Do parents of children with attention-deficit/hyperactivity disorder (ADHD) receive adequate information about the disorder and its treatments? A qualitative investigation

References

• CuratoloPD’AgatiEMoaveroRThe neurobiological basis of ADHDItal J Pediatr20103617921176172
   PubMed Web of Science ®Google Scholar
• BraatenEBRosénLASelf-regulation of affect in attention deficit-hyperactivity disorder (ADHD) and non-ADHD boys: differences in empathic respondingJ Consult Clinl Psych2000682313321
   PubMed Web of Science ®Google Scholar
• DaleyDBirchwoodJADHD and academic performance: why does ADHD impact on academic performance and what can be done to support ADHD children in the classroom?Child Care Health Dev200936445546420074251
   PubMed Web of Science ®Google Scholar
• American Psychiatric AssociationDiagnostic and statistical manual of mental disorders, Fourth Edition, Text RevisionWashington, DCAmerican Psychiatric Association2000
   Google Scholar
• PoldermanTJCBoomsmaDIBartelsMVerhulstFCHuizinkACA systematic review of prospective studies on attention problems and academic achievementActa Psychiatr Scand201012227128420491715
   PubMed Web of Science ®Google Scholar
• RowlesBMFindlingRLReview of pharmacotherapy options for the treatment of attention-deficit/hyperactivity disorder (ADHD) and ADHD-like symptoms in children and adolescents with developmental disordersDev Disabil Res Rev20101627328220981766
   PubMed Web of Science ®Google Scholar
• LienMTCarlsonJSHunter-OehmkeSKnappKAA pilot investigation of teachers’ perceptions of psychotropic drug use in schoolsJ Attention Disord2007112172178
   Google Scholar
• CulpepperLPrimary care treatment of attention-deficit/hyperactivity disorderJ Clin Psychiat200667Suppl 85158
   PubMed Web of Science ®Google Scholar
• DeNiscoSTiagoCKravitzCEvaluation and treatment of pediatric ADHDNurse Pract2005308142316094198
   PubMedGoogle Scholar
• SawyerMGWhaitesLReyJMHazellPLGraetzBWBaghurstPHealth related quality of life of children and adolescents with mental disordersJ Am Acad Child Adolesc Psychiatry200241553053712014785
   PubMed Web of Science ®Google Scholar
• SalmeronPAChildhood and adolescent attention-deficit hyperactivity disorder: diagnosis, clinical practice guidelines and social implicationsJ Am Acad Nurse Pract20082148849719845806
   PubMed Web of Science ®Google Scholar
• BarkleyRAAttention Deficit Hyperactivity Disorder: A Handbook for Diagnosis and TreatmentNew YorkGuildford Press1990
   Google Scholar
• KnutsonKCO’MalleyMAdult attention-deficit/hyperactivity disorder: a survey of diagnosis and treatment practicesJ Am Acad Nurse Pract20092259360121054633
   PubMed Web of Science ®Google Scholar
• MurrayDWTreatment of preschoolers with attention-deficit/hyperactivity disorderCurr Psychiatry Rep20101237438120676944
   PubMed Web of Science ®Google Scholar
• FaraoneSVBiedermanJSpencerTJAleardiMComparing the efficacy of medications for ADHD using meta-analysisMed Gen Med2006844
   PubMedGoogle Scholar
• WigalSBChaeSPatelASteinberg-EpsteinRAdvances in the treatment of attention-deficit/hyperactivity disorder: a guide for pediatric neurologistsSemin Pediatr Neurol20101723023621183129
   PubMed Web of Science ®Google Scholar
• JadadARBookerLGauldMThe treatment of attention-deficit hyperactivity disorder: An annotated bibliography and critical appraisal of published systematic reviews and metaanalysesCan J Psychiat1999441010251035
   Web of Science ®Google Scholar
• KaplanGNewcornJHPharmacotherapy for child and adolescent attention-deficit hyperactivity disorderPediatr Clin North Am2011589912021281851
   PubMed Web of Science ®Google Scholar
• Singer-LeshinskySAttention-deficit/hyperactivity disorder: helping families to achieve successJAAPA2011243525721434500
   PubMedGoogle Scholar
• BussingRGaryFAPractice guidelines and parental ADHD treatment evaluations: friends or foes?Harvard Rev Psychiat20019223233
   PubMed Web of Science ®Google Scholar
• DaleyDAttention deficit hyperactivity disorder: a review of the essential factsChild Care Health Dev200632219320416441854
   PubMed Web of Science ®Google Scholar
• OlaniyanOdosReisSGarriettVCommunity perspectives of childhood behavioral problems and ADHD among African American parentsAmbul Pediatr20077322623117512883
   PubMedGoogle Scholar
• PetersKJacksonDMothers’ experiences of parenting a child with attention deficit hyperactivity disorderJ Adv Nurs2009651627119120583
   PubMed Web of Science ®Google Scholar
