329
Views
38
CrossRef citations to date
0
Altmetric
Original Research

A critical analysis of user satisfaction surveys in addiction services: opioid maintenance treatment as a representative case study

, , &
Pages 107-117 | Published online: 21 Jan 2014

References

  • IraurgiIEvaluación de Resultados en Trastornos Adictivos: Calidad de Vida Como Indicador y Puntuación Fiable de Cambio Como Estimador [Outcomes Assessment in Addictive Disorders: Quality of Life as an Indicator and Reliable Change Index as an Estimator] [doctoral thesis]Donostia-San SebastiánUniversidad del País Vasco (UPV/EHU)2010 Spanish
  • De MaeyerJVanderplasschenWBroekaertEExploratory study on drug users’ perspectives on quality of life: more than health-related quality of life?Soc Indic Res2009901107126
  • TreloarCHoltMComplex vulnerabilities as barriers to treatment for illicit drug users with high prevalence mental health co-morbiditiesMent Health Subst Use2008118495
  • PulfordJAdamsPSheridanJClient/clinician discrepancies in perceived problem improvement and the potential influence on dropout responseInt J Ment Health Addict200974497505
  • TrujolsJSiñolNIraurgiIBatlleFGuàrdiaJPérez de Los CobosJPatient and clinician’s ratings of improvement in methadone-maintained patients: Differing perspectives?Harm Reduct J2011812321871064
  • BilsburyCDRichmanAA staging approach to measuring patient-centred subjective outcomesActa Psychiatr Scand Suppl200241454012366461
  • RuggeriMTansellaMTo what extent do mental health services meet patients’ needs and provide satisfactory care?Curr Opin Psychiatry2002152193199
  • TrujolsJPérez de los CobosJLa perspectiva de los usuarios sobre los tratamientos de mantenimiento con metadona: Una revisión centrada en la satisfacción con el tratamiento [Users’ views of methadone maintenance treatment: a review focused on satisfaction with treatment]Adicciones2005172181204 Spanish
  • CarlsonMJGabrielRMPatient satisfaction, use of services, and one-year outcomes in publicly funded substance abuse treatmentPsychiatr Serv20015291230123611533398
  • HserYIEvansEHuangDAnglinDMRelationship between drug treatment services, retention, and outcomesPsychiatr Serv200455776777415232015
  • MarchandKIOviedo-JoekesEGuhDBrissetteSMarshDCSchechterMTClient satisfaction among participants in a randomized trial comparing oral methadone and injectable diacetylmorphine for long-term opioid-dependencyBMC Health Serv Res20111117421791093
  • RiesRKJaffeCComtoisKAKitchellMTreatment satisfaction compared with outcome in severe dual disordersCommunity Ment Health J199935321322110401891
  • CrowRGageHHampsonSThe measurement of satisfaction with healthcare: implications for practice from a systematic review of the literatureHealth Technol Assess2002632124412925269
  • LehmanAFZastownyTRPatient satisfaction with mental health services: a meta-analysis to establish normsEval Program Plann198363–426527410267254
  • KoesterSAndersonKHofferLActive heroin injectors’ perceptions and use of methadone maintenance treatment: cynical performance or self-prescribed risk reduction?Subst Use Misuse199934142135215310573308
  • NingAMGames of truth: rethinking conformity and resistance in narratives of heroin recoveryMed Anthropol200524434938216249138
  • GuichardALertFBrodeurJMRichardLRapports des usagers au Subutex®: de la reconquête de l’autonomie à la spirale de l’échec [Drug users’ relationships with Subutex®: from restored independence to the downward spiral of failure]Sci Soc Sante2006244543 French
  • KaymanDJGoldsteinMFDerenSRosenblumAPredicting treatment retention with a brief “opinions about methadone” scaleJ Psychoactive Drugs20063819310016681180
  • KellySMBrownBSKatzECA comparison of attitudes toward opioid agonist treatment among short-term buprenorphine patientsAm J Drug Alcohol Abuse201238323323822242643
  • SchwartzRPKellySMO’GradyKEAttitudes toward buprenorphine and methadone among opioid-dependent individualsAm J Addict200817539640118770082
