518–523. doi:10.3324/haematol.12020
  • Iftikhar R, Ahmad P, De Latour R, et al. Special issues related to the diagnosis and management of acquired aplastic anemia in countries with restricted resources, a report on behalf of the Eastern Mediterranean blood and marrow transplantation (EMBMT) group and severe aplastic anemia working party of the European Society for blood and marrow transplantation (SAAWP of EBMT). Bone Marrow Transplant. 2021;56(10):2518–2532. doi:10.1038/s41409-021-01332-8
  • Zhu XF, He HL, Wang SQ, et al. Current treatment patterns of aplastic anemia in China: a prospective cohort registry study. Acta Haematol. 2019;142(3):162–170. doi:10.1159/000499065
  • Xu ZL, Xu LP, Wu DP, et al. Comparable long-term outcomes between upfront haploidentical and identical sibling donor transplant in aplastic anemia: a national registry-based study. Haematologica. 2022;107(12):2918–2927. doi:10.3324/haematol.2022.280758
  • Wang LL, Mo WJ, Zhang YP, et al. Clinical analysis of CMV infection in patients with severe aplastic anemia after allogeneic hematopoietic stem cell transplantation. J Exp Hematol. 2021;29(3):944–950. doi:10.19746/j.cnki.issn1009-2137.2021.03.046
  • Wu XL, Qiu YL, Wang L, et al. Analysis of self-perceived burden and influencing factors in patients with aplastic anemia. Hosp Manag Forum. 2018;35(12):23–26. doi:10.3969/j.issn.1671-9069.2018.12.007
  • Tang J, Qian Y. Analysis and nursing experience of 1 case of severe aplastic anemia patient with suicide. Chin Commun Physician. 2019;35(18):146+9. doi:10.3969/j.issn.1007-614x.2019.18.106
  • Streiner DL, Norman GR. Health Measurement Scales: A Practical Guide to Their Development and Use. 4th ed. Oxford, UK: Oxford University Press; 2008.
  • Bobrovitz N, Santana MJ, Kline T, et al. The use of cognitive interviews to revise the Quality of Trauma Care Patient-Reported Experience Measure (QTAC-PREM). Qual Life Res. 2015;724(8):1911–1919. doi:10.1007/s11136-015-0919-5
  • Collins D. Pretesting survey instruments: an overview of cognitive methods. Qual Life Res. 2003;12(3):229–238. doi:10.1023/a:1023254226592
  • Watt T, Rasmussen AK, Groenvold M, et al. Improving a newly developed patient-reported outcome for thyroid patients, using cognitive interviewing. Qual Life Res. 2008;17(7):1009–1017. doi:10.1007/s11136-008-9364-z
  • Murtagh FE, Addington-Hall JM, Higginson IJ. The value of cognitive interviewing techniques in palliative care research. Palliat Med. 2007;21(2):87–93. doi:10.1177/0269216306075367
  • Fortune-Greeley AK, Flynn KE, Jeffery DD, et al. Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: improvements and remaining challenges. Qual Life Res. 2009;18(8):1085–1093. doi:10.1007/s11136-009-9523-x
  • Pillay T, Pillay M. Contextualising clinical reasoning within the clinical swallow evaluation: a scoping review and expert consultation. S Afr J Commun Disord. 2021;68(1):e1–e12. doi:10.4102/sajcd.v68i1.832
  • Hu XH, Long L. Reflection and reconstruction of expert demonstration system for administrative decision-making. J Jishou Univ. 2017;38(5):95–102. doi:10.13438/j.cnki.jdxb.2017.05.013
  • DeWalt DA, Rothrock N, Yount S, et al. Evaluation of item candidates: the PROMIS qualitative item review. Med Care. 2007;45(5 Suppl 1):S12–S21. doi:10.1097/01.mlr.0000254567.79743.e2
  • Shen T, Zhao YQ. Criteria for Diagnosis and Efficacy of Hematological Diseases. 4th ed. Beijing: Science Press; 2018.
  • Whoqol Group T; The World Health Organization Quality of Life Assessment (WHOQOL). Development and general psychometric properties. Soc Sci Med. 1998;46(12):1569–1585. doi:10.1016/s0277-9536(98)00009-4
  • Ferrell BR, Dow KH, Grant M. Measurement of the quality of life in cancer survivors. Qual Life Res. 1995;4(6):523–531. doi:10.1007/BF00634747
  • Tourangeau R, Rips LJ, Rasinski K. The Psychology of Survey Response. Cambridge, UK: Cambridge University Press; 2000.
  • Jobe JB. Cognitive psychology and self-reports: models and methods. Qual Life Res. 2003;12(3):219–227. doi:10.1023/A:1023279029852
  • Meyer R, Drewniak D, Hovorka T, et al. Questioning the questionnaire: methodological challenges in measuring subjective quality of life in nursing homes using cognitive interviewing techniques. Qual Health Res. 2019;29(7):972–986. doi:10.1177/1049732318812042
  • Elo S, Kyngäs H. The qualitative content analysis process. J adv nurs. 2008;62(1):107–115. doi:10.1111/j.1365-2648.2007.04569.x
  • Whiteley I, Gullick J. The embodied experience of pregnancy with an ileostomy. J Clin Nurs. 2018;27(21–22):3931–3944. doi:10.1111/jocn.14601
  • Priest H. An approach to the phenomenological analysis of data. Nurse Res. 2002;10(2):50–63. PMID: 12518666. doi:10.7748/nr2003.01.10.2.50.c5888
  • Sherman KJ, Eaves ER, Ritenbaugh C, et al. Cognitive interviews guide design of a new CAM patient expectations questionnaire. BMC Complement Altern Med. 2014;14(39):1–16. doi:10.1186/1472-6882-14-39
  • Meadows K. Cognitive interviewing methodologies. Clin Nurs Res. 2021;30(4):375–379. doi:10.1177/10547738211014099
  • Arthur EK, Menon U, Browning K, et al. Challenges of cognitive interviewing in sensitive health topic research. Nurs Res. 2021;70(5):376–382. doi:10.1097/NNR.0000000000000530
  • Nyholm L, Nystrom L, Lindstrom U-A. Toward understanding through hermeneutic letterwriting. Nurs Sci Q. 2018;31(2):160–165. doi:10.1177/0894318418755731
  • Buers C, Triemstra M, Bloemendal E, et al. The value of cognitive interviewing for optimizing a patient experience survey. Int J Soc Res Method. 2013;17(4):325–340. doi:10.1080/13645579.2012.750830
  • Wang J, Lloyd-Evans B, Giacco D, et al. Social isolation in mental health: a conceptual and methodological review. Soc Psychiatry Psychiatr Epidemiol. 2017;52(12):1451–1461. doi:10.1007/s00127-017-1446-1