• AhmedRMcCafferyKJAslaniPFactors influencing parental decision-making about stimulant treatment for attention deficit hyperactivity disorderJ Child Adolesc Psychopharmacol201323316317823560602
   PubMed Web of Science ®Google Scholar
• McGuinnessTMHelping parents decide on ADHD treatment for their childrenJ Psychosoc Nurs Ment Health Serv2008468232718777965
   PubMed Web of Science ®Google Scholar
• SloperPService needs of families of children with severe physical disabilityChild Care Health Dev1992182592821394855
   PubMed Web of Science ®Google Scholar
• StarkeMMöllerAParents’ needs for knowledge concerning the medical diagnosis of their childrenJ Child Health Care20026424525712503895
   PubMedGoogle Scholar
• DaviesSHallD“Contact a family”: professionals and parents in partnershipArch Dis Child2005901053105716177162
   PubMed Web of Science ®Google Scholar
• HummelinckAPollockKParents’ information needs about the treatment of their chronically ill child: a qualitative studyPatient Educ Couns200662222823416139981
   PubMed Web of Science ®Google Scholar
• SciberrasEIyerSEfronDGreenJInformation needs of parents of children with attention-deficit/hyperactivity disorderClin Pediatr2010492150157
   Web of Science ®Google Scholar
• MortonRLTongAHowardKSnellingPWebsterACThe views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studiesBMJ2010340c11220085970
   PubMed Web of Science ®Google Scholar
• AhmedRBorstJWeiYCAslaniPParents’ perspectives about factors influencing adherence to pharmacotherapy for ADHDJ Atten DisordEpub 8302013
   Google Scholar
• CameronJFocusing on the focus groupHayIQualitative Research Methods in Human GeographyMelbourneOxford University Press2005156182
   Google Scholar
• McLeodJDFettesDLJensenPSPescosolidoBAMartinJKPublic knowledge, beliefs, and treatment preferences concerning attention-deficit hyperactivity disorderPsych Serv2007585626631
   PubMed Web of Science ®Google Scholar
• SummersJACaplanPJLaypeople’s attitudes toward drug treatment for behavioural control depend on which disorder and which drugClin Pediatr198726258263
   PubMed Web of Science ®Google Scholar
• FisherHRThe needs of parents with chronically sick children: a literature reviewJ Adv Nurs200136460060711703555
   PubMed Web of Science ®Google Scholar
• CoulterAEntwistleVGilbertDSharing decisions with patients: is the information good enough?BMJ19993183183229924064
   PubMed Web of Science ®Google Scholar
• McConkeyRInformation needs of parents about learning disabilitiesJ Learn Disabil20037211219
   Google Scholar
• PainHCoping with a child with disabilities from the parents’ perspective: the function of informationChild Care Health Dev199925429931210399034
   PubMed Web of Science ®Google Scholar
• CaminitiCDiodatiFFilibertiSCross-cultural adaptation and patients’ judgments of a question prompt list for Italian-speaking cancer patientsBMC Health Serv Res2010101620078873
   PubMed Web of Science ®Google Scholar
• DimoskaATattersallMHNButowPNShepherdHKinnersleyPCan a “prompt list” empower cancer patients to ask relevant questions?Cancer2008113222523718484592
   PubMed Web of Science ®Google Scholar
• ClaytonJButowPTattersallMAsking questions can help: development and preliminary evaluation of a question prompt list for palliative care patientsBr J Cancer2003892069207714647140
   PubMed Web of Science ®Google Scholar
• ClaytonJMButowPNTattersallMHNRandomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end of life careJ Clin Oncol200725671572317308275
   PubMed Web of Science ®Google Scholar
• SpiegleGAl-SukhniESchmockerSPatient decision aids for cancer treatment: are there any alternatives?Cancer2013119118920022811383
   PubMed Web of Science ®Google Scholar
• BennetDSPowerTJRostainALCarrDEParent acceptability and feasibility of ADHD interventions: assessment, correlates and predictive validityJ Pediatr Psychol19962156436578936894
   PubMed Web of Science ®Google Scholar
• PowellRASingleHMFocus groupsInt J Qual Health Care1996854995049117204
   PubMed Web of Science ®Google Scholar
• GiacominiMKCookDJUsers’ guides to the medical literature: XXIII. Qualitative research in healthcare A: are the results of the study valid? Evidence-Based Medicine Working GroupJ Am Med Assoc2000248357362
   Web of Science ®Google Scholar
• AhmedRAslaniPAttention-deficit/hyperactivity disorder: an update on medication adherence and persistence in children, adolescents and adultsExpert Rev Pharmacoecon Outcomes Res201313679181524219052
   PubMed Web of Science ®Google Scholar