  • StancliffSMyersJESteinerSDruckerEBeliefs about methadone in an inner-city methadone clinicJ Urban Health200279457157812468676
  • GuichardALertFBrodeurJMRichardLBuprenorphine substitution treatment in France: drug users’ views of the doctor-user relationshipSoc Sci Med200764122578259317442473
  • LillyRQuirkARhodesTStimsonGVJuggling multiple roles: staff and client perceptions of keyworker roles and the constraints on delivering counselling and support services in methadone treatmentAddict Res Theory199974267289
  • QuirkALillyRRhodesTStimsonGNegotiating a script: the dynamics of staff/client relationshipsToberGStrangJMethadone Matters: Evolving Community Methadone Treatment of Opiate AddictionLondonMartin Dunitz20033343
  • MaddenALeaTBathNWinstockARSatisfaction guaranteed? What clients on methadone and buprenorphine think about their treatmentDrug Alcohol Rev200827667167819378450
  • TrujolsJGarijoISiñolNdel PozoJPortellaMJPérez de los CobosJPatient satisfaction with methadone maintenance treatment: the relevance of participation in treatment and social functioningDrug Alcohol Depend20121231–3414722071121
  • BryantJSaxtonMMaddenABathNRobinsonSConsumers’ and providers’ perspectives about consumer participation in drug treatment services: is there support to do more? What are the obstacles?Drug Alcohol Rev200827213814418264873
  • FischerJNealeJInvolving drug users in treatment decisions: an exploration of potential problemsDrugs Educ Prev Policy2008152161175
  • March CerdáJCMartín-RuizEOviedo-JoekesERivadeneira SiciliaARodríguez ReinadoCPercepción de usuarios de los programas de tratamiento con metadona sobre la accesibilidad y atención recibida de los equipos terapéuticos [Methadone treatment programme users’ perception of the accessibility and care received from the therapeutic teams]Adicciones2006184359369 Spanish
  • Apantaku-OlajideTDucrayKByrnePSmythBPPerception of unmet needs and association with benzodiazepine misuse among patients on a methadone maintenance treatment programmePsychiatrist2012365169174
  • FountainJStrangJGriffithsPPowisBGossopMMeasuring met and unmet need of drug misusers: integration of quantitative and qualitative dataEur Addict Res2000629710310899736
  • Pérez de los CobosJFidelGEscuderGA satisfaction survey of opioid-dependent clients at methadone treatment centres in SpainDrug Alcohol Depend200473330731315036553
  • KellySMO‘GradyKEBrownBSMitchellSGSchwartzRPThe role of patient satisfaction in methadone treatmentAm J Drug Alcohol Abuse201036315015420465372
  • KellySMO‘GradyKEMitchellSGBrownBSSchwartzRPPredictors of methadone treatment retention from a multi-site study: a survival analysisDrug Alcohol Depend20111172–317017521310552
  • VillafrancaSWMcKellarJDTraftonJAHumphreysKPredictors of retention in methadone programs: a signal detection analysisDrug Alcohol Depend200683321822416384657
  • BellJQuality improvement for methadone maintenance treatmentSubst Use Misuse20003512–141735175611138706
  • McLellanATChalkMBartlettJOutcomes, performance, and quality: what’s the difference?J Subst Abuse Treat200732433134017481456
  • CasasMCallaoRCañellasJIndicadors de qualitat per a l’avaluació externa de centres d’atenció i seguiment en drogodependències [Quality indicators for an external evaluation of drug treatment services]BarcelonaDirecció General de Drogodependències i Sida del Departament de Sanitat i Seguretat Social de la Generalitat de Catalunya2001 Spanish
  • Substance Abuse and Mental Health Services AdministrationFederal guidelines for opioid treatment (Revision draft)Rockville, MDSubstance Abuse and Mental Health Services Administration2013 Available from: http://www.dpt.samhsa.gov/pdf/FederalGuidelinesforOpioidTreatment5-6-2013revisiondraft_508.pdfAccessed July 25, 2013
  • BallJCGraffHSheehanJJThe heroin addicts’ view of methadone maintenanceBr J Addict Alcohol Other Drugs197469189954532022
  • HuntGBarkerJCDrug treatment in contemporary anthropology and sociologyEur Addict Res19995312613210460976
  • MontagneMAppreciating the user’s perspective: listening to the “methadonians”Subst Use Misuse200237456557012064438
  • TrujolsJSalazarJISalazarILos usuarios de drogas como ciudadanos: Los programas de reducción de daños [Drug users as citizens: the harm reduction programmes]BecoñaERodríguezASalazarIDrogodependencias V. Avances [Drug dependence V Advances]Santiago de CompostelaUniversidad de Santiago de Compostela1999343378 Spanish
  • TreloarCFraserSValentineKValuing methadone takeaway doses: the contribution of service-user perspectives to policy and practiceDrugs Educ Prev Policy20071416174
  • CellaDYountSRothrockNPROMIS Cooperative GroupThe Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two yearsMed Care2007455 Suppl 1S3S1117443116
  • HiltonTFThe promise of PROMIS® for addictionDrug Alcohol Depend2011119322923422238781
  • PilkonisPAYuLColditzJItem banks for alcohol use from the Patient-Reported Outcomes Measurement Information System (PROMIS): use, consequences, and expectanciesDrug Alcohol Depend20131301–316717723206377
  • HellerDMcCoyKCunninghamCAn invisible barrier to integrating HIV primary care with harm reduction services: philosophical clashes between the harm reduction and medical modelsPublic Health Rep20041191323915147647
  • TreloarCHoltMDeficit models and divergent philosophies: service providers’ perspectives on barriers and incentives to drug treatmentDrugs Educ Prev Policy2006134367382
  • Australian Injecting and Illicit Drug Users LeagueTreatment service users project: Phase two final reportCanberraAustralian Injecting and Illicit Drug Users League2011 Available from: https://csrh.arts.unsw.edu.au/media/NCHSRFile/9_AIVL_TSU_Project_Phase_Two_Final_Report_2011.pdfAccessed July 25, 2013
  • BryantJSaxtonMMaddenABathNRobinsonSConsumer participation in the planning and delivery of drug treatment services: the current arrangementsDrug Alcohol Rev200827213013718264872
  • SchulteSMoringJMeierPSBarrowcloughCUser involvement and desired service developments in drug treatment: service user and provider viewsDrugs Educ Prev Policy2007143277287
  • SimpsonELHouseAOUser and carer involvement in mental health services: from rhetoric to scienceBr J Psychiatry20031832899112893657
  • MarsdenJNizzoliUCorbelliCNew European instruments for treatment outcome research: reliability of the maudsley addiction profile and treatment perceptions questionnaire in Italy, Spain and PortugalEur Addict Res20006311512211060475
  • MarsdenJStewartDGossopMAssessing client satisfaction with treatment for substance use problems and the development of the treatment perceptions questionnaire (TPQ)Addict Res Theory200085455470
  • BarryDTMooreBAPantalonMVPatient satisfaction with primary care office-based buprenorphine/naloxone treatmentJ Gen Intern Med200722224224517356993
  • de los CobosJValeroSHaroGDevelopment and psychometric properties of the Verona Service Satisfaction Scale for methadone-treated opioid-dependent patients (VSSS-MT)Drug Alcohol Depend200268220921412234650
  • MarkezIIraurgiIPóoMProgramas de mantenimiento con metadona en el País Vasco: dispositivos específicos y oficinas de farmacia [Methadone maintenance programs in the Basque Country: specific centers and pharmacy offices]Trastornos Adictivos200243171180 Spanish
  • ZhangZGersteinDRFriedmannPDPatient satisfaction and sustained outcomes of drug abuse treatmentJ Health Psychol200813338840018420772
  • KumarMRRajwalMSurvey of client satisfaction with methadone maintenance programmesPsychiatrist20063011618
  • StoneEFletcherKUser views on supervised methadone consumptionAddict Biol200381454812745415
  • FiellinDAO’ConnorPGChawarskiMPakesJPPantalonMVSchottenfeldRSMethadone maintenance in primary care: a randomized controlled trialJAMA2001286141724173111594897
  • DeeringDHornJFramptonCMClients’ perceptions of opioid substitution treatment: an input to improving the quality of treatmentInt J Ment Health Nurs201221433033922564199
