The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit’s model

References

• INVOLVEINVOLVE Strategy 2012–2015: Putting people first in researchLondonNational Institute for Health Research2012 Available from: http://www.invo.org.uk/wp-content/uploads/2012/04/INVOLVEStrategy2012-15.pdfAccessed March 2014
   Google Scholar
• Involving People. About Us Available from: http://www.wales.nhs.uk/sites3/page.cfm?orgid=1023&pid=59258Accessed March 2014
   Google Scholar
• MorrowEBoazABrearleySHandbook of Service User Involvement in Nursing and Healthcare ResearchChichesterWiley-Blackwell2011
   Google Scholar
• Department of HealthResearch governance framework for health and social care2nd edLondonDepartment of Health2005 Available from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/139565/dh_4122427.pdfAccessed July 2014
   Google Scholar
• Welsh Assembly GovernmentResearch Governance Framework for Health and Social Care in Wales2nd edCardiff, United KingdomWales Office of Research and Development for Health and Social Care Available from: http://www.wales.nhs.uk/sites3/documents/952/Research%20Governance%20Framework%202009%20(English)1.pdfAccessed July 2014
   Google Scholar
• House of Commons Health CommitteePatient and Public Involvement in the NHSLondonThe Stationary Office2007
   Google Scholar
• United Kingdom. National Health Service Act 2006 Available from: http://www.legislation.gov.uk/ukpga/2006/41/contentsAccessed July 2014
   Google Scholar
• Department of HealthEquity and Excellence: Liberating the NHSLondonDepartment of Health2010 Available from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/213823/dh_117794.pdfAccessed July 2014
   Google Scholar
• TorranceCWilsonCConsumer, user and carer involvement in health and social care [editorial]Int J Consum Stud2010345493494
   Web of Science ®Google Scholar
• BeresfordPThe theory and philosophy behind user involvementBeresfordPCarrSSocial Care, Service Users and User InvolvementLondonJessica Kingsley Publishers20122136
   Google Scholar
• CroftSBeresfordPThe politics of participationTaylorDCritical Social Policy: A ReaderLondonSage1996175198
   Google Scholar
• BooteJTelfordRCooperCConsumer involvement in health research: a review and research agendaHealth Policy200261221323612088893
   PubMed Web of Science ®Google Scholar
• MacaulayACCommandaLEFreemanWLNorth American Primary Care Research GroupParticipatory research maximises community and lay involvementBMJ1999319721277477810488012
   PubMed Web of Science ®Google Scholar
• BooteJBairdWSuttonAPublic involvement in the systematic review process in health and social care: a narrative review of case examplesHealth Policy20111022–310511621641075
   PubMed Web of Science ®Google Scholar
• International Collaboration for Participatory Health Research Available from: http://www.icphr.org/Accessed July 2014
   Google Scholar
• INVOLVEBriefing note eight: Ways that people can be involved in the research cycle Available from: http://www.invo.org.uk/posttyperesource/where-and-how-to-involve-in-the-research-cycle/Accessed April 2013
   Google Scholar
• TischlerVD’SilvaKCheethamAGoringMCaltonTInvolving patients in research: the challenge of patient-centrednessInt J Soc Psychiatry201056662363319734181
   PubMed Web of Science ®Google Scholar
• BarberRBeresfordPBooteJCooperCFaulknerAEvaluating the impact of service user involvement on research: a prospective case studyInt J Consum Stud2011356609615
   Web of Science ®Google Scholar
• SmithEDonovanSBeresfordPGetting ready for user involvement in a systematic reviewHealth Expect200912219720819236632
   PubMed Web of Science ®Google Scholar
• WilsonCFothergillAReesHA potential model for the first all Wales mental health service user and carer-led research groupJ Psychiatr Ment Health Nurs2010171313820100304
   PubMed Web of Science ®Google Scholar
• MorrowERossFGrocottPBennettJA model and measure for quality service user involvement in health researchInt J Consum Stud2010345532539
   Web of Science ®Google Scholar
• INVOLVEPeople and participation: How to put citizens at the heart of decision making Available from: http://www.involve.org.uk/wpcontent/uploads/2011/03/People-and-Participation.pdfAccessed July 2014
   Google Scholar
• CotterellPHarlowGMorrisCService user involvement in cancer care: the impact on service usersHealth Expect201114215916921029279
   PubMed Web of Science ®Google Scholar
• BrettJStaniszewskaSMockfordCMapping the impact of patient and public involvement on health and social care research: a systematic reviewHealth Expect Epub1972012
   Web of Science ®Google Scholar
• PorteousCReaDInvolving People/Cynnwys Pobl: an internal evaluation of infrastructure support for active involvement in health and social care research in WalesCardiffInvolving People/Cynnwys Pobl2009
   Google Scholar
• Cancer Research UKCancer Research UK’s Research Strategy 2009/10–2013/14LondonCancer Research UK2008 Available from: http://www.cancerresearchuk.org/prod_consump/groups/cr_common/@fre/@gen/documents/generalcontent/research-strategy-dnld-version.pdfAccessed July 2014
   Google Scholar
• National Cancer Research InstituteInvolving patients and the public in research Available from: http://www.ncri.org.uk/default.asp?s=1&p=112013 Accessed
   Google Scholar
• NelsonAByrneAGriffithsGValuing patient experience in the Wales Cancer Trials Unit: an action research project of credible patient involvementMarie Curie Cancer Care Annual Research ConferenceLondon2009
   Google Scholar
• WoodwardAFitzgibbonJNelsonAPublic and patient involvement: experiences of a Registered Research Group and a Trials UnitInvolving People Annual MeetingFebruary 2011Swansea, UK
   Google Scholar
• FitzgibbonJSimonNNelsonAResearch Partner Coordinator at the Wales Cancer Trials Unit: A cuckoo in the nest?INVOLVE 2012 Conference: Putting people first in researchNovember 2012Nottingham, UK
   Google Scholar
• ValeCFitzgibbonJHanleyBPublic involvement in clinical trials: Supplement to the briefing notes for researchersEastleigh, United KingdomINVOLVE2012 Available from: http://www.invo.org.uk/wp-content/uploads/2012/04/INVOLVEpublicinvolvementinclinicaltrialsBriefingnotes2012.pdfAccessed March 2012
   Google Scholar
• NealRHurtCRobertsKThe ELCID Trial: A feasibility randomised control trial looking at the effect on lung cancer diagnosis of giving a Chest X-Ray to smokers aged over 60 with new chest symptomsNational Awareness and Early Diagnosis Initiative Research ConferenceCambridge Research Institute, UK2013
   Google Scholar
• SmithJDBaillieJBaglinTA feasibility study to inform the design of a randomized controlled trial to identify the most clinically and cost effective anticoagulation length with low molecular weight heparin in the treatment of cancer associated thrombosis (ALICAT): study protocol for a mixed-methods studyTrials201415112224726032
   PubMed Web of Science ®Google Scholar
• Trial Forge. Trial Forge: a systematic approach to making trials more efficient Available from: http://nebula.wsimg.com/dc736e8283c135ddb0e4f76bad683e62?AccessKeyId=FFE129220DD76BFA83F4&disposition=0&alloworigin=1Accessed July 2014
   Google Scholar
• BarberRBooteJDParryGDCooperCLYeelesPCookSCan the impact of public involvement on research be evaluated? A mixed methods studyHealth Expect201215322924121324054
   PubMed Web of Science ®Google Scholar