Patients’ and Relatives’ Preferences for Outpatient and Day Care Services Within End-of-Life Care in Germany – A Discrete Choice Experiment

References

• Leng A, Maitland E, Wang S, Nicholas S, Lan K, Wang J. Preferences for end-of-life care among patients with terminal cancer in China. JAMA Network Open. 2022;5(4):e228788–e228788. doi:10.1001/jamanetworkopen.2022.8788
   PubMed Web of Science ®Google Scholar
• Blanchard CL, Ayeni O, O’Neil DS, et al. A prospective cohort study of factors associated with place of death among patients with late-stage cancer in Southern Africa. J Pain Sympt Manage. 2019;57(5):923–932. doi:10.1016/j.jpainsymman.2019.01.014
   PubMed Web of Science ®Google Scholar
• Alsirafy SA, Hammad AM, Ibrahim NY, Farag DE, Zaki O. Preferred place of death for patients with incurable cancer and their family caregivers in Egypt. Am J Hospice Palliative Med^®. 2019;36(5):423–428. doi:10.1177/1049909118813990
   PubMed Web of Science ®Google Scholar
• Rainsford S, MacLeod RD, Glasgow NJ. Place of death in rural palliative care: a systematic review. Palliative Medicine. 2016;30(8):745–763. doi:10.1177/0269216316628779
   PubMed Web of Science ®Google Scholar
• Schnakenberg R, Fassmer AM, Allers K, Hoffmann F. Characteristics and place of death in home care recipients in Germany–an analysis of nationwide health insurance claims data. BMC Palliat Care. 2022;21(1):172. doi:10.1186/s12904-022-01060-w
   PubMed Web of Science ®Google Scholar
• Stajduhar KI, Funk L, Toye C, Grande GE, Aoun S, Todd CJ. Part 1: home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008). Palliative Medicine. 2010;24(6):573–593. doi:10.1177/0269216310371412
   PubMed Web of Science ®Google Scholar
• Veloso VI, Tripodoro VA. Caregivers burden in palliative care patients: a problem to tackle. Curr Opin Support Palliat Care. 2016;10(4):330–335. doi:10.1097/SPC.0000000000000239
   PubMed Web of Science ®Google Scholar
• Bialon LN, Coke S. A study on caregiver burden: stressors, challenges, and possible solutions. Am J Hospice Palliative Med^®. 2012;29(3):210–218. doi:10.1177/1049909111416494
   PubMed Web of Science ®Google Scholar
• Washington KT, Benson JJ, Chakurian DE, et al. Comfort needs of cancer family caregivers in outpatient palliative care. J Hosp Palliat Nurs. 2021;23(3):221. doi:10.1097/NJH.0000000000000744
   PubMedGoogle Scholar
• Radbruch L, Payne S. Standards und Richtlinien für Hospiz-und Palliativversorgung in Europa: Teil 2. Zeitschrift für Palliativmedizin. 2011;12(06):260–270. doi:10.1055/s-0031-1276957
   Google Scholar
• Kassenärztliche Bundesvereinigung. SAPV-Teams, Available from: https://gesundheitsdaten.kbv.de/cms/html/17067.php. Accessed March 29, 2023.
   Google Scholar
• Arias-Casais N, Garralda E, Rhee J, et al. EAPC atlas of palliative care in Europe. Romania. 2019;122:77.
   Google Scholar
• Apolinarski B, Herbst FA, Röwer HAA, Schneider N, Stiel S. Status quo palliativmedizinischer Tageskliniken und Tageshospize in Deutschland: Ergebnisse einer gemischt-methodischen Studie. Zeitschrift für Palliativmedizin. 2021;22(04):215–224. doi:10.1055/a-1514-8871
   Google Scholar
• Lehnert T, Günther OH, Hajek A, Riedel-Heller SG, König HH. Preferences for home-and community-based long-term care services in Germany: a discrete choice experiment. Eur J Health Econ. 2018;19(9):1213–1223. doi:10.1007/s10198-018-0968-0
   PubMed Web of Science ®Google Scholar
• Douglas H-R, Normand CE, Higginson IJ, Goodwin DM. A new approach to eliciting patients’ preferences for palliative day care: the choice experiment method. J Pain Sympt Manage. 2005;29(5):435–445. doi:10.1016/j.jpainsymman.2004.08.017
   PubMed Web of Science ®Google Scholar
• Hall J, Kenny P, Hossain I, Street DJ, Knox SA. Providing informal care in terminal illness: an analysis of preferences for support using a discrete choice experiment. Med Decis Mak. 2014;34(6):731–745. doi:10.1177/0272989X13500719
   PubMed Web of Science ®Google Scholar
• Bergenholtz H, Missel M, Timm H. Talking about death and dying in a hospital setting-a qualitative study of the wishes for end-of-life conversations from the perspective of patients and spouses. BMC Palliat Care. 2020;19(1):1–9. doi:10.1186/s12904-020-00675-1
   PubMed Web of Science ®Google Scholar
• Bollig G, Gjengedal E, Rosland JH. They know!—do they? A qualitative study of residents and relatives views on advance care planning, end-of-life care, and decision-making in nursing homes. Palliative Medicine. 2016;30(5):456–470. doi:10.1177/0269216315605753
   PubMed Web of Science ®Google Scholar
• Vandenbrouckel JP, von EE, Altman DG, et al. Strengthening the reporting of observational studies in epidemiology (STROBE): explanation and elaboration. PLoS Med. 2007;4(10):1628–1655.
   Web of Science ®Google Scholar
• Herbst FA, Stiel S, Damm K, Jong L D, Stahmeyer JT, Schneider N. Exploring the status of and demand for palliative day-care clinics and day hospices in Germany: a protocol for a mixed-methods study. BMC Palliat Care. 2021;20(1):1–9. doi:10.1186/s12904-021-00792-5
   PubMed Web of Science ®Google Scholar
• McFadden D. Conditional logit analysis of qualitative choice behavior; 1973.
   Google Scholar
• Lancaster KJ. A new approach to consumer theory. J Political Econ. 1966;74(2):132–157. doi:10.1086/259131
   Web of Science ®Google Scholar
• Johnson FR, Lancsar E, Marshall D, et al. Constructing experimental designs for discrete-choice experiments: report of the ISPOR conjoint analysis experimental design good research practices task force. Value Health. 2013;16(1):3–13. doi:10.1016/j.jval.2012.08.2223
   PubMed Web of Science ®Google Scholar
• Lancsar E, Louviere J. Conducting discrete choice experiments to inform healthcare decision making. Pharmacoeconomics. 2008;26(8):661–677. doi:10.2165/00019053-200826080-00004
   PubMed Web of Science ®Google Scholar
• Kuhfeld WF. Marketing research methods in SAS: experimental design, choice, conjoint, and graphical techniques. Cary NC. 2010;1:681–801.
   Google Scholar
• Manski CF. The structure of random utility models. Theory Decis. 1977;8(3):229. doi:10.1007/BF00133443
   Web of Science ®Google Scholar
• The R Foundation. Available from: https://www.r-project.org/foundation/. Accessed February 21, 2024
   Google Scholar
• Houska A, Loučka M. Patients’ autonomy at the end of life: a critical review. J Pain Sympt Manage. 2019;57(4):835–845. doi:10.1016/j.jpainsymman.2018.12.339
   PubMed Web of Science ®Google Scholar
• Apolinarski B, Huperz C, Röwer HAA, Schneider N, Stiel S, Herbst FA. Expert perspectives on the additional benefit of day hospices and palliative day care clinics in Germany: a qualitative approach. Am J Hospice Palliative Med^®. 2024;41(2):167–172. doi:10.1177/10499091231168574
   PubMed Web of Science ®Google Scholar
• Müller A, Paul A, Best J, Kunkel S, Voltz R, Strupp J. “My everyday life has returned to normal”-experiences of patients and relatives with a palliative day care clinic: a qualitative evaluation study. BMC Palliat Care. 2023;22(1):1–12. doi:10.1186/s12904-023-01140-5
   PubMed Web of Science ®Google Scholar