  • KingVLKidorfMSStollerKBSchwartzRKolodnerKBroonerRKA 12-month controlled trial of methadone medical maintenance integrated into an adaptive treatment modelJ Subst Abuse Treat200631438539317084792
  • WardJThe Case of Community Methadone Treatment ProgramsWorld Health OrganizationWorkbook 6 Client Satisfaction EvaluationsGenèveWorld Health Organization20003238 Available from: http://www.emcdda.europa.eu/attachements.cfm/att_5868_EN_6_client_satisfaction_evaluations.pdfAccessed November 7, 2013
  • CrawfordMJKesselASNot listening to patients – the use and misuse of patient satisfaction studiesInt J Soc Psychiatry19994511610443244
  • FischerBChinATKuoIKirstMVlahovDCanadian illicit opiate users’ views on methadone and other opiate prescription treatment: an exploratory qualitative studySubst Use Misuse200237449552212064431
  • NealeJDrug users’ views of prescribed methadoneDrugs Educ Prev Policy1998513345
  • WilliamsBPatient satisfaction: a valid concept?Soc Sci Med19943845095168184314
  • AndrewSSalamonsonYEverettBHalcombEJDavidsonPMBeyond the ceiling effect: using a mixed methods approach to measure patient satisfactionInt J Mult Res Approaches2011515263
  • SofaerSFirmingerKPatient perceptions of the quality of health servicesAnn Rev Public Health20052651355915760300
  • CollinsKNicolsonPThe meaning of ‘satisfaction’ for people with dermatological problems: reassessing approaches to qualitative health psychology researchJ Health Psychol20027561562922113145
  • EdwardsCStaniszewskaSAccessing the user’s perspectiveHealth Soc Care Community20008641742411560712
  • TrujolsJSiñolNde los CobosJPMethadone maintenance treatment: the need to distinguish between holding dose, dose adequacy, satisfaction with methadone as a medication, and satisfaction with treatmentJ Clin Psychopharmacol2010301959620075667
  • TrujolsJIraurgiISiñolNPortellaMJPérezVPérez de los CobosJSatisfaction with methadone as a medication: psychometric properties of the Spanish version of the treatment satisfaction questionnaire for medicationJ Clin Psychopharmacol2012321697422198457
  • BathNMaddenAWhen you can’t see the wood for the trees: what does drug treatment consumer satisfaction really tell us?Psychol Subst Use Newsl20066235 Available from: http://www.groups.psychology.org.au/Assets/Files/psu_newsletter_july2006.pdfAccessed November 27, 2013
  • DawsonRSprossJAJablonskiESHoyerDRSellersDESolomonMZProbing the paradox of patients’ satisfaction with inadequate pain managementJ Pain Symptom Manage200223321122011888719
  • WilliamsBCoyleJHealyDThe meaning of patient satisfaction: an explanation of high reported levelsSoc Sci Med1998479135113599783878
  • EdwardsCStaniszewskaSCrichtonNInvestigation of the ways in which patients’ reports of their satisfaction with health care are constructedSociol Health Illn200426215918315027983
  • AvisMIncorporating patients’ voices in the audit processQual Health Care199762869110173261
  • BartuAClient satisfaction: why bother?J Subst Use1996112026
  • HarrisonSMortMWhich champions, which people? Public and user involvement in health care as a technology of legitimationSoc Policy Adm19983216070
  • HodgeSParticipation, discourse and power: a case study in service user involvementCrit Soc Policy2005252164179
  • AttkissonCCGreenfieldTKThe UCSF client satisfaction scales: I. The client satisfaction questionnaire-8MaruishMEThe Use of Psychological Testing for Treatment Planning and Outcomes Assessment2nd edMahwah, NJLawrence Erlbaum199913331346
  • HudakPLWrightJGThe characteristics of patient satisfaction measuresSpine (Phila Pa 1976)200025243167317711124733
  • RuggeriMLasalviaADall’AgnolaRDevelopment, internal consistency and reliability of the Verona Service Satisfaction Scale – European Version. EPSILON Study 7. European Psychiatric Services: inputs linked to outcome domains and needsBr J Psychiatry Suppl200039s41s4810945077
  • WeaverMPatrickDLMarksonLEMartinDFredericIBergerMIssues in the measurement of satisfaction with treatmentAm J Manag Care19973457959410169526
  • BrusterSSeeking the views of consumers using quantitative measures: patient experience surveysBurrJNicolsonPResearching Health Care Consumers: Critical ApproachesBasingstokePalgrave Macmillan20055570
  • ClearyPDEdgman-LevitanSHealth care quality. Incorporating consumer perspectivesJAMA199727819160816129370508
  • BlankertzLHazemDAssessing consumer program needs: advantages of a brief unstructured formatCommunity Ment Health J200238427728612166915
  • EisenSVPatient satisfaction and perceptions of careIsHakWWBurtTSedererLIOutcome Measurement in Psychiatry: A Critical ReviewWashington, DCAmerican Psychiatric Publishing2002303320
  • FitzpatrickRCapturing what matters to patients when they evaluate their hospital careQual Saf Health Care200211430612468687
  • JenkinsonCCoulterABrusterSThe Picker patient experience questionnaire: development and validation using data from in-patient surveys in five countriesInt J Qual Health Care200214535335812389801
  • LarsenDLAttkissonCCHargreavesWANguyenTDAssessment of client/patient satisfaction: development of a general scaleEval Program Plann19792319720710245370
  • ReisingerHSSchwartzRPMitchellSGPremature discharge from methadone treatment: patient perspectivesJ Psychoactive Drugs200941328529619999682
  • MazorKMClauserBEFieldTYoodRAGurwitzJHA demonstration of the impact of response bias on the results of patient satisfaction surveysHealth Serv Res20023751403141712479503
  • PernegerTVChamotEBovierPANonresponse bias in a survey of patient perceptions of hospital careMed Care200543437438015778640
  • SitziaJWoodNResponse rate in patient satisfaction research: an analysis of 210 published studiesInt J Qual Health Care19981043113179835247
  • StuderJBaggioSMohler-KuoMExamining non-response bias in substance use research – are late respondents proxies for non-respondents?Drug Alcohol Depend20131321–231632323535061
  • GillespieRManufacturing Knowledge: A History of the Hawthorne ExperimentsCambridgeCambridge University Press1991
  • SitziaJWoodNPatient satisfaction: a review of issues and conceptsSoc Sci Med19974512182918439447632
  • SprangersMASchwartzCEIntegrating response shift into health-related quality of life research: a theoretical modelSoc Sci Med199948111507151510400253
  • WilsonIBClinical understanding and clinical implications of response shiftSoc Sci Med199948111577158810400258
  • Villar LópezJLizán TudelaLSoto AlvarezJPeiró MorenoSLa satisfacción con el tratamiento [Treatment satisfaction]Aten Primaria20094111637645 Spanish19660842
  • MetrebianNQuirkAStimsonGVA model of consumer audit in substance misuse servicesJ Subst Use199724222227
  • SixmaHJKerssensJJCampenCVPetersLQuality of care from the patients’ perspective: from theoretical concept to a new measuring instrumentHealth Expect199812829511281863
  • ClarkCCScottEABoydellKMGoeringPEffects of client interviewers on client-reported satisfaction with mental health servicesPsychiatr Serv199950796196310402622
  • CoulterAAfter Bristol: putting patients at the centreQual Saf Health Care200211218618812469698
  • TrujolsJPortellaMJNot all PROMs reflect patients’ perspectivesBMJ2013346f155223512449
  • HagellPReimerJNybergPWhose quality of life? Ethical implications in patient-reported health outcome measurementValue Health200912461361719900259
  • PatersonCSeeking the patient’s perspective: a qualitative assessment of EuroQol, COOP-WONCA charts and MYMOPQual Life Res200413587188115233501
  • FraserJMethadone clinic culture: the everyday realities of female methadone clientsQual Health Res199771121139
  • KolindTForm or content: the application of user perspectives in treatment researchDrugs Educ Prev Policy2007143261275
  • FraserSValentineKSubstance and Substitution: Methadone Subjects in Liberal SocietiesBasingstokePalgrave Macmillan2008
  • FriedmanJAliceaMSurviving Heroin: Interviews With Women in Methadone ClinicsGainesville, FLUniversity Press of Florida2001
  • GourlayJRicciardelliLRidgeDUsers’ experiences of heroin and methadone treatmentSubst Use Misuse200540121875188216419562
  • GómezJLatorreASánchezMFlechaRMetodología Comunicativa Crítica [Critical Communicative Methodology]BarcelonaEl Roure2006 Spanish
  • GómezAPuigvertLFlechaRCritical communicative methodology: informing real social transformation through researchQual Inquiry2011173235245
  • SordéTOjalaMActos comunicativos dialógicos y actos comunicativos de poder en la investigación [Dialogic communicative acts and communicative acts of power in research]Rev Signos201043Suppl 2377391 Spanish
  • ElbeckMPatient contribution to the design and meaning of patient satisfaction for quality assurance purposes: the psychiatric caseHealth Care Manage Rev199217191951548125
  • Lozano RojasOMBilbao AcedosIGonzález SaizFBallesta GómezRDimensiones emergentes para la creación de una escala de percepción del tratamiento con sustitutivos opiáceos [Emergent dimensions for the construction of an opiate substitute treatment perception scale]Adicciones20082011926 Spanish18299778
  • TrujolsJPortellaMJIraurgiICampinsMJSiñolNde los CobosJPPatient-reported outcome measures: are they patient-generated, patient-centred or patient-valued?J Ment Health201322655556223323928
  • MiraJJSatisfecho, sí gracias... pero ahora qué? [Satisfied, yes thanks … but now what?]Rev Calidad Asistencial2003187567569 Spanish
  • ArnsteinSRA ladder of citizen participationJ Am Inst Plann1969354216224
  • FriedmanSRNeaigusAClattsMMyths about competence: “Drug users are not competent, public health agencies are”Paper presented at: 8th International Conference on the Reduction of Drug Related HarmMarch 1997Paris, France
  • KerrTSmallWPeeaceWDouglasDPierreAWoodEHarm reduction by a “user-run” organization: a case study of the Vancouver Area Network of Drug Users (VANDU)Int J Drug Policy20061726169
  • WoodEKerrTSpittalPMAn external evaluation of a peer-run “unsanctioned” syringe exchange programJ Urban Health200380345546412930883
  • AranaXGermánIDelimitación del Status Jurídico del Ciudadano ‘Consumidor de Drogas’. Propuesta de Carta de Derechos de los Usuarios de Drogas [Delimiting the Legal Status of the Drug-User Citizen. Proposal of a Drug Users’ Bill of Rights]VitoriaDirección de Drogodependencias del Gobierno Vasco2004 Spanish
  • HamiltonSDale-PereraAEfthimiou-MordauntAFryMGetting Drug Users Involved: Good Practice in Local Treatment and PlanningLondonStanding Conference on Drug Abuse1997 Available from: http://www.drugscope.org.uk/Resources/Drugscope/Documents/PDF/Good%20Practice/Gettinginvolved.pdfAccessed July 25, 2013
  • CouplandHMaherLEnriquezJClients or colleagues? Reflections on the process of participatory action research with young injecting drug usersInt J Drug Policy2005163191198
  • SingerMWhy is it easier to get drugs than drug treatment in the United States?CastroASingerMUnhealthy Health Policy: A Critical Anthropological ExaminationWalnut Creek, CAAltaMira Press2004287301
  • CollinsJAFauserBCBalancing the strengths of systematic and narrative reviewsHum Reprod Update200511210310415618290
  • PrilleltenskyIPrólogo. Validez psicopolítica: el próximo reto de la psicología comunitaria [Foreword. Psychopolitical validity: the next challenge for community psychology]MonteroMIntroducción a la Psicología Comunitaria: Desarrollo, Conceptos y Procesos [Introduction to Community Psychology: Development, Concepts and Processes]Buenos AiresPaidós2004518 Spanish
  • PrilleltenskyIPrilleltenskyOVoorheesCPsychopolitical validity in the helping professions: applications to research, interventions, case conceptualization, and therapyCohenCITimimiSLiberatory Psychiatry: Philosophy, Politics, and Mental HealthCambridgeCambridge University Press2008105130
  • TrujolsJDispositivos, intervenciones y dinámica asistencial: La perspectiva de los usuarios [Substance abuse facilities, interventions and the dynamics of healthcare: The user perspective]Pérezde los Cobos JCValderramaJCCerveraGRubioGTratado SET de trastornos adictivos [SET Handbook of Addictive Disorders]MadridMédica Panamericana2006463467 Spanish