125
Views
3
CrossRef citations to date
0
Altmetric
Original Research

More than what the eye can see: the emotional journey and experience of powerlessness of integrated care service users and their carers

, , &
Pages 529-540 | Published online: 30 Mar 2015

References

  • GuilhotFCoombsJSzczudloTThe patient journey in chronic myeloid leukemia patients on tyrosine kinase inhibitor therapies: qualitative insights using a global ethnographic approachPatient201362819223529848
  • ZimmermannM‘Journeys’ in the life-writing of adult-child dementia caregiversJ Med Humanit201334338539723728880
  • HassonFKernohanWGMcLaughlinMLiving and coping with Parkinson’s disease: perceptions of informal carersPalliate Med2010247731736
  • KotronoulasGWengstromYKearneyNInformal carers: a focus on the real caregivers of people with cancerForum Clin Oncol2012335865
  • McLaughlinDHassonFKernohanWGLiving and coping with Parkinson’s disease: perceptions of informal carersPalliat Med201025217718220952448
  • AujoulatILuminetODeccacheAThe perspective of patients on their experience of powerlessnessQual Health Res200717677278417582020
  • FreirePEducation for Critical ConsciousnessNew YorkSeabury1973
  • O’CathainAGoodeJLuffDStranglemanTHanlonGGreatbatchDDoes NHS Direct empower patients?Soc Sci Med20056181761177115894416
  • FarrelCGilbertHHealthcare Partnerships Debates and Strategies for Increasing Patient Involvement in Healthcare and Health ServicesLondonKing’s Fund1996
  • Department of HealthCreating a Patient-Led NHS: Delivering the NHS Improvement PlanLondonDH2004
  • Department of HealthEquity and Excellence: Liberating the NHSLondonDH2010
  • World Health OrganizationOttawa Charter for Health Promotion: The Move Towards a New Public HealthOttawaWHO1986
  • World Health OrganizationThe Jakarta Declaration on Leading Health Promotion into the 21st CenturyJakartaWHO1997
  • AnderssonETritterJWilsonRHealthy Democracy: The Future of Involvement in Health and Social CareLondonInvolve and NHS National Centre for Involvement2007
  • The King’s FundAbout the EBCD toolkit2010 Available from: www.kingsfund.org.uk/projects/point-care/ebcd/about-ebcd-toolkitAccessed July 21, 2013
  • NHS Institute for Innovation and ImprovementExperienced Based DesignLondonNHSIII2011
  • ReasonPBradburyHHandbook of Action Research2nd edLondonSage2007
  • BoyatzisRETransforming Qualitative Information: Thematic Analysis and Code DevelopmentLondonSage1998
  • BraunVClarkeVUsing thematic analysis in psychologyQual Res Psychol20063277101
  • HawKHadfieldMVideo in Social Science ResearchLondonRoutledge2011
  • BanksMVisual research methods1995 Available from: http://sru.soc.surrey.ac.uk/SRU11/SRU11.htmlAccessed January 20, 2015
  • BanksMVisual research methodsMillerRLBrewerJDThe A–Z of Social ResearchLondonSage2003
  • MasonJQualitative ResearchingLondonSage2002
  • HarrisonBSeeing health and illness worlds – using visual methodologies in a sociology of health and illness: a methodological reviewSociol Health Illn2002246856872
  • The BSA Visual Sociology Study GroupWhat is visual sociology?2010 Available from: http://www.visualsociology.org.uk/whatis/index.phpAccessed November 5, 2010
  • PinkSDoing Visual EthnographyLondonSage2007
  • SheridanNFKenealyTWKiddJDPatients’ engagement in primary care: powerlessness and compounding jeopardy. A qualitative studyHealth Expect2015181324323033910
  • RobertsSJEmpowering older women: strategies to enhance their health and health careJ Obstet Gynecol Neonatal Nurs2004335664670
  • LyttleDJRyanAFactors influencing older patients’ participation in care: a review of the literatureInt J Older People Nurs20105427428